Johanna Mücke
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View article: Patient experiences, attitudes, and profiles regarding artificial intelligence in rheumatology: a German national cross-sectional survey study
Patient experiences, attitudes, and profiles regarding artificial intelligence in rheumatology: a German national cross-sectional survey study Open
While artificial intelligence (AI) is gaining attention in rheumatology, little is known about patient perspectives. This study addresses this gap by examining patients’ experiences and attitudes toward AI. A nationwide, cross-sectional, w…
View article: EULAR RECOMMENDATIONS FOR A CORE DATA SET TO SUPPORT CLINICAL CARE AND TRANSLATIONAL AND OBSERVATIONAL RESEARCH IN SYSTEMIC LUPUS ERYTHEMATOSUS
EULAR RECOMMENDATIONS FOR A CORE DATA SET TO SUPPORT CLINICAL CARE AND TRANSLATIONAL AND OBSERVATIONAL RESEARCH IN SYSTEMIC LUPUS ERYTHEMATOSUS Open
PT004 / #704 Topic: AS13 - Guidelines and Recommendations POSTER TOUR 01: CLINICAL OUTCOMES IN SLE 22-05-2025 10:00 AM - 10:40 AM Background/Purpose To enhance clinical and multicenter research outcomes in systemic lupus erythematosus (SLE…
View article: FRAMEWORK FOR IMPLEMENTING TREAT-TO-TARGET IN SYSTEMIC LUPUS ERYTHEMATOSUS ROUTINE CLINICAL CARE: CONSENSUS STATEMENTS FROM AN INTERNATIONAL TASK FORCE.
FRAMEWORK FOR IMPLEMENTING TREAT-TO-TARGET IN SYSTEMIC LUPUS ERYTHEMATOSUS ROUTINE CLINICAL CARE: CONSENSUS STATEMENTS FROM AN INTERNATIONAL TASK FORCE. Open
O034 / #681 Topic: AS09 - Emerging Approaches in SLE Management ABSTRACT CONCURRENT SESSION 05: EMERGING INSIGHTS ON THE MANAGEMENT OF LUPUS MANIFESTATIONS AND COMORBIDITIES 23-05-2025 1:40 PM - 2:40 PM Background/Purpose The adoption of T…
View article: Treat to target and shared decision-making in systemic lupus erythematosus from the patients' perspective: results from an international patient survey
Treat to target and shared decision-making in systemic lupus erythematosus from the patients' perspective: results from an international patient survey Open
T2T was perceived as beneficial with improvement of QoL as the most important treatment goal and the possibility of additional doctors' visits and initiation of new immunosuppressive agents as potential drawbacks. Patients unsatisfied with…
View article: Coalition for Health and Gender Equity (CHANGE)—a protocol for a global cross-sectional survey of health and gender equity in rheumatology
Coalition for Health and Gender Equity (CHANGE)—a protocol for a global cross-sectional survey of health and gender equity in rheumatology Open
Objectives The primary aim of the CHANGE survey is to determine the current state of gender equity within rheumatology, and secondarily, to review the physician perspective on bullying, harassment and equipoise of opportunities within rheu…
View article: Defining the physician global assessment threshold equivalent to remission in patients with systemic lupus erythematosus
Defining the physician global assessment threshold equivalent to remission in patients with systemic lupus erythematosus Open
Objectives The optimal threshold of the physician global assessment (PGA) for remission in SLE has never been evaluated systematically. The aim of this study was to assess the ideal PGA threshold associated with physician remission and to …
View article: ‘Status Quo’ on Different Aspects of Gender Distribution in Rheumatology in Germany—Results from a Nationwide Online Survey among Physicians
‘Status Quo’ on Different Aspects of Gender Distribution in Rheumatology in Germany—Results from a Nationwide Online Survey among Physicians Open
Objectives: Despite the increasing number of female medical students and fellows in Europe, women are still under-represented in higher academic careers and positions in medicine. The aim of this survey was to assess the ‘status quo’ on ge…
View article: Determinants of patient and physician global assessments of disease activity in anti-neutrophil cytoplasmic antibody-associated vasculitis
Determinants of patient and physician global assessments of disease activity in anti-neutrophil cytoplasmic antibody-associated vasculitis Open
Objective To compare physician and patient assessments of global disease activity in anti-neutrophil cytoplasmic antibody (ANCA)-associated vasculitis (AAV) and to identify associated factors. Methods Global disease activity scores (0–10 p…
