Bea Maes
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View article: “That She Is Unique Is Clear”: Family Members Making Sense of the Uniqueness of Persons with Dementia and Persons with Profound Intellectual and Multiple Disabilities
“That She Is Unique Is Clear”: Family Members Making Sense of the Uniqueness of Persons with Dementia and Persons with Profound Intellectual and Multiple Disabilities Open
Family plays an important role in person-centered care (PCC) within long-term care facilities, especially for individuals with high-support needs such as dementia or profound intellectual and multiple disabilities. The goal of PCC is to li…
View article: Beyond the Frame: A Photo‐Elicitation Study of Sibling Experiences on the Stay of Their Sibling With a Moderate to Profound Intellectual Disability in Group Homes
Beyond the Frame: A Photo‐Elicitation Study of Sibling Experiences on the Stay of Their Sibling With a Moderate to Profound Intellectual Disability in Group Homes Open
Background Parents' decisions to use out‐of‐home support for children with intellectual disabilities significantly impact all family members, including siblings. However, siblings' perspectives on this transition to group homes remain unde…
View article: Person-Centred Care for People with Profound Intellectual and Multiple Disabilities: A Rapid Review
Person-Centred Care for People with Profound Intellectual and Multiple Disabilities: A Rapid Review Open
Context: Person-centred care (PCC) requires a profound understanding of who a person is. Many components of PCC assume that persons can verbally express their wishes, needs and values. However, individuals with profound intellectual and mu…
View article: Capturing Staff Perspectives on Quality Interaction With Clients With Intellectual Disability: A Diary Study
Capturing Staff Perspectives on Quality Interaction With Clients With Intellectual Disability: A Diary Study Open
For people with severe or profound intellectual disability (ID), support staff are important interaction partners. The quality of their interactions, a multidimensional construct, is well documented, but the staff perspective remains under…
View article: ABAS-3 for Belgium: standardisation, psychometric properties and guidelines for fair assessment
ABAS-3 for Belgium: standardisation, psychometric properties and guidelines for fair assessment Open
Objectives In order to develop ABAS-3 for use in the Dutch-speaking part of Belgium (Flanders), the most appropriate standardising method was investigated and psychometric properties were evaluated, based on international guidelines of the…
View article: Best practice recommendations on the application of seclusion and restraint in mental health services: An evidence, human rights and consensus‐based approach
Best practice recommendations on the application of seclusion and restraint in mental health services: An evidence, human rights and consensus‐based approach Open
Accessible summary What is known on the subject? Seclusion and restraint still regularly occur within inpatient mental health services. The Council of Europe requires the development of a policy on for instance age limits, techniques and t…
View article: Parents’ views on facilitating and inhibiting factors in the development of attachment relationships with their children with severe disabilities
Parents’ views on facilitating and inhibiting factors in the development of attachment relationships with their children with severe disabilities Open
Being confident as attachment figures is not self-evident for parents of children with severe or profound intellectual disabilities (SPID) given the children’s limited clear communicative responses. The current study drew upon the Attachme…
View article: Piloting attachment psychoeducation provided to parents of children with severe disabilities: Testing the feasibility of a digital micro-intervention
Piloting attachment psychoeducation provided to parents of children with severe disabilities: Testing the feasibility of a digital micro-intervention Open
Background A digital micro-intervention offering attachment psychoeducational videos was explored regarding its feasibility in parents of children with severe disabilities. Method: A mixed-methods study (including daily diaries and one-tim…
View article: A Tailored Approach to Supporting Parent-Child Attachment in Families with Children with Severe Disabilities: Matching Interventions to Needs
A Tailored Approach to Supporting Parent-Child Attachment in Families with Children with Severe Disabilities: Matching Interventions to Needs Open
Parents of children with severe disabilities have differing attachment-related support needs. An online vignette study with 25 experts, working in academia and/or clinical practice, was conducted to reflect upon the task of matching interv…
View article: Analysis of early expressive communicative behaviour of young children with significant cognitive and motor developmental delays
Analysis of early expressive communicative behaviour of young children with significant cognitive and motor developmental delays Open
Background Related to the target group of young children with a significant cognitive and motor developmental delay, the aims of this study were to obtain more insight into (the interrelations between) several characteristics of these chil…
View article: The Attachment Strengths and Needs Interview for parents of children with severe or profound intellectual disabilities: An acceptability and feasibility study
The Attachment Strengths and Needs Interview for parents of children with severe or profound intellectual disabilities: An acceptability and feasibility study Open
The current study showed preliminary support for the feasibility and acceptability of the Attachment Strengths and Needs Interview, as part of a broader intake procedure, to inform attachment-focused interventions for parents of children w…
