Bernd Alt‐Epping
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View article: Benefits and challenges of recording biographical audiobooks by incurably ill parents to their children: A semi-structured interview study
Benefits and challenges of recording biographical audiobooks by incurably ill parents to their children: A semi-structured interview study Open
Background: There is initial evidence that biographical audio recordings have a positive effect on people with advanced, incurable illnesses, but also that such recordings can represent a major challenge. Little is yet known about the inte…
View article: Quality of Life of Cancer Patients in Routine Clinical Care Using the Example of Checkpoint Inhibition Therapy: A Delphi Consensus
Quality of Life of Cancer Patients in Routine Clinical Care Using the Example of Checkpoint Inhibition Therapy: A Delphi Consensus Open
Introduction: The introduction of immune checkpoint inhibitors (CPIs) in oncology has improved the long-term perspectives of many patients and is bringing the quality of life (QoL) into focus as a treatment-relevant variable. In clinical r…
View article: Integration of social work into specialist palliative home service
Integration of social work into specialist palliative home service Open
Background: The specialist palliative home service (SAPV) federal framework contract for adults, to be enacted in Germany until 2028, does not legally mandate the hiring of a third professional group beyond specialist nurses and physicians…
View article: Preparing for death: a survey on rituals in the dying phase in the Christian context in Germany
Preparing for death: a survey on rituals in the dying phase in the Christian context in Germany Open
As religious traditions are no longer practised by an increasing number of people; it may be reasonable to develop new rituals for the dying phase that can be adapted and used by palliative care staff to suit the respective context. These …
View article: My virtual escape from patient life: A feasibility study on the experiences and benefits of individualized virtual reality for inpatients in palliative cancer care
My virtual escape from patient life: A feasibility study on the experiences and benefits of individualized virtual reality for inpatients in palliative cancer care Open
Background: Cancer patients benefit from Virtual Reality (VR) in burdensome situations, but evidence is scarce for palliative situations. Based on earlier work in palliative care, individualized VR interventions like seeing the patient’s h…
View article: My virtual home: Needs of patients in palliative cancer care and content effects of individualized virtual reality – a mixed methods study protocol
My virtual home: Needs of patients in palliative cancer care and content effects of individualized virtual reality – a mixed methods study protocol Open
Background: The desire to be at home is one of the most important needs of patients with advanced, incurable cancers. However, palliative cancer patients may require inpatient hospital care for medical reasons. Virtual reality (VR) could p…
View article: The minutes until the emergency physician arrives at the scene – Do paramedics face an ethical dilemma when caring for advanced incurably ill and cardiac arrest patients? – a prospective questionnaire - based study
The minutes until the emergency physician arrives at the scene – Do paramedics face an ethical dilemma when caring for advanced incurably ill and cardiac arrest patients? – a prospective questionnaire - based study Open
Backgound: In Germany, prehospital emergency medicine implies a “rendezvous” system where paramedics and an emergency physician arrive at the scene separately. If paramedics arrive first, they are obliged to perform all possible actions in…
View article: Systematic symptom screening in patients with advanced cancer treated in certified oncology centers: results of the prospective multicenter German KeSBa project
Systematic symptom screening in patients with advanced cancer treated in certified oncology centers: results of the prospective multicenter German KeSBa project Open
Purpose Guidelines recommend a structured symptom screening (SC) for especially advanced cancer patients (CPs). The aim of this multicenter German prospective quality assurance project KeSBa (Kennzahl Symptom- und Belastungserfassung) was …
View article: Association between oncologists' death anxiety and their end‐of‐life communication with advanced cancer patients
Association between oncologists' death anxiety and their end‐of‐life communication with advanced cancer patients Open
Objective Early and open communication of palliative care (PC) and end‐of‐life (EoL)‐related issues in advanced cancer care is not only recommended by guidelines, but also preferred by the majority of patients. However, oncologists tend to…
View article: Screening versus multidimensional assessment of symptoms and psychosocial distress in cancer patients from the time of incurability
Screening versus multidimensional assessment of symptoms and psychosocial distress in cancer patients from the time of incurability Open
Objective Previous symptom prevalence studies show a diverse spectrum of symptoms and a large diversity in symptom intensities in patients being just diagnosed as having incurable cancer. It is unclear, how physical symptoms and psychosoci…
View article: Effects of a communication training for oncologists on early addressing palliative and end-of-life care in advanced cancer care (PALLI-COM): a randomized, controlled trial
Effects of a communication training for oncologists on early addressing palliative and end-of-life care in advanced cancer care (PALLI-COM): a randomized, controlled trial Open
Findings indicate that the compact communication skills training PALLI-COM increases oncologists' competencies in early addressing PC/EoL-related issues from different perspectives. Implementation in routine oncology residency might improv…
View article: Additional file 2 of Palliative sedation in amyotrophic lateral sclerosis: results of a nationwide survey among neurologists and palliative care practitioners in Germany
Additional file 2 of Palliative sedation in amyotrophic lateral sclerosis: results of a nationwide survey among neurologists and palliative care practitioners in Germany Open
Additional file 2.
