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View article: Shining a Light in COVID-19 Darkness
Shining a Light in COVID-19 Darkness Open
Introduction: The World Health Organization officially declared COVID-19 a global pandemic in March 2020, resulting in travel restrictions, closure of non-essential shops and services, and the discontinuation of elective healthcare. The es…
View article: Working on the Clinical Frontline During the COVID-19 Pandemic
Working on the Clinical Frontline During the COVID-19 Pandemic Open
Hospital chaplaincy teams played a vital role during the COVID-19 pandemic, but the full depth of their experiences and personal impacts is not fully known. This UK study was advertised using social media platforms, local press outlets and…
View article: P-174 Improving assessments of family caregivers: impact of staff education in a hospice at home service
P-174 Improving assessments of family caregivers: impact of staff education in a hospice at home service Open
Background In an ageing population, complex health needs, reduced health and social care resources result in an increased reliance on families to provide care at end-of-life. Family caregivers are reported to have increasing challenges to …
View article: P-149 Assessment and documentation of spiritual needs of hospice inpatients
P-149 Assessment and documentation of spiritual needs of hospice inpatients Open
Background Spiritual care is a fundamental domain of palliative and end-of-life care. Addressing spiritual care empowers patients to take ownership of what is important to them. All healthcare professionals should feel confident to address…
View article: Development of the Carers’ Alert Thermometer for Stroke Family Caregivers (CAT-S): A Multiphase Action Research Study
Development of the Carers’ Alert Thermometer for Stroke Family Caregivers (CAT-S): A Multiphase Action Research Study Open
An estimated 1.3 million stroke survivors living in the United Kingdom (UK) currently rely on family caregivers for daily support. The needs of stroke family caregivers are, however, not routinely assessed by most clinical services. Early …
View article: P-140 Providing individual tailored support for patients with Motor Neurone Disease and their families: the impact of a new Key Worker role
P-140 Providing individual tailored support for patients with Motor Neurone Disease and their families: the impact of a new Key Worker role Open
Background Motor Neurone Disease (MND) is a progressive terminal neurodegenerative condition, with six people diagnosed every day in the UK, resulting in around 5000 people being affected at any one time (MND Association (UK), 2011). Its r…
View article: O-17 ‘Sometimes their death is prolonged, not their life’: the experiences and needs of high dependency nurses when caring for patients approaching withdrawal of life-sustaining treatment: a qualitative study
O-17 ‘Sometimes their death is prolonged, not their life’: the experiences and needs of high dependency nurses when caring for patients approaching withdrawal of life-sustaining treatment: a qualitative study Open
Background Nurses in critical care are frequently required to facilitate the withdrawal of life-sustaining treatments and provide end-of-life care for deteriorating patients. Providing this care has been shown to cause nurses distress, pot…
View article: Development of the Carers’ Alert Thermometer for Young Carers (CAT-YC) to Identify and Screen the Support Needs of Young Carers: A Mixed Method Consensus Study
Development of the Carers’ Alert Thermometer for Young Carers (CAT-YC) to Identify and Screen the Support Needs of Young Carers: A Mixed Method Consensus Study Open
This paper reports on a multi-phased, mixed-method consensus-based study conducted with young carers in the UK aged 11–18, and health, social care and education professionals from the UK, USA and Canada, to identify priority items for incl…
View article: Respite care and short breaks for young adults aged 18–40 with complex health-care needs: mixed-methods systematic review and conceptual framework development
Respite care and short breaks for young adults aged 18–40 with complex health-care needs: mixed-methods systematic review and conceptual framework development Open
Background The number of young adults with complex health-care needs due to life-limiting conditions/complex physical disability has risen significantly over the last 15 years, as more children now survive into adulthood. The transition fr…
View article: A Qualitative Study Exploring Patient, Family Carer and Healthcare Professionals’ Direct Experiences and Barriers to Providing and Integrating Palliative Care for Advanced Head and Neck Cancer
A Qualitative Study Exploring Patient, Family Carer and Healthcare Professionals’ Direct Experiences and Barriers to Providing and Integrating Palliative Care for Advanced Head and Neck Cancer Open
Objectives: To report on direct experiences from advanced head and neck cancer patients, family carers and healthcare professionals, and the barriers to integrating specialist palliative care. Methods: Using a naturalistic, interpretative …
View article: Methadone‐Assisted Opiate Withdrawal and Subsequent Heroin Abstinence: The Importance of Psychological Preparedness
Methadone‐Assisted Opiate Withdrawal and Subsequent Heroin Abstinence: The Importance of Psychological Preparedness Open
Background and Objectives Treatment guidelines emphasize patients’ readiness for transitioning from opiate substitution treatment (OST) to opiate withdrawal and abstinence. Psychological preparedness indicators for this transition were exa…
View article: P-163 Recognising spirituality: the impact of training on healthcare professionals supporting patients’ spiritual needs
P-163 Recognising spirituality: the impact of training on healthcare professionals supporting patients’ spiritual needs Open
Background Supporting patients spiritually as they approach the end-of-life is vital. If spiritual needs are unmet, patients are at increased risk of poorer psychological outcomes, quality of life is diminished, and a reduced sense of spir…
View article: P-56 Teaching nurses to teach end of life care: CNSs’ perceptions of the impact of an educational intervention
P-56 Teaching nurses to teach end of life care: CNSs’ perceptions of the impact of an educational intervention Open
Background Central to national and international policies is the need for generalist healthcare staff to have education in end-of-life care. Much end-of-life care education is provided by specialist nurses who often have no specific educat…
View article: P-2 Growing in confidence: impact of new one-day advance care planning course on frontline clinical staff
