Charlène Bredy
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View article: Person-centred care in congenital heart disease: Intercountry variation in patient-reported experiences across 32 countries
Person-centred care in congenital heart disease: Intercountry variation in patient-reported experiences across 32 countries Open
This study highlights significant global differences in perceived autonomy support from healthcare providers among adults with CHD. Education and age were associated with higher levels of perceived autonomy support. The experience of PCC i…
View article: Quality of Life in Adults With Transposition of the Great Arteries With a Systemic Right or Left Ventricle
Quality of Life in Adults With Transposition of the Great Arteries With a Systemic Right or Left Ventricle Open
NCT04902768.
View article: Perceived health, psychological distress and quality of life in 8415 adults with congenital heart disease from 32 countries
Perceived health, psychological distress and quality of life in 8415 adults with congenital heart disease from 32 countries Open
Background The global prevalence of congenital heart disease (CHD) is increasing. Research on patient-reported outcomes (PROs) predominantly originates from high-income countries, resulting in an incomplete understanding of the true global…
View article: Shprintzen-Goldberg syndrome: follow-up of the cardiovascular features in an international cohort of 29 patients with SGS
Shprintzen-Goldberg syndrome: follow-up of the cardiovascular features in an international cohort of 29 patients with SGS Open
Background Shprintzen-Goldberg syndrome (SGS) shares skeletal features with Marfan syndrome (MFS), but differs in its craniofacial and neurodevelopmental features. Cardiovascular features have been specifically investigated in few of the 5…
View article: Catheter ablation in congenital heart diseases: a French nationwide study
Catheter ablation in congenital heart diseases: a French nationwide study Open
Background and Aims Current evidence on catheter ablation for patients with congenital heart disease (CHD) is derived from small, retrospective studies. This study aims to provide insights from a nationwide contemporary registry. Methods T…
View article: Efficacy of a Transition Program in Adolescents and Young Adults With Congenital Heart Disease: The TRANSITION-CHD Randomized Controlled Trial
Efficacy of a Transition Program in Adolescents and Young Adults With Congenital Heart Disease: The TRANSITION-CHD Randomized Controlled Trial Open
View article: Early hybrid cardiac rehabilitation in congenital heart disease: the QUALIREHAB trial
Early hybrid cardiac rehabilitation in congenital heart disease: the QUALIREHAB trial Open
Background and Aims Cardiopulmonary fitness in congenital heart disease (CHD) decreases faster than in the general population resulting in impaired health-related quality of life (HRQoL). As the standard of care seems insufficient to encou…
View article: Frailty and Cognitive Function in Middle-Aged and Older Adults With Congenital Heart Disease
Frailty and Cognitive Function in Middle-Aged and Older Adults With Congenital Heart Disease Open
View article: Correlation between three-dimensional echocardiography and cardiopulmonary fitness in patients with univentricular heart: A cross-sectional multicentre prospective study
Correlation between three-dimensional echocardiography and cardiopulmonary fitness in patients with univentricular heart: A cross-sectional multicentre prospective study Open
View article: Which risk score best predicts cardiovascular outcome in pregnant women with congenital heart disease?
Which risk score best predicts cardiovascular outcome in pregnant women with congenital heart disease? Open
Background Management of pregnancy and risk stratification in women with congenital heart diseases (CHD) are challenging, especially due to physiological haemodynamic modifications that inevitably occur during pregnancy. Aims To compare th…
View article: Double gas transfer factors (DLCO-DLNO) at rest in patients with congenital heart diseases correlates with their ventilatory response during maximal exercise
Double gas transfer factors (DLCO-DLNO) at rest in patients with congenital heart diseases correlates with their ventilatory response during maximal exercise Open
View article: Assessment of left ventricular dyssynchrony by speckle tracking echocardiography in children with duchenne muscular dystrophy
Assessment of left ventricular dyssynchrony by speckle tracking echocardiography in children with duchenne muscular dystrophy Open
View article: Cardiac resynchronization therapy in patients with congenital heart disease and systemic right ventricle
Cardiac resynchronization therapy in patients with congenital heart disease and systemic right ventricle Open
View article: Assessment of Left Ventricular Dyssynchrony by Speckle Tracking Echocardiography in Children with Duchenne Muscular Dystrophy
Assessment of Left Ventricular Dyssynchrony by Speckle Tracking Echocardiography in Children with Duchenne Muscular Dystrophy Open
Purpose -Prognosis of Duchenne muscular dystrophy (DMD) is related to cardiac dysfunction. Two dimensional-speckle tracking echocardiography (2D-STE) has recently emerged as a non-invasive functional biomarker for early detection of DMD-re…
View article: Reliability of echocardiographic parameters of the systemic right ventricle systolic function: A prospective multicentre study
