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View article: The Ethical Foundations of Accompanying Patients: The Need for Institutionalization
The Ethical Foundations of Accompanying Patients: The Need for Institutionalization Open
The partnership approach is part of a broader shift in healthcare that seeks to empower patients in their own care. Accompanying patients (APs) extend the concept of peer support. They are experienced patients who engage directly and indiv…
View article: HTA responsiveness to today’s challenges to health systems: a responsible innovation in health perspective
HTA responsiveness to today’s challenges to health systems: a responsible innovation in health perspective Open
Introduction Though Health Technology Assessment (HTA) has steadily grown over the past decades, less attention has been paid to the way HTA may prove more responsive to the broader economic, social, and environmental challenges that healt…
View article: OP53 An Actionable And Legible Toolbox For The Appraisal Of Healthcare Innovations Developed Through Nationwide Stakeholder Collaboration
OP53 An Actionable And Legible Toolbox For The Appraisal Of Healthcare Innovations Developed Through Nationwide Stakeholder Collaboration Open
Introduction In Québec, Canada, decisions about implementing innovations are taken both centrally for province-wide access and locally by healthcare institutions. There is no systematic evaluation process and various stakeholders are invol…
View article: Outcomes of Guidelines from Health Technology Assessment Organizations: A Systematic Mixed Studies Review
Outcomes of Guidelines from Health Technology Assessment Organizations: A Systematic Mixed Studies Review Open
CONTEXT: Health Technology Assessment (HTA) organizations determine the value of health technologies such as medical devices, lab tests, or medications. HTA organizations are generally funded by governments, they guide health care professi…
View article: The black box of the relationship between breast cancer patients and accompanying patients: the accompanied patients’ point of view
The black box of the relationship between breast cancer patients and accompanying patients: the accompanied patients’ point of view Open
Background The PAROLE-Onco program was introduced in the province of Quebec, Canada in 2019. It integrates accompanying patients (APs), i.e., people who have been affected by cancer, into the clinical team as full members. These APs use th…
View article: Living ethics: a stance and its implications in health ethics
Living ethics: a stance and its implications in health ethics Open
View article: Integrating accompanying patients into clinical oncology teams: limiting and facilitating factors
Integrating accompanying patients into clinical oncology teams: limiting and facilitating factors Open
View article: How to mobilise users' experiential knowledge in the evaluation of advanced technologies and practices in Quebec? The example of the permanent users' and relatives' panel
How to mobilise users' experiential knowledge in the evaluation of advanced technologies and practices in Quebec? The example of the permanent users' and relatives' panel Open
Introduction With the purpose of supporting scientific professionals and helping them to better integrate the expertise of users in their work, a users' and relatives' panel (URP) was set up at the National Institute for Excellence in Heal…
View article: Outcomes of guidelines from health technology assessment organizations in community-based primary care: a systematic mixed studies review
Outcomes of guidelines from health technology assessment organizations in community-based primary care: a systematic mixed studies review Open
Background Health technology assessment (HTA) organizations generate guidelines to inform healthcare practices toward improved health outcomes. This review sought to identify and classify outcomes of guidelines from HTA organizations withi…
View article: Integrating Accompanying Patients into Clinical Oncology Teams: Limiting and Facilitating Factors
Integrating Accompanying Patients into Clinical Oncology Teams: Limiting and Facilitating Factors Open
Objectives Since 2018, four establishments in Quebec have been instrumental in implementing the PAROLE-Onco program, which introduced accompanying patients (APs) in healthcare teams to improve cancer patients’ experience. APs are patient a…
View article: An exploratory cross-sectional study of the effects of ongoing relationships with accompanying patients on cancer care experience, self-efficacy, and psychological distress
An exploratory cross-sectional study of the effects of ongoing relationships with accompanying patients on cancer care experience, self-efficacy, and psychological distress Open
Background Centre hospitalier de l’Université de Montréal in Canada introduced accompanying patients (APs) into the breast cancer care trajectory. APs are patients who have been treated for breast cancer and have been integrated into the c…
View article: Accompanying patients in clinical oncology teams: Reported activities and perceived effects
Accompanying patients in clinical oncology teams: Reported activities and perceived effects Open
Introduction Since 2018, four establishments in Quebec, Canada, have decided to implement the PAROLE‐Onco programme, which introduced accompanying patients (APs) in healthcare teams to improve the experience of cancer patients. APs are pat…
View article: Patient and citizen participation at the organizational level in health technology assessment: an exploratory study in five jurisdictions
Patient and citizen participation at the organizational level in health technology assessment: an exploratory study in five jurisdictions Open
Objective While patient participation in individual health technology assessments (HTAs) has been frequently described in the literature, patient and citizen participation at the organizational level is less described and may be less under…
View article: Ethical Foundations of the Accompanying Patient’s Role for an Enhanced Patient Experience: A Scoping Review
Ethical Foundations of the Accompanying Patient’s Role for an Enhanced Patient Experience: A Scoping Review Open
In recent years, recognizing patients’ experiential knowledge to improve the quality of care has resulted in the participation of patient advisors at various levels of healthcare systems. Some who are working at the clinical level are call…
View article: OP43 Conceptual And Methodological Factors Driving The Integration Of Real-World Evidence In Drugs And Technologies Reimbursement Appraisals
OP43 Conceptual And Methodological Factors Driving The Integration Of Real-World Evidence In Drugs And Technologies Reimbursement Appraisals Open
Introduction Real-world evidence (RWE) can be of value to support comparative effectiveness of drugs and technologies by providing additional information about their use for a variety of patients in real contexts of care. However, the inte…
View article: OP103 Enhancing Legitimacy And Coherent Value Appraisal Across Interventions In Healthcare And Social Services: Strategy Of The Québec Agency
OP103 Enhancing Legitimacy And Coherent Value Appraisal Across Interventions In Healthcare And Social Services: Strategy Of The Québec Agency Open
Introduction The Institut national d’excellence en santé et en services sociaux (INESSS) makes recommendations regarding introduction, coverage, optimal use or withdrawal of interventions in physical and mental health and social services t…
View article: Living Ethics: a stance and its implications in health ethics
Living Ethics: a stance and its implications in health ethics Open
Background Moral questions are vital questions because they concern what is esteemed to be the best action, the best choice and, ultimately, the best life to live. Health ethics which aims to address these moral questions has contributed t…
View article: Patient and Citizen Participation in the Identification of Ethical Considerations Aiming to Address Uncertainty in the Evaluation of Promising Interventions in a Pandemic Context
Patient and Citizen Participation in the Identification of Ethical Considerations Aiming to Address Uncertainty in the Evaluation of Promising Interventions in a Pandemic Context Open
Since the beginning of the COVID-19 pandemic, numerous studies have been conducted to identify interventions that could contribute to alleviating the burden it has caused. The Institut national d'excellence en santé et en services sociaux …
View article: What Makes Artificial Intelligence Exceptional in Health Technology Assessment?
