Explanipedia

The Key Features of a Genetic Nondiscrimination Policy Open

Diya Uberoi, Gratien Dalpé, Katherine Cheung, Emma Kondrup, Nicole Palmour , et al. · 2024

Importance Governments worldwide have become increasingly cognizant of the spread of genetic discrimination (negative treatment or harm on the basis of actual or presumed genetic characteristics). Despite efforts by a number of governments…

Defusing the legal and ethical minefield of epigenetic applications in the military, defense, and security context Open

Gratien Dalpé, Katherine Huerne, Charles Dupras, Katherine Cheung, Nicole Palmour , et al. · 2023

Epigenetic research has brought several important technological achievements, including identifying epigenetic clocks and signatures, and developing epigenetic editing. The potential military applications of such technologies we discuss ar…

Correction: Genetic discrimination still casts a large shadow in 2022 Open

Yann Joly, Gratien Dalpé · 2022

Genetic discrimination still casts a large shadow in 2022 Open

Yann Joly, Gratien Dalpé · 2022

The Genetic Discrimination Observatory: confronting novel issues in genetic discrimination Open

Yann Joly, Katherine Huerne, Mykhailo Arych, Yvonne Bombard, Aisling de Paor , et al. · 2021

Genetic discrimination (GD) is the differential or unfair profiling of an individual on the basis of genetic data. This article summarizes the actions of the Genetic Discrimination Observatory (GDO) in addressing GD and recent developments…

Errer en droit relatif et en fait: le renvoi relatif à la loi sur la non-discrimination génétique Open

Daniel Turp, Bartha Maria Knoppers, Yann Joly, Gratien Dalpé, Hortense Gallois · 2021

FRANCAIS Le probleme de la discrimination genetique est associe aux tests genetiques depuis des decennies, bien qu'etaye par une quantite limitee de preuves dans des contextes specifiques. Au Canada, l'adoption de la Loi sur la non-disc…

Genomics, Salmonella and Stakeholders’ perspectives: Technology and Public Acceptance Workshop – detailed report Open

Gratien Dalpé · 2021

Confronting New Issues in Genetic Discrimination Open

Yann Joly, Katherine Huerne, Mykhailo Arych, Yvonne Bombard, Edward S. Dove , et al. · 2021

Establishing the International Genetic Discrimination Observatory Open

Yann Joly, Gratien Dalpé, Charles Dupras, Bénédicte Bévière-Boyer, Aisling de Paor , et al. · 2020

LES ENJEUX QUÉBÉCOIS DE LA DISCRIMINATION GÉNÉTIQUE : L’EXPÉRIENCE D’UN FORUM EN LIGNE Open

Gratien Dalpé, Miriam Pinkesz, Gabriel Marrocco, Yann Joly · 2020

La recherche empirique sur la problématique de la discrimination génétique (DG) au Québec est généralement limitée. À ce titre, cette étude vise, au moyen d'une méthodologie qualitative, à explorer et à recueillir les opinions, les expérie…

A Tale of Two Capacities: Including Children and Decisionally Vulnerable Adults in Biomedical Research Open

Gratien Dalpé, Adrian Thorogood, Bartha Maria Knoppers · 2019

The participation of individuals who lack decision-making capacity is essential for advancing genomics research and neuroscience, but raises ethical and legal challenges relating to vulnerability, consent, and exclusion. Capacity differenc…

Is Genetic Discrimination Back on the Radar? A Commentary on the Recent Court of Appeal Reference Decision on the Genetic Non-Discrimination Act (GNDA) Open

Yann Joly, Gratien Dalpé, Miriam Pinkesz · 2019

In this commentary, we critically review the Quebec Court of Appeal’s reference decision to the effect that the Genetic Non-Discrimination Act (GNDA) is unconstitutional. In sum, the court held that the federal government exceeded its crim…

Openness, inclusion, and respect in dementia research Open

Adrian Thorogood, Anna Mäki‐Petäjä‐Leinonen, Gratien Dalpé, Chris Gastmans, Serge Gauthier · 2019

Consent recommendations for research and international data sharing involving persons with dementia Open

Adrian Thorogood, Anna Mäki‐Petäjä‐Leinonen, Henry Brodaty, Gratien Dalpé, Chris Gastmans , et al. · 2018

Consent is generally required for research and sharing rich individual‐level data but presents additional ethical and legal challenges where participants have diminished decision‐making capacity. We formed a multi‐disciplinary team to deve…

For the Safety of Fresh Produce: Regulatory Considerations for Canada on the Use of Whole Genome Sequencing to Subtype Salmonella Open

Ida Ngueng Feze, Gratien Dalpé, Lingqiao Song, Jeff Farber, Lawrence Goodridge , et al. · 2018

Salmonella is one of the oldest bacteria known to man, yet it is also one of the most prevalent when it comes to foodborne-related diseases and outbreaks. Naturally present in the environment and difficult to treat on fresh produce, Salmon…

Breast Cancer Risk Estimation and Personal Insurance: A Qualitative Study Presenting Perspectives from Canadian Patients and Decision Makers Open

Gratien Dalpé, Ida Ngueng Feze, Shahad Salman, Yann Joly, Julie Hagan , et al. · 2017

Genetic stratification approaches in personalized medicine may considerably improve our ability to predict breast cancer risk for women at higher risk of developing breast cancer. Notwithstanding these advantages, concerns have been raised…

Fair Shares and Sharing Fairly: A Survey of Public Views on Open Science, Informed Consent and Participatory Research in Biobanking Open

Yann Joly, Gratien Dalpé, D So, Stanislav Birko · 2015

Biobanks are important resources which enable large-scale genomic research with human samples and data, raising significant ethical concerns about how participantsâ information is managed and shared. Three previous studies of the Canadia…

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