Bernie Carter
YOU?
Author Swipe
View article: “I’d probably trip over it because it’s bumpy”: A qualitative exploration of the lived experiences of ambulatory children with cerebral palsy walking in challenging environments
“I’d probably trip over it because it’s bumpy”: A qualitative exploration of the lived experiences of ambulatory children with cerebral palsy walking in challenging environments Open
Background Children with cerebral palsy experience regular falls, but their lived experiences of falls in the real-world are unknown. Understanding the perspectives of children and parents is important to gain deeper insight into how falls…
View article: Establishing Consensus on the Breakthrough Pain Assessment Questionnaire-Self Report (BTPAQ-SR) for Typically Developing Children and Young People (8–25 yrs) with Life-Limiting and Life-Threatening Conditions: An International e-Delphi Study of Expert Healthcare Professionals
Establishing Consensus on the Breakthrough Pain Assessment Questionnaire-Self Report (BTPAQ-SR) for Typically Developing Children and Young People (8–25 yrs) with Life-Limiting and Life-Threatening Conditions: An International e-Delphi Study of Expert Healthcare Professionals Open
Background/Objectives: Breakthrough pain (BTP) is commonly experienced by children and young people with life-limiting and life-threatening conditions. While over 50 tools exist for the assessment of breakthrough pain in adults, there is c…
View article: Involved, interrupted or ignored? Triadic communication in children's non-urgent X-ray procedures
Involved, interrupted or ignored? Triadic communication in children's non-urgent X-ray procedures Open
View article: Digital healthcare interventions to support parents with acutely ill children at home: A systematic review
Digital healthcare interventions to support parents with acutely ill children at home: A systematic review Open
Short lived acute illness in children is common, yet their parents often feel uncertain about recognising signs symptoms of acute illness and knowing when to seek medical intervention. This has led to seeking unscheduled or delayed support…
View article: Coming in hot: using emotional journey maps to examine parental perceptions associated with presentation of their child with fever to the emergency department in England
Coming in hot: using emotional journey maps to examine parental perceptions associated with presentation of their child with fever to the emergency department in England Open
Introduction Paediatric emergency department (ED) attendances and admissions in England for fever are extremely common and are increasing, despite little evidence of increased risk and severity of fever-related presentations. Fever is a ca…
View article: My A–T pack: a qualitative study of the utility, acceptability, design, and content of a family-designed and owned information pack relevant to the lives of children and young people living with ataxia telangiectasia
My A–T pack: a qualitative study of the utility, acceptability, design, and content of a family-designed and owned information pack relevant to the lives of children and young people living with ataxia telangiectasia Open
Background Ataxia telangiectasia (A–T) is a rare genetic and progressive condition, primarily affecting the neurological, immunological, and pulmonary systems. In the absence of a cure, people living with A–T require co-ordinated multidisc…
View article: Assessing the performance of paediatric early warning scores to predict critical deterioration events in hospitalised children (the DETECT study): a retrospective matched case-control study
Assessing the performance of paediatric early warning scores to predict critical deterioration events in hospitalised children (the DETECT study): a retrospective matched case-control study Open
Background Paediatric Early Warning Scores (PEWS) enhance patient safety, by focused monitoring of vital signs to identify children at risk of deteriorating. However, there is an acknowledged need for standardisation. The aim of this study…
View article: Clinical and Cost-Effectiveness of an Online Parent-Directed Behavioural Sleep Intervention in addition to Standard Care for Sleep Problems in Children with Epilepsy in the UK: the CASTLE Sleep-E Multicentre, Randomised Controlled Trial
Clinical and Cost-Effectiveness of an Online Parent-Directed Behavioural Sleep Intervention in addition to Standard Care for Sleep Problems in Children with Epilepsy in the UK: the CASTLE Sleep-E Multicentre, Randomised Controlled Trial Open
Objectives Sleep problems are common in children with epilepsy. We aimed to evaluate the clinical effectiveness and incremental cost-effectiveness of an online resource for parents of children with epilepsy (CASTLE Online Sleep Interventio…
View article: Children’s perspectives on the acceptability of medicine, how to assess acceptability and the development of the Theoretical Framework of Children’s Medicine Acceptability: a qualitative study
Children’s perspectives on the acceptability of medicine, how to assess acceptability and the development of the Theoretical Framework of Children’s Medicine Acceptability: a qualitative study Open
Objectives To explore children’s perspectives on the acceptability of medicines and ranking scales. Methods Interpretive reflexive child-centred qualitative design using arts-based worksheets, an activity booklet, exploration of ranking sc…
