Explanipedia

An Examination of Health Care Transition Experiences Through Parents’ Reflections About Their Sons or Daughters Who Have Intellectual and Developmental Disabilities Open

Christine B. Mirzaian, Ralph W. Smith, Cecily L. Betz · 2025

Background: As national and international reports reveal, significant health care transition (HCT) service disparities exist for youth and young adults with intellectual and developmental disabilities (YYAs with IDD). The development of th…

Innovating Nursing Education Through Partnership With Individuals With Intellectual and Developmental Disabilities Open

Mark Fisher, J. Carolyn Graff, Cindy Hill, Julie LaMothe, Serge' R. Nelson , et al. · 2025

Background Health disparities of individuals with intellectual and developmental disabilities (IDD) have been a longstanding public health concern. Unlike the engagement of service sectors and governmental entities in advocating for human …

Editorial: Advancing the science and practice of health care transition Open

Cecily L. Betz · 2025

Associated factors that contribute to readiness for healthcare transition in a population of adolescents and young adults with special healthcare needs Open

Benedicta C. Anikputa, Sharon D. Horner, Cecily L. Betz, Megan Thomas-Hebdon, Cara C. Young · 2024

Background: Children with special health care needs (SHCN) are a growing population in the United States, who because of advancements in medicine, are surviving into adulthood and are expected to transition from pediatric care to adult car…

Barriers to Mental Health Care Transition for Youth and Young Adults with Intellectual and Developmental Disabilities and Co-occurring Mental Health Conditions: Stakeholders’ Perspectives Open

Christine B. Mirzaian, Alexis Deavenport‐Saman, Sharon Hudson, Cecily L. Betz · 2024

Health care transition recommendations for young people with intellectual and developmental disabilities and co-occurring mental health conditions: Stakeholder survey findings Open

Christine B. Mirzaian, Alexis Deavenport‐Saman, Sharon Hudson, Cecily L. Betz · 2024

Implications for research and practice suggest that multi-level approach is needed to address the range of service needs for young adults with IDD and co-occurring mental health conditions.

Psychosocial needs and outcomes of adults with spina bifida: A scoping review, 1974-2023 Open

Jennifer Emilie Mannino, Heather Reens, Kathryn Smith, Lynn Kysh, Serge' R. Nelson , et al. · 2024

Limited evidence exists that serves to guide the field of practice and research pertaining to the long-term issues and needs of adults with spina bifida. Understanding the lived experience of adults with spina bifida has lagged behind cons…

Health care transition planning and outcomes: What’s next? Open

Cecily L. Betz, María Ferris · 2024

Health care transition planning for adolescents and emerging adults with intellectual disabilities and developmental disabilities: Distinctions and challenges Open

Cecily L. Betz · 2023

Purpose The purpose of this article is to provide the reader with insight and enhanced understanding of the health care transition planning process for adolescents and emerging adults with intellectual disabilities and developmental disabi…

Abstracts of the 2023 World Congress on Spina Bifi da Research & Care – Adult Care, Aging & Sexuality Open

Danielle Powell, W. E. Summers, Rachel E. Cowan, Betsy Hopson, Jeffrey P. Blount , et al. · 2023

Background: Neural tube defects (NTDs) are the most common congenital central nervous system anomalies.In the U.S., 100,000 people suffer from the chronic disability engendered in these conditions.Medical complications that occur in adult …

The Health Care Transitions Journal: Carpe diem! Open

Cecily L. Betz, María Ferris · 2023

COVID-19 Special Collection Open

Cecily L. Betz · 2022

Pediatric nursing education: Trends, challenges and aspirations Open

Cecily L. Betz · 2021

Psychometric Testing of Family Centered Care (FCC) Instrument: A Mixed Methods Analysis of Pediatric Nurses and Their Workplace Perceptions of FCC Open

Ann Marie Paraszczuk, Veronica D Feeg, Cecily L. Betz, Jennifer Emilie Mannino · 2021

This instrument quantified the importance of FCC to pediatric nurses and their workplace support of FCC and can be used in future studies to evaluate FCC.

Racial and Ethnic Disparities Special Collection Open

Cecily L. Betz · 2021

Reconsidering reviews: the role of scoping reviews in digital medicine and pediatrics Open

K. Lewinter, Sharon Hudson, Lynn Kysh, Marielena Lara, Cecily L. Betz , et al. · 2020

Digital health is a rapidly developing field which is positioned to transform the manner in which healthcare is delivered, especially amongst adolescents and young adults. In order to assess the efficacy of novel medical devices, clinician…

COVID-19 and school return: The need and necessity Open

Cecily L. Betz · 2020

Editorial Reflections on Now and Then and the Future of Pediatric Nursing Open

Cecily L. Betz · 2020

International and Interdisciplinary Identification of Health Care Transition Outcomes Open

Cynthia D. Fair, Jessica Cuttance, Niraj Sharma, Gary Maslow, Lori Wiener , et al. · 2020

IMPORTANCE: There is a lack of agreement on what constitutes successful outcomes for the process of health care transition (HCT) among adolescent and young adults with special health care needs. OBJECTIVE: To present HCT outcomes identifie…

Everything Old is New again: COVID-19 and Public Health Open

Judith A. Vessey, Cecily L. Betz · 2020

2020 International Year of the Nurse and Midwife and the 30th Anniversary of the Society of Pediatric Nurses Open

Cecily L. Betz · 2020

Differences in continence rates in individuals with spina bifida based on ethnicity Open

Kathryn Smith, Tiebin Liu, Kurt A. Freeman, Cecily L. Betz, Gerald H. Clayton , et al. · 2019

After controlling for covariates, Hispanics/Latinos with SB are less likely to report bowel continence. Clinicians are encouraged to consider the risk of negative health disparities for Hispanic patients with SB and work to mitigate this r…

Editorial Reflections on Authorship Open

Cecily L. Betz · 2019

This editorial is born out of conference call held last month with the members of the Society of Pediatric Nurses Board. During the call, the topic of supporting novice authors was raised and an energetic discussion ensued. This conversati…

The Mix of Science, Community Beliefs and Health Practices Affecting Children: Part 2 Open

Cecily L. Betz · 2019

The Mix of Science, Community Beliefs and Health Practices Affecting Children: Part 1 Open

Cecily L. Betz · 2019

Smell and taste disorders in children with Mucopolysaccharidosis (MPS) Open

AS Hoffmann, Nicole Muschol, Katharina Stumpfe, Cecily L. Betz · 2019

Mucopolysaccharidoses are chronic progressive lysosomal metabolic diseases. Due to deficiencies of lysosomal enzymes involved in the breakdown of glycosaminoglycans (GAG), there is an accumulation of these storage substrates in various org…

Incorporating Academic and Health-Related School Needs into Pediatric Nursing Practice Open

Cecily L. Betz · 2019

Immunizations: A Coherent Mission and Vision for Pediatric and Child Health Nursing Practice, Education, Research and Policy Open

Cecily L. Betz · 2018

The Use of iThenicate and Editorial Policy Open

Cecily L. Betz · 2018

An Integral Component of Pediatric Nursing Practice Open

Cecily L. Betz · 2017

Cecily L. Betz YOU? Author Swipe