Claire Storey
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View article: Women’s psychological experiences of preterm labour and birth which results in an intrapartum stillbirth or a neonatal death: an empty systematic review
Women’s psychological experiences of preterm labour and birth which results in an intrapartum stillbirth or a neonatal death: an empty systematic review Open
Introduction Nearly three quarters of stillbirths and neonatal deaths occur in infants born prematurely. The mothers of these children may be at increased risk of developing mental health difficulties as a result of their premature labour …
View article: From mourning to memorialising – A lasting connection through remembrance: The role of memory making in preserving the identity of parenthood amongst women who have suffered a perinatal bereavement
From mourning to memorialising – A lasting connection through remembrance: The role of memory making in preserving the identity of parenthood amongst women who have suffered a perinatal bereavement Open
Structured memory-making and compassionate care strategies can enhance parental identity retention, fostering emotional resilience and guiding more effective bereavement care provision.
View article: Three-dimensional patient-derived models of glioblastoma retain intra-tumoral heterogeneity
Three-dimensional patient-derived models of glioblastoma retain intra-tumoral heterogeneity Open
The intra- and inter-tumoral heterogeneity of glioblastoma represents a significant therapeutic challenge, as well as difficulty in generating reliable models for in vitro studies. Historical 2D adherent cell lines do not recapitulate this…
View article: Parents', Families', Communities' and Healthcare Professionals' Experiences of Care Following Neonatal Death in Healthcare Facilities in <scp>LMIC</scp>s: A Systematic Review and Meta‐Ethnography
Parents', Families', Communities' and Healthcare Professionals' Experiences of Care Following Neonatal Death in Healthcare Facilities in <span>LMIC</span>s: A Systematic Review and Meta‐Ethnography Open
Background Ninety‐eight percent of neonatal deaths worldwide occur in low‐ and middle‐income countries (LMICs), yet there is little bereavement care guidance available for these settings. Objectives To explore parents', families' and healt…
View article: Preliminary findings on the experiences of care for women who suffered early pregnancy losses during the COVID-19 pandemic: a qualitative study
Preliminary findings on the experiences of care for women who suffered early pregnancy losses during the COVID-19 pandemic: a qualitative study Open
View article: Measuring EQ-5D-5L utility values in parents who have experienced perinatal death
Measuring EQ-5D-5L utility values in parents who have experienced perinatal death Open
Background Policymakers use clinical and cost-effectiveness evidence to support decisions about health service commissioning. In England, the National Institute for Health and Care Excellence (NICE) recommend that in cost-effectiveness ana…
View article: A consensus statement on perinatal mental health during the COVID-19 pandemic and recommendations for post-pandemic recovery and re-build
A consensus statement on perinatal mental health during the COVID-19 pandemic and recommendations for post-pandemic recovery and re-build Open
Introduction The COVID-19 pandemic posed a significant lifecourse rupture, not least to those who had specific physical vulnerabilities to the virus, but also to those who were suffering with mental ill health. Women and birthing people wh…
View article: Mothers working to prevent early stillbirth study (MiNESS 20–28): a case–control study protocol
Mothers working to prevent early stillbirth study (MiNESS 20–28): a case–control study protocol Open
Introduction In the UK, 1600 babies die every year before, during or immediately after birth at 20–28 weeks’ gestation. This bereavement has a similar impact on parental physical and psychological well-being to late stillbirth (>28 weeks’ …
View article: The AlignMNH 2023 Conference: progress in raising parents’ voices in stillbirth advocacy
The AlignMNH 2023 Conference: progress in raising parents’ voices in stillbirth advocacy Open
View article: Mothers working to prevent early stillbirth study (MiNESS 20-28): Case Control Study Protocol
Mothers working to prevent early stillbirth study (MiNESS 20-28): Case Control Study Protocol Open
Background: An estimated 1,600 babies die every year before, during or immediately after birth between 20-28 weeks’ gestation in the United Kingdom. Baby loss at this stage of pregnancy has similar impact on parental physical and psycholog…
View article: Antidepressants in pregnancy: applying causal epidemiological methods to understand service-use outcomes in women and long-term neurodevelopmental outcomes in exposed children
Antidepressants in pregnancy: applying causal epidemiological methods to understand service-use outcomes in women and long-term neurodevelopmental outcomes in exposed children Open
Background Antidepressants are commonly prescribed during pregnancy, despite a lack of evidence from randomised trials on the benefits or risks. Some studies have reported associations of antidepressants during pregnancy with adverse offsp…
View article: Ending preventable stillbirths and improving bereavement care: a scorecard for high- and upper-middle income countries
Ending preventable stillbirths and improving bereavement care: a scorecard for high- and upper-middle income countries Open
Background Despite progress, stillbirth rates in many high- and upper-middle income countries remain high, and the majority of these deaths are preventable. We introduce the Ending Preventable Stillbirths (EPS) Scorecard for High- and Uppe…
View article: Table of Contents
Table of Contents Open
View article: Support after stillbirth: Findings from the Parent Voices Initiative Global Registry Project
Support after stillbirth: Findings from the Parent Voices Initiative Global Registry Project Open
The need for respectful bereavement care following a stillbirth has been poorly recognised within global public health initiatives. To date, there has been no comprehensive cataloguing of providers that support parents after stillbirth, no…
View article: Ending Preventable Stillbirths and Improving Bereavement Care: A Scorecard for High- and Upper-Middle Income Countries
Ending Preventable Stillbirths and Improving Bereavement Care: A Scorecard for High- and Upper-Middle Income Countries Open
Background: Despite progress, stillbirth rates in many high- and upper-middle income countries remain high, and the majority of these deaths are preventable. We introduce the Ending Preventable Stillbirths (EPS) Scorecard for High- and Upp…
View article: Additional file 4 of Ending preventable stillbirths and improving bereavement care: a scorecard for high- and upper-middle income countries
Additional file 4 of Ending preventable stillbirths and improving bereavement care: a scorecard for high- and upper-middle income countries Open
Additional file 4. Using the Scorecard to track progress over time: An example with data from four countries.
