Isabel Canfield
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View article: Correction: Core values of genomic citizen science: results from a qualitative interview study
Correction: Core values of genomic citizen science: results from a qualitative interview study Open
View article: Views of Adolescents and Young Adults with Cancer and Their Oncologists Toward Patients' Participation in Genomic Research
Views of Adolescents and Young Adults with Cancer and Their Oncologists Toward Patients' Participation in Genomic Research Open
Purpose: With increased use of genomic testing in cancer research and clinical care, it is important to understand the perspectives and decision-making preferences of adolescents and young adults (AYAs) with cancer and their …
View article: Psychological Distress Among the U.S. General Population During the COVID-19 Pandemic
Psychological Distress Among the U.S. General Population During the COVID-19 Pandemic Open
The COVID-19 pandemic is taking a significant global toll on emotional well-being, but evidence of mental health impacts in the United States remains limited. In April 2020, we conducted an exploratory survey of U.S. residents to understan…
View article: “A Cohort of Pirate Ships”: Biomedical Citizen Scientists’ Attitudes Toward Ethical Oversight
“A Cohort of Pirate Ships”: Biomedical Citizen Scientists’ Attitudes Toward Ethical Oversight Open
As biomedical citizen science initiatives become more prevalent, the unique ethical issues that they raise are attracting policy attention. The ethical oversight of bottom-up biomedical citizen science projects that are designed and execut…