Frank Puga
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View article: A scoping review of interventions for Hispanic caregivers of persons living with dementia
A scoping review of interventions for Hispanic caregivers of persons living with dementia Open
Dementia disproportionately affects Hispanic/Latino caregivers, and while some interventions exist, their consideration of intersectional factors remains unclear. Guided by PROGRESS‐Plus, a framework of health equity factors that affect be…
View article: Developing a community-informed sexual and gender minority health research training program in the Deep South
Developing a community-informed sexual and gender minority health research training program in the Deep South Open
The largest sexual (e.g., lesbian, gay and bisexual) and gender (e.g., transgender, nonbinary, gender diverse) minority (SGM) population in the United States resides in the Deep South; however, this area has no legal protections for SGM in…
View article: Size and Composition of Caregiver Networks Who Manage Medications for Persons Living With Dementia: Cross-Sectional Analysis of the 2011-2022 National Health and Aging Trends Study
Size and Composition of Caregiver Networks Who Manage Medications for Persons Living With Dementia: Cross-Sectional Analysis of the 2011-2022 National Health and Aging Trends Study Open
Background Family caregivers commonly help manage medications taken by persons living with dementia. Recent work has highlighted the importance of caregiver networks, which are multiple caregivers managing care for a single person, on mana…
View article: Acceptability of a Web-Based Financial Education Intervention for Latino Caregivers: Mixed Methods Evaluation
Acceptability of a Web-Based Financial Education Intervention for Latino Caregivers: Mixed Methods Evaluation Open
Background Latino caregivers of persons living with dementia face distinct financial challenges, spending nearly half of their annual household income on caregiving expenses, almost twice as much as non-Latino caregivers. Cultural norms, l…
View article: Associations between smartphone GPS data and changes in psychological health and burden outcomes among family caregivers and patients with advanced cancer: an exploratory longitudinal cohort study
Associations between smartphone GPS data and changes in psychological health and burden outcomes among family caregivers and patients with advanced cancer: an exploratory longitudinal cohort study Open
The exploratory study demonstrates the potential predictive utility of using passive smartphone data to detect changes in caregiver and patient psychological distress and burden. A larger study is needed to validate these findings and furt…
View article: Factors associated with care‐resistant behavior in the National Alzheimer's Coordinating Center's Uniform Data Set
Factors associated with care‐resistant behavior in the National Alzheimer's Coordinating Center's Uniform Data Set Open
INTRODUCTION Little is known about the factors associated with care‐resistant behavior in community‐dwelling persons living with dementia. METHODS Regression modeling was performed on 41,143 responses to a standardized questionnaire from t…
View article: Acceptability of a Web-Based Financial Education Intervention for Latino Caregivers: A Mixed-Methods Evaluation (Preprint)
Acceptability of a Web-Based Financial Education Intervention for Latino Caregivers: A Mixed-Methods Evaluation (Preprint) Open
BACKGROUND Latino caregivers spend nearly double their annual household income on caregiving expenses compared to non-Latino caregivers. CONFIDENCE is an asynchronous, web-based, culturally-tailored intervention to reduce financial stress…
View article: Exploring the Relationship Between Smartphone GPS Patterns and Quality of Life in Patients With Advanced Cancer and Their Family Caregivers: Longitudinal Study
Exploring the Relationship Between Smartphone GPS Patterns and Quality of Life in Patients With Advanced Cancer and Their Family Caregivers: Longitudinal Study Open
Background Patients with advanced cancer and their family caregivers often experience poor quality of life (QOL). Self-report measures are commonly used to quantify QOL of family caregivers but may have limitations such as recall bias and …
View article: INTERVENTIONS TO PREVENT ELDER MISTREATMENT WITH FAMILY CAREGIVERS OF PERSONS LIVING WITH DEMENTIA
INTERVENTIONS TO PREVENT ELDER MISTREATMENT WITH FAMILY CAREGIVERS OF PERSONS LIVING WITH DEMENTIA Open
Persons living with Alzheimer’s disease and related dementias are among the most vulnerable to elder mistreatment and neglect (EM). Family caregivers, who often enter this role with minimal preparation or support, are among the most likely…
View article: INTRAINDIVIDUAL VARIABILITY MODIFIES COGNITIVE TRAINING IN COGNITIVELY VULNERABLE OLDER ADULTS WITH HIV
