Åsa Burström
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View article: The experience of pregnancy for women with congenital heart disease: a qualitative study of women in Sweden
The experience of pregnancy for women with congenital heart disease: a qualitative study of women in Sweden Open
Aims An increasing number of women with congenital heart disease (CHD) reach childbearing age. These women have a higher occurrence of cardiac events, such as heart failure and arrhythmia, than women without CHD. We aimed to illuminate wom…
View article: -“Not just about the pump” - Providing Sexual- and Reproductive Health information to adolescents with heart disease
-“Not just about the pump” - Providing Sexual- and Reproductive Health information to adolescents with heart disease Open
Purpose More adolescents with congenital heart disease (CHD) are reaching adulthood and reproductive age. They face challenges transitioning from pediatric to adult health care and need to manage their health and developmental goals. The 2…
View article: Correction: The longitudinal association between patient empowerment and patient-reported outcomes: What is the direction of effect?
Correction: The longitudinal association between patient empowerment and patient-reported outcomes: What is the direction of effect? Open
[This corrects the article DOI: 10.1371/journal.pone.0277267.].
View article: Home monitoring of fetal heart rhythm: Lived experiences of women with anti-SSA/Ro52 autoantibodies and their co-parents
Home monitoring of fetal heart rhythm: Lived experiences of women with anti-SSA/Ro52 autoantibodies and their co-parents Open
Objective The aim of this study was to explore the parents’ experiences of home monitoring of the fetal heart rhythm. Women with anti-SSA/Ro52 autoantibodies carry a 2%–3% risk of giving birth to a child with congenital heart block (CHB), …
View article: Young adults' perception of transition from paediatric to adult care
Young adults' perception of transition from paediatric to adult care Open
Aim Medical advancements will lead to more children with long‐term illnesses and/or disabilities undergoing the transition to adult care. Previous studies show that many young adults are unprepared for this transition, and might suffer fro…
View article: Symptoms during pregnancy in primiparous women with congenital heart disease
Symptoms during pregnancy in primiparous women with congenital heart disease Open
Background: As more women with congenital heart disease (CHD) are reaching childbearing age, it becomes more common for their symptoms to be evaluated during pregnancy. However, pregnancy-related symptoms are similar to those caused by hea…
View article: The longitudinal association between patient empowerment and patient-reported outcomes: What is the direction of effect?
The longitudinal association between patient empowerment and patient-reported outcomes: What is the direction of effect? Open
Background Theoretical literature and cross-sectional studies suggest empowerment is associated with other patient-reported outcomes (PROs). However, it is not known if patient empowerment is leading to improvements in other PROs or vice v…
View article: The STEPSTONES transition program for adolescents with congenital heart disease is effective in improving patient empowerment: a randomized controlled trial
The STEPSTONES transition program for adolescents with congenital heart disease is effective in improving patient empowerment: a randomized controlled trial Open
Background Congenital heart disease (CHD) is the most common birth defect, with a global birth prevalence of 8.2 per 1000 new-borns. Improvements in the diagnosis and treatment of children with CHD have resulted in increasing life prospect…
View article: Adolescents With Congenital Heart Disease
Adolescents With Congenital Heart Disease Open
Background Studies show that adolescents with congenital heart disease (CHD) lack knowledge about reproductive health in relation to their CHD. Objective The aims were to investigate (i) the proportion of adolescents with CHD receiving inf…
View article: Ready for Transfer to Adult Care? A Triadic Evaluation of Transition Readiness in Adolescents With Congenital Heart Disease and Their Parents
Ready for Transfer to Adult Care? A Triadic Evaluation of Transition Readiness in Adolescents With Congenital Heart Disease and Their Parents Open
Transfer to adult care for adolescents with chronic conditions ought to be determined by transition readiness. The aims of this study were (a) to describe the level of readiness for transition in adolescents with congenital heart disease, …
View article: Parental uncertainty about transferring their adolescent with congenital heart disease to adult care
Parental uncertainty about transferring their adolescent with congenital heart disease to adult care Open
Aims To study parent's levels of uncertainty related to the transfer from pediatric to adult care in adolescents with congenital heart disease ( CHD ) and to identify potentially correlating factors. Background Parents acknowledge that dur…
View article: Transition from child healthcare to adult healthcare for adolescents with congenital heart disease
Transition from child healthcare to adult healthcare for adolescents with congenital heart disease Open
The life-prospects for adolescents with congenital heart disease (CHD) have improved, and today more than 90% survive to adulthood and need to continue their care into adulthood. During adolescence, the adolescents needs to step by step ta…
View article: P1517Level of empowerment and its correlates in young persons with congenital heart disease
P1517Level of empowerment and its correlates in young persons with congenital heart disease Open
Lipids / Hear disease, environmental, cultural, occupational factors 315 odds of LDL-C goal attainment (OR 1.010, 95% CI 1.007-1.013),and diabetes was a strong predictor of goal attainment (OR 1.70, 95% CI 1.51-1.92). Conclusion:In the CHD…