View article: Editorial: Pain and relationships
Editorial: Pain and relationships Open
Introduction People are social beings. For the most part, at all stages of their life course, people strive to establish relationships, in order to experience social connectedness (a sense of belonging and being 'in relation' with others).…
View article: Virtually the same, but remotely different: health professionals, parents and children’s experiences of remote out-patient consultations
Virtually the same, but remotely different: health professionals, parents and children’s experiences of remote out-patient consultations Open
Objective To explore experiences, benefits and concerns associated with remote (telephone/video) consultations from the perspectives of children and young people with juvenile idiopathic arthritis (JIA), their parents and health profession…
View article: Are challenging walking environments linked to falls or risk of falling in children with cerebral palsy? A systematic review
Are challenging walking environments linked to falls or risk of falling in children with cerebral palsy? A systematic review Open
Investigations into stability over challenging walking environments for children with CP are lacking any measures of fall occurrence. Investigations into the mechanisms that may contribute to high fall risk, or fall avoidance when negotiat…
View article: Neighbourhood socioeconomic conditions and emergency admissions for ambulatory care sensitive conditions in children: a longitudinal ecological analysis in England, 2012–2017
Neighbourhood socioeconomic conditions and emergency admissions for ambulatory care sensitive conditions in children: a longitudinal ecological analysis in England, 2012–2017 Open
Background Ambulatory care sensitive conditions (ACSCs) are those for which hospital admission could be prevented by interventions in primary care. Children living in socioeconomic disadvantage have higher rates of emergency admissions for…
View article: Coming in hot: a qualitative investigation into perceptions of parents and doctors of reasons for the presentation of children with fever to the emergency department in England
Coming in hot: a qualitative investigation into perceptions of parents and doctors of reasons for the presentation of children with fever to the emergency department in England Open
Introduction Paediatric emergency department (ED) attendances and admissions in England are increasing. Fever is a common presenting problem for these attendances. Anxiety and misperceptions surrounding appropriate management of fever pers…
View article: Understanding the importance of therapeutic alliance during physiotherapy treatment for musculoskeletal pain in children: a scoping review
Understanding the importance of therapeutic alliance during physiotherapy treatment for musculoskeletal pain in children: a scoping review Open
Introduction Musculoskeletal pain affecting children is common. Rehabilitation and treatment effectiveness can be influenced by multiple individual and contextual factors. The need for more rigorous evaluation of physiotherapy treatment fo…
View article: Children with cerebral palsy avoid stepping in potholes with mediolateral changes in foot placement that cause laterally instability
Children with cerebral palsy avoid stepping in potholes with mediolateral changes in foot placement that cause laterally instability Open
View article: Definition and Assessment of Paediatric Breakthrough Pain: A Qualitative Interview Study
Definition and Assessment of Paediatric Breakthrough Pain: A Qualitative Interview Study Open
Infants, children and young people with life-limiting or life-threatening conditions often experience acute, transient pain episodes known as breakthrough pain. There is currently no established way to assess breakthrough pain in paediatri…
View article: The Concept of Child-Centred Care in Healthcare: A Scoping Review
The Concept of Child-Centred Care in Healthcare: A Scoping Review Open
Although child-centred care is increasingly referred to within the nursing literature, a clear definition of child-centred care and clarity around the concept is yet to be achieved. The objectives of this review were to examine the followi…
View article: A rapid systematic review of breakthrough pain definitions and descriptions
A rapid systematic review of breakthrough pain definitions and descriptions Open
Background Breakthrough pain is common in life-limiting conditions and at end-of-life. Despite over 30 years of study, there is little consensus regarding the definition and characteristics of breakthrough pain. Objective This study aims t…
View article: Parental sleep‐related practices and sleep in children aged 1–3 years: a systematic review
Parental sleep‐related practices and sleep in children aged 1–3 years: a systematic review Open
Summary The current systematic review sought to identify the relationship between the range of different parental sleep‐related practices that had been explored in relations to child sleep outcomes in children aged 1–3 years. A systematic …
View article: A cross-sectional survey of healthcare professionals supporting children and young people with epilepsy and their parents/carers: which topics are raised in clinical consultations and can healthcare professionals provide the support needed?
