Erin Turbitt
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View article: From Needs to Insights: Designing Digital Support with Parents of Children with Genetic Neurodevelopmental Conditions
From Needs to Insights: Designing Digital Support with Parents of Children with Genetic Neurodevelopmental Conditions Open
View article: Improving Pain Outcomes for Children and Adolescents at School via a Socio‐Ecological Public Health Lens: A Strengths‐Focused Interview Study With Teachers
Improving Pain Outcomes for Children and Adolescents at School via a Socio‐Ecological Public Health Lens: A Strengths‐Focused Interview Study With Teachers Open
Chronic pain in children and adolescents is widespread and negatively affects school attendance and developmental trajectories. Teachers are central to how pain (both acute and chronic) is experienced by their students because of their pos…
View article: Proceedings from the 2023 transdisciplinary conference for future leaders in precision public health “Applying Implementation Science to Precision Public Health”
Proceedings from the 2023 transdisciplinary conference for future leaders in precision public health “Applying Implementation Science to Precision Public Health” Open
View article: Correction: Secondary findings from clinical genomic sequencing: prevalence, patient perspectives, family history assessment, and health-care costs from a multisite study
Correction: Secondary findings from clinical genomic sequencing: prevalence, patient perspectives, family history assessment, and health-care costs from a multisite study Open
View article: Secondary findings from clinical genomic sequencing: prevalence, patient perspectives, family history assessment, and health-care costs from a multisite study
Secondary findings from clinical genomic sequencing: prevalence, patient perspectives, family history assessment, and health-care costs from a multisite study Open
View article: Proceedings from the 2024 precision public health research symposium: advancing health equity through precision public health
Proceedings from the 2024 precision public health research symposium: advancing health equity through precision public health Open
View article: Proceedings from the 2023 transdisciplinary conference for future leaders in precision public health “Applying Implementation Science to Precision Public Health”
Proceedings from the 2023 transdisciplinary conference for future leaders in precision public health “Applying Implementation Science to Precision Public Health” Open
Precision public health (PPH) approaches use big data to inform tailored, population-level interventions. The field has roots in genomics, but it has expanded to encompass data-informed public health programs across various types of data o…
View article: Targeting Pain Science Education With a Children’s Book: A Single Case Experimental Design (SCED) Study With a Sham Comparison
Targeting Pain Science Education With a Children’s Book: A Single Case Experimental Design (SCED) Study With a Sham Comparison Open
Objectives To assess perceived changes in children’s understanding of the pain–damage relationship and the brain’s influence on pain following exposure to sham and pain science education (PSE) books. Methods A series of single‐case experim…
View article: Parents’ perspectives on conversations about prognosis and an assessment of prognostic information available online: A mixed-methods study
Parents’ perspectives on conversations about prognosis and an assessment of prognostic information available online: A mixed-methods study Open
Our data provide evidence of an over-emphasis of deficit-framed prognostic information about genetic neurodevelopmental conditions. The initial exposure to negative information may adversely affect parents' psychological well-being and exp…
View article: Cancer genetic counseling via telegenetics and telephone: A qualitative study exploring the experience of patients and genetic counselors in an Australian cancer genetics context
Cancer genetic counseling via telegenetics and telephone: A qualitative study exploring the experience of patients and genetic counselors in an Australian cancer genetics context Open
The demand for direct‐to‐patient (DTP) telegenetics (genetics services delivered via videoconferencing) in genetic counseling practice has rapidly increased, particularly since the COVID‐19 pandemic. Recent telegenetics literature is mostl…
View article: Genetic Testing and Other Healthcare Use by Black and White Individuals in a Genomic Sequencing Study
Genetic Testing and Other Healthcare Use by Black and White Individuals in a Genomic Sequencing Study Open
INTRODUCTION: Early adopters play a critical role in the diffusion of medical innovations by spreading awareness, increasing acceptability, and driving demand. Understanding the role of race in the context of other characteristics of poten…
View article: Race, ethnicity, and ancestry reporting in genetic counseling research: A focused mapping review and synthesis
Race, ethnicity, and ancestry reporting in genetic counseling research: A focused mapping review and synthesis Open
Studies on the use of Race, Ethnicity, and Ancestry (REA) concepts and terms in genetic research are limited. We aimed to describe the collection, reporting, and use of REA data in genetic counseling research. We undertook a focused mappin…
View article: Fostering Hope and Acknowledging Uncertainty: Meeting Parents’ Needs and Preferences When Communicating Prognosis in Genetic Neurodevelopmental Conditions
Fostering Hope and Acknowledging Uncertainty: Meeting Parents’ Needs and Preferences When Communicating Prognosis in Genetic Neurodevelopmental Conditions Open
Purpose of Review We sought to summarise recent research on prognostication in genetic neurodevelopmental conditions, focusing on parent preferences for prognostic conversations. We further aimed to explore recommendations about communicat…
View article: A mixed-methods assessment of the Australasian Society of Genetic Counselors (ASGC) Mentor Program
A mixed-methods assessment of the Australasian Society of Genetic Counselors (ASGC) Mentor Program Open
View article: Parents' preferences for receiving and discussing prognostic genetic information regarding their children's neurodevelopmental condition: A qualitative study
Parents' preferences for receiving and discussing prognostic genetic information regarding their children's neurodevelopmental condition: A qualitative study Open
Aim To investigate parents' preferences and motivations for receiving and discussing prognostic genetic test results. Method We used a cross‐sectional, interpretive description qualitative study design. We collected data through semi‐struc…
View article: The Parent PrU: A measure to assess personal utility of pediatric genomic results
The Parent PrU: A measure to assess personal utility of pediatric genomic results Open
View article: Extending an Antiracism Lens to the Implementation of Precision Public Health Interventions
Extending an Antiracism Lens to the Implementation of Precision Public Health Interventions Open
Precision public health holds promise to improve disease prevention and health promotion strategies, allowing the right intervention to be delivered to the right population at the right time. Growing concerns underscore the potential for p…
View article: Special Issue: “Genetic Counseling and Genetic Testing in Precision Medicine”
Special Issue: “Genetic Counseling and Genetic Testing in Precision Medicine” Open
Progress in genomic technologies has spurred innovation in healthcare and medicine, contributing to improved health and well-being [...]
View article: Motivations to learn genomic information are not exceptional: Lessons from behavioral science
Motivations to learn genomic information are not exceptional: Lessons from behavioral science Open
Whether to undergo genome sequencing in a clinical or research context is generally a voluntary choice. Individuals are often motivated to learn genomic information even when clinical utility—the possibility that the test could inform medi…
View article: A survey of genetic and palliative care health professionals’ views of integrating genetics into palliative care
A survey of genetic and palliative care health professionals’ views of integrating genetics into palliative care Open
View article: Data from Uptake of Genetic Testing Among Patients with Cancer At Risk for Lynch Syndrome in the National Health Interview Survey
Data from Uptake of Genetic Testing Among Patients with Cancer At Risk for Lynch Syndrome in the National Health Interview Survey Open
Lynch syndrome is the most common inherited cancer syndrome that increases the risk of developing colorectal and endometrial cancer. Universal screening guidelines were first recommended by the Centers for Disease Control and Prevention (C…
View article: Supplementary Table S1 and S2 from Uptake of Genetic Testing Among Patients with Cancer At Risk for Lynch Syndrome in the National Health Interview Survey
Supplementary Table S1 and S2 from Uptake of Genetic Testing Among Patients with Cancer At Risk for Lynch Syndrome in the National Health Interview Survey Open
Supplementary Table S1 shows unweighted descriptive statistics of genetic testing uptake. Supplementary Table S2 shows genetic testing uptake by (1) cancer type and (2) racial groups
View article: Data from Uptake of Genetic Testing Among Patients with Cancer At Risk for Lynch Syndrome in the National Health Interview Survey
Data from Uptake of Genetic Testing Among Patients with Cancer At Risk for Lynch Syndrome in the National Health Interview Survey Open
Lynch syndrome is the most common inherited cancer syndrome that increases the risk of developing colorectal and endometrial cancer. Universal screening guidelines were first recommended by the Centers for Disease Control and Prevention (C…
View article: Supplementary Table S1 and S2 from Uptake of Genetic Testing Among Patients with Cancer At Risk for Lynch Syndrome in the National Health Interview Survey
Supplementary Table S1 and S2 from Uptake of Genetic Testing Among Patients with Cancer At Risk for Lynch Syndrome in the National Health Interview Survey Open
Supplementary Table S1 shows unweighted descriptive statistics of genetic testing uptake. Supplementary Table S2 shows genetic testing uptake by (1) cancer type and (2) racial groups
View article: Table of Contents
Table of Contents Open
View article: Do Teachers Question the Reality of Pain in Their Students? A Survey Using the Concept of Pain Inventory-Proxy (COPI-Proxy)
Do Teachers Question the Reality of Pain in Their Students? A Survey Using the Concept of Pain Inventory-Proxy (COPI-Proxy) Open
An assessment of a teacher’s concept of their student’s pain could be useful to guide preventative and targeted school-based pain science education. We aimed to assess a teacher’s own concept of pain against their concept of their student’…
View article: Free Online Decision Tools to Support Parents Making Decisions About Their Children's Chronic Health Condition: An Environmental Scan
Free Online Decision Tools to Support Parents Making Decisions About Their Children's Chronic Health Condition: An Environmental Scan Open
Registered with Open Science Framework 20 July 2021(AEST) osf.io/b94yj.
View article: Genetic Testing and Other Healthcare Use by Black and White Individuals in a Genomic Sequencing Study
Genetic Testing and Other Healthcare Use by Black and White Individuals in a Genomic Sequencing Study Open
Introduction: Early adopters play a critical role in the diffusion of medical innovations by spreading awareness, increasing acceptability, and driving demand. Understanding the role of race in the context of other characteri…
View article: Australasian Genetic Counselors’ Perceptions of Their Role in Supporting Clients’ Behavior Change
Australasian Genetic Counselors’ Perceptions of Their Role in Supporting Clients’ Behavior Change Open
Genetic testing does not always change health behavior. Effective behavior change requires a theory-driven coordinated set of activities (behavior change techniques). Genetic counselors are ideally positioned to facilitate behavior change.…
View article: Attitudes of Australian dermatologists on the use of genetic testing: A cross-sectional survey with a focus on melanoma
Attitudes of Australian dermatologists on the use of genetic testing: A cross-sectional survey with a focus on melanoma Open
Background: Melanoma genetic testing reportedly increases preventative behaviour without causing psychological harm. Genetic testing for familial melanoma risk is now available, yet little is known about dermatologists’ perceptions regardi…