Emma Nicklin
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View article: OS04.9.A GLIOBLASTOMA PATIENT AND CAREGIVER PERSPECTIVES ON TAKING PART IN A TREATMENT TRIAL: RECOMMENDATIONS TO OPTIMISE TRIAL PROCESSES
OS04.9.A GLIOBLASTOMA PATIENT AND CAREGIVER PERSPECTIVES ON TAKING PART IN A TREATMENT TRIAL: RECOMMENDATIONS TO OPTIMISE TRIAL PROCESSES Open
BACKGROUND Quality of life (QoL) is a priority for many cancer patients, particularly when cure is not possible. We conducted a secondary analysis of qualitative data from a randomised controlled trial (RCT) of re-irradiation versus lomust…
View article: Neurocognitive concerns and neurocognitive impairment in long-term survivors of oropharyngeal cancer post (chemo)radiotherapy
Neurocognitive concerns and neurocognitive impairment in long-term survivors of oropharyngeal cancer post (chemo)radiotherapy Open
Background Little is known about neurocognitive concerns (NCC) and neurocognitive function (NCF) in survivors of oropharyngeal cancer (OPC) following (chemo)radiotherapy. Methods A multicentre cross-sectional study was conducted in non-sur…
View article: Development of a unified system for assessing health related quality of life across the cancer care continuum: the EUonQoL Delphi study to identify priorities for quality of life domains
Development of a unified system for assessing health related quality of life across the cancer care continuum: the EUonQoL Delphi study to identify priorities for quality of life domains Open
View article: Correction: Understanding the impact of early onset colorectal cancer on quality of life: a qualitative analysis of online forum data
Correction: Understanding the impact of early onset colorectal cancer on quality of life: a qualitative analysis of online forum data Open
View article: Multidimensional fatigue and its impact on work productivity, mood and quality of life in long-term survivors following definitive intensity-modulated radiotherapy for oropharyngeal cancer: A cross-sectional study
Multidimensional fatigue and its impact on work productivity, mood and quality of life in long-term survivors following definitive intensity-modulated radiotherapy for oropharyngeal cancer: A cross-sectional study Open
Purpose Radiotherapy (RT) for oropharyngeal cancer (OPC) can lead to late toxicity. Fatigue is a known debilitating issue for many cancer survivors, yet prevalence and severity of long-term fatigue in patients treated for OPC is unknown. M…
View article: Understanding the impact of early onset colorectal cancer on quality of life: a qualitative analysis of online forum data
Understanding the impact of early onset colorectal cancer on quality of life: a qualitative analysis of online forum data Open
Purpose Early onset colorectal cancer (EOCRC) is rising. The profile of health-related quality of life (HRQOL) impacts may differ in this younger cohort. Online forums are a source of unfiltered information regarding patient experience. Th…
View article: Living with an artificial eye: qualitative insights into patient and family member experiences
Living with an artificial eye: qualitative insights into patient and family member experiences Open
Purpose Artificial eye users (AEUs) can experience a negative impact on psychological and emotional wellbeing, including reduced social functioning, which may be a consequence of living with one eye removed, and/or of having a prosthetic e…
View article: “Why am I still suffering?”: Experience of long-term fatigue and neurocognitive changes in oropharyngeal cancer survivors following (chemo)radiotherapy
“Why am I still suffering?”: Experience of long-term fatigue and neurocognitive changes in oropharyngeal cancer survivors following (chemo)radiotherapy Open
View article: Long-term health-related quality of life in meningioma survivors: A mixed-methods systematic review
Long-term health-related quality of life in meningioma survivors: A mixed-methods systematic review Open
Background Meningiomas account for ~25% of all primary brain tumors. These tumors have a relatively favorable prognosis with ~92% of meningioma patients surviving >5 years after diagnosis. Yet, patients can report high disease burden an…
View article: Patient and caregiver return to work after a primary brain tumor
Patient and caregiver return to work after a primary brain tumor Open
Background Studies focusing on the return to work (RTW) experiences of patients with a brain tumor (BT) are scarce. We aimed to explore, in-depth, the occupational expectations, experiences, and satisfaction of patients who RTW after a BT …
View article: Communication in the context of glioblastoma treatment: A qualitative study of what matters most to patients, caregivers and health care professionals
Communication in the context of glioblastoma treatment: A qualitative study of what matters most to patients, caregivers and health care professionals Open
Background: Patients with glioblastoma have a poor prognosis and treatment is palliative in nature from diagnosis. It is therefore critical that the benefits and burdens of treatments are clearly discussed with patients and caregivers. Aim…
View article: “Why Am I Still Suffering?”: Experience of Long-Term Fatigue and Neurocognitive Changes in Oropharyngeal Cancer Survivors Following (Chemo)Radiotherapy
“Why Am I Still Suffering?”: Experience of Long-Term Fatigue and Neurocognitive Changes in Oropharyngeal Cancer Survivors Following (Chemo)Radiotherapy Open
View article: QOL-19. RETURNING TO WORK AFTER A BRAIN TUMOUR – “I THOUGHT I WOULD BE BACK AT WORK THE NEXT WEEK, HOW WRONG I WAS!”
QOL-19. RETURNING TO WORK AFTER A BRAIN TUMOUR – “I THOUGHT I WOULD BE BACK AT WORK THE NEXT WEEK, HOW WRONG I WAS!” Open
BACKGROUND Returning to work is important for patients' and their families’ well-being, financial circumstances and quality of life. Side-effects of brain tumour (BT) treatment or clinical deterioration from BT progression often causes tem…
View article: QOL-11. COMMUNICATION IN THE CONTEXT OF GLIOBLASTOMA TREATMENT: WHAT MATTERS MOST
QOL-11. COMMUNICATION IN THE CONTEXT OF GLIOBLASTOMA TREATMENT: WHAT MATTERS MOST Open
BACKGROUND Given the poor prognosis of glioblastoma, it is critical that the benefits and burdens of treatments are clearly discussed with patients and family caregivers. We investigated experiences and preferences around glioblastoma trea…
View article: P08.05.B Communication in the context of glioblastoma treatment: what matters most to patients and caregivers
P08.05.B Communication in the context of glioblastoma treatment: what matters most to patients and caregivers Open
Background Given the poor prognosis of glioblastoma, with short survival times regardless of treatment, it is critical that the benefits and risks of treatments are clearly discussed with patients and family caregivers. The respective valu…
View article: P08.09.A Improving support for family carers: Creating a cross-sector collaborative working group
P08.09.A Improving support for family carers: Creating a cross-sector collaborative working group Open
Background Family carers of people with brain tumours and other progressive neurological conditions have unique but overlapping support needs. This is because caring can be particularly challenging due to patients’ cognitive issues, behavi…
View article: QOLP-30. LONG-TERM UNMET SUPPORTIVE CARE NEEDS OF TYA CHILDHOOD BRAIN TUMOUR SURVIVORS AND THEIR CAREGIVERS: A CROSS-SECTIONAL SURVEY
QOLP-30. LONG-TERM UNMET SUPPORTIVE CARE NEEDS OF TYA CHILDHOOD BRAIN TUMOUR SURVIVORS AND THEIR CAREGIVERS: A CROSS-SECTIONAL SURVEY Open
INTRODUCTION The supportive care needs of long-term childhood brain tumour survivors, now teenagers and young adults (TYAs), and their caregivers are largely unknown. TYAs are a unique patient cohort with specific challenges and vulnerabil…
View article: Long-term unmet supportive care needs of teenage and young adult (TYA) childhood brain tumour survivors and their caregivers: a cross-sectional survey
Long-term unmet supportive care needs of teenage and young adult (TYA) childhood brain tumour survivors and their caregivers: a cross-sectional survey Open
View article: OS10.6.A Supportive care needs of TYA childhood brain tumour survivors and their caregivers: a mixed methods study
OS10.6.A Supportive care needs of TYA childhood brain tumour survivors and their caregivers: a mixed methods study Open
BACKGROUND Childhood brain tumour survivors and their family caregivers can experience many late effects of treatment including social, cognitive and physical issues. Yet, the supportive care needs of survivors, now teenagers and young adu…
View article: Unmet support needs in teenage and young adult childhood brain tumour survivors and their caregivers: “it’s all the aftermath, and then you’re forgotten about”
Unmet support needs in teenage and young adult childhood brain tumour survivors and their caregivers: “it’s all the aftermath, and then you’re forgotten about” Open
View article: From embracing to managing risks
From embracing to managing risks Open
Objective To assess developments over time in the capture, curation and use of quality and safety information in managing hospital services. Setting Four acute National Health Service hospitals in England. Participants 111.5 hours of obser…
View article: OS5.6 Issues and needs experienced by adolescent and young adult brain tumour survivors and their caregivers: A systematic review
OS5.6 Issues and needs experienced by adolescent and young adult brain tumour survivors and their caregivers: A systematic review Open
Long term issues following diagnosis and treatment of a childhood brain tumour often become apparent as the survivor enters adolescence and young adulthood. These issues can spillover to the survivors’ informal caregivers with emotional an…
View article: Understanding barriers for research involvement among paediatric trainees: a mixed methods study
Understanding barriers for research involvement among paediatric trainees: a mixed methods study Open
View article: Quality and safety between ward and board: a biography of artefacts study
Quality and safety between ward and board: a biography of artefacts study Open
Background There have been concerns about the quality and safety of NHS hospital services since the turn of the millennium. This study investigated the progress that acute NHS hospital trusts have made in developing and using technology in…