Christopher Roberson
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View article: Adherence is a human behaviour, assessing it requires multimethod evaluation with validated measures: Comment on Guedes VG et al (2019)
Adherence is a human behaviour, assessing it requires multimethod evaluation with validated measures: Comment on Guedes VG et al (2019) Open
In the August 2019 issue of Haemophilia, Guedes et al presented a study that aimed to compare, in their view, subjective and objective measures of adherence to prophylaxis in haemophilia.1 Guedes et al defined their objective measure of ad…
View article: An international registry of patients with plasminogen deficiency (HISTORY)
An international registry of patients with plasminogen deficiency (HISTORY) Open
Plasminogen deficiency is an ultra-rare multisystem disorder characterized by the development of fibrin-rich pseudomembranes on mucous membranes. Ligneous conjunctivitis, which can result in vision impairment or loss, is the most frequent …
View article: Potential of the Community Counts registry to characterize rare bleeding disorders
Potential of the Community Counts registry to characterize rare bleeding disorders Open
Introduction Rare bleeding disorders (RBDs) comprise of heterogeneous coagulation factor deficiencies and platelet disorders that are underreported worldwide. Aim First report on RBD data from United States haemophilia treatment center net…
View article: Population‐based surveillance of haemophilia and patient outcomes in Indiana using multiple data sources
Population‐based surveillance of haemophilia and patient outcomes in Indiana using multiple data sources Open
Introduction Epidemiological surveillance of haemophilia through linkage of medical records within a US state has not been conducted in 20 years. Aim The Indiana Haemophilia Surveillance Project aims to identify all persons with haemophili…
View article: A validated measure of adherence to antibiotic prophylaxis in children with sickle cell disease
A validated measure of adherence to antibiotic prophylaxis in children with sickle cell disease Open
The SCAALE provides a detailed, quantitative, multidimensional, and global measurement of adherence and can promote clinical care and research.
View article: A validated measure of adherence to antibiotic prophylaxis in children with sickle cell disease
A validated measure of adherence to antibiotic prophylaxis in children with sickle cell disease Open
Natalie A Duncan,1 William G Kronenberger,2 Kisha C Hampton,1 Ellen M Bloom,1 Angeli G Rampersad,1 Christopher P Roberson,1 Amy D Shapiro11Department of Hematology, Indiana Hemophilia and Thrombosis Center, 2Department of Psychiatry, India…