INTRAINDIVIDUAL VARIABILITY MODIFIES COGNITIVE TRAINING IN COGNITIVELY VULNERABLE OLDER ADULTS WITH HIV Open
Cognitive Intra-Individual Variability (IIV), the fluctuation in cognitive performance within an individual, often stems from compromised cognitive control due to brain pathology. In cognitive aging studies, cognitive IIV has been shown to…
View article: COPING STRATEGIES AMONG HISPANIC AND LATINX DEMENTIA CAREGIVERS
COPING STRATEGIES AMONG HISPANIC AND LATINX DEMENTIA CAREGIVERS Open
The objective of this study was to examine coping strategies employed by Hispanic and Latinx (H&L) family caregivers (FCGs) of people living with dementia (PLWD) and associations with sociodemographic characteristics. A nonparametric analy…
View article: HISPANIC DEMENTIA CAREGIVERS INVOLVEMENT IN EVERYDAY DECISION-MAKING
HISPANIC DEMENTIA CAREGIVERS INVOLVEMENT IN EVERYDAY DECISION-MAKING Open
This analysis aimed to examine the degree of decision-making involvement (DMI) of Hispanic and Latinx (H&L) dementia caregivers of people living with dementia (PLWD). Data was used from an ongoing study on the daily mental health experienc…
View article: Feasibility and refinement of a culturally tailored intervention to reduce financial strain among Latino caregivers using AI
Feasibility and refinement of a culturally tailored intervention to reduce financial strain among Latino caregivers using AI Open
Background Family caregivers to persons living with dementia are at risk of financial strain from the high out‐of‐pocket costs of care and reduced employment opportunities. Financial strain disproportionately affects U.S. Latino caregivers…
View article: COACHING DEMENTIA CAREGIVERS TO MASTER CARE-RESISTANT BEHAVIOR: CURB-IT
COACHING DEMENTIA CAREGIVERS TO MASTER CARE-RESISTANT BEHAVIOR: CURB-IT Open
Care-resistant behavior (CRB) refers to actions taken by people living with dementia to avoid receiving assistance or completing care activities. At least 66% of family caregivers encounter CRBs. The purpose of this study is to test the ef…
View article: COPING STRATEGIES AMONG HISPANIC AND LATINX DEMENTIA CAREGIVERS
COPING STRATEGIES AMONG HISPANIC AND LATINX DEMENTIA CAREGIVERS Open
The objective of this study was to examine coping strategies employed by Hispanic and Latinx (H&L) family caregivers (FCGs) of people living with dementia (PLWD) and associations with sociodemographic characteristics. A nonparametric analy…
View article: A PRELIMINARY EXAMINATION OF SOCIAL MEDIA USE AMONG HISPANIC/LATINX DEMENTIA CAREGIVERS
A PRELIMINARY EXAMINATION OF SOCIAL MEDIA USE AMONG HISPANIC/LATINX DEMENTIA CAREGIVERS Open
Hispanic/Latinx (H&L) family caregivers of people living with dementia (PLWD) experience elevated stress levels that can negatively affect their mental health. Caregivers are also prone to loneliness and social isolation and may rely on te…
View article: Lessons from a Pilot Study of a Culturally Tailored Financial Well-Being Intervention Among Latino Family Caregivers
Lessons from a Pilot Study of a Culturally Tailored Financial Well-Being Intervention Among Latino Family Caregivers Open
Financial strain disproportionally affects the growing population of Latino family caregivers. This pilot study aimed to test the feasibility of a culturally tailored psychoeducational intervention for Latino caregivers designed to reduce …
View article: Daily Social Support, Social Isolation, and the Mental Health of Sexual and Gender Minority Adults Living with Cancer (GP116)
Daily Social Support, Social Isolation, and the Mental Health of Sexual and Gender Minority Adults Living with Cancer (GP116) Open
View article: The Daily Experiences of Hispanic and Latinx Dementia Caregivers Study: Protocol for a Fully Remote Daily Diary Observational Cohort Study
The Daily Experiences of Hispanic and Latinx Dementia Caregivers Study: Protocol for a Fully Remote Daily Diary Observational Cohort Study Open
Background The Hispanic and Latinx community is disproportionately affected by Alzheimer disease and related dementias (ADRDs). In the United States, approximately 8.5 million caregivers of individuals with ADRDs identify as Hispanic and L…
View article: Cognitive intra-individual variability as an outcome or moderator of speed of processing training in aging adults with HIV-associated neurocognitive disorder: A secondary data analysis of a 2-year longitudinal randomized clinical trial
Cognitive intra-individual variability as an outcome or moderator of speed of processing training in aging adults with HIV-associated neurocognitive disorder: A secondary data analysis of a 2-year longitudinal randomized clinical trial Open
Although SOP training did not improve cognitive IIV, cognitive IIV may be a modifier of SOP training. Implications for future research and other types of training are provided.
