Brandy Mapes
YOU?
Author Swipe
Informatics innovation to provide return of value to participant communities in the <i>All of Us</i> Research Program Open
Objectives The All of Us Research Program harnesses advances in technology, science, and engagement for precision medicine research. We describe informatics innovations which support that goal and return value to the participant cohort and…
Improving follow-up survey completion rates through pilot interventions in the All of Us Research Program: Results from a non-randomized intervention study Open
Objective Retention to complete follow-up surveys in extensive longitudinal epidemiological cohort studies is vital yet challenging. All of Us developed pilot interventions to improve response rates for follow-up surveys. Study design and …
Balancing efficacy and computational burden: weighted mean, multiple imputation, and inverse probability weighting methods for item non-response in reliable scales Open
Importance Scales often arise from multi-item questionnaires, yet commonly face item non-response. Traditional solutions use weighted mean (WMean) from available responses, but potentially overlook missing data intricacies. Advanced method…
View article: Empowering the biomedical research community: Innovative SAS deployment on the <i>All of Us</i> Researcher Workbench
Empowering the biomedical research community: Innovative SAS deployment on the <i>All of Us</i> Researcher Workbench Open
Objectives The All of Us Research Program is a precision medicine initiative aimed at establishing a vast, diverse biomedical database accessible through a cloud-based data analysis platform, the Researcher Workbench (RW). Our goal was to …
The <i>All of Us</i> Data and Research Center: Creating a Secure, Scalable, and Sustainable Ecosystem for Biomedical Research Open
The All of Us Research Program's Data and Research Center (DRC) was established to help acquire, curate, and provide access to one of the world's largest and most diverse datasets for precision medicine research. Already, over 500,000 part…
Importance of missingness in baseline variables: A case study of the All of Us Research Program Open
Objective The All of Us Research Program collects data from multiple information sources, including health surveys, to build a national longitudinal research repository that researchers can use to advance precision medicine. Missing survey…
Design and Implementation of the All of Us Research Program COVID-19 Participant Experience (COPE) Survey Open
In response to the rapidly evolving coronavirus disease 2019 (COVID-19) pandemic, the All of Us Research Program longitudinal cohort study developed the COVID-19 Participant Experience (COPE) survey to better understand the pandemic experi…
Comparing medical history data derived from electronic health records and survey answers in the <i>All of Us</i> Research Program Open
Objective A participant’s medical history is important in clinical research and can be captured from electronic health records (EHRs) and self-reported surveys. Both can be incomplete, EHR due to documentation gaps or lack of interoperabil…
The CTSA Consortium's Catalog of Assets for Translational and Clinical Health Research (CATCHR): The Ctsa Consortium's Catchr Open
The 61 CTSA Consortium sites are home to valuable programs and infrastructure supporting translational science and all are charged with ensuring that such investments translate quickly to improved clinical care. CATCHR (Catalog of Assets f…
Diversity and inclusion for the All of Us research program: A scoping review Open
The All of Us Research Program (All of Us) is a national effort to accelerate health research by exploring the relationship between lifestyle, environment, and genetics. It is set to become one of the largest research efforts in U.S. histo…
Development of the Initial Surveys for the All of Us Research Program Open
Background: The All of Us Research Program is building a national longitudinal cohort and collecting data from multiple information sources (e.g., biospecimens, electronic health records, and mobile/wearable technologies) to advance precis…
Understanding What Information Is Valued By Research Participants, And Why Open
There is growing public demand that research participants receive all of their results, regardless of whether clinical action is indicated. Instead of the standard practice of returning only actionable results, we propose a reconceptualiza…