Carlos Rodríguez‐Galindo
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View article: 48 Moving beyond run and control charts to establish a causal pathway and evaluate impact: a case study
48 Moving beyond run and control charts to establish a causal pathway and evaluate impact: a case study Open
View article: Landscape assessment to characterize baseline access and multilevel barriers to IMProve Access to CAR-T CD19 therapy (IMPACT study) across Europe
Landscape assessment to characterize baseline access and multilevel barriers to IMProve Access to CAR-T CD19 therapy (IMPACT study) across Europe Open
Background/Purpose Chimeric Antigen Receptor-T Cell Therapy (CAR-T) has revolutionized the treatment of B-cell precursor acute lymphoblastic leukemia (B–ALL), but its global availability is limited. This study assessed current access and b…
View article: Whom to include? A cross-sectional survey study investigating how culture impacts diagnostic decision making for paediatric cancer in Pakistan
Whom to include? A cross-sectional survey study investigating how culture impacts diagnostic decision making for paediatric cancer in Pakistan Open
Objectives This study sought to explore decision making among caregivers of children with cancer in Pakistan, one of the largest lower middle-income countries in the world. Design Cross-sectional survey study Setting This study was conduct…
View article: An Innovative Virtual Fellowship Leveraging Global and Regional Mentorship to Foster Pediatric Neuro-Oncologists in Low/Middle-Income Countries
An Innovative Virtual Fellowship Leveraging Global and Regional Mentorship to Foster Pediatric Neuro-Oncologists in Low/Middle-Income Countries Open
Background Most children with central nervous system (CNS) tumors reside in low- and middle-income countries (LMICs), with limited availability of trained pediatric neuro-oncologists. Methods Using a series of structured interviews of phys…
View article: Translating the science of care and cure for children with cancer
Translating the science of care and cure for children with cancer Open
The past 50 years have seen great progress for children with cancer, and yet, this progress has been largely unreached for most children. We examine how global efforts aimed at spreading, scaling, and sustaining interventions to improve ac…
View article: Communication practices and information exchange for caregivers of children with cancer in Pakistan
Communication practices and information exchange for caregivers of children with cancer in Pakistan Open
Introduction Information exchange is a core component of communication that has been understudied globally. This study sought to examine eight core functions of communication, including information exchange, among caregivers of children wi…
View article: Aliança AMARTE: A Collaborative Network to Improve Oncologic Pediatric Care in Brazil
Aliança AMARTE: A Collaborative Network to Improve Oncologic Pediatric Care in Brazil Open
Introduction In Brazil, inequalities in access to treatment and survival of childhood cancer are observed across different geographic regions. In 2014, under the coordination of Hospital de Câncer Infantojuvenil de Barretos (Fundação Pio X…
View article: Introductory Course in Pediatric Oncology for Registrars/Residents and Medical Officers in Sub‐Saharan Africa: A Pilot Study
Introductory Course in Pediatric Oncology for Registrars/Residents and Medical Officers in Sub‐Saharan Africa: A Pilot Study Open
A shortage of pediatric oncologists limits teaching and supervision of registrars/residents and medical officers working in pediatric oncology units. Our aim was to develop and pilot a blended, introductory course in pediatric oncology in …
View article: Case report: diagnostic challenges and long-term survival of a child with bronchial mucoepidermoid carcinoma
Case report: diagnostic challenges and long-term survival of a child with bronchial mucoepidermoid carcinoma Open
Clinical presentation of bronchial MEC is similar to that of other pulmonary neoplasms. In our challenging case, the identification of CRTC3::MAML2 fusion was essential for diagnosis. The successful outcome in this case was made pos…
View article: Reducing Diagnostic Time for Childhood Cancer in Peru: A Hospital-Based Registry Analysis Four Years After the Implementation of the Global Initiative for Childhood Cancer
Reducing Diagnostic Time for Childhood Cancer in Peru: A Hospital-Based Registry Analysis Four Years After the Implementation of the Global Initiative for Childhood Cancer Open
View article: Restoring health and hope to displaced Gaza children with malignant disease at a cancer centre in Jordan