A cross-sectional survey of healthcare professionals supporting children and young people with epilepsy and their parents/carers: which topics are raised in clinical consultations and can healthcare professionals provide the support needed? Open
Findings highlight the broad array of topics CYP with epilepsy and their families are reported as seeking support for. HCPs identified gaps in services and their abilities to meet those needs. There appeared to be a mismatch between the su…
View article: The Concept of Child-Centered Care in Healthcare: A Scoping Review
The Concept of Child-Centered Care in Healthcare: A Scoping Review Open
Although child-centred care is increasingly referred to within the nursing literature, a clear definition of child-centred care and clarity around the concept is yet to be achieved. The objectives of this review were to examine: 1) What co…
View article: “A hard-won capability”: the experiences of parents managing their babies' medicines after discharge from a neonatal unit
“A hard-won capability”: the experiences of parents managing their babies' medicines after discharge from a neonatal unit Open
Introduction Parents of babies who required neonatal care are responsible for managing their medicines after they are discharged home. There is wide variation in the information and amount of preparation given to parents prior to assuming …
View article: O8 A cross-sectional survey of clinicians’ experiences of addressing the topic of sleep in children and young people with epilepsy
O8 A cross-sectional survey of clinicians’ experiences of addressing the topic of sleep in children and young people with epilepsy Open
Introduction Children and young people (CYP) with epilepsy consult clinicians for management of their seizures but may require advice and support with a range of broader topics, including sleep. However, understanding of clinicians' perspe…
View article: Grounding perceptions: the value of otoendoscopy images in strengthening parents and children's understanding and decision making in a pediatric ENT clinic
Grounding perceptions: the value of otoendoscopy images in strengthening parents and children's understanding and decision making in a pediatric ENT clinic Open
Introduction In recent years, there has been an increasing use of otoendoscopy in middle ear surgery. There is also increasing evidence of its usefulness as a diagnostic tool for clinicians. However, there is limited evidence on whether un…
View article: The economic burden experienced by carers of children who had a critical deterioration at a tertiary children’s hospital in the United Kingdom (the DETECT study): an online survey
The economic burden experienced by carers of children who had a critical deterioration at a tertiary children’s hospital in the United Kingdom (the DETECT study): an online survey Open
View article: Developing rights-based standards for children having tests, treatments, examinations and interventions: using a collaborative, multi-phased, multi-method and multi-stakeholder approach to build consensus
Developing rights-based standards for children having tests, treatments, examinations and interventions: using a collaborative, multi-phased, multi-method and multi-stakeholder approach to build consensus Open
Children continue to experience harm when undergoing clinical procedures despite increased evidence of the need to improve the provision of child-centred care. The international ISupport collaboration aimed to develop standards to outline …
View article: Review of: "Pain Assessment and Management in Children at Lusaka Children's Hospital: Nurses' Experiences - A Qualitative Study"
Review of: "Pain Assessment and Management in Children at Lusaka Children's Hospital: Nurses' Experiences - A Qualitative Study" Open
Thank you for the opportunity to review your paper.I'm always interested in papers looking at nurses' involvement in pain management in children and
View article: The novel Next Step test is a reliable measure of anticipatory postural adjustments made by children with cerebral palsy prior to taking a step
The novel Next Step test is a reliable measure of anticipatory postural adjustments made by children with cerebral palsy prior to taking a step Open
View article: Using technology to reduce critical deterioration (the DETECT study): a cost analysis of care costs at a tertiary children's hospital in the United Kingdom
Using technology to reduce critical deterioration (the DETECT study): a cost analysis of care costs at a tertiary children's hospital in the United Kingdom Open