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View article: Physical Activity Awareness and Understanding of Treatment Protection Among People With Haemophilia and Their Caregivers in Central Europe
Physical Activity Awareness and Understanding of Treatment Protection Among People With Haemophilia and Their Caregivers in Central Europe Open
Background Physical activity is now considered generally beneficial for persons with haemophilia (PWH). However, the specific type and extent of activity and its impact on quality of life (QoL) and bleed protection during exercise is under…
View article: P1630: A 2022 CROSS-NATIONAL SURVEY OF PEOPLE LIVING WITH HAEMOPHILIA DURING THE COVID-19 PANDEMIC: VIEWS ON VACCINATION- AND INFECTION-RELATED RISKS
P1630: A 2022 CROSS-NATIONAL SURVEY OF PEOPLE LIVING WITH HAEMOPHILIA DURING THE COVID-19 PANDEMIC: VIEWS ON VACCINATION- AND INFECTION-RELATED RISKS Open
Topic: 33. Bleeding disorders (congenital and acquired) Background: The Liberate Life® project aims to provide support and information to patients with haemophilia (PwH) and limit the impact of haemophilia on their quality of life. The imp…
View article: P1620: A CROSS-NATIONAL SURVEY OF PEOPLE LIVING WITH HEMOPHILIA: REPORTED PAIN, IMPACT ON PHYSICAL ACTIVITY AND OPPORTUNITY ON USING DIGITAL TOOLS FOR MONITORING HAEMOPHILIA
P1620: A CROSS-NATIONAL SURVEY OF PEOPLE LIVING WITH HEMOPHILIA: REPORTED PAIN, IMPACT ON PHYSICAL ACTIVITY AND OPPORTUNITY ON USING DIGITAL TOOLS FOR MONITORING HAEMOPHILIA Open
Topic: 33. Bleeding disorders (congenital and acquired) Background: The Liberate Life® project aims to provide support and information to patients with haemophilia (PwH), which may help to limit the impact of haemophilia on their quality o…
View article: Recent advancements in glucose dysregulation and pharmacological management of osteoporosis in transfusion-dependent thalassemia (TDT): an update of ICET-A (International Network of Clinicians for Endocrinopathies in Thalassemia and Adolescence Medicine).
Recent advancements in glucose dysregulation and pharmacological management of osteoporosis in transfusion-dependent thalassemia (TDT): an update of ICET-A (International Network of Clinicians for Endocrinopathies in Thalassemia and Adolescence Medicine). Open
Advances in the care of TDT patients have led to improved survival and quality of life. Nevertheless, many chronic endocrine complications still remain. Their routine screening and a high index of suspicion are imperative in order to provi…
View article: Sexual activity and the adolescent with haemophilia.
Sexual activity and the adolescent with haemophilia. Open
Haemophilia A and B are congenital bleeding disorders, associated with joint and soft tissue bleeding episodes. Adolescence is an important period of the individual development, associated with tendency to risky behavior in those, who suff…
View article: The The use of oral glucose-lowering agents (GLAs) in β-thalassemia patients with diabetes: Preliminary data from a retrospective study of ICET-A Network.
The The use of oral glucose-lowering agents (GLAs) in β-thalassemia patients with diabetes: Preliminary data from a retrospective study of ICET-A Network. Open
This retrospective study covers an unexplored area of research in patients with thalassemia and GD. Oral GLAs appear to be safe and effective for the treatment of diabetes mellitus in patients with thalassemia, and can achieve adequate gly…
View article: The Prevalence of glucose dysregulations (GDs) in patients with β-thalassemias in different countries: A preliminary ICET-A survey.
The Prevalence of glucose dysregulations (GDs) in patients with β-thalassemias in different countries: A preliminary ICET-A survey. Open
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View article: A Cross-National Survey of People Living with Hemophilia: Impact on Daily Living and Patient Education in Central Europe
A Cross-National Survey of People Living with Hemophilia: Impact on Daily Living and Patient Education in Central Europe Open
Based on our Central European survey, hemophilia mostly affects peoples' lives by causing mobility difficulties, unexpected bleeding, pain and uncertainty in daily activities. Although the majority of respondents reported being educated ab…
View article: Familial Multiple Coagulation Factor Deficiencies (FMCFDs) in a Large Cohort of Patients—A Single-Center Experience in Genetic Diagnosis
Familial Multiple Coagulation Factor Deficiencies (FMCFDs) in a Large Cohort of Patients—A Single-Center Experience in Genetic Diagnosis Open
Background: Familial multiple coagulation factor deficiencies (FMCFDs) are a group of inherited hemostatic disorders with the simultaneous reduction of plasma activity of at least two coagulation factors. As consequence, the type and sever…
View article: A comprehensive update of ICET-A Network on COVID-19 in thalassemias: what we know and where we stand.
A comprehensive update of ICET-A Network on COVID-19 in thalassemias: what we know and where we stand. Open
A review of the literature on COVID-19 pandemic in patients with thalassemias is presented. Globally, the prevalence of COVID-19 among β-thalassemia patients seems to be lower than in general population; associated co-morbidities aggravate…
View article: Hypereosinophilia as a Presenting Symptom of Acute Lymphoblastic Leukemia in a Child
Hypereosinophilia as a Presenting Symptom of Acute Lymphoblastic Leukemia in a Child Open
Hypereosinophilia is rare in children and represents primary or secondary conditions, the latter of which is associated with other diseases (parasitic infections and allergic, autoimmune, and neoplastic diseases). In small number of cases …
View article: Impact of Telemedicine Tools on Record Keeping and Compliance in Haemophilia Care
Impact of Telemedicine Tools on Record Keeping and Compliance in Haemophilia Care Open
Background Record keeping is integral to home treatment for haemophilia. Issues with paper diaries include questionable compliance, data validity and quality. Implementation of electronic diaries (e-diaries) in haemophilia patients could i…