Jenny Ingram
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View article: Experiences of the ABA‐Feed Infant Feeding Intervention: A Qualitative Study With Women, Peer Supporters and Coordinators
Experiences of the ABA‐Feed Infant Feeding Intervention: A Qualitative Study With Women, Peer Supporters and Coordinators Open
UK breastfeeding rates are low, with health inequalities in initiation and continuation. Breastfeeding peer support interventions are recommended in UK and global policy. The Assets‐based feeding help Before and After birth (ABA‐feed) tria…
View article: Parental Use of Social Media and the Internet in the Context of Their Child’s Genetic Neurodevelopmental Disorder: Mixed Methods Study Nested in the GenROC Cohort Study
Parental Use of Social Media and the Internet in the Context of Their Child’s Genetic Neurodevelopmental Disorder: Mixed Methods Study Nested in the GenROC Cohort Study Open
Background Social media groups (SMGs) enable individuals with rare diseases to connect with one another and access instant support and advice. Accelerated diagnoses of genetic neurodevelopmental disorders (NDDs) over the last decade have d…
View article: Identifying the Impacts, Obstacles and Information Barriers for Parents of Children Living With Genetic Neurodevelopmental Disorders: A Qualitative Study
Identifying the Impacts, Obstacles and Information Barriers for Parents of Children Living With Genetic Neurodevelopmental Disorders: A Qualitative Study Open
Background A genetic neurodevelopmental disorder (GND) impacts all aspects of a child's and family's life. GNDs are rare; most have limited natural history data. We aimed to understand the impacts, obstacles, information barriers and copin…
View article: “Okay in theory”: a qualitative study of safer sleep advice in families with infants at risk and families reporting risky sleep practices
“Okay in theory”: a qualitative study of safer sleep advice in families with infants at risk and families reporting risky sleep practices Open
Background Safer sleep messages have reduced the rates of sudden unexpected deaths in infancy by 90% in England since 1990. However, deaths continue, mainly in deprived families or where unsafe sleep practices remain common. Understanding …
View article: How do parents use social media and the internet in the context of their child’s genetic neurodevelopmental disorder (GND)? A mixed methods analysis from the GenROC cohort study (Preprint)
How do parents use social media and the internet in the context of their child’s genetic neurodevelopmental disorder (GND)? A mixed methods analysis from the GenROC cohort study (Preprint) Open
UNSTRUCTURED Social Media groups (SMG) enable individuals with rare disease to connect with one another, and access instant support and advice. Accelerated diagnoses of GNDs over the last decade have driven rapid expansion of gene specifi…
View article: Baby Sleep Project Protocol: a realist evaluation of an intervention to reduce preventable infant mortality
Baby Sleep Project Protocol: a realist evaluation of an intervention to reduce preventable infant mortality Open
Introduction In the UK, approximately 300 infants each year die suddenly and unexpectedly, with most deaths remaining unexplained. Population-wide ‘Safer Sleep’ messages have brought rates down but remaining deaths now predominantly occur …
View article: Mental health of parents with infants in NICU receiving cooling therapy for hypoxic-ischaemic encephalopathy
Mental health of parents with infants in NICU receiving cooling therapy for hypoxic-ischaemic encephalopathy Open
The CoolCuddle intervention was associated with a lower prevalence of depression and enhanced bonding scores for mothers at discharge compared to those who did not cuddle their babies. Parents highlighted increased levels of postnatal depr…
View article: Cooling and physiology during parent cuddling infants with neonatal encephalopathy in usual care: CoolCuddle‐2 study
Cooling and physiology during parent cuddling infants with neonatal encephalopathy in usual care: CoolCuddle‐2 study Open
Aim CoolCuddle, enabling parents to cuddle their babies with neonatal encephalopathy (NE) during therapeutic hypothermia and intensive care (TH), was developed in research settings. To determine the impact of implementing CoolCuddle in usu…
View article: Embedding the ‘CoolCuddle’ intervention for infants undergoing therapeutic hypothermia for hypoxic-ischaemic encephalopathy in NICU: an evaluation using normalisation process theory
Embedding the ‘CoolCuddle’ intervention for infants undergoing therapeutic hypothermia for hypoxic-ischaemic encephalopathy in NICU: an evaluation using normalisation process theory Open
Objectives Newborn infants exposed to lack of oxygen and blood flow to the brain around birth may develop brain dysfunction (hypoxic-ischaemic encephalopathy—HIE). These infants undergo 72 hours of cooling therapy and most are not held by …
