Deborah E. Thorpe
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View article: Multi-center improvement in screening for pain that affects activities in adults with cerebral palsy
Multi-center improvement in screening for pain that affects activities in adults with cerebral palsy Open
QI methodology was successful at improving screening for pain that affects activities in adults with CP. Lower rates of pain were found (44 %) than previous reports, with similar findings about pain affecting activities and associated char…
View article: A Feasibility Study of a Physical and Occupational Therapy-Led and Parent-Administered Program to Improve Parent Mental Health and Infant Development
A Feasibility Study of a Physical and Occupational Therapy-Led and Parent-Administered Program to Improve Parent Mental Health and Infant Development Open
Results support parent-rated feasibility and acceptability of the TEMPO intervention for extremely preterm infants and their parents in the Neonatal Intensive Care Unit.
View article: Corticomuscular Coherence in Children with Unilateral Cerebral Palsy: A Feasibility and Preliminary Protocol Study
Corticomuscular Coherence in Children with Unilateral Cerebral Palsy: A Feasibility and Preliminary Protocol Study Open
Objective This study assessed the feasibility of corticomuscular coherence measurement during a goal-directed task in children with unilateral cerebral palsy while establishing optimal experimental parameters. Methods Participants (Manual …
View article: A Life Course Perspective on Growing Older With Cerebral Palsy
A Life Course Perspective on Growing Older With Cerebral Palsy Open
Despite most children with cerebral palsy (CP) now living within typical life spans, little is known about how the effects of CP unfold across the life course and impact participation in everyday life during adulthood. In this study, we ex…
View article: ICF Core Sets for the assessment of functioning of adults with cerebral palsy
ICF Core Sets for the assessment of functioning of adults with cerebral palsy Open
Aim To report on the results of the online international consensus process to develop the comprehensive and brief International Classification of Functioning, Disability and Health (ICF) Core Sets for adults with cerebral palsy (CP). Metho…
View article: Blood pressure in adults with cerebral palsy: a systematic review and meta-analysis of individual participant data
Blood pressure in adults with cerebral palsy: a systematic review and meta-analysis of individual participant data Open
Objectives: This systematic review and meta-analysis was designed to determine the overall mean blood pressure and prevalence of hypertension among a representative sample of adults living with cerebral palsy by combining individual partic…
View article: A Life Course Perspective on Growing Older With Cerebral Palsy
A Life Course Perspective on Growing Older With Cerebral Palsy Open
Despite most children with cerebral palsy (CP) now living within typical life spans, little is known about how the effects of CP unfold across the life course and impact participation in everyday life during adulthood. In this study, we ex…
View article: Adaptation of the Lateral Distal Femur DXA Scan Technique to Adults With Disabilities
Adaptation of the Lateral Distal Femur DXA Scan Technique to Adults With Disabilities Open
The technique that best addresses the challenges of assessing bone mineral density in children with neuromuscular impairments is a dual-energy X-ray absorptiometry (DXA) scan of the lateral distal femur. The purpose of this study was to ad…
View article: Abstracts
Abstracts Open
We present a collection of abstracts from the 2013 Annual Healthcare Transition Research Consortium in Houston, Texas.The HCTRC is an organization of volunteer adolescent/emerging adult patients with chronic conditions, parents and health …