What Makes Artificial Intelligence Exceptional in Health Technology Assessment? Open
The application of artificial intelligence (AI) may revolutionize the healthcare system, leading to enhance efficiency by automatizing routine tasks and decreasing health-related costs, broadening access to healthcare delivery, targeting m…
View article: Gestion des conflits d’intérêts durant l’élaboration de lignes directrices en santé
Gestion des conflits d’intérêts durant l’élaboration de lignes directrices en santé Open
POINTS CLÉS Le public est de plus en plus sensible à l'importance de divulguer et de gérer les conflits d'intérêts (CI) liés à l'élaboration des guides de pratique clinique et des directives de santé publique, en raison de dossiers récents…
View article: Correction to: The patient advisor, an organizational resource as a lever for an enhanced oncology patient experience (PAROLEonco): a longitudinal multiple case study protocol
Correction to: The patient advisor, an organizational resource as a lever for an enhanced oncology patient experience (PAROLEonco): a longitudinal multiple case study protocol Open
View article: Managing conflicts of interest in the development of health guidelines
Managing conflicts of interest in the development of health guidelines Open
KEY POINTS Public awareness regarding the importance of disclosing and managing conflicts of interest (COIs) during the development of clinical practice and public health guidelines is growing, owing to recent high-profile news stories wit…
View article: The patient advisor, an organizational resource as a lever for an enhanced oncology patient experience (PAROLE-onco): a longitudinal multiple case study protocol
The patient advisor, an organizational resource as a lever for an enhanced oncology patient experience (PAROLE-onco): a longitudinal multiple case study protocol Open
View article: Developing recommendations for the diagnosis and treatment of Lyme disease: the role of the patient's perspective in a controversial environment
Developing recommendations for the diagnosis and treatment of Lyme disease: the role of the patient's perspective in a controversial environment Open
Context The Ministry of Health in Québec requested the National Institute of Excellence in Health and Social Services to produce clinical and implementation recommendations for the prophylaxis, diagnosis, and treatment of Lyme disease. Obj…
View article: Patients, users, caregivers, and citizens' involvement in local health technology assessment unit in Quebec: a survey
Patients, users, caregivers, and citizens' involvement in local health technology assessment unit in Quebec: a survey Open
Objectives Increasing emphasis is given on involving patients in health technology assessment (HTA). While this is mainly done at the level of regional and national HTA agencies, this tendency is also emerging in local HTA units. In this s…
View article: Patients, users, caregivers and citizens’ involvement in local HTA unit in Quebec: a survey
Patients, users, caregivers and citizens’ involvement in local HTA unit in Quebec: a survey Open
Increasing emphasis is given on involving patients in health technology assessment (HTA). While this is mainly done at the level of regional and national HTA agencies, this tendency is also emerging in local HTA units. In this study we pro…
View article: Co‐construction of health technology assessment recommendations with patients: An example with cardiac defibrillator replacement
Co‐construction of health technology assessment recommendations with patients: An example with cardiac defibrillator replacement Open
Context The National Institute of Excellence in Health and Social Services (INESSS), which functions as the Québec health technology assessment (HTA) agency, tested a new way to engage patients along with health‐care professionals in the c…
View article: DECISION-MAKING AT THE TIME OF IMPLANTABLE CARDIOVERTER-DEFIBRILLATOR REPLACEMENT: ACTIVELY INTEGRATING THE PATIENT’S PERSPECTIVE
DECISION-MAKING AT THE TIME OF IMPLANTABLE CARDIOVERTER-DEFIBRILLATOR REPLACEMENT: ACTIVELY INTEGRATING THE PATIENT’S PERSPECTIVE Open
View article: Decisions regarding Quebec’s publicly funded health and social services: Promoting the citizen voice
Decisions regarding Quebec’s publicly funded health and social services: Promoting the citizen voice Open