View article: The Daily Experiences of Hispanic and Latinx Dementia Caregivers Study: Protocol for a Fully Remote Daily Diary Observational Cohort Study (Preprint)
The Daily Experiences of Hispanic and Latinx Dementia Caregivers Study: Protocol for a Fully Remote Daily Diary Observational Cohort Study (Preprint) Open
BACKGROUND The Hispanic and Latinx community is disproportionately affected by Alzheimer disease and related dementias (ADRDs). In the United States, approximately 8.5 million caregivers of individuals with ADRDs identify as Hispanic and …
View article: Patient Portal Use Among Family Caregivers of Individuals With Dementia and Cancer: Regression Analysis From the National Study of Caregiving
Patient Portal Use Among Family Caregivers of Individuals With Dementia and Cancer: Regression Analysis From the National Study of Caregiving Open
Background Family caregivers are often inexperienced and require information from clinic visits to effectively provide care for patients. Despite reported deficiencies, 68% of health systems facilitate sharing information with family careg…
View article: APPLYING TIME-VARYING EFFECT MODELING TO EXAMINE DAILY VARIATION IN SUICIDAL IDEATION AMONG DEMENTIA CAREGIVERS
APPLYING TIME-VARYING EFFECT MODELING TO EXAMINE DAILY VARIATION IN SUICIDAL IDEATION AMONG DEMENTIA CAREGIVERS Open
Emerging evidence suggests that caregivers may experience high rates of suicidal ideation. However, relatively little is known about daily contextual factors, including day-to-day depression and anxiety-related symptoms, that increase the …
View article: DAILY FACTORS ASSOCIATED WITH EMOTIONAL DYSREGULATION AMONG DEMENTIA CAREGIVERS
DAILY FACTORS ASSOCIATED WITH EMOTIONAL DYSREGULATION AMONG DEMENTIA CAREGIVERS Open
Family dementia caregivers experience increased burden and stress that can negatively impact emotion regulation and overall well-being. Further, a lack of social connection may contribute to emotion dysregulation among dementia caregivers.…
View article: PATIENT PORTAL USE IN FAMILY CAREGIVERS OF PATIENTS WITH DEMENTIA OR CANCER: THE NATIONAL STUDY OF CAREGIVING
PATIENT PORTAL USE IN FAMILY CAREGIVERS OF PATIENTS WITH DEMENTIA OR CANCER: THE NATIONAL STUDY OF CAREGIVING Open
Family caregivers are often inexperienced and require information from clinic visits to effectively provide care for patients. The patient portal is a common way for health systems to engage family caregivers, especially those of patients …
View article: FAMILY CAREGIVER COMFORT WITH TELEHEALTH TECHNOLOGIES: DIFFERENCES BY RACE/ETHNICITY IN A CROSS SECTIONAL SURVEY
FAMILY CAREGIVER COMFORT WITH TELEHEALTH TECHNOLOGIES: DIFFERENCES BY RACE/ETHNICITY IN A CROSS SECTIONAL SURVEY Open
Telehealth has seen widespread use since the onset of the COVID-19 pandemic, and 82% patients required assistance in accessing their telehealth appointments. This assistance commonly comes from a family caregiver who may or may not be comf…
View article: THE RELATIONSHIP BETWEEN ROLE CAPTIVITY, COPING STRATEGIE,S AND DEMENTIA FAMILY CAREGIVER MENTAL HEALTH
THE RELATIONSHIP BETWEEN ROLE CAPTIVITY, COPING STRATEGIE,S AND DEMENTIA FAMILY CAREGIVER MENTAL HEALTH Open
Informal caregivers of individuals living with dementia have an increased risk for experiencing depressive and anxiety symptoms. The stress-process model posits that situational stressors and stress moderators, such as role captivity and c…
View article: THE RELATIONSHIP BETWEEN SELF-REPORTED QUALITY OF LIFE AND SMARTPHONE GPS DATA
THE RELATIONSHIP BETWEEN SELF-REPORTED QUALITY OF LIFE AND SMARTPHONE GPS DATA Open
Patients with advanced cancer and their family caregivers often experience poor quality of life. Self-reported measures are commonly used to quantify quality of life of family caregivers but may have limitations such as recall and social d…
View article: CARE-RESISTANT BEHAVIOR TRAJECTORIES OF PERSONS WITH DEMENTIA IN NURSING HOMES AND DISTAL OUTCOMES IN ORAL HEALTH
CARE-RESISTANT BEHAVIOR TRAJECTORIES OF PERSONS WITH DEMENTIA IN NURSING HOMES AND DISTAL OUTCOMES IN ORAL HEALTH Open
Persons with dementia (PWD) who exhibit care-resistant behaviors (CRB) are likely to resist mouthcare and have poor oral health. This study aimed to examine predictors and describe the characteristics of CRB trajectories and their distal o…
View article: ROLE CAPTIVITY, DAILY SOCIAL ISOLATION, AND THE MENTAL HEALTH OF DEMENTIA CAREGIVERS
ROLE CAPTIVITY, DAILY SOCIAL ISOLATION, AND THE MENTAL HEALTH OF DEMENTIA CAREGIVERS Open
Family members providing informal care to individuals living with Alzheimer’s disease and related dementias (ADRDs) have an increased risk of poor mental and cognitive health. Social connection has been proposed as an intervention target t…