Helen Haskell
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View article: Scoping review of patient and family engagement interventions in diagnosis: a paradox of too much, yet so little
Scoping review of patient and family engagement interventions in diagnosis: a paradox of too much, yet so little Open
Introduction Actively engaging patients is essential for diagnostic excellence and patient safety. Objectives To (1) identify and synthesise interventions facilitating patient and family engagement (PFE) across the diagnostic process, and …
View article: Ten years on: how far have we come in patient engagement in diagnosis?
Ten years on: how far have we come in patient engagement in diagnosis? Open
The 2015 National Academy of Sciences, Engineering and Medicine report, Improving Diagnosis in Medicine, is known for its inclusive approach to patients. This paper explores the evolution of research in patient engagement in diagnosis over…
View article: The Society to Improve Diagnosis in Medicine’s legacy: building a foundation for diagnostic excellence
The Society to Improve Diagnosis in Medicine’s legacy: building a foundation for diagnostic excellence Open
The Society to Improve Diagnosis in Medicine (SIDM) played a pivotal role in elevating diagnostic error from an overlooked aspect of patient safety to a recognized healthcare priority during its thirteen-year history (2011–2024). Through s…
View article: Patient Perspectives on Artificial Intelligence in Health Care: Focus Group Study for Diagnostic Communication and Tool Implementation
Patient Perspectives on Artificial Intelligence in Health Care: Focus Group Study for Diagnostic Communication and Tool Implementation Open
Background Artificial intelligence (AI) is rapidly transforming health care, offering potential benefits in diagnosis, treatment, and workflow efficiency. However, limited research explores patient perspectives on AI, especially in its rol…
View article: Use of ChatGPT for Urinary Symptom Management Among People With Spinal Cord Injury or Disease: Qualitative Study
Use of ChatGPT for Urinary Symptom Management Among People With Spinal Cord Injury or Disease: Qualitative Study Open
Background Individuals with spinal cord injury or disease (SCI/D) experience disproportionately high rates of recurrent urinary tract infections, which are often complicated by atypical symptoms and delayed diagnoses. Patient-centered tool…
View article: Exploring the Role of ChatGPT in Urinary Symptom Management for Individuals with Spinal Cord Injury/Disease: A Qualitative Study (Preprint)
Exploring the Role of ChatGPT in Urinary Symptom Management for Individuals with Spinal Cord Injury/Disease: A Qualitative Study (Preprint) Open
BACKGROUND Individuals with spinal cord injury or disease (SCI/D) experience disproportionately high rates of recurrent urinary tract infections (UTIs), which are often complicated by atypical symptoms and delayed diagnoses. Patient-cente…
View article: Patient-informed exploration of the aftermath of a diagnostic problem or mistake based on results of a national survey
Patient-informed exploration of the aftermath of a diagnostic problem or mistake based on results of a national survey Open
Introduction Despite the prevalence and devastating consequences of diagnostic breakdowns, there have been minimal efforts to systematically collect patient insight into diagnostic problems and mistakes. Collaborating with patient advocate…
View article: “What Else Could It Be?” A Scoping Review of Questions for Patients to Ask Throughout the Diagnostic Process
“What Else Could It Be?” A Scoping Review of Questions for Patients to Ask Throughout the Diagnostic Process Open
Background Diagnostic errors are a global patient safety challenge. Over 75% of diagnostic errors in ambulatory care result from breakdowns in patient-clinician communication. Encouraging patients to speak up and ask questions has been rec…
View article: A Coproduced Family Reporting Intervention to Improve Safety Surveillance and Reduce Disparities
A Coproduced Family Reporting Intervention to Improve Safety Surveillance and Reduce Disparities Open
OBJECTIVES Examine family safety-reporting after implementing a parent–nurse–physician–leader coproduced, health literacy-informed, family safety-reporting intervention for hospitalized families of children with medical complexity. METHODS…
View article: Communicating With Spanish-Speaking Families of Hospitalized Children With Medical Complexity
Communicating With Spanish-Speaking Families of Hospitalized Children With Medical Complexity Open
BACKGROUND AND OBJECTIVES Hospitalized families who use languages other than English (LOE) for care encounter unique communication challenges, as do children with medical complexity (CMC). We sought to better understand communication chall…
View article: Achieving Diagnostic Excellence: Roadmaps to Develop and Use Patient-Reported Measures With an Equity Lens
Achieving Diagnostic Excellence: Roadmaps to Develop and Use Patient-Reported Measures With an Equity Lens Open
Background: Diagnostic excellence refers to the optimal process to attain an accurate and precise explanation about a patient’s condition and incorporates the perspectives of patients and their care partners. Patient-reported measures (PRM…
View article: Martha's rule: applying a behaviour change framework to understand the potential of complementary roles of clinicians and patients in improving safety of patients deteriorating in hospital
Martha's rule: applying a behaviour change framework to understand the potential of complementary roles of clinicians and patients in improving safety of patients deteriorating in hospital Open