View article: Additional file 3 of Ending preventable stillbirths and improving bereavement care: a scorecard for high- and upper-middle income countries
Additional file 3 of Ending preventable stillbirths and improving bereavement care: a scorecard for high- and upper-middle income countries Open
Additional file 3. Definitions used by the 13 countries whose data are included in the inaugural version (2021).
View article: Additional file 1 of Ending preventable stillbirths and improving bereavement care: a scorecard for high- and upper-middle income countries
Additional file 1 of Ending preventable stillbirths and improving bereavement care: a scorecard for high- and upper-middle income countries Open
Additional file 1. The Scorecard’s 2021 inaugural edition used for data collection.
View article: Additional file 2 of Ending preventable stillbirths and improving bereavement care: a scorecard for high- and upper-middle income countries
Additional file 2 of Ending preventable stillbirths and improving bereavement care: a scorecard for high- and upper-middle income countries Open
Additional file 2. Scorecard for Ending Preventable Stillbirths in High- and Upper-Middle Income Countries: Inaugural version (2021).
View article: Multicountry study protocol of COCOON: COntinuing Care in COVID-19 Outbreak global survey of New, expectant, and bereaved parent experiences
Multicountry study protocol of COCOON: COntinuing Care in COVID-19 Outbreak global survey of New, expectant, and bereaved parent experiences Open
Introduction Globally, the COVID-19 pandemic has significantly disrupted the provision of healthcare and efficiency of healthcare systems and is likely to have profound implications for pregnant and postpartum women and their families incl…
View article: Preliminary findings on the experiences of care for parents who suffered perinatal bereavement during the COVID-19 pandemic
Preliminary findings on the experiences of care for parents who suffered perinatal bereavement during the COVID-19 pandemic Open
Background The COVID-19 pandemic poses an unprecedented risk to the global population. Maternity care in the UK was subject to many iterations of guidance on how best to reconfigure services to keep women, their families and babies, and he…
View article: Parents’ experiences of care offered after stillbirth: An international online survey of high and middle‐income countries
Parents’ experiences of care offered after stillbirth: An international online survey of high and middle‐income countries Open
Background Stillbirth, the death of a baby before birth, is associated with significant psychological and social consequences that can be mitigated by respectful and supportive bereavement care. The absence of high‐level evidence to suppor…
View article: Parents’ Active Role and ENgagement in The review of their Stillbirth/perinatal death 2 (PARENTS 2) study: a mixed-methods study of implementation
Parents’ Active Role and ENgagement in The review of their Stillbirth/perinatal death 2 (PARENTS 2) study: a mixed-methods study of implementation Open
Objective When a formal review of care takes places after the death of a baby, parents are largely unaware it takes place and are often not meaningfully involved in the review process. Parent engagement in the process is likely to be essen…
View article: Counting stillbirths and COVID 19—there has never been a more urgent time
Counting stillbirths and COVID 19—there has never been a more urgent time Open
View article: Standard care informed by the result of a placental growth factor blood test versus standard care alone in women with reduced fetal movement at or after 36+0 weeks’ gestation: a pilot randomised controlled trial
Standard care informed by the result of a placental growth factor blood test versus standard care alone in women with reduced fetal movement at or after 36+0 weeks’ gestation: a pilot randomised controlled trial Open
View article: The <scp>RESPECT</scp> Study for consensus on global bereavement care after stillbirth
The <span>RESPECT</span> Study for consensus on global bereavement care after stillbirth Open
Objective To develop global consensus on a set of evidence‐based core principles for bereavement care after stillbirth. Methods A modified policy‐Delphi methodology was used to consult international stakeholders and healthcare workers with…
View article: Inequalities and stillbirth in the UK: a meta-narrative review
Inequalities and stillbirth in the UK: a meta-narrative review Open
Objective To review what is known about the relationship between stillbirth and inequalities from different disciplinary perspectives to inform stillbirth prevention strategies. Design Systematic review using the meta-narrative method. Set…
View article: PARENTS 2 Study: a qualitative study of the views of healthcare professionals and stakeholders on parental engagement in the perinatal mortality review—from ‘bottom of the pile’ to joint learning
PARENTS 2 Study: a qualitative study of the views of healthcare professionals and stakeholders on parental engagement in the perinatal mortality review—from ‘bottom of the pile’ to joint learning Open
Objective Engaging bereaved parents in the review process that examines their care before and after a perinatal death might help parents deal with their grief more effectively and drive improvements in patient safety. The objective of this…
View article: PARENTS 2 study: consensus report for parental engagement in the perinatal mortality review process
PARENTS 2 study: consensus report for parental engagement in the perinatal mortality review process Open
Objective The PARENTS 1 study (Parents' Active Role and ENgagement in The review of their Stillbirth/perinatal death) found that parents would endorse the opportunity to give feedback into the perinatal mortality review (PNMR) process. In …
View article: Reduced fetal movement intervention Trial-2 (ReMIT-2): protocol for a pilot randomised controlled trial of standard care informed by the result of a placental growth factor (PlGF) blood test versus standard care alone in women presenting with reduced fetal movement at or after 36+ 0 weeks gestation
Reduced fetal movement intervention Trial-2 (ReMIT-2): protocol for a pilot randomised controlled trial of standard care informed by the result of a placental growth factor (PlGF) blood test versus standard care alone in women presenting with reduced fetal movement at or after 36+ 0 weeks gestation Open