View article: Editorial: Advances in systemic lupus erythematosus: The promises and pitfalls of personalized medicine and patient stratification
Editorial: Advances in systemic lupus erythematosus: The promises and pitfalls of personalized medicine and patient stratification Open
EDITORIAL article Front. Med., 06 December 2022Sec. Rheumatology Volume 9 - 2022 | https://doi.org/10.3389/fmed.2022.1085719
View article: Digitally-supported patient-centered asynchronous outpatient follow-up in rheumatoid arthritis - an explorative qualitative study
Digitally-supported patient-centered asynchronous outpatient follow-up in rheumatoid arthritis - an explorative qualitative study Open
Objective A steadily increasing demand and decreasing number of rheumatologists push current rheumatology care to its limits. Long travel times and poor accessibility of rheumatologists present particular challenges for patients. Need-adap…
View article: S02.1 Treat to target in systemic lupus erythematosus from the patients’ perspective – results from an international patient survey
S02.1 Treat to target in systemic lupus erythematosus from the patients’ perspective – results from an international patient survey Open
Purpose Treat-to-target (T2T) is considered the emerging concept to significantly improve systemic lupus erythematosus (SLE) care and the patients' outcomes. However and although the success of T2T is largely determined by the involvement …
View article: Remote self-collection of capillary blood using upper arm devices for autoantibody analysis in patients with immune-mediated inflammatory rheumatic diseases
Remote self-collection of capillary blood using upper arm devices for autoantibody analysis in patients with immune-mediated inflammatory rheumatic diseases Open
Objectives To evaluate the feasibility, accuracy, usability and acceptability of two upper arm self-sampling devices for measurement of autoantibodies and C reactive protein (CRP) levels in patients with immune-mediated rheumatic diseases …
View article: Impact of low-dose acetylsalicylic acid on pregnancy outcome in systemic lupus erythematosus: results from a multicentre study
Impact of low-dose acetylsalicylic acid on pregnancy outcome in systemic lupus erythematosus: results from a multicentre study Open
Objective It is still a matter of debate whether low-dose acetylsalicylic acid (LDASA) should be prescribed to all patients with SLE during pregnancy. This study aimed at investigating the impact of LDASA on pregnancy outcomes in patients …
View article: Association of common variable immunodeficiency and rare and complex connective tissue and musculoskeletal diseases. A systematic literature review
Association of common variable immunodeficiency and rare and complex connective tissue and musculoskeletal diseases. A systematic literature review Open
To perform a systematic literature review (SLR) on the association of common variable immunodeficiency (CVID) and rare and complex connective tissue and musculoskeletal diseases, namely systemic lupus erythematosus (SLE), Sjögren's syndrom…
View article: A broad look into the future of rheumatoid arthritis
A broad look into the future of rheumatoid arthritis Open
Despite all improvements in rheumatoid arthritis, we are still not able to prevent or cure the disease. Diagnostic delays due to lack of access to a specialist and costly therapies are still a major obstacle for many patients. Even in firs…
View article: TELERA—Asynchronous TELEmedicine for Patients With Rheumatoid Arthritis: Study Protocol for a Prospective, Multi-Center, Randomized Controlled Trial
TELERA—Asynchronous TELEmedicine for Patients With Rheumatoid Arthritis: Study Protocol for a Prospective, Multi-Center, Randomized Controlled Trial Open
Innovative strategies are needed to adequately assess and monitor disease activity of patients with rheumatoid arthritis (RA) in times of scarce appointments. The aim of the TELERA study is to evaluate the feasibility and performance of as…
View article: LUPUS-BEST—treat-to-target in systemic lupus erythematosus: study protocol for a three-armed cluster-randomised trial
LUPUS-BEST—treat-to-target in systemic lupus erythematosus: study protocol for a three-armed cluster-randomised trial Open
Introduction As chronic systemic autoimmune disease, which can affect every organ, SLE is creating significant burden and increased mortality. Despite better outcomes over the past decades by optimising standard of care, new interventions …