Aims/Background Martha's rule stipulates the right of patients and their families to escalate care as a way to improve safety while in hospital. This article analyses the possible impact of the proposed policy through the lens of a behavio…
View article: The Future of Diagnosis: Achieving Excellence and Equity
The Future of Diagnosis: Achieving Excellence and Equity Open
Background: Missed and delayed cancer diagnoses are common, harmful, and often preventable.The Centers for Medicare and Medicaid Services have emphasized digital quality measures (dQMs) that leverage longitudinal electronic health record d…
View article: Improving Diagnostic Safety through Integrated Care
Improving Diagnostic Safety through Integrated Care Open
Introduction: Diagnostic errors in care are a global public health challenge. Published rates of diagnostic errors range from approximately 5% in ambulatory care settings up to about 10% of in-hospital stays and it is estimated that every …
View article: Martha’s rule presents a unique opportunity for improving patient care
Martha’s rule presents a unique opportunity for improving patient care Open
Martha's rule presents a unique opportunity for improving patient careHelen Haskell outlines some principles for creating an effective family activated system
View article: In their own words: Safety and quality perspectives from families of hospitalized children with medical complexity
In their own words: Safety and quality perspectives from families of hospitalized children with medical complexity Open
Background Children with medical complexity (CMC) experience adverse events due to multiorgan impairment, frequent hospitalizations, subspecialty care, and dependence on multiple medications/equipment. Their families are well‐versed in car…
View article: SIDM2022 15th Annual International Conference
SIDM2022 15th Annual International Conference Open
Learning Objectives: 1) Understand real world presentation of Giant Cell Arteritis (GCA).2) Identify types of bias leading to a delayed GCA diagnosis.Case Report: A 72-year-old male presented with multiple complaints, including scrotal pai…
View article: Family Safety Reporting in Hospitalized Children With Medical Complexity
Family Safety Reporting in Hospitalized Children With Medical Complexity Open
BACKGROUND AND OBJECTIVES Hospitalized children with medical complexity (CMC) are at high risk of medical errors. Their families are an underutilized source of hospital safety data. We evaluated safety concerns from families of hospitalize…
View article: Family Safety Reporting in Medically Complex Children: Parent, Staff, and Leader Perspectives
Family Safety Reporting in Medically Complex Children: Parent, Staff, and Leader Perspectives Open
BACKGROUND AND OBJECTIVES Despite compelling evidence that patients and families report valid and unique safety information, particularly for children with medical complexity (CMC), hospitals typically do not proactively solicit patient or…
View article: Using Patient Experience Surveys to Assess Diagnostic Safety in Urgent Care
Using Patient Experience Surveys to Assess Diagnostic Safety in Urgent Care Open
Research Objective Diagnostic error is the leading patient safety concern in the U.S. One in twenty patients seeking care in the U.S. is estimated to be harmed by diagnostic errors annually. Identifying diagnostic pitfalls is a significant…
View article: Cumberlege review exposes stubborn and dangerous flaws in healthcare
Cumberlege review exposes stubborn and dangerous flaws in healthcare Open
With the recent advent of RNA-seq technology the proteomics community has begun to generate sample-specific protein databases for peptide and protein identification, an approach we call proteomics informed by transcriptomics (PIT). This ap…
View article: Unleash the power of patients to make care safer around the world: an essay by Helen Haskell
Unleash the power of patients to make care safer around the world: an essay by Helen Haskell Open
Involvement in medical care by patients and the public could move the global patient safety programme out of the doldrums, says Helen Haskell
View article: Patient safety after implementation of a coproduced family centered communication programme: multicenter before and after intervention study
Patient safety after implementation of a coproduced family centered communication programme: multicenter before and after intervention study Open
Objective To determine whether medical errors, family experience, and communication processes improved after implementation of an intervention to standardize the structure of healthcare provider-family communication on family centered roun…
View article: Diagnostic Error in Medicine
Diagnostic Error in Medicine Open
Background: Delays in cancer diagnosis can result from lack of timely follow-up of positive fecal occult blood tests (FOBT) and iron-deficiency anemia (IDA) for colorectal cancer (CRC) and elevated serum alpha-fetoprotein (AFP) levels for …
View article: Learning From Patients’ Experiences Related To Diagnostic Errors Is Essential For Progress In Patient Safety
Learning From Patients’ Experiences Related To Diagnostic Errors Is Essential For Progress In Patient Safety Open
Diagnostic error research has largely focused on individual clinicians' decision making and system design, while overlooking information from patients. We analyzed a unique new data source of patient- and family-reported error narratives t…
View article: Families as Partners in Hospital Error and Adverse Event Surveillance
Families as Partners in Hospital Error and Adverse Event Surveillance Open
Families provide unique information about hospital safety and should be included in hospital safety surveillance in order to facilitate better design and assessment of interventions to improve safety.