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View article: Accuracy of the “Surprise Question” in predicting 90-day mortality among hospitalized patients with decompensated cirrhosis
Accuracy of the “Surprise Question” in predicting 90-day mortality among hospitalized patients with decompensated cirrhosis Open
View article: The Scope of Clinical Practice of Inpatient and Outpatient Pediatric Palliative Care Within Pediatric Oncology
The Scope of Clinical Practice of Inpatient and Outpatient Pediatric Palliative Care Within Pediatric Oncology Open
Background While pediatric palliative care (PPC) is associated with improved end‐of‐life (EOL) outcomes for children with cancer, the content of PPC visits leading to these outcomes is not well‐understood. This study aims to compare the sc…
View article: Impact of Caregiver and Patient Age on Efficacy of Caregiver Interventions in Advanced Cancer: A Meta-Regression
Impact of Caregiver and Patient Age on Efficacy of Caregiver Interventions in Advanced Cancer: A Meta-Regression Open
Age of patients with advanced cancer and their caregivers may influence the efficacy of caregiver support interventions, and should be taken into account when designing these interventions and interpreting their effect.
View article: Temporal trends, setting and timing of palliative and hospice care in chronic obstructive pulmonary disease in the Veterans Health Administration 2010-2020
Temporal trends, setting and timing of palliative and hospice care in chronic obstructive pulmonary disease in the Veterans Health Administration 2010-2020 Open
View article: Examining Help-Seeking Behavior in People Living Alone With Cognitive Impairment
Examining Help-Seeking Behavior in People Living Alone With Cognitive Impairment Open
More than 4 million people in the United States live alone with cognitive impairment or early dementia, yet research on their experiences is limited. Previous research has shown this population has higher levels of unmet care needs and low…
View article: Addressing pain in people living with cystic fibrosis: Cystic fibrosis foundation evidence-informed guidelines
Addressing pain in people living with cystic fibrosis: Cystic fibrosis foundation evidence-informed guidelines Open
Even as many outcomes for people living with cystic fibrosis (PLwCF) improve, individuals still experience extensive symptom burdens. From birth, many PLwCF experience both pain as a symptom of their CF disease and procedural pain, posing …
View article: Caregiver-Reported Quality in Hospices Owned by Private Equity Firms and Publicly Traded Companies
Caregiver-Reported Quality in Hospices Owned by Private Equity Firms and Publicly Traded Companies Open
This study compares differences in caregiver-reported hospice quality across categories of ownership, including for-profit private equity firm (PEF)/publicly traded company (PTC)–owned and non-PEF/PTC–owned hospices as well as not-for-prof…
View article: “How do You Take that Much Time for One Person’s Life?” Experiences of Dementia Caregivers Who are Not Immediate Family
“How do You Take that Much Time for One Person’s Life?” Experiences of Dementia Caregivers Who are Not Immediate Family Open
One in three people with Alzheimer’s or other dementias lives alone, without a spouse/partner or nearby children (i.e., is aging solo), yet most dementia caregiving research has focused solely on spouses or children. This study examined th…
View article: Investigating Data Diversity and Model Robustness of AI Applications in Palliative Care and Hospice: Protocol for Scoping Review
Investigating Data Diversity and Model Robustness of AI Applications in Palliative Care and Hospice: Protocol for Scoping Review Open
Background Artificial intelligence (AI) has become a pivotal element in health care, leading to significant advancements across various medical domains, including palliative care and hospice services. These services focus on improving the …
View article: Clinician Insights into Effective Components, Delivery Characteristics, and Implementation Strategies of Ambulatory Palliative Care for People with Heart Failure: A Qualitative Analysis
Clinician Insights into Effective Components, Delivery Characteristics, and Implementation Strategies of Ambulatory Palliative Care for People with Heart Failure: A Qualitative Analysis Open
Objectives To elicit perspectives from specialist palliative care (SPC) and cardiology clinicians on the necessary components, delivery characteristics, and implementation strategies of successful ambulatory SPC for people with heart failu…
View article: Factors Impacting Serious Illness: A Mixed Methods Case Study of 4 Alabama Health Systems
Factors Impacting Serious Illness: A Mixed Methods Case Study of 4 Alabama Health Systems Open
View article: Racial Differences in Palliative Care Use in Heart Failure (GP146)
Racial Differences in Palliative Care Use in Heart Failure (GP146) Open
View article: Patient and Facility Characteristics Associated with Early Mortality After Interhospital Transfer
Patient and Facility Characteristics Associated with Early Mortality After Interhospital Transfer Open
View article: Factors Impacting Serious Illness Care: A Mixed Methods Case Study of 4 Alabama Health Systems (RP302)
