Carl May
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View article: Translational framework for implementation evaluation and research: a critical approach to patient-centred equity design
Translational framework for implementation evaluation and research: a critical approach to patient-centred equity design Open
View article: Effectiveness and cost-effectiveness of a transdiagnostic intervention targeting alcohol misuse and psychological distress for men in Ukraine: study protocol for a randomised controlled trial
Effectiveness and cost-effectiveness of a transdiagnostic intervention targeting alcohol misuse and psychological distress for men in Ukraine: study protocol for a randomised controlled trial Open
View article: Monitoring depression with the PHQ-9 in primary care: a qualitative study
Monitoring depression with the PHQ-9 in primary care: a qualitative study Open
Background Primary care guidelines recommend general practitioners consider using depression symptom questionnaires as patient-reported outcome measures (PROMs) to monitor depression in adults to inform treatment and evaluate management st…
View article: “SPHERE” multi-component novel psychosocial intervention for people with HIV: study protocol for a randomised controlled trial
“SPHERE” multi-component novel psychosocial intervention for people with HIV: study protocol for a randomised controlled trial Open
International Standard Randomised Controlled Trials Number (ISRCTN) Registry: ISRCTN47187932 [registered 12 July 2024].
View article: Understanding the Implementation of CareCoach—A Blended eHealth Intervention for Carers of People Living with Dementia: A Qualitative Process Evaluation Using Normalisation Process Theory
Understanding the Implementation of CareCoach—A Blended eHealth Intervention for Carers of People Living with Dementia: A Qualitative Process Evaluation Using Normalisation Process Theory Open
CareCoach seeks to enhance self-efficacy in family caregivers of people living with dementia and has been feasibility tested in a multicentre randomised controlled trial. The intervention offers two face-to-face sessions with a trained coa…
View article: Translational framework for implementation evaluation and research: implementation strategies derived from normalization process theory
Translational framework for implementation evaluation and research: implementation strategies derived from normalization process theory Open
Background Implementation strategies are deliberate systematic actions used to support the uptake of innovations in health and social care. While widely used taxonomies such as ERIC and EPOC have emerged from consensus exercises, few imple…
View article: “I can't show them on the phone so it's what I say and I'm not saying a lot.” – The loss of nonverbal and visual cues during telephone consultations, equity of access and the impact on marginalised patients: a qualitative study
“I can't show them on the phone so it's what I say and I'm not saying a lot.” – The loss of nonverbal and visual cues during telephone consultations, equity of access and the impact on marginalised patients: a qualitative study Open
View article: Internet and telephone intervention to support patients discontinuing long-term antidepressants in primary care: the REDUCE research programme including RCT
Internet and telephone intervention to support patients discontinuing long-term antidepressants in primary care: the REDUCE research programme including RCT Open
Background There is significant concern about increasing long-term antidepressant use in Western countries, much of which is not evidence-based. Median duration of treatment is more than 2 years in the United Kingdom, and more than 10% of …
View article: How lived experiences of illness trajectories, burdens of treatment, and social inequalities shape service user and caregiver participation in health and social care: a theory-informed qualitative evidence synthesis
How lived experiences of illness trajectories, burdens of treatment, and social inequalities shape service user and caregiver participation in health and social care: a theory-informed qualitative evidence synthesis Open
Background The workload service users and caregivers take on, and their capacity to do this work, when they engage with and participate in different kinds of care is important. It is reflected in policy and practice interventions that iden…
View article: ‘You can sleep hungry just to buy the medicine’: Applying a patient-centred model of cumulative complexity to explore how patients manage the lifelong workload of hypertension care in Kenya
‘You can sleep hungry just to buy the medicine’: Applying a patient-centred model of cumulative complexity to explore how patients manage the lifelong workload of hypertension care in Kenya Open