View article: “They don’t know how to live with a child with these conditions, they can’t understand…”: The lived experiences of parenting a child with a genetic neurodevelopmental disorder
“They don’t know how to live with a child with these conditions, they can’t understand…”: The lived experiences of parenting a child with a genetic neurodevelopmental disorder Open
Background A genetic neurodevelopmental diagnosis (GND) impacts all aspects of a child and family’s life. GNDs are rare; most have limited natural history data. We aimed to understand parents’ experiences around data acquisition about thei…
View article: The RELIEF feasibility trial: topical lidocaine patches in older adults with rib fractures
The RELIEF feasibility trial: topical lidocaine patches in older adults with rib fractures Open
Background Lidocaine patches, applied over rib fractures, may reduce pulmonary complications in older patients. Known barriers to recruiting older patients in emergency settings necessitate a feasibility trial. We aimed to establish whethe…
View article: Improving the care of children with GENetic Rare disease: Observational Cohort study (GenROC)—a study protocol
Improving the care of children with GENetic Rare disease: Observational Cohort study (GenROC)—a study protocol Open
Introduction Around 2000 children are born in the UK per year with a neurodevelopmental genetic syndrome with significantly increased morbidity and mortality. Often little is known about expected growth and phenotypes in these children. Pa…
View article: Breast hypoplasia markers among women who report insufficient milk production: A retrospective online survey
Breast hypoplasia markers among women who report insufficient milk production: A retrospective online survey Open
Objectives To estimate the proportions of anatomical breast characteristics suggestive of breast hypoplasia among breastfeeding women self-reporting low milk supply. We also explored breast hypoplasia risk factors. Design Online survey con…
View article: A Risk Assessment and Planning Tool to Prevent Sudden Unexpected Death in Infancy: Development and Evaluation of The Baby Sleep Planner
A Risk Assessment and Planning Tool to Prevent Sudden Unexpected Death in Infancy: Development and Evaluation of The Baby Sleep Planner Open
Background Successful national safer sleep campaigns in the United Kingdom have lowered the death rates from sudden unexpected death in infancy (SUDI) over the past 3 decades, but deaths persist in socioeconomically deprived families. The …
View article: Implementation of the CHIldren with acute COugh (CHICO) intervention to improve antibiotics management: a qualitative study in primary care
Implementation of the CHIldren with acute COugh (CHICO) intervention to improve antibiotics management: a qualitative study in primary care Open
Background Childhood respiratory tract infections (RTIs) are common and can lead to unnecessary antibiotic use and antimicrobial resistance. The CHIldren with COugh (CHICO) intervention incorporates a clinician-focused algorithm (STARWAVe)…
View article: Adherence to the national guidance on foods and drinks to limit or avoid during pregnancy in England: the PEAR Study
Adherence to the national guidance on foods and drinks to limit or avoid during pregnancy in England: the PEAR Study Open
Objective: The National Health Service (NHS) England website provides guidance on foods/drinks to avoid or limit during pregnancy because of microbiological, toxicological or teratogenic hazards. The aims were to determine adherence and wh…
View article: A multifaceted intervention to reduce antibiotic prescribing among CHIldren with acute COugh and respiratory tract infection: the CHICO cluster RCT
A multifaceted intervention to reduce antibiotic prescribing among CHIldren with acute COugh and respiratory tract infection: the CHICO cluster RCT Open
Background Clinical uncertainty in primary care regarding the prognosis of children with respiratory tract infections contributes to the unnecessary use of antibiotics. Improved identification of children at low risk of future hospitalisat…
View article: Maternal vaccination provision in NHS maternity trusts across England
Maternal vaccination provision in NHS maternity trusts across England Open
A high proportion of maternity trusts provide both pertussis and influenza vaccinations, despite a negative impact of the pandemic. Reasons for large between-trust variation in vaccination rates should be explored to improve uptake and equ…
View article: Effectiveness and cost-effectiveness of Assets-based feeding help Before and After birth (ABA-feed) for improving breastfeeding initiation and continuation: protocol for a multicentre randomised controlled trial (Version 3.0)