Factors Impacting Serious Illness Care: A Mixed Methods Case Study of 4 Alabama Health Systems (RP302) Open
View article: Empathy, Expertise, and Availability: Identifying How People with Hidradenitis Perceive Palliative Care Services (GP120)
Empathy, Expertise, and Availability: Identifying How People with Hidradenitis Perceive Palliative Care Services (GP120) Open
View article: The Scope of Practice of an Outpatient Pediatric Palliative Care Oncology Clinic
The Scope of Practice of an Outpatient Pediatric Palliative Care Oncology Clinic Open
View article: Proactive Care-Seeking Strategies Among Adults Aging Solo With Early Dementia: A Qualitative Study
Proactive Care-Seeking Strategies Among Adults Aging Solo With Early Dementia: A Qualitative Study Open
Objectives People living with dementia need increasing care over time, but 1 in 3 adults with cognitive impairment lives alone. The goal of this study was to explore the self-identified strengths and resources for future care needs of adul…
View article: Criteria for Enrollment of Patients With COPD in Palliative Care Trials: A Systematic Review
Criteria for Enrollment of Patients With COPD in Palliative Care Trials: A Systematic Review Open
View article: Protocol for a Scoping Review of Artificial Intelligence Applications in Palliative Care and Hospice: Investigating Data Diversity and Model Robustness (Preprint)
Protocol for a Scoping Review of Artificial Intelligence Applications in Palliative Care and Hospice: Investigating Data Diversity and Model Robustness (Preprint) Open
BACKGROUND Artificial Intelligence (AI) has made significant strides in medical fields, including palliative care where its predictive models are increasingly utilized for estimating patient survival. However, the transition from proof-of…
View article: Factors Affecting Treatment Selection Among Patients With Hidradenitis Suppurativa
Factors Affecting Treatment Selection Among Patients With Hidradenitis Suppurativa Open
Importance Despite the US Food and Drug Administration’s approval of adalimumab for the treatment of hidradenitis suppurativa (HS), prescription rates remain low, indicating a critical gap between evidence-based guidelines and clinical pra…
View article: SELF-IDENTIFIED STRENGTHS AMONG ADULTS AGING SOLO WITH EARLY DEMENTIA
SELF-IDENTIFIED STRENGTHS AMONG ADULTS AGING SOLO WITH EARLY DEMENTIA Open
People with Alzheimer’s and related dementias require increasing assistance with basic life activities, yet one in three lives alone (i.e., is aging solo). Drawing on a strengths-based perspective, this study seeks to identify barriers and…
View article: IT’S OVERWHELMING FOR EVERYBODY: EXPERIENCES OF DEMENTIA CAREGIVERS WHO AREN’T CLOSE FAMILY
IT’S OVERWHELMING FOR EVERYBODY: EXPERIENCES OF DEMENTIA CAREGIVERS WHO AREN’T CLOSE FAMILY Open
One in three people with Alzheimer’s or other dementias lives alone, without a spouse/partner or nearby children (i.e., is aging solo). Friends, neighbors, and extended family often assist with tasks that preserve independence, but most de…
View article: Social Deprivation and End-of-Life Care Use Among Adults With Cancer
Social Deprivation and End-of-Life Care Use Among Adults With Cancer Open
PURPOSE Socioeconomic differences are partially responsible for racial inequities in cancer outcomes, yet the association of area-level socioeconomic disadvantage and race with end-of-life (EOL) cancer care quality is poorly understood. ME…
View article: Healthcare experiences among patients with hidradenitis suppurativa: a qualitative study
Healthcare experiences among patients with hidradenitis suppurativa: a qualitative study Open
In this qualitative study, 21 adults living with hidradenitis suppurativa (HS) were interviewed about their healthcare experiences. Participants detailed how delay in diagnosis, lack of provider knowledge, inadequate pain management, poor …
View article: Interventions to improve outcomes for caregivers of patients with advanced cancer: a meta-analysis
Interventions to improve outcomes for caregivers of patients with advanced cancer: a meta-analysis Open
Background Family caregivers of patients with advanced cancer often have poor quality of life (QOL) and mental health. We examined the effectiveness of interventions offering support for caregivers of patients with advanced cancer on careg…
View article: Decision support training for advanced cancer family caregivers: Study protocol for the CASCADE factorial trial
Decision support training for advanced cancer family caregivers: Study protocol for the CASCADE factorial trial Open
View article: Clinician perspectives on barriers and solutions to symptom management in cystic fibrosis
Clinician perspectives on barriers and solutions to symptom management in cystic fibrosis Open
View article: Public Health and Palliative Care
Public Health and Palliative Care Open
View article: The qualitative experiences of otolaryngologists with genetic services in pediatric hearing loss evaluation
The qualitative experiences of otolaryngologists with genetic services in pediatric hearing loss evaluation Open
View article: Social Deprivation and End-of-Life Care Use Among Adults with Cancer (Sch460)
Social Deprivation and End-of-Life Care Use Among Adults with Cancer (Sch460) Open