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View article: The needs of family caregivers providing palliative home care in Portugal: a multi-stage mixed methods study protocol
The needs of family caregivers providing palliative home care in Portugal: a multi-stage mixed methods study protocol Open
Background In palliative care (PC), family caregivers (FCs) play an important role in managing patient symptoms and addressing patient needs. In end-of-life (EoL), FCs frequently experience distress that exacerbates emotional strain and co…
View article: Implementing Namaste Care in nursing care homes for people with advanced dementia: a systematically constructed review with framework synthesis
Implementing Namaste Care in nursing care homes for people with advanced dementia: a systematically constructed review with framework synthesis Open
View article: Educational innovation as a communication strategy in palliative care: A study protocol and preliminary results
Educational innovation as a communication strategy in palliative care: A study protocol and preliminary results Open
Introduction Society associates palliative care with "death" or "end of life", which cause them fear and anxiety. In Spain, the media worsens the misunderstanding by depicting a wrong picture of palliative care. Educational innovation for …
View article: Palliative care stay room – designing, testing and evaluating a gamified social intervention to enhance palliative care awareness
Palliative care stay room – designing, testing and evaluating a gamified social intervention to enhance palliative care awareness Open
View article: The impact of COVID-19 on palliative care social work: An online survey by a European Association of Palliative Care Task Force
The impact of COVID-19 on palliative care social work: An online survey by a European Association of Palliative Care Task Force Open
Background: The SARS-Cov-2 (COVID-19) pandemic affected the delivery of health and social care services globally. However, little is known about how palliative care social work services were impacted. Aim: The aim of this study was to capt…
View article: Combining interdisciplinarity and creative design - A powerful strategy to increase palliative care awareness within a university community
Combining interdisciplinarity and creative design - A powerful strategy to increase palliative care awareness within a university community Open
View article: Palliative Care Stay Room – designing, testing and evaluating a gamified social intervention to enhance palliative care awareness.
Palliative Care Stay Room – designing, testing and evaluating a gamified social intervention to enhance palliative care awareness. Open
Introduction: The message of palliative care can be promoted using creative thinking and gamification. It can be an innovative strategy to promote changes in behaviour, promote thinking, and work on skills such as empathy. Aim: Design, tes…
View article: Palliative Care Professionals’ Message to Others: An Ethnographic Approach
Palliative Care Professionals’ Message to Others: An Ethnographic Approach Open
Introduction: Palliative care continues to be misunderstood within the world of healthcare. Palliative care professionals are key agents for promoting a greater understanding of their field. This study aims to examine the messages, both im…
View article: Interdisciplinary discussions on palliative care among university students in Spain: giving voice to the social debate
Interdisciplinary discussions on palliative care among university students in Spain: giving voice to the social debate Open
Despite the fact that students do not know much about PC, the topic easily arouses reflection and positive discussion. Through the conversations they find positive values and arguments against misunderstand- ing. Students from different di…
View article: Palliative care in its own discourse: a focused ethnography of professional messaging in palliative care
Palliative care in its own discourse: a focused ethnography of professional messaging in palliative care Open
Background Despite 50 years of modern palliative care (PC), a misunderstanding of its purpose persists. The original message that PC is focused on total care, helping to live until the person dies, is being replaced and linked to feelings …
View article: Understanding illnesses through a film festival: An observational study
Understanding illnesses through a film festival: An observational study Open
View article: Symptom prevalence of patients with fibrotic interstitial lung disease: a systematic literature review
Symptom prevalence of patients with fibrotic interstitial lung disease: a systematic literature review Open
View article: Psychometric validation of the needs assessment tool: progressive disease in interstitial lung disease
Psychometric validation of the needs assessment tool: progressive disease in interstitial lung disease Open
The inter-rater/test–retest reliability and construct validity of a palliative care needs assessment tool in interstitial lung disease (NAT:PD-ILD) were tested using NAT:PD-ILD-guided video-recorded consultations, and NAT:PD-ILD-guided con…
View article: 132Key Considerations in the Development of a Participatory Action Research Network of Family Carers of People with Dementia
132Key Considerations in the Development of a Participatory Action Research Network of Family Carers of People with Dementia Open
View article: Implementation of the Needs Assessment Tool for patients with interstitial lung disease (NAT:ILD): facilitators and barriers
Implementation of the Needs Assessment Tool for patients with interstitial lung disease (NAT:ILD): facilitators and barriers Open
A Needs Assessment Tool (NAT) was developed previously to help clinicians identify the supportive/palliative needs of people with interstitial lung disease (ILD) (NAT:ILD). This letter presents barriers and facilitators to clinical impleme…
View article: M16 Construct validity of the needs assessment tool progressive diseases for interstitial lung disease (NAT: PD-ILD) patients
M16 Construct validity of the needs assessment tool progressive diseases for interstitial lung disease (NAT: PD-ILD) patients Open
Background People with ILD, currently have less access to SPC and there is no validated needs assessment tool (NAT). We adapted the NAT:PD-cancer for use in ILD and conducted psychometric testing. Aim To test the construct validity of NAT:…
View article: The Adaptation, Face, and Content Validation of a Needs Assessment Tool: Progressive Disease for People with Interstitial Lung Disease
The Adaptation, Face, and Content Validation of a Needs Assessment Tool: Progressive Disease for People with Interstitial Lung Disease Open
The NAT:PD-ILD appears to have face and content validity. The inclusion of the family caregiver in the consultation as someone with their own needs as well as a source of information was welcomed. Reliability testing and construct validati…
View article: Construção de uma escala de capacidade para cuidar em paliativos: processo de validação de conteúdo
Construção de uma escala de capacidade para cuidar em paliativos: processo de validação de conteúdo Open
RESUMO - Em cuidados paliativos (CP) é essencial apostar no bem-estar. O objetivo deste estudo é apresentar o processo de construção e validação de conteúdo da escala de capacidade para cuidar em paliativos (ECCP). Criou-se uma lista de 58…
View article: ADAPTATION, FACE AND CONTENT VALIDATION OF A PALLIATIVE CARE NEEDS ASSESSMENT TOOL FOR PEOPLE WITH INTERSTITIAL LUNG DISEASE
ADAPTATION, FACE AND CONTENT VALIDATION OF A PALLIATIVE CARE NEEDS ASSESSMENT TOOL FOR PEOPLE WITH INTERSTITIAL LUNG DISEASE Open
Introduction Interstitial lung disease (ILD) is a non-malignant progressive disease which causes breathlessness, cough, fatigue, psycho-social, financial and spiritual distress; difficult for patients and their family carers. The Needs Ass…
View article: The Caregiver Role in Palliative Care: A Systematic Review of the Literature
The Caregiver Role in Palliative Care: A Systematic Review of the Literature Open
A systematic review of the literature from 2000 to 2011 sought to meet this challenge by asking caregiver experiences with Amyotrophic Lateral Sclerosis (ALS) patients.A total of 59 articles were studied showing that it is imperative that …