View article: An (un)restricted living: a qualitative exploration of the mental health and well-being of people living with HIV in England
An (un)restricted living: a qualitative exploration of the mental health and well-being of people living with HIV in England Open
People living with HIV, who have access to treatment, now have normal life expectancy. However, stigma and discrimination continue to affect health and well-being. We conducted focus groups with people living with HIV (n = 37), and key inf…
View article: Using normalisation process theory to understand implementation of effective early-onset type 2 diabetes treatment and care within England: a qualitative study
Using normalisation process theory to understand implementation of effective early-onset type 2 diabetes treatment and care within England: a qualitative study Open
Background Despite increasing prevalence, early-onset type 2 diabetes (EOT2D) has received little clinical and qualitative research attention within England. This qualitative study aimed to explore and understand the unmet needs of people …
View article: Feasibility and acceptability of the Alarm Distress Baby Scale (ADBB) in universal health visiting practice in England: a mixed-methods study using Normalisation Process Theory
Feasibility and acceptability of the Alarm Distress Baby Scale (ADBB) in universal health visiting practice in England: a mixed-methods study using Normalisation Process Theory Open
Background The Alarm Distress Baby Scale (ADBB) is a validated observation tool, designed for use by healthcare practitioners to identify infant social withdrawal. A modified version (m-ADBB) was later developed as a clinically useful beha…
View article: Cognitive Authority Theory: Reframing health inequity, disadvantage and privilege in palliative and end-of-life care
Cognitive Authority Theory: Reframing health inequity, disadvantage and privilege in palliative and end-of-life care Open
Background: There persist disparities in access to quality palliative and end-of-life care, often based on avoidable injustice. Research and theory to explain this health inequity focuses on structural or individual-based factors, overlook…
View article: Explanatory models and coping with alcohol misuse among conflict-affected men in Ukraine
Explanatory models and coping with alcohol misuse among conflict-affected men in Ukraine Open
Affecting nearly 10% of men globally, alcohol use disorders (AUDs) represent a significant public health burden. Existing work, including from Ukraine, suggests that living in conflict settings may exacerbate the risk of AUDs. However, the…
View article: A systematic review of the use of burden of treatment theory
A systematic review of the use of burden of treatment theory Open
Background Treatment burden describes the workload undertaken by people with chronic illness and multimorbidity to manage their healthcare demands and the impact on their wellbeing. Burden of Treatment Theory (BOTT) describes the work that…
View article: Development of a non-specialist worker delivered psychological intervention to address alcohol use disorders and psychological distress among conflict-affected populations in Uganda and Ukraine
Development of a non-specialist worker delivered psychological intervention to address alcohol use disorders and psychological distress among conflict-affected populations in Uganda and Ukraine Open
Background Despite the significant burden of alcohol use disorders (AUD), there is a large treatment gap, especially in settings and populations affected by armed conflict. A key barrier to care is the lack of contextually relevant interve…
View article: Acceptability and feasibility of CHANGE, a non-specialist worker delivered intervention to address alcohol use disorders and psychological distress among conflict-affected populations in Uganda: a qualitative study
Acceptability and feasibility of CHANGE, a non-specialist worker delivered intervention to address alcohol use disorders and psychological distress among conflict-affected populations in Uganda: a qualitative study Open
View article: Reusable Intermittent Catheters are Acceptable but Product Innovation is Needed
Reusable Intermittent Catheters are Acceptable but Product Innovation is Needed Open
PURPOSE: The purpose of this study was to explore the experiences of intermittent catheter users after using both reusable and single-use catheters, with a particular focus on factors that affected acceptability. DESIGN: Qualitative descri…
View article: Care for patients living with chronic conditions using the ICAN Discussion Aid: A mixed methods cluster-randomized trial
Care for patients living with chronic conditions using the ICAN Discussion Aid: A mixed methods cluster-randomized trial Open
Objectives To assess the effectiveness of the ICAN Discussion Aid in improving patients’ experience of receiving care for their chronic conditions and health professionals’ experience of providing their care. Methods We conducted a pragmat…
