Glenys Caswell
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View article: Designing Better Resources: Consumer Experiences, Priorities and Preferences Regarding Contemporary Nutrition Education Materials
Designing Better Resources: Consumer Experiences, Priorities and Preferences Regarding Contemporary Nutrition Education Materials Open
Introduction Nutrition education materials are frequently used by dietitians to support counselling and education. Few studies have explored consumer perspectives regarding these resources and none in a contemporary setting post pandemic. …
View article: The impact of home mechanical ventilation on the time and manner of death for those with Motor neurone disease (MND): A qualitative study of bereaved family members
The impact of home mechanical ventilation on the time and manner of death for those with Motor neurone disease (MND): A qualitative study of bereaved family members Open
View article: The ideal and the real: Patient and bereaved family caregiver perspectives on the significance of place of death
The ideal and the real: Patient and bereaved family caregiver perspectives on the significance of place of death Open
Home has become established as the preferred place of death within health policy and practice in the UK and internationally. However, growing awareness of the structured inequalities underpinning end-of-life care and the challenges for fam…
View article: ‘Out of the frying pan into the fire’: a qualitative study of the impact on masculinity for men living with advanced prostate cancer
‘Out of the frying pan into the fire’: a qualitative study of the impact on masculinity for men living with advanced prostate cancer Open
Background: Studies have highlighted how advanced prostate cancer causes biographical disruption and presents challenges to masculine identities for men. This article draws on a wider study that focused on the experiences of men living wit…
View article: Talking about death and dying: Findings from deliberative discussion groups with members of the public
Talking about death and dying: Findings from deliberative discussion groups with members of the public Open
Talking about death and dying is promoted in UK health policy and practice, from a perception that to do so encourages people to plan for their end of life and so increase their likelihood of experiencing a good death. This encouragement o…
View article: ‘It’s Not Like in the Films’: Bereaved People’s Experiences of the Deathbed Vigil
‘It’s Not Like in the Films’: Bereaved People’s Experiences of the Deathbed Vigil Open
This paper explores how people enact and experience the deathbed vigil when someone close to them is dying. It draws on qualitative interviews with 34 bereaved people carried out as part of a wider study exploring public perceptions of dea…
View article: How can advance care planning support hope in patients with advanced cancer and their families: A qualitative study as part of the international ACTION trial
How can advance care planning support hope in patients with advanced cancer and their families: A qualitative study as part of the international ACTION trial Open
Our findings on various potentially hope supporting elements of ACP conversations provide a constructive way of thinking about hope in relation to ACP that could inform practice.
View article: Patient and family caregiver perspectives of Advance Care Planning: qualitative findings from the ACTION cluster randomised controlled trial of an adapted respecting choices intervention
Patient and family caregiver perspectives of Advance Care Planning: qualitative findings from the ACTION cluster randomised controlled trial of an adapted respecting choices intervention Open
Advance Care Planning (ACP) is widely regarded as a component of good end-of-life care. However, findings from a qualitative international study of patient and family caregiver attitudes and preferences regarding ACP highlight participants…
View article: Referee report. For: The impact of Covid-19 pandemic on hospices: A systematic integrated review and synthesis of recommendations for policy and practice [version 1; peer review: 2 approved]
Referee report. For: The impact of Covid-19 pandemic on hospices: A systematic integrated review and synthesis of recommendations for policy and practice [version 1; peer review: 2 approved] Open
View article: How Can Advance Care Planning Support Hope in Patients with Advanced Cancer and Their Families: A Qualitative Study as Part of the International ACTION Trial
How Can Advance Care Planning Support Hope in Patients with Advanced Cancer and Their Families: A Qualitative Study as Part of the International ACTION Trial Open
Purpose: Clinicians’ fears of taking away patients’ hope is one of the barriers to advance care planning (ACP). Barriers to ACP were extensively studied, however, research on how advance care planning potentially supports hope is scarce. T…
View article: Dealing with Sensitive Research and the Professional/Researcher Dilemma; A Reflective Account on Men Living with Advanced Prostate Cancer
Dealing with Sensitive Research and the Professional/Researcher Dilemma; A Reflective Account on Men Living with Advanced Prostate Cancer Open
Background : There is developing literature that addresses the ethics and sensitivity of undertaking research with patients (and their family members) receiving palliative or end of life care, but there is little published guidance for a n…
View article: The ‘work’ of managing medications when someone is seriously ill and dying at home: A longitudinal qualitative case study of patient and family perspectives’
The ‘work’ of managing medications when someone is seriously ill and dying at home: A longitudinal qualitative case study of patient and family perspectives’ Open
Background: Managing medications can impose difficulties for patients and families which may intensify towards the end of life. Family caregivers are often assumed to be willing and able to support patients with medications, yet little is …
View article: ‘My wife is my doctor at home’: A qualitative study exploring the challenges of home-based palliative care in a resource-poor setting
‘My wife is my doctor at home’: A qualitative study exploring the challenges of home-based palliative care in a resource-poor setting Open
Background: Family caregiving is common globally, but when a family member needs palliative and end-of-life care, this requires knowledge and expertise in dealing with symptoms, medication, and treatment side effects. Caring for a family m…
View article: Saudi service users’ perceptions and experiences of the quality of their mental health care provision in the Kingdom of Saudi Arabia (KSA): A qualitative inquiry
Saudi service users’ perceptions and experiences of the quality of their mental health care provision in the Kingdom of Saudi Arabia (KSA): A qualitative inquiry Open
This paper presents, as part of a larger mixed‐methods design, a study generating a theoretical understanding of issues pertinent to the quality of mental health care in the KSA from the perspective of those using services. Semi‐structured…
View article: An exploration of the experiences of professionals supporting patients approaching the end of life in medicines management at home. A qualitative study.