Effectiveness and cost-effectiveness of Assets-based feeding help Before and After birth (ABA-feed) for improving breastfeeding initiation and continuation: protocol for a multicentre randomised controlled trial (Version 3.0) Open
Introduction Breastfeeding has health benefits for infants and mothers, yet the UK has low rates with marked social inequalities. The Assets-based feeding help Before and After birth (ABA) feasibility study demonstrated the acceptability o…
View article: Changes in background characteristics and risk factors among SIDS infants in England: cohort comparisons from 1993 to 2020
Changes in background characteristics and risk factors among SIDS infants in England: cohort comparisons from 1993 to 2020 Open
Objectives Using the National Child Mortality Database, this work aims to investigate background characteristics and risk factors in the sleeping environment associated with sudden infant death syndrome (SIDS) and compare the prevalence wi…
View article: The Randomised Evaluation of early topical Lidocaine patches In Elderly patients admitted to hospital with rib Fractures (RELIEF): feasibility trial protocol
The Randomised Evaluation of early topical Lidocaine patches In Elderly patients admitted to hospital with rib Fractures (RELIEF): feasibility trial protocol Open
Background: Topical lidocaine patches, applied over rib fractures, have been suggested as a non-invasive method of local anaesthetic delivery to improve respiratory function, reduce opioid consumption and consequently reduce pulmonary com…
View article: Implementation of flash glucose monitoring in four pediatric diabetes clinics: controlled before and after study to produce real-world evidence of patient benefit
Implementation of flash glucose monitoring in four pediatric diabetes clinics: controlled before and after study to produce real-world evidence of patient benefit Open
Aims To assess the real-world evidence for flash glucose monitoring (Abbott FreeStyle Libre) for children with type 1 diabetes in terms of glucose control, secondary healthcare resources and costs. Research design and methods We conducted …
View article: The Randomised Evaluation of early topical Lidocaine patches In Elderly patients admitted to hospital with rib Fractures (RELIEF): feasibility trial protocol
The Randomised Evaluation of early topical Lidocaine patches In Elderly patients admitted to hospital with rib Fractures (RELIEF): feasibility trial protocol Open
Background: Topical lidocaine patches, applied over rib fractures, have been suggested as a non-invasive method of local anaesthetic delivery to improve respiratory function, reduce opioid consumption and consequently reduce pulmonary comp…
View article: Fish Consumption during Pregnancy in Relation to National Guidance in England in a Mixed-Methods Study: The PEAR Study
Fish Consumption during Pregnancy in Relation to National Guidance in England in a Mixed-Methods Study: The PEAR Study Open
Guidance on foods to limit or avoid in pregnancy is provided on the NHS website for England. Advice on fish consumption is related to exposure to mercury, dioxins and polychlorinated biphenyls, which may have adverse effects on fetal neuro…
View article: Multi-faceted intervention to improve management of antibiotics for children presenting to primary care with acute cough and respiratory tract infection (CHICO): efficient cluster randomised controlled trial
Multi-faceted intervention to improve management of antibiotics for children presenting to primary care with acute cough and respiratory tract infection (CHICO): efficient cluster randomised controlled trial Open
Objective To assess whether an easy-to-use multifaceted intervention for children presenting to primary care with respiratory tract infections would reduce antibiotic dispensing, without increasing hospital admissions for respiratory tract…
View article: Flash glucose monitoring in young people with type 1 diabetes—a qualitative study of young people, parents and health professionals: ‘ <i>It makes life much easier’</i>
Flash glucose monitoring in young people with type 1 diabetes—a qualitative study of young people, parents and health professionals: ‘ <i>It makes life much easier’</i> Open
Objectives Flash glucose monitoring for patients with T1 diabetes avoids frequent painful finger-prick testing, thus potentially improving frequency of glucose self-monitoring. Our study aimed to explore experiences of young people using F…
View article: Provision of information by midwives for pregnant women in England on guidance on foods/drinks to avoid or limit
Provision of information by midwives for pregnant women in England on guidance on foods/drinks to avoid or limit Open
Background The NHS website gives guidance for pregnant women in England on foods/drinks to avoid or limit because of microbiological, toxicological or teratogenic hazards. These include, for example, some types of soft cheeses, fish/seafoo…