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View article: Author Correction: A joint international consensus statement for measuring quality of survival for patients with childhood cancer
Author Correction: A joint international consensus statement for measuring quality of survival for patients with childhood cancer Open
View article: From long-term follow-up Recommendations for clinical practice to plain language summaries for childhood, adolescent, and young adult cancer survivors
From long-term follow-up Recommendations for clinical practice to plain language summaries for childhood, adolescent, and young adult cancer survivors Open
Background: Having sufficient knowledge of cancer diagnosis, treatment and late effects in survivors of childhood, adolescent, and young adult (CAYA) cancer is important for effective self-management and optimising health outcomes. Therefo…
View article: Author Correction: A joint international consensus statement for measuring quality of survival for patients with childhood cancer
Author Correction: A joint international consensus statement for measuring quality of survival for patients with childhood cancer Open
View article: European recommendations for short-term surveillance of health problems in childhood, adolescent and young adult cancer survivors from the end of treatment to 5 years after diagnosis: a PanCare guideline
European recommendations for short-term surveillance of health problems in childhood, adolescent and young adult cancer survivors from the end of treatment to 5 years after diagnosis: a PanCare guideline Open
Purpose Childhood, adolescent and young adult (CAYA) cancer survivors require ongoing surveillance for health problems from the end of cancer treatment throughout their lives. There is a lack of evidence-based guidelines on optimal surveil…
View article: Author Correction: A joint international consensus statement for measuring quality of survival for patients with childhood cancer
Author Correction: A joint international consensus statement for measuring quality of survival for patients with childhood cancer Open
View article: A joint international consensus statement for measuring quality of survival for patients with childhood cancer
A joint international consensus statement for measuring quality of survival for patients with childhood cancer Open
View article: Frailty and sarcopenia within the earliest national Dutch childhood cancer survivor cohort (DCCSS-LATER): a cross-sectional study
Frailty and sarcopenia within the earliest national Dutch childhood cancer survivor cohort (DCCSS-LATER): a cross-sectional study Open
Children Cancer-free Foundation, KiKaRoW, Dutch Cancer Society, ODAS Foundation.
View article: Barriers and facilitators to implementation of the interoperable Survivorship Passport (SurPass) v2.0 in 6 European countries: a PanCareSurPass online survey study
Barriers and facilitators to implementation of the interoperable Survivorship Passport (SurPass) v2.0 in 6 European countries: a PanCareSurPass online survey study Open
View article: Adverse late health outcomes among children treated with <scp>3D</scp> radiotherapy techniques: Study design of the <scp>Dutch</scp> pediatric <scp>3D‐RT</scp> study
Adverse late health outcomes among children treated with <span>3D</span> radiotherapy techniques: Study design of the <span>Dutch</span> pediatric <span>3D‐RT</span> study Open
Background Adverse late health outcomes after multimodal treatment for pediatric cancer are diverse and of prime interest. Currently available evidence and survivorship care guidelines are largely based on studies addressing side‐effects o…
View article: Clinical evaluation of late outcomes in Dutch childhood cancer survivors: Methodology of the DCCSS LATER 2 study
Clinical evaluation of late outcomes in Dutch childhood cancer survivors: Methodology of the DCCSS LATER 2 study Open
Background Childhood cancer survivors face late health problems; despite advances in research, details on risk remain unclear. We describe the methodological aspects of the Dutch Childhood Cancer Survivor Study (DCCSS) cross‐sectional clin…
View article: Risk and determinants of low and very low bone mineral density and fractures in a national cohort of Dutch adult childhood cancer survivors (DCCSS-LATER): a cross-sectional study
Risk and determinants of low and very low bone mineral density and fractures in a national cohort of Dutch adult childhood cancer survivors (DCCSS-LATER): a cross-sectional study Open
View article: Clinical evaluation of late outcomes in Dutch childhood cancer survivors: methodology of the DCCSS LATER study part 2
Clinical evaluation of late outcomes in Dutch childhood cancer survivors: methodology of the DCCSS LATER study part 2 Open
Background Childhood cancer survivors face late health problems; despite advances in research, details on risk remain unclear. We describe the methodological aspects of the Dutch Childhood Cancer Survivor Study (DCCSS) cross-sectional clin…
View article: Childhood cancer survivorship care during the COVID-19 pandemic: an international report of practice implications and provider concerns
Childhood cancer survivorship care during the COVID-19 pandemic: an international report of practice implications and provider concerns Open
Purpose: Long-term follow-up (LTFU) care is essential to optimise health outcomes in childhood cancer survivors (CCS). We aimed to assess the impact of the COVID-19 pandemic on LTFU services and providers. Methods: A COVID-19 working group…
View article: Childhood cancer survivorship care during the COVID-19 pandemic: an international report of practice implications and provider concerns
Childhood cancer survivorship care during the COVID-19 pandemic: an international report of practice implications and provider concerns Open
View article: The PanCareFollowUp Care Intervention: A European harmonised approach to person-centred guideline-based survivorship care after childhood, adolescent and young adult cancer
The PanCareFollowUp Care Intervention: A European harmonised approach to person-centred guideline-based survivorship care after childhood, adolescent and young adult cancer Open
The PanCareFollowUp Care Intervention will support the implementation of person-centred, guideline-based LTFU care in different health care settings across Europe to improve survivors' health and well-being.
View article: 290 Late effects of the treatment for childhood cancer
290 Late effects of the treatment for childhood cancer Open
Major advances in the treatment of paediatric malignancies have resulted in significant and impressive results, with the overall 5-year survival rate exceeding 80%. Childhood cancer survivors (CCSs), though being cured of cancer, often ex…
View article: European PanCareFollowUp Recommendations for surveillance of late effects of childhood, adolescent, and young adult cancer
European PanCareFollowUp Recommendations for surveillance of late effects of childhood, adolescent, and young adult cancer Open
View article: The European multistakeholder PanCareFollowUp project: novel, person-centred survivorship care to improve care quality, effectiveness, cost-effectiveness and accessibility for cancer survivors and caregivers
The European multistakeