Emily R. Gallagher
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Genetic Testing in Craniofacial Care: Development of Algorithms for Testing Patients with Orofacial Clefting, Branchial Arch Anomalies, and Craniosynostosis Open
Objective To develop consensus-based algorithms for genetic testing in patients with common craniofacial conditions. Design An online collaborative consisting of online meetings, independent work, and feedback across groups. Setting/Partic…
View article: Book-Sharing for Toddlers with Clefts (BOOST): Protocol for a randomized controlled trial of a remote intervention to promote language development in children with cleft palate
Book-Sharing for Toddlers with Clefts (BOOST): Protocol for a randomized controlled trial of a remote intervention to promote language development in children with cleft palate Open
Background Children with cleft palate, with or without cleft lip (CP±L), exhibit language delays on average compared to children without clefts. Interventions to address these disparities are scarce. In this multi-center study, Book Sharin…
Hearing Loss Detection and Early Intervention Strategies in Kenya Open
Recommendations to strengthen EHC within the Kenyan health system include concurrent leverage of existing health policies and priorities, partner engagement, and strengthening referral pathways, monitoring and evaluation, and training. The…
Wireless earbuds for low-cost hearing screening Open
We present the first wireless earbud hardware that can perform hearing screening by detecting otoacoustic emissions. The conventional wisdom has been that detecting otoacoustic emissions, which are the faint sounds generated by the cochlea…
Hallermann–Streiff Syndrome in Concordant Monozygotic Twins With Congenital Cataracts, Exudative Retinal Detachments, and One Case of Corneal Perforation Requiring Keratoplasty Open
Purpose: We describe the management of Hallermann–Streiff syndrome in monozygotic female twins with congenital cataracts, exudative retinal detachments, and 1 case of corneal descemetocele with associated dellen and subsequent perforation.…
View article: Updated clinical practice recommendations for managing children with 22q11.2 deletion syndrome
Updated clinical practice recommendations for managing children with 22q11.2 deletion syndrome Open
This review aimed to update the clinical practice guidelines for managing children and adolescents with 22q11.2 deletion syndrome (22q11.2DS). The 22q11.2 Society, the international scientific organization studying chromosome 22q11.2 diffe…
View article: Health-Related Quality of Life and Depression Symptoms in a Cross Section of Patients with Advanced Lung Cancer before and during the COVID-19 Pandemic
Health-Related Quality of Life and Depression Symptoms in a Cross Section of Patients with Advanced Lung Cancer before and during the COVID-19 Pandemic Open
Background: Adults with advanced lung cancer experience reduced health-related quality of life (HRQOL) and psychological symptoms at diagnosis. Objective: This study aimed to evaluate whether the COVID-19 pandemic worsened HRQOL among pati…
Randomized Trial of a Palliative Care Intervention to Improve End-of-Life Care Discussions in Patients With Metastatic Breast Cancer Open
Background: Studies show that early, integrated palliative care (PC) improves quality of life (QoL) and end-of-life (EoL) care for patients with poor-prognosis cancers. However, the optimal strategy for delivering PC for those with advance…
View article: Accuracy and Reliability of 4D‐CT and Flexible Laryngoscopy in Upper Airway Evaluation in Robin Sequence
Accuracy and Reliability of 4D‐CT and Flexible Laryngoscopy in Upper Airway Evaluation in Robin Sequence Open
Objectives To evaluate the performance of 4‐dimensional computed tomography (4D‐CT) in assessing upper airway obstruction (UAO) in patients with Robin sequence (RS) and compare the accuracy and reliability of 4D‐CT and flexible fiber‐optic…
Neurodevelopmental and Academic Outcomes in Children With Orofacial Clefts: A Systematic Review Open
CONTEXT: Children with orofacial clefts (OFCs) are reported to have worse neurodevelopmental outcomes than unaffected peers, although study methodologies and findings are highly variable and trends in outcomes by age remain unexplored. OBJ…
SUN-073 Autoimmune Polyendocrine Syndrome Type 2 Presenting As New Onset Systolic Heart Failure Open
Background: Autoimmune Polyendocrine Syndrome Type 2 (APS2) can present with a constellation of autoimmune disorders that evolve over time. Clinical case: A 35 year old woman with a history of Addison’s disease (diagnosed age 4), Hashimoto…
Defining the Elements of Early Palliative Care That Are Associated With Patient-Reported Outcomes and the Delivery of End-of-Life Care Open
Purpose We describe the key elements of early palliative care (PC) across the illness trajectory and examine whether visit content was associated with patient-reported outcomes and end-of-life care. Methods We performed a secondary analysi…
Head shape at age 36 months among children with and without a history of positional skull deformation Open
OBJECTIVE In this study, the authors examined head shape through age 36 months for children with and without a history of positional plagiocephaly and/or brachycephaly (PPB). METHODS Infants with PPB (cases) were identified through a crani…
Role of Patient Coping Strategies in Understanding the Effects of Early Palliative Care on Quality of Life and Mood Open
Purpose The early integration of oncology and palliative care (EIPC) improves quality of life (QOL) and mood for patients with advanced cancer. However, the mechanisms by which EIPC benefits these outcomes remain unclear. We therefore exam…
Sarcopenia Is Associated with Quality of Life and Depression in Patients with Advanced Cancer Open
Background Patients with advanced cancer often experience muscle wasting (sarcopenia), yet little is known about the characteristics associated with sarcopenia and the relationship between sarcopenia and patients’ quality of life (QOL) and…
Effects of Early Integrated Palliative Care on Caregivers of Patients with Lung and Gastrointestinal Cancer: A Randomized Clinical Trial Open
Background The family and friends (caregivers) of patients with advanced cancer often experience tremendous distress. Although early integrated palliative care (PC) has been shown to improve patient-reported quality of life (QOL) and mood,…
Coping and Prognostic Awareness in Patients With Advanced Cancer Open
Purpose Patients’ understanding of their illness is key for making informed treatment decisions, yet studies suggest an association between prognostic awareness and worse quality of life (QOL) and mood among patients with advanced cancer. …
Qualitative Research in Palliative Care: Applications to Clinical Trials Work Open
This study provides a foundation for undertaking qualitative research within palliative care and serves as a framework for use by other palliative care researchers interested in qualitative methodologies.
Laterality of Oral Clefts and Academic Achievement Open
BACKGROUND AND OBJECTIVES: Children with isolated oral clefts have lower academic performance when compared with unaffected peers, yet few studies have examined specific attributes of clefts that may modify this risk. Oral clefts have nonr…
The relationship between coping strategies, quality of life, and mood in patients with incurable cancer Open
BACKGROUND Patients with incurable cancer face many physical and emotional stressors, yet little is known about their coping strategies or the relationship between their coping strategies, quality of life (QOL), and mood. METHODS As part o…
Retrospective evaluation of palliative care and hospice utilization in hospitalized patients with metastatic breast cancer Open
Background: Hospitalizations in patients with metastatic cancer occur commonly at the end of life but have not been well-described in individuals with metastatic breast cancer. Aim: To describe the reasons for admission and frequency of pa…