Brittany Gerber
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View article: A roadmap for navigating child health research data sharing across Canada and beyond – building on UCAN CAN-DU
A roadmap for navigating child health research data sharing across Canada and beyond – building on UCAN CAN-DU Open
Background Sharing health data within and across jurisdictions is important for research and improving healthcare quality; however, researchers, governments and funders must balance the benefits of data sharing with data privacy. Though fr…
View article: Uncovering the hidden socioeconomic impact of juvenile idiopathic arthritis and paving the way for other rare childhood diseases: an international, cross-disciplinary, patient-centered approach (PAVE Consortium)
Uncovering the hidden socioeconomic impact of juvenile idiopathic arthritis and paving the way for other rare childhood diseases: an international, cross-disciplinary, patient-centered approach (PAVE Consortium) Open
View article: OP92 The Hidden Burden Of Patients And Families In Rare Diseases: A Scoping Review Of Economic Evaluations
OP92 The Hidden Burden Of Patients And Families In Rare Diseases: A Scoping Review Of Economic Evaluations Open
Introduction There are more than 7,000 rare diseases (RDs), which are individually rare but have a large collective impact on patients and families, the health system, and society. There are few treatments for RD; where treatments do exist…
View article: Epidemiology and treatment utilization for Canadian patients with migraine: a literature review
Epidemiology and treatment utilization for Canadian patients with migraine: a literature review Open
The objective of this narrative review was to identify real-world evidence regarding the burden of migraine in Canada. We conducted a literature search in MEDLINE, Embase, and the Cochrane Database of Systematic Reviews for studies publish…
View article: Epidemiology, healthcare resource utilization and healthcare costs for spinal muscular atrophy in Alberta, Canada
Epidemiology, healthcare resource utilization and healthcare costs for spinal muscular atrophy in Alberta, Canada Open
Children with SMA experience substantial HRU, particularly for hospitalizations and practitioner visits, following diagnosis. Given the high costs of SMA, timely access to effective treatment strategies, such as the novel survival motor ne…
View article: Burden of Spinal Muscular Atrophy (SMA) on Patients and Caregivers in Canada
Burden of Spinal Muscular Atrophy (SMA) on Patients and Caregivers in Canada Open
Background: Spinal muscular atrophy (SMA) is a rare neurodegenerative disease characterized by progressive muscular weakness, which occurs in one in 6,000 to 10,000 live births. The burden of SMA on Canadian patients and caregivers is not …