Explanipedia

Management of congenital ichthyoses: guidelines of care: Part one: 2024 update Open

J. Mazereeuw‐Hautier, Amy S. Paller, I. Dreyfus, Eli Sprecher, Edel A. O’Toole , et al. · 2025

In 2019, a group of experts published the first European guidelines for the management of congenital ichthyoses after a multidisciplinary expert meeting held in 2016. An update of these guidelines and literature search was planned every 5 …

<span>cLFM‐Qol</span>: A specific quality of life measurement tool for children from 11 to 15 years with low‐flow malformations Open

M. Godeau, Jason Shourick, I. Dreyfus, E. Casassa, Anaïs Bergeron , et al. · 2023

Background Low‐flow malformations (LFMs) are rare diseases with a significant impact on health‐related quality of life (HRQoL), especially in children. No disease‐specific questionnaire is available for children with LFMs. Objective To dev…

Value of Doppler ultrasound scans in deciding whether to treat infantile haemangioma with oral propranolol Open

C. Börjesson, Julie Malloizel‐Delaunay, G L Onnis, J. Mazereeuw‐Hautier, I. Dreyfus · 2021

DUS is an effective and complementary tool to clinical investigation.

Botulinum toxin injections as an effective treatment for patients with intertriginous Hailey-Hailey or Darier disease: an open-label 6-month pilot interventional study Open

I. Dreyfus, Aude Maza, Lauriane Rodriguez, M. Merlos, Hélène Texier , et al. · 2021

Botulinum Toxin Injections as an Effective Treatment for Patients with Hailey-Hailey or Darier Disease: An open-label 6-month pilot interventional study Open

I. Dreyfus, Aude Maza, Lauriane Rodriguez, Margot Merlos, Hélène Texier , et al. · 2020

Background : Patients with Hailey-Hailey and Darier diseases present with disabling inflammatory lesions located in large skin folds, which are often exacerbated or induced by sweating. Quality of life is highly impaired because of pain an…

先天性鱼鳞病 : 欧洲护理指南, 第二部分 Open

J. Mazereeuw‐Hautier, Á. Hernández‐Martín, Edel A. O’Toole, Anette Bygum, C. Amaro , et al. · 2019

鱼鳞病是一个用于描述皮肤不停广泛脱屑的术语。有若干种从出生一直持续终生的遗传类型 ‐ “先天性鱼鳞病”。治疗尚未达成一致‐不同的医生使用不同的方法,因此来自欧洲的这组专家合作制定了指南。他们回顾了医学文献,通过会议讨论了证据并给出了建议。一篇单独的论文(第 1 部分)涵盖此皮肤病本身的治疗。这篇论文,即第 2 部分,为先天性鱼鳞病的并发症管理提供了指南。瘙痒、疼痛和感染常见,尤其是真菌感染,有时会发生癌症。紧张的皮肤常妨碍眼睑正常闭合,因此必须使用润肤剂保护他们的眼睛表面;…

Effect of Topical Rapamycin 1% on Multiple Trichoepitheliomas Open

I. Dreyfus, G L Onnis, E. Tournier, O Dereure, J. Mazereeuw‐Hautier · 2019

International audience

Management of congenital ichthyoses: European guidelines of care, part one Open

J. Mazereeuw‐Hautier, A. Vahlquist, Heiko Traupe, Anette Bygum, C. Amaro , et al. · 2018

These guidelines for the management of congenital ichthyoses have been developed by a multidisciplinary group of European experts following a systematic review of the current literature, an expert conference held in Toulouse in 2016 and a …

Management of congenital ichthyoses: European guidelines of care, part two Open

J. Mazereeuw‐Hautier, Á. Hernández‐Martín, Edel A. O’Toole, Anette Bygum, C. Amaro , et al. · 2018

These guidelines for the management of congenital ichthyoses have been developed by a multidisciplinary group of European experts following a systematic review of the current literature, an expert conference held in Toulouse in 2016, and a…

Alitretinoin reduces erythema in inherited ichthyosis Open

G L Onnis, C. Chiavérini, G. Hickman, I. Dreyfus, Judith Fischer , et al. · 2018

Alitretinoin may be suitable for hereditary ichthyosis with prominent erythema, especially for women of childbearing age.

Efficacy of an interventional educational programme in mitigating post-traumatic stress in parents who have witnessed a febrile seizure: a pilot before-and-after study Open

Flora Frascari, I. Dreyfus, Yves Chaix, Camille Tison-Chambellan · 2017

Parents who have witnessed their child's first simple febrile seizure are at high risk of developing post-traumatic stress disorder 4 weeks after the seizure. Our innovative workshops are associated with a significant mitigation of the par…

Skin Patterns Associated with Upper Airway Infantile Haemangiomas: A Retrospective Multicentre Study Open

C. Uthurriague, O. Boccara, B. Catteau, P. Fayoux, C. Léauté‐Labrèze , et al. · 2016

The aim of this study was to define the skin patterns at high risk for upper airway infantile haemangioma. A retrospective multicentre French observational study was conducted between January 2006 and January 2015 and all confirmed airway …

Burden of Inherited Ichthyosis: A French National Survey Open

I. Dreyfus, C. Pauwels, E. Bourrat, A.-C. Bursztejn, A. Maruani , et al. · 2015

Moderate to severe ichthyosis is known to have a significant impact on quality of life. A French national survey was performed to describe in more detail how ichthyosis impacts the patients' lives. A questionnaire specifically dedicated to…

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