Cecelia Bellcross
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View article: Feasibility of an electronic patient-facing cancer family history tool in medically underserved populations
Feasibility of an electronic patient-facing cancer family history tool in medically underserved populations Open
View article: Healthcare Experiences of African American Women with the Fragile X Premutation
Healthcare Experiences of African American Women with the Fragile X Premutation Open
View article: Most people share genetic test results with relatives even if the findings are normal: Family communication in a diverse population
Most people share genetic test results with relatives even if the findings are normal: Family communication in a diverse population Open
View article: Supplementary Material for: Your Family Connects: A Theory-Based Intervention to Encourage Communication About Possible Inherited Cancer Risk among Ovarian Cancer Survivors and Close Relatives
Supplementary Material for: Your Family Connects: A Theory-Based Intervention to Encourage Communication About Possible Inherited Cancer Risk among Ovarian Cancer Survivors and Close Relatives Open
Introduction: Encouraging family communication about possible genetic risk has become among the most important avenues for achieving the full potential of genomic discovery for primary and secondary prevention. Yet, effective family-wide r…
View article: Your Family Connects: A Theory-Based Intervention to Encourage Communication about Possible Inherited Cancer Risk among Ovarian Cancer Survivors and Close Relatives
Your Family Connects: A Theory-Based Intervention to Encourage Communication about Possible Inherited Cancer Risk among Ovarian Cancer Survivors and Close Relatives Open
Introduction: Encouraging family communication about possible genetic risk has become among the most important avenues for achieving the full potential of genomic discovery for primary and secondary prevention. Yet, effective family-wide r…
View article: The diagnostic experience of women with fragile X–associated primary ovarian insufficiency (FXPOI)
The diagnostic experience of women with fragile X–associated primary ovarian insufficiency (FXPOI) Open
View article: Screening for Individuals at Risk for Hereditary Breast and Ovarian Cancer: A Statewide Initiative, Georgia, 2012–2020
Screening for Individuals at Risk for Hereditary Breast and Ovarian Cancer: A Statewide Initiative, Georgia, 2012–2020 Open
Georgia implemented a statewide family history screening program for hereditary breast and ovarian cancer. From November 2012 through December 2020, 29 090 individuals were screened, 16 679 of whom (57.3%) self-identified as a racial/ethni…
View article: Laboratory-related outcomes from integrating an accessible delivery model for hereditary cancer risk assessment and genetic testing in populations with barriers to access
Laboratory-related outcomes from integrating an accessible delivery model for hereditary cancer risk assessment and genetic testing in populations with barriers to access Open
View article: Evaluating Differences in the Disease Experiences of Minority Adults With Cystic Fibrosis
Evaluating Differences in the Disease Experiences of Minority Adults With Cystic Fibrosis Open
Extensive research has demonstrated disparities in health outcomes and survival between non-Hispanic Caucasian (NHC) and non-Caucasian or Hispanic (minority) persons with cystic fibrosis (CF) in the United States (US). However, very little…
View article: Automated Clinical Practice Guideline Recommendations for Hereditary Cancer Risk Using Chatbots and Ontologies: System Description
Automated Clinical Practice Guideline Recommendations for Hereditary Cancer Risk Using Chatbots and Ontologies: System Description Open
Background Identifying patients at risk of hereditary cancer based on their family health history is a highly nuanced task. Frequently, patients at risk are not referred for genetic counseling as providers lack the time and training to col…
View article: Comparison of a Cancer Family History Collection and Risk Assessment Tool – ItRunsInMyFamily – with Risk Assessment by Health-Care Professionals
Comparison of a Cancer Family History Collection and Risk Assessment Tool – ItRunsInMyFamily – with Risk Assessment by Health-Care Professionals Open
Introduction: Primary care providers (PCPs) and oncologists lack time and training to appropriately identify patients at increased risk for hereditary cancer using family health history (FHx) and clinical practice guideline (…
View article: 292: Evaluating potential differences in the disease experiences of adult minority patients with cystic fibrosis
292: Evaluating potential differences in the disease experiences of adult minority patients with cystic fibrosis Open
View article: A Randomized Trial to Maximize Identification and Genetic Counseling Referral of Women at Risk for Hereditary Breast and Ovarian Cancer
A Randomized Trial to Maximize Identification and Genetic Counseling Referral of Women at Risk for Hereditary Breast and Ovarian Cancer Open
Purpose: The Breast Cancer Genetics Referral Screening Tool (B-RST™) has been endorsed as one of several validated screening tools to identify women appropriate for cancer genetics referral. We conducted a randomized trial to determine the…
View article: Evaluation and comparison of hereditary Cancer guidelines in the population
Evaluation and comparison of hereditary Cancer guidelines in the population Open
View article: Automated Clinical Practice Guideline Recommendations for Hereditary Cancer Risk Using Chatbots and Ontologies: System Description (Preprint)
Automated Clinical Practice Guideline Recommendations for Hereditary Cancer Risk Using Chatbots and Ontologies: System Description (Preprint) Open
BACKGROUND Identifying patients at risk of hereditary cancer based on their family health history is a highly nuanced task. Frequently, patients at risk are not referred for genetic counseling as providers lack the time and training to co…
View article: Men with an <i>FMR1</i> premutation and their health education needs
Men with an <i>FMR1</i> premutation and their health education needs Open
Men who carry an FMR1 premutation are at‐risk to develop a late‐onset neurodegenerative disorder called fragile X‐Associated Ataxia/Tremor syndrome (FXTAS). However, little is known about their health informational needs. This qualitative …
View article: Supplementary Material for: Comparison of a Cancer Family History Collection and Risk Assessment Tool – ItRunsInMyFamily – with Risk Assessment by Health-Care Professionals
Supplementary Material for: Comparison of a Cancer Family History Collection and Risk Assessment Tool – ItRunsInMyFamily – with Risk Assessment by Health-Care Professionals Open
Introduction: Primary care providers (PCPs) and oncologists lack time and training to appropriately identify patients at increased risk for hereditary cancer using family health history (FHx) and clinical practice guideline (…
View article: Willingness to decrease mammogram frequency among women at low risk for hereditary breast cancer
Willingness to decrease mammogram frequency among women at low risk for hereditary breast cancer Open
View article: The Impact of Genetic Counseling Educational Tools on Patients’ Knowledge of Molecular Testing Terminology
The Impact of Genetic Counseling Educational Tools on Patients’ Knowledge of Molecular Testing Terminology Open
View article: Validation of Version 3.0 of the Breast Cancer Genetics Referral Screening Tool (B-RST™)
Validation of Version 3.0 of the Breast Cancer Genetics Referral Screening Tool (B-RST™) Open
View article: Hereditary breast and ovarian cancer: risk assessment in minority women and provider knowledge gaps
Hereditary breast and ovarian cancer: risk assessment in minority women and provider knowledge gaps Open
BackgroundThe Georgia Breast Cancer Genomics Project identifed minority and underserved women at high risk for hereditary breast and ovarian cancer based on family history.Education, web-based screening, genetic counseling, and testing wer…
View article: Infrastructure and Educational Needs of Newborn Screening Short-Term Follow-Up Programs within the Southeast Regional Newborn Screening & Genetics Collaborative: A Pilot Survey
Infrastructure and Educational Needs of Newborn Screening Short-Term Follow-Up Programs within the Southeast Regional Newborn Screening & Genetics Collaborative: A Pilot Survey Open
Newborn screening (NBS) follow-up protocols vary significantly by state, and there is a need to better understand the infrastructure and communication flow of NBS programs. In addition, assessment of the educational needs of families and p…