Restoring health and hope to displaced Gaza children with malignant disease at a cancer centre in Jordan Open
Background: Gaza children with cancer have faced critical delays in diagnosis and treatment due to the conflict, leading to late-stage presentation. Aim: To assess the impact of disruptions on treatment outcome for Gaza children with cance…
View article: Evaluation of task sharing as a workforce optimization strategy in pediatric oncology
Evaluation of task sharing as a workforce optimization strategy in pediatric oncology Open
Task sharing is a pragmatic response to the growing shortage of pediatric oncologists globally, especially in low- and middle-income countries (LMICs). However, there have been limited evaluations of how task sharing has been implemented. …
View article: Prospective Evaluation of the Pathologic Diagnosis and Treatment Outcomes of Pediatric Burkitt Lymphoma in the Central American Pediatric Hematology-Oncology Association Consortium
Prospective Evaluation of the Pathologic Diagnosis and Treatment Outcomes of Pediatric Burkitt Lymphoma in the Central American Pediatric Hematology-Oncology Association Consortium Open
PURPOSE Clinical and histopathologic diagnosis of pediatric mature B-cell lymphomas (eg, Burkitt lymphoma [BL]) must be accurate to select appropriate risk-based treatment. The Central American Pediatric Hematology-Oncology Association (AH…
View article: International accreditation of a pediatric hematology/oncology fellowship program in Guatemala: a quantitative assessment
International accreditation of a pediatric hematology/oncology fellowship program in Guatemala: a quantitative assessment Open
This study provides quantitative data on the enhancement of a PHO fellowship program in a middle-income country after the process ACGME-I accreditation based on the improvement of EPAT scores. Additional analyses and evaluation tools are n…
View article: Landscape of Global Pediatric Oncology Publications: A Cross-Sectional Analysis
Landscape of Global Pediatric Oncology Publications: A Cross-Sectional Analysis Open
PURPOSE The academic field of global pediatric oncology is expanding as cancer becomes increasingly recognized as a global health priority for children and adolescents. Here, we aimed to explore the representation of authors, the geographi…
View article: The St. Jude Global Academy: A Multifaceted Education Program to Expand Pediatric Oncology Workforce Capacity
The St. Jude Global Academy: A Multifaceted Education Program to Expand Pediatric Oncology Workforce Capacity Open
There is currently a global shortage of healthcare professionals equipped to handle the rising burden of childhood cancer. St. Jude Global is an initiative to improve survival rates of children with cancer worldwide while improving access …
View article: Diagnostic Decision Making for Pediatric Cancer in Pakistan
Diagnostic Decision Making for Pediatric Cancer in Pakistan Open
View article: Building pediatric neuro-oncology capacity in LMICs through multidisciplinary education and collaboration: a mixed-methods analysis
Building pediatric neuro-oncology capacity in LMICs through multidisciplinary education and collaboration: a mixed-methods analysis Open
Background The St. Jude Global Academy’s Neuro-Oncology Training Seminar (NOTS) is a course in pediatric neuro-oncology (PNO), which was created for physicians from low- and middle-income countries. This study reports on the impact of the …
View article: Exploring treatment decision-making at diagnosis for children with advanced cancer in low- and middle-income countries
Exploring treatment decision-making at diagnosis for children with advanced cancer in low- and middle-income countries Open
Upfront treatment decision-making for children with advanced or poor prognosis cancer in LMICs is variable and challenging. Difficulties with decision-making in LMICs may be amplified by inconsistent definitions of poor prognosis and under…
View article: Explanatory models in real-world clinical interactions at a pediatric cancer center in Guatemala
Explanatory models in real-world clinical interactions at a pediatric cancer center in Guatemala Open
Explanatory models (EMs) are used in medical anthropology to characterize individual understandings of illness. This study investigated how interdisciplinary clinical interactions elicited caregiver EMs at a pediatric cancer center in Guat…
View article: ALIANÇA AMARTE/ST JUDE GLOBAL: COOPERAÇÃO TÉCNICO CIENTIFICA ENTRE INSTITUIÇÕES DE ONCO/HEMATOLOGIA PEDIÁTRICA PARA MELHORIA DO TRATAMENTO E CURA DOS PACIENTES PEDIATRICOS
ALIANÇA AMARTE/ST JUDE GLOBAL: COOPERAÇÃO TÉCNICO CIENTIFICA ENTRE INSTITUIÇÕES DE ONCO/HEMATOLOGIA PEDIÁTRICA PARA MELHORIA DO TRATAMENTO E CURA DOS PACIENTES PEDIATRICOS Open
