Béatrice Demaret
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View article: The experience of diagnosis announcement in rare endocrine diseases: A survey of the French FIRENDO network
The experience of diagnosis announcement in rare endocrine diseases: A survey of the French FIRENDO network Open
View article: Vers un consentement plus éclairé
Vers un consentement plus éclairé Open
Trop souvent, les notices d’information proposées dans le cadre de recherches cliniques se réduisent à des documents réglementaires difficilement compréhensibles. Pourtant, les personnes concernées doivent avoir accès à une information tra…
View article: Treatment burden, adherence, and quality of life in children with daily GH treatment in France
Treatment burden, adherence, and quality of life in children with daily GH treatment in France Open
Objective The objective of this study was to describe in a real-life setting the treatment burden and adherence and quality of life (QOL) of children treated with daily injections of growth hormone and their relationship with treatment dur…
View article: Supplementary Material for: Drivers of patient and caregiver preferences for growth hormone deficiency treatments in France: a discrete choice experiment
Supplementary Material for: Drivers of patient and caregiver preferences for growth hormone deficiency treatments in France: a discrete choice experiment Open
Introduction: To identify drivers of preference for growth hormone deficiency (GHD) treatment in French children, and their caregivers, and to quantify the relative importance of different aspects of treatment modalities using a discrete c…
View article: Turner syndrome: French National Diagnosis and Care Protocol (NDCP; National Diagnosis and Care Protocol)
Turner syndrome: French National Diagnosis and Care Protocol (NDCP; National Diagnosis and Care Protocol) Open