Derrick Bishop
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View article: “Should I Let Them Know I Have This?”: Multifaceted Genetic Discrimination and Limited Awareness of Legal Protections among Individuals with Hereditary Cancer Syndromes
“Should I Let Them Know I Have This?”: Multifaceted Genetic Discrimination and Limited Awareness of Legal Protections among Individuals with Hereditary Cancer Syndromes Open
Introduction: Hereditary cancer syndromes (HCS), such as hereditary breast and ovarian cancer syndrome (HBOC) and Lynch syndrome (LS), represent approximately 10% of all cancers. Along with medical burdens associated with the genetic risk …
View article: Toward a public outreach and community engagement strategy on cancer in Newfoundland and Labrador: an initial road map and recommendations
Toward a public outreach and community engagement strategy on cancer in Newfoundland and Labrador: an initial road map and recommendations Open
Background: The province of Newfoundland and Labrador has one of the highest incidence and mortality rates for cancer among the Canadian provinces. Sharing accessible knowledge on cancer is an important part of cancer control and populatio…
View article: P867: “I worry I don’t have control”: The psychosocial impacts of living with a hereditary cancer syndrome
P867: “I worry I don’t have control”: The psychosocial impacts of living with a hereditary cancer syndrome Open
Hereditary cancer syndromes (HCS) are one of the most common forms of inherited diseases, accounting for up to 10% of cancers. Hereditary Breast and Ovarian Cancer Syndrome (HBOC) and Lynch Syndrome (LS) are the most prevalent types of HCS…
View article: P881: Revealing the hidden costs: Exploring the financial toxicity of hereditary cancer syndromes
P881: Revealing the hidden costs: Exploring the financial toxicity of hereditary cancer syndromes Open
Financial toxicity, also known as financial distress or burden, refers to the harmful effects caused by the high costs of treatment on patients' well-being. Although financial toxicity is widely reported in cancer patients, there is limite…
View article: P892: “Should I let them know I have this?”: Concerns and experiences of genetic discrimination amongst individuals with hereditary cancer syndromes
P892: “Should I let them know I have this?”: Concerns and experiences of genetic discrimination amongst individuals with hereditary cancer syndromes Open
Hereditary cancer syndromes (HCS) account for approximately 10% of all cancers. Among HCS, Hereditary Breast and Ovarian Cancer Syndrome (HBOC) and Lynch Syndrome (LS) are the most prevalent. In addition to medical burdens associated with …
View article: P553: How do patients with hereditary cancer syndromes navigate the healthcare system? A qualitative comparative study across Canada
P553: How do patients with hereditary cancer syndromes navigate the healthcare system? A qualitative comparative study across Canada Open
Hereditary cancer syndromes (HCS) account for 5-10% of all cancers. HCSs such as hereditary breast and ovarian cancer syndrome (HBOC) or Lynch syndrome (LS) can increase one's lifetime risk of cancer by over 80%. HCS patients therefore req…
View article: Designing and delivering public engagement activities together with patient partners: The experience of Public Conference on Cancer
Designing and delivering public engagement activities together with patient partners: The experience of Public Conference on Cancer Open
Public outreach and engagement activities can greatly benefit from collaborating with patient partners in planning and execution. Here, we describe and reflect on our experience regarding the organization and delivery of the Public Confere…
View article: Public Interest Group on Cancer Research: a successful patient–researcher partnership in Newfoundland and Labrador
Public Interest Group on Cancer Research: a successful patient–researcher partnership in Newfoundland and Labrador Open
Background Partnering with patients and family members affected by cancer is essential for meaningful research, public engagement and outreach, and advocacy activities. Objective Our objective was to create a public interest group through …