Reliability of echocardiographic parameters of the systemic right ventricle systolic function: A prospective multicentre study Open
View article: Impact of a transition education program on health-related quality of life in pediatric patients with congenital heart disease: study design for a randomised controlled trial
Impact of a transition education program on health-related quality of life in pediatric patients with congenital heart disease: study design for a randomised controlled trial Open
View article: Impact of a transition education program on health-related quality of life in pediatric patients with congenital heart disease: study design for a randomised controlled trial
Impact of a transition education program on health-related quality of life in pediatric patients with congenital heart disease: study design for a randomised controlled trial Open
Background: Recent advances in the field of congenital heart disease (CHD) led to an improved prognosis of the patients and in consequence the growth of a new population: the grown up with congenital heart disease. Until recently, more tha…
View article: Impact of a Transition Education Program on the Quality of Life in Pediatric Patients with Congenital Heart Disease: Study Design for a Randomised Controlled Trial
Impact of a Transition Education Program on the Quality of Life in Pediatric Patients with Congenital Heart Disease: Study Design for a Randomised Controlled Trial Open
Background: Recent advances in the field of congenital heart disease (CHD) led to an improved prognosis of the patients and in consequence the growth of a new population: the grown up with congenital heart disease. Until recently, more tha…
View article: Impact of Sophrology on cardiopulmonary fitness in teenagers and young adults with a congenital heart disease: The SOPHROCARE study rationale, design and methods
Impact of Sophrology on cardiopulmonary fitness in teenagers and young adults with a congenital heart disease: The SOPHROCARE study rationale, design and methods Open
Clinicaltrials.gov (NCT03999320).
View article: Table of Contents
Table of Contents Open
View article: Right Ventricular to Left Ventricular Ratio at CT Pulmonary Angiogram Predicts Mortality in Interstitial Lung Disease
Right Ventricular to Left Ventricular Ratio at CT Pulmonary Angiogram Predicts Mortality in Interstitial Lung Disease Open
View article: Factors influencing the participation of adolescents and young adults with a congenital heart disease in a transition education program: A prospective multicentre controlled study
Factors influencing the participation of adolescents and young adults with a congenital heart disease in a transition education program: A prospective multicentre controlled study Open
View article: Factors associated with exercise capacity in patients with a systemic right ventricle
Factors associated with exercise capacity in patients with a systemic right ventricle Open
View article: Speckle-Tracking Echocardiography in Children With Duchenne Muscular Dystrophy: A Prospective Multicenter Controlled Cross-Sectional Study
Speckle-Tracking Echocardiography in Children With Duchenne Muscular Dystrophy: A Prospective Multicenter Controlled Cross-Sectional Study Open
View article: Speckle tracking echocardiography in healthy children: comparison between the QLAB by Philips and the EchoPAC by General Electric
Speckle tracking echocardiography in healthy children: comparison between the QLAB by Philips and the EchoPAC by General Electric Open
View article: Impact of a centre and home-based cardiac rehabilitation program on the quality of life of teenagers and young adults with congenital heart disease: The QUALI-REHAB study rationale, design and methods
Impact of a centre and home-based cardiac rehabilitation program on the quality of life of teenagers and young adults with congenital heart disease: The QUALI-REHAB study rationale, design and methods Open
View article: How should we determine normal echocardiographic right ventricle function reference values in pediatrics?
How should we determine normal echocardiographic right ventricle function reference values in pediatrics? Open
View article: Pregnancy in adults with repaired/unrepaired atrial septal defect
Pregnancy in adults with repaired/unrepaired atrial septal defect Open
Atrial septal defect (ASD) is the most common form of congenital heart disease. Left-to-right shunting leads to right ventricular (RV) volume overload with excessive pulmonary blood flow. Complications include exercise intolerance, pulmona…
View article: Atrial septal defect and exercise capacity: value of cardio-pulmonary exercise test in assessment and follow-up
Atrial septal defect and exercise capacity: value of cardio-pulmonary exercise test in assessment and follow-up Open
Nearly four decades ago, the World Health Organization stated that functional capacity explorations best reflected the impact of a chronic disease on quality of life. Today, cardio-pulmonary exercise test (CPET) is recommended in the follo…
View article: A stepwise composite echocardiographic score predicts severe pulmonary hypertension in patients with interstitial lung disease
A stepwise composite echocardiographic score predicts severe pulmonary hypertension in patients with interstitial lung disease Open
European Respiratory Society (ERS) guidelines recommend the assessment of patients with interstitial lung disease (ILD) and severe pulmonary hypertension (PH), as defined by a mean pulmonary artery pressure (mPAP) ≥35 mmHg at right heart c…