View article: Changes in the social-emotional functioning of young children with a significant cognitive and motor developmental delay across a two-year period
Changes in the social-emotional functioning of young children with a significant cognitive and motor developmental delay across a two-year period Open
Children with a significant cognitive and motor developmental delay (SDD) are vulnerable for the development of (future) behavioral and mental health problems. To support children within this target group, knowledge on their social-emotion…
View article: An experiment on measuring awareness of stuttering in individuals with Down syndrome
An experiment on measuring awareness of stuttering in individuals with Down syndrome Open
BACKGROUND: Awareness of stuttering is likely to depend upon the development of the metalinguistic skill to discriminate between fluent speech and stuttering and the ability to identify one's own speech as fluent or stuttered. Presently, l…
View article: In search of a novel way to analyze early communicative behavior
In search of a novel way to analyze early communicative behavior Open
The aim of this study was to develop a coding scheme that enables researchers and practitioners to conduct a detailed analysis of the communicative behavior of young children with significant cognitive and motor developmental delays. Curre…
View article: Looking back, looking forward: Methodological challenges and future directions in research on persons with profound intellectual and multiple disabilities
Looking back, looking forward: Methodological challenges and future directions in research on persons with profound intellectual and multiple disabilities Open
Background Within the context of the Special Interest Research Group (SIRG) on Persons with Profound Intellectual and Multiple Disabilities (PIMD), researchers often discuss the methodological problems and challenges they are confronted wi…
View article: The social-emotional functioning of young children with a significant cognitive and motor developmental delay
The social-emotional functioning of young children with a significant cognitive and motor developmental delay Open
Children with a significant cognitive and motor developmental delay (SDD) are vulnerable for the development of (future) behavioral and mental health problems. This paper aims to assess the social-emotional functioning of these children, b…
View article: An investigation into the relationship between Quality of pantomime gestures and visuospatial skills
An investigation into the relationship between Quality of pantomime gestures and visuospatial skills Open
While children with developmental language disorder or Williams syndrome appear to use hand gestures to compensate for specific cognitive and communicative difficulties, they have different cognitive strength-weakness profiles. Their seman…
View article: Communicative abilities in young children with a significant cognitive and motor developmental delay
Communicative abilities in young children with a significant cognitive and motor developmental delay Open
Background Children with a significant cognitive and motor developmental delay are pre‐symbolic communicators. The primary aim of this study was to reveal the variability within the communicative functioning of this group of children in te…
View article: Assistive technology for persons with profound intellectual disability: a european survey on attitudes and beliefs
Assistive technology for persons with profound intellectual disability: a european survey on attitudes and beliefs Open
This study's results demonstrate that AT is used for various reasons in persons with PID, mostly to support communication and interaction or for fun or relaxation. Based on the answers of the respondents can be concluded that both experien…
View article: Comfort provided by parents versus strangers after eliciting stress in children with severe or profound intellectual disabilities: does it make a difference?
Comfort provided by parents versus strangers after eliciting stress in children with severe or profound intellectual disabilities: does it make a difference? Open
The relationships between children with severe or profound intellectual disabilities (ID) and their parents may fulfil attachment functions, such as regulating emotional responses to stress. This study examined the extent to which children…
View article: Young children with significant developmental delay differentiate home observed attachment behaviour towards their parents
Young children with significant developmental delay differentiate home observed attachment behaviour towards their parents Open
Background The hallmark of attachment is that contact, proximity and relief from stress are sought from specific individuals, laying important groundwork for healthy socioemotional functioning. This study investigated the extent to which d…
View article: Promoting Social Scaffolding Behaviors in Staff Members and Peer‐Directed Behaviors Among Persons With Profound Intellectual and Multiple Disabilities: An Intervention Study
Promoting Social Scaffolding Behaviors in Staff Members and Peer‐Directed Behaviors Among Persons With Profound Intellectual and Multiple Disabilities: An Intervention Study Open
Persons with profound intellectual and multiple disabilities (PIMD) present limited peer‐directed behaviors toward their peers with PIMD. It is not clear how staff can facilitate and promote the mutual peer‐directed behaviors between perso…
View article: Exploring spontaneous interactions between people with profound intellectual and multiple disabilities and their peers
Exploring spontaneous interactions between people with profound intellectual and multiple disabilities and their peers Open
© 2018 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group Background: Peers living in the same group form important interaction partners for people with profound intellectual and multiple disabilities (PIMD).…