View article: Host Age and Denture Wearing Jointly Contribute to Oral Colonization with Intrinsically Azole-Resistant Yeasts in the Elderly
Host Age and Denture Wearing Jointly Contribute to Oral Colonization with Intrinsically Azole-Resistant Yeasts in the Elderly Open
In elderly patients, several morbidities or medical treatments predisposing for fungal infections occur at a higher frequency, leading to high mortality and morbidity in this vulnerable patient group. Often, this is linked to an innately a…
View article: Symptom Burden and Palliative Care Needs of Patients with Incurable Cancer at Diagnosis and During the Disease Course
Symptom Burden and Palliative Care Needs of Patients with Incurable Cancer at Diagnosis and During the Disease Course Open
Background Although current guidelines advocate early integration of palliative care, symptom burden and palliative care needs of patients at diagnosis of incurable cancer and along the disease trajectory are understudied. Material and Met…
View article: Evaluation of a communication skills training to facilitate addressing palliative care related topics in advanced cancer patients: study protocol of a multicenter randomized controlled trial (PALLI-KOM)
Evaluation of a communication skills training to facilitate addressing palliative care related topics in advanced cancer patients: study protocol of a multicenter randomized controlled trial (PALLI-KOM) Open
Background Early integration of palliative care concurrently to standard cancer care is associated with several benefits for patients and their caregivers. However, communication barriers on part of the caring physicians often impede a tim…
View article: Decision-making towards the end of life – in which way does clinical and ethical reasoning enter QB 13 in palliative medicine?
Decision-making towards the end of life – in which way does clinical and ethical reasoning enter QB 13 in palliative medicine? Open
[for full text, please go to the a.m. URL]
View article: Specific challenges in end-of-life care for patients with hematological malignancies
Specific challenges in end-of-life care for patients with hematological malignancies Open
Purpose of review The disease-related burden of patients with hematological malignancies is comparable with patients suffering from solid tumors. Palliative care offers relief from suffering independent of type of disease and prognosis. Th…
View article: Palliative care for people living with heart failure: European Association for Palliative Care Task Force expert position statement
Palliative care for people living with heart failure: European Association for Palliative Care Task Force expert position statement Open
Contrary to common perception, modern palliative care (PC) is applicable to all people with an incurable disease, not only cancer. PC is appropriate at every stage of disease progression, when PC needs emerge. These needs can be of physica…
View article: Team members perspectives on conflicts in clinical ethics committees
Team members perspectives on conflicts in clinical ethics committees Open
Background: Clinical ethics committees have been broadly implemented in university hospitals, general hospitals and nursing homes. To ensure the quality of ethics consultations, evaluation should be mandatory. Research question/aim: The ai…
View article: Palliative Care
Palliative Care Open
Palliative care stems from the recognition of the potential at the end of life for discovering and for giving, a recognition that an important dimension of being human is the lasting dignity and growth that can continue through weakness an…
View article: Palliative Care
Palliative Care Open
"Palliative care stems from the recognition of the potential at the end of life for discovering and for giving, a recognition that an important dimension of being human is the lasting dignity and growth that can continue through weakness a…