View article: The Early Youth Engagement (EYE-2) intervention in first-episode psychosis services: pragmatic cluster randomised controlled trial and cost-effectiveness evaluation
The Early Youth Engagement (EYE-2) intervention in first-episode psychosis services: pragmatic cluster randomised controlled trial and cost-effectiveness evaluation Open
Background Early intervention in psychosis (EIP) services improve outcomes for young people, but approximately 30% disengage. Aims To test whether a new motivational engagement intervention would prolong engagement and whether it was cost-…
View article: Exploring the workload of informal caregiving in the context of HIV/NCD multimorbidity in South Africa
Exploring the workload of informal caregiving in the context of HIV/NCD multimorbidity in South Africa Open
The importance of informal caregiving for chronic illness has been well established in African contexts but is underexplored in the context of HIV/NCD multimorbidity, particularly in South Africa. Building on treatment burden theories that…
View article: 319 - Mix and match: A qualitative study finds both single-use and reusable intermittent catheters are needed
319 - Mix and match: A qualitative study finds both single-use and reusable intermittent catheters are needed Open
View article: Trial to compare mixed-use (multi-use and single-use) intermittent catheter management with single-use management over 12 months (The MultICath Trial): protocol for a non-inferiority randomised controlled trial
Trial to compare mixed-use (multi-use and single-use) intermittent catheter management with single-use management over 12 months (The MultICath Trial): protocol for a non-inferiority randomised controlled trial Open
Introduction Evaluating the safety and acceptability of reusing catheters for intermittent catheterisation (IC) is one of the top 10 continence research priorities identified by the UK James Lind Alliance Priority Setting Partnership in 20…
View article: GP remote consultations with marginalised patients and the importance of place during care: a qualitative study of the role of place in GP consultations
GP remote consultations with marginalised patients and the importance of place during care: a qualitative study of the role of place in GP consultations Open
Background Since the COVID-19 pandemic, there has been an increase in the use of remote consultations in general practice in the UK. This leads to the displacement of the consultation outside of the physical general practice, and its ‘empl…
View article: Acceptability and usability of a nurse-assisted remote patient monitoring intervention for the post-hospital follow-up of patients with long-term illness: A qualitative study
Acceptability and usability of a nurse-assisted remote patient monitoring intervention for the post-hospital follow-up of patients with long-term illness: A qualitative study Open
Acceptability and usability are critical factors to consider when evaluating remote patient monitoring interventions. In this study, the most important feature for promoting acceptability and usability was the interaction between patients …
View article: How is tailored implementation undertaken using a self-guided toolkit? Qualitative study of the ItFits-toolkit in the ImpleMentAll project
How is tailored implementation undertaken using a self-guided toolkit? Qualitative study of the ItFits-toolkit in the ImpleMentAll project Open
View article: Internet and Telephone Support for Discontinuing Long-Term Antidepressants
Internet and Telephone Support for Discontinuing Long-Term Antidepressants Open
Importance There is significant concern regarding increasing long-term antidepressant treatment for depression beyond an evidence-based duration. Objective To determine whether adding internet and telephone support to a family practitioner…
View article: Systematic review of applications and properties of the NoMAD instrument for assessing implementation outcomes: Study protocol
Systematic review of applications and properties of the NoMAD instrument for assessing implementation outcomes: Study protocol Open
Background Implementation outcomes measures can be used to assess the implementation of complex health and social care interventions, but evidence for the use of these measures, and their psychometric properties, remains limited. The NoMAD…
View article: Correction: Effectiveness and cost-effectiveness of a transdiagnostic intervention for alcohol misuse and psychological distress in humanitarian settings: study protocol for a randomised controlled trial in Uganda
Correction: Effectiveness and cost-effectiveness of a transdiagnostic intervention for alcohol misuse and psychological distress in humanitarian settings: study protocol for a randomised controlled trial in Uganda Open