Debbie Sell
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View article: Comparison of secondary surgery before and after centralisation of cleft services in the UK: a whole-island cross-sectional analysis
Comparison of secondary surgery before and after centralisation of cleft services in the UK: a whole-island cross-sectional analysis Open
Objective Cleft lip and palate significantly impact a child’s speech and facial appearance. Children undergo cleft repairs in infancy, but poor results from these initial repairs often lead to secondary surgery. In the late 1990s, cleft ca…
BIO Girls: Effect of a Community-Based Empowerment Program on Youth Self-Esteem Open
Adolescent females are at risk for increased rates of poor mental health, with low self-esteem being of particular concern. Approaches incorporating mentorship, emotional intelligence training, and physical activity directed toward improvi…
Addressing barriers to global multidisciplinary stakeholder inclusivity: Lessons from global orofacial cleft research priority setting Open
This is one of the first CHNRI exercises to involve patients and parents, clinicians, and researchers in its first question submission stage, and the first ever to do so on a global scale. We describe our approach to addressing inclusivity…
How differences in anatomy and physiology and other aetiology affect the way we label and describe speech in individuals with cleft lip and palate Open
Background Speech in individuals with cleft lip and/or palate (CLP) is a complex myriad of presenting symptoms. It is uniquely associated with the structural difference of velopharyngeal insufficiency (VPI), together with a wide and hetero…
Parent Experiences of Undertaking Therapy for Cleft Palate Speech Disorders Following In-Depth Training Open
Purpose: This study aimed to investigate the experiences of parents of children with cleft-related speech sound disorders who had received in-depth training, following which they were the active agents of intervention, supported by a speci…
View article: The First Hybrid International Educational Comprehensive Cleft Care Workshop
The First Hybrid International Educational Comprehensive Cleft Care Workshop Open
Objective Describe the first hybrid global simulation-based comprehensive cleft care workshop, evaluate impact on participants, and compare experiences based on in-person versus virtual attendance. Design Cross-sectional survey-based evalu…
View article: Adapting Elements of Cleft Care Protocols in Low- and Middle-income Countries During and After COVID-19: A Process-driven Review With Recommendations
Adapting Elements of Cleft Care Protocols in Low- and Middle-income Countries During and After COVID-19: A Process-driven Review With Recommendations Open
A consortium of global cleft professionals, predominantly from low- and middle-income countries, identified adaptations to cleft care protocols during and after COVID-19 as a priority learning area of need. A multidisciplinary internationa…
The Impact of Maxillary Osteotomy on Fricatives in Cleft Lip and Palate: A Perceptual Speech and Acoustic Study Open
Introduction: Abnormal facial growth is a recognized outcome in cleft lip and palate (CLP), resulting in a concave profile and a class III occlusal status. Maxillary osteotomy (MO) is undertaken to correct this facial deformity, and the su…
Culture, cognisance, capacity and capability: The interrelationship of individual and organisational factors in developing a research hospital Open
Aim To share our experience of implementing a programme of interventions aimed at building research capacity and capability of nurses and allied health professionals in a specialist children's hospital. Background Clinicians at the forefro…
Frontline Allied Health Professionals in a Tertiary Children’s Hospital: Moving Forward Research Capacity, Culture and Engagement Open
Higher levels of research activity within healthcare contexts are known to result in improvements to staff and patient satisfaction as well as treatment outcomes. In the United Kingdom (UK), clinical academic careers for Allied Health Prof…
Prioritizing Cleft/Craniofacial Surgical Care after the COVID-19 Pandemic Open
Background: It is anticipated that in due course the burden of emergency care due to COVID-19 infected patients will reduce sufficiently to permit elective surgical procedures to recommence. Prioritizing cleft/craniofacial surgery in the a…
Hospitalized children with intellectual disability: Parents as partners in their care Open
Background Limited evidence exists of what hospital care is like for parents of children and young people (CYP) with intellectual disability (ID). Effective collaboration is often missing, with parents lacking trust in professionals, with …
Speech-Language Disorders in 22q11.2 Deletion Syndrome: Best Practices for Diagnosis and Management Open
Purpose Speech and language disorders are hallmark features of 22q11.2 deletion syndrome (22qDS). Learning disabilities, cognitive deficits, palate abnormalities, velopharyngeal dysfunction, behavioral differences, and various medical and …