An exploration of the experiences of professionals supporting patients approaching the end of life in medicines management at home. A qualitative study. Open
Background: The management of medicines towards the end of life can place increasing burdens and responsibilities on patients and families. This has received little attention yet can be a source of great difficulty and distress patients an…
View article: An exploration of the experiences of professionals supporting patients approaching the end of life in medicines management at home. A qualitative study.
An exploration of the experiences of professionals supporting patients approaching the end of life in medicines management at home. A qualitative study. Open
Background: The management of medicines towards the end of life can place increasing burdens and responsibilities on patients and families. This has received little attention yet it can be a source of great difficulty and distress patients…
View article: OP19 Content analysis of advance directives completed by patients as part of advance care planning: insights gained from the ACTION trial
OP19 Content analysis of advance directives completed by patients as part of advance care planning: insights gained from the ACTION trial Open
Background Writing an Advance Directive (AD) is often seen as a part of Advance Care Planning (ACP). ADs may include specific preferences regarding future care and treatment and information that provides a context for healthcare profession…
View article: An exploration of the experiences of professionals supporting patients approaching the end of life in medicines management at home. A qualitative study. An exploration of the experiences of professionals supporting patients approaching the end of life in medicines management at home. A qualitative study.
An exploration of the experiences of professionals supporting patients approaching the end of life in medicines management at home. A qualitative study. An exploration of the experiences of professionals supporting patients approaching the end of life in medicines management at home. A qualitative study. Open
Background: The management of medicines towards the end of life can place increasing burdens and responsibilities on patients and families. This has received little attention yet it can be a source of great difficulty and distress patients…
View article: Trained facilitators’ experiences with structured advance care planning conversations in oncology: an international focus group study within the ACTION trial
Trained facilitators’ experiences with structured advance care planning conversations in oncology: an international focus group study within the ACTION trial Open
View article: Thinking outside the (dosette) box: Professional support for medicines management at home for patients approaching the end of life. A qualitative study
Thinking outside the (dosette) box: Professional support for medicines management at home for patients approaching the end of life. A qualitative study Open
Background: The management of medicines towards the end of life can place increasing burdens and responsibilities on patients and families. This has received little attention yet it can be a source of great difficulty and distress patients…
View article: Content analysis of Advance Directives completed by patients with advanced cancer as part of an Advance Care Planning intervention: insights gained from the ACTION trial
Content analysis of Advance Directives completed by patients with advanced cancer as part of an Advance Care Planning intervention: insights gained from the ACTION trial Open
View article: Content analysis of Advance Directives completed by patients with advanced cancer as part of an Advance Care Planning intervention: insights gained from the ACTION trial
Content analysis of Advance Directives completed by patients with advanced cancer as part of an Advance Care Planning intervention: insights gained from the ACTION trial Open
PURPOSE: Writing an Advance Directive (AD) is often seen as a part of Advance Care Planning (ACP). ADs may include specific preferences regarding future care and treatment and information that provides a context for healthcare professional…
View article: 85 Cultural responses to prostate cancer in ghana: masculinity and stigma
85 Cultural responses to prostate cancer in ghana: masculinity and stigma Open
Background Almost two-thirds of cancer deaths occur in developing countries. In resource-poor countries where there are no well-developed institutional-based palliative care services or where those facilities are in limited supply, family …
View article: Managing Medicines for Patients Dying at Home: A Review of Family Caregivers' Experiences
Managing Medicines for Patients Dying at Home: A Review of Family Caregivers' Experiences Open
View article: 7 Exploring caregivers’ experiences of caring for men with advanced prostate cancer in a resource-poor setting: a qualitative serial interview study
7 Exploring caregivers’ experiences of caring for men with advanced prostate cancer in a resource-poor setting: a qualitative serial interview study Open
Background Family caregivers who assume the responsibility of care for patients living with advanced diseases could have challenges especially in resource-poor settings. The bulk and responsibility for care are predominantly provided by th…
View article: Supporting family carers in home-based end-of-life care: using participatory action research to develop a training programme for support workers and volunteers
Supporting family carers in home-based end-of-life care: using participatory action research to develop a training programme for support workers and volunteers Open
Background Family carers are crucial in enabling dying people to stay at home, but are often not prepared for their caring role, receiving little support from formal health and social care services. It is increasingly likely that any help …
View article: Advance care planning – a multi-centre cluster randomised clinical trial: the research protocol of the ACTION study
Advance care planning – a multi-centre cluster randomised clinical trial: the research protocol of the ACTION study Open
View article: Lung cancer diagnosed following an emergency admission: Mixed methods study of the management, outcomes and needs and experiences of patients and carers
Lung cancer diagnosed following an emergency admission: Mixed methods study of the management, outcomes and needs and experiences of patients and carers Open
View article: Communication between family carers and health professionals about end-of-life care for older people in the acute hospital setting: a qualitative study
Communication between family carers and health professionals about end-of-life care for older people in the acute hospital setting: a qualitative study Open