Introdução: Em 2014, o Hospital de Câncer Infantojuvenil de Barretos coordenou a criação do Projeto AMARTE (A poio M aior A umentando R ecursos e T reinamentos E specializados). Em 2019, com base em uma cooperação técnico-científica existe…
View article: Functions of patient- and family-centered pediatric cancer communication in Pakistan
Functions of patient- and family-centered pediatric cancer communication in Pakistan Open
Background Communication is an essential aspect of high-quality patient- and family-centered care. A model for pediatric cancer communication developed in the United States defined eight communication functions. The purpose of this study w…
View article: Pediatric Adrenocortical Carcinoma: The Nuts and Bolts of Diagnosis and Treatment and Avenues for Future Discovery
Pediatric Adrenocortical Carcinoma: The Nuts and Bolts of Diagnosis and Treatment and Avenues for Future Discovery Open
Adrenocortical tumors (ACTs) are infrequent neoplasms in children and adolescents and are typically associated with clinical symptoms reflective of androgen overproduction. Pediatric ACTs typically occur in the context of a germline TP5…
View article: Parent–provider communication dynamics during the pediatric oncology diagnostic process in Guatemala: A qualitative study
Parent–provider communication dynamics during the pediatric oncology diagnostic process in Guatemala: A qualitative study Open
Background Effective communication is founded on bidirectional participation from families and healthcare providers. In adult medicine, bidirectional communication promotes treatment adherence and builds the family–provider relationship. H…
View article: LMIC-26. DEVELOPMENT OF THE ST. JUDE GLOBAL VIRTUAL PEDIATRIC NEURO-ONCOLOGY FELLOWSHIP (VPNOF): INCREASING PEDIATRIC NEURO-ONCOLOGY CAPACITY IN LOW- AND MIDDLE- INCOME COUNTRIES (LMIC)
LMIC-26. DEVELOPMENT OF THE ST. JUDE GLOBAL VIRTUAL PEDIATRIC NEURO-ONCOLOGY FELLOWSHIP (VPNOF): INCREASING PEDIATRIC NEURO-ONCOLOGY CAPACITY IN LOW- AND MIDDLE- INCOME COUNTRIES (LMIC) Open
BACKGROUND Most children with central nervous system (CNS) tumors reside in LMICs, yet their complex management is limited by the availability of trained pediatric neuro-oncologists (PNO). The St. Jude Global VPNOF was designed to train pe…
View article: Impact of a Regional Pediatric Hematology/Oncology Fellowship Program in Guatemala
Impact of a Regional Pediatric Hematology/Oncology Fellowship Program in Guatemala Open
PURPOSE This study aimed to describe and assess the regional experience of a pediatric hematology/oncology fellowship program based in Guatemala. METHODS The Unidad Nacional de Oncología Pediátrica (UNOP) in Guatemala City, Guatemala, is t…
View article: Stigma in Pediatric Cancer: An Exploratory Study of Osteosarcoma and Retinoblastoma in Guatemala, Jordan, and Zimbabwe
Stigma in Pediatric Cancer: An Exploratory Study of Osteosarcoma and Retinoblastoma in Guatemala, Jordan, and Zimbabwe Open
PURPOSE Stigma is an understudied barrier to health care acceptance in pediatric oncology. We sought to explore the stigma experience, including its impact on cancer treatment decision making, and identify strategies to mitigate stigma for…
View article: Clinical and immunophenotype correlating with response to immunotherapy in paediatric patients with primary liver carcinoma. A case series
Clinical and immunophenotype correlating with response to immunotherapy in paediatric patients with primary liver carcinoma. A case series Open
View article: Unification of Efforts to Improve Global Access to Cancer Therapeutics: Report From the 2022/2023 Access to Essential Cancer Medicines Stakeholder Summit
Unification of Efforts to Improve Global Access to Cancer Therapeutics: Report From the 2022/2023 Access to Essential Cancer Medicines Stakeholder Summit Open
PURPOSE There is an urgent need to improve access to cancer therapy globally. Several independent initiatives have been undertaken to improve access to cancer medicines, and additional new initiatives are in development. Improved sharing o…
View article: Identification and characterization of stromal-like cells with CD207+/low CD1a+/low phenotype derived from histiocytic lesions – a perspective in vitro model for drug testing
Identification and characterization of stromal-like cells with CD207+/low CD1a+/low phenotype derived from histiocytic lesions – a perspective in vitro model for drug testing Open
Background Histiocytoses are rare disorders manifested by increased proliferation of pathogenic myeloid cells sharing histological features with macrophages or dendritic cells and accumulating in various organs, i.a., bone and skin. Pre-cl…