Percent Consonant Correct as an Outcome Measure for Cleft Speech in an Intervention Study Open
Background/Aims: Percent consonant correct (PCC) was originally described by Shriberg and Kwiatkowski [J Speech Hear Disord. 1982 Aug;47(3):256–70] as a severity metric for phonological speech disorders, and has been adapted and used in ma…
Supplementary Material for: Percent Consonant Correct as an Outcome Measure for Cleft Speech in an Intervention Study Open
Background/Aims: Percent consonant correct (PCC) was originally described by Shriberg and Kwiatkowski [J Speech Hear Disord. 1982 Aug;47(3):256–70] as a severity metric for phonological speech disorders, and has been adapted and used in ma…
“<span>LEARN</span>”ing what is important to children and young people with intellectual disabilities when they are in hospital Open
Background The need to review health service provision for children and young people ( CYP ) with disabilities and their families in the United Kingdom has been expressed in multiple reports: the most consistent message being that services…
View article: Closing the Loop on Centralization of Cleft Care in the United Kingdom
Closing the Loop on Centralization of Cleft Care in the United Kingdom Open
Objective: We highlight a major study that investigated the impact of reconfigured cleft care in the United Kingdom some 15 years after centralization. We argue that centralization as an intervention has a major impact on outcomes. Setting…
View article: Centre‐level variation of treatment and outcome in 5‐year‐old children with non‐syndromic unilateral cleft lip and palate: The Cleft Care <scp>UK</scp> study. Part 1: Methodology and results for dento‐facial outcomes
Centre‐level variation of treatment and outcome in 5‐year‐old children with non‐syndromic unilateral cleft lip and palate: The Cleft Care <span>UK</span> study. Part 1: Methodology and results for dento‐facial outcomes Open
Structured Abstract Objectives Outline methods used to describe centre‐level variation in treatment and outcome in children in the Cleft Care UK ( CCUK ) study. Report centre‐level variation in dento‐facial outcomes. Setting and Sample Pop…
View article: Centre‐level variation in speech outcome and interventions, and factors associated with poor speech outcomes in 5‐year‐old children with non‐syndromic unilateral cleft lip and palate: The Cleft Care <scp>UK</scp> study. Part 4
Centre‐level variation in speech outcome and interventions, and factors associated with poor speech outcomes in 5‐year‐old children with non‐syndromic unilateral cleft lip and palate: The Cleft Care <span>UK</span> study. Part 4 Open
Structured Abstract Objectives To investigate centre‐level variation in speech intervention and outcome and factors associated with a speech disorder in children in Cleft Care UK ( CCUK ). Setting and Sample Population Two hundred and sixt…
View article: Centre‐level variation in behaviour and the predictors of behaviour in 5‐year‐old children with non‐syndromic unilateral cleft lip: The Cleft Care <scp>UK</scp> study. Part 5
Centre‐level variation in behaviour and the predictors of behaviour in 5‐year‐old children with non‐syndromic unilateral cleft lip: The Cleft Care <span>UK</span> study. Part 5 Open
Structured Abstract Objectives The aims of this study were to describe child behavioural and psychosocial outcomes associated with appearance and speech in the Cleft Care UK ( CCUK ) study. We also wanted to explore centre‐level variation …
View article: Centre‐level variation in treatment and outcomes and predictors of outcomes in 5‐year‐old children with non‐syndromic unilateral cleft lip treated within a centralized service: the Cleft Care <scp>UK</scp> study. Part 6: summary and implications
Centre‐level variation in treatment and outcomes and predictors of outcomes in 5‐year‐old children with non‐syndromic unilateral cleft lip treated within a centralized service: the Cleft Care <span>UK</span> study. Part 6: summary and implications Open
Structured Abstract Objectives To summarize and discuss centre‐level variation across a range of treatment and outcome measures and examine individual and ecological determinants of outcome in children in Cleft Care UK ( CCUK ). Setting an…
View article: Centre‐level variation in outcomes and treatment for otitis media with effusion and hearing loss and the association of hearing loss with developmental outcomes at ages 5 and 7 years in children with non‐syndromic unilateral cleft lip and palate: The Cleft Care <scp>UK</scp> study. Part 2
Centre‐level variation in outcomes and treatment for otitis media with effusion and hearing loss and the association of hearing loss with developmental outcomes at ages 5 and 7 years in children with non‐syndromic unilateral cleft lip and palate: The Cleft Care <span>UK</span> study. Part 2 Open
Structured Abstract Objectives To explore centre‐level variation in otitis media with effusion ( OME ), hearing loss and treatments in children in Cleft Care UK ( CCUK ) and to examine the association between OME , hearing loss and develop…