P-2 Growing in confidence: impact of new one-day advance care planning course on frontline clinical staff Open
Background Advance care planning (ACP) is a central part of UK and international end of life care policies. Yet studies have shown barriers exist with staff reporting concerns about undertaking advance care planning conversations. A one da…
View article: A qualitative study exploring patient, family carer and healthcare professional perceptions of providing palliative care for advanced head and neck cancer
A qualitative study exploring patient, family carer and healthcare professional perceptions of providing palliative care for advanced head and neck cancer Open
Purpose: To explore patient, family carer and healthcare professionals’ perspectives about providing palliative care for advanced head and neck cancer patients and potential components which could inform a future model of care. Methods: Us…
View article: “That’s a child, it’s not a diagnosis.” What can paediatricians learn from medical humanities?: a mixed methods study
“That’s a child, it’s not a diagnosis.” What can paediatricians learn from medical humanities?: a mixed methods study Open
This article was migrated. The article was marked as recommended. Objective:The aim of this study was to evaluate UK paediatric specialist trainees' perceptions of a medical humanities teaching session on their communication and empathy sk…
View article: Continuing Bonds With Children and Bereaved Young People: A Narrative Review
Continuing Bonds With Children and Bereaved Young People: A Narrative Review Open
Background Finding alternative ways to reconnect with the deceased is a common feature of bereavement. However, it is currently unclear how bereaved children or young people establish and develop a “continuing bond” with deceased family me…
View article: The specification, acceptability and effectiveness of respite care and short breaks for young adults with complex healthcare needs: protocol for a mixed-methods systematic review
The specification, acceptability and effectiveness of respite care and short breaks for young adults with complex healthcare needs: protocol for a mixed-methods systematic review Open
Introduction The number of young adults with complex healthcare needs due to life-limiting conditions/complex physical disability has risen significantly as children with complex conditions survive into adulthood. Respite care and short br…
View article: The use of digital legacies with people affected by motor neurone disease for continuing bonds: An interpretative phenomenological analysis study
The use of digital legacies with people affected by motor neurone disease for continuing bonds: An interpretative phenomenological analysis study Open
Background: Motor neurone disease is a progressive neurodegenerative disease without cure. Little is known about how young people are affected when a family member has the illness and subsequently dies, resulting in a gap in understanding …
View article: 13 Exploring experiences and unmet needs for people with advanced head and neck cancer: the views of patients, family carers and healthcare professionals
13 Exploring experiences and unmet needs for people with advanced head and neck cancer: the views of patients, family carers and healthcare professionals Open
Background Early access to palliative care is potentially most effective when targeted to the specific needs of individual populations. Patients with head and neck cancer represent a complex group and there is limited information about the…
View article: Teaching nurses to teach: A qualitative study of nurses’ perceptions of the impact of education and skills training to prepare them to teach end‐of‐life care
Teaching nurses to teach: A qualitative study of nurses’ perceptions of the impact of education and skills training to prepare them to teach end‐of‐life care Open
Aims and objectives To explore nurses’ perceptions of the impact of a programme designed to train them to teach end‐of‐life care. Background Central to national and international policies are the need for generalist healthcare staff to hav…
View article: Meeting patients’ spiritual needs during end‐of‐life care: A qualitative study of nurses’ and healthcare professionals’ perceptions of spiritual care training
Meeting patients’ spiritual needs during end‐of‐life care: A qualitative study of nurses’ and healthcare professionals’ perceptions of spiritual care training Open
Aims and objectives To explore nurses’ and healthcare professionals’ perceptions of spiritual care and the impact of spiritual care training on their clinical roles. Background Many nurses and healthcare professionals feel unprepared and l…
View article: Meeting the needs of young adults with life‐limiting conditions: A UK survey of current provision and future challenges for hospices
Meeting the needs of young adults with life‐limiting conditions: A UK survey of current provision and future challenges for hospices Open
Aim The aim of this study was to seek views of UK children's and adult hospices on the availability and challenges of providing services for young adults with life‐limiting conditions. Background Internationally, there are a growing number…
View article: P-236 Children and adult hospice provision for young adults with life-limiting conditions: a uk survey
P-236 Children and adult hospice provision for young adults with life-limiting conditions: a uk survey Open
Background Over 55 000 young adults aged 18–40 years old in England are living with life-limiting conditions (LLCs). This number is increasing. There is evidence of poor continuity of care for these young adults after transition to adult s…
View article: The Carers’ Alert Thermometer (CAT): identifying the support needs of family carers of people living with MND (plwMND)
The Carers’ Alert Thermometer (CAT): identifying the support needs of family carers of people living with MND (plwMND) Open
Background
Burden and distress experienced by family carers of plwMND is well known and reported widely within the published literature. Evidence-based screening tools to help identify carers at risk of breakdown and plan appropriate supp…
View article: Assessing the needs of Stroke family caregivers: Adapting the Carers Alert Thermometer (CAT) to develop the CAT(S).
Assessing the needs of Stroke family caregivers: Adapting the Carers Alert Thermometer (CAT) to develop the CAT(S). Open
Assessing the needs of stroke family caregivers: Adapting the Carers Alert Thermometer (CAT) to develop the CAT(S).
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\nBackground
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\nAn estimated 1.2 million stroke survivors are currently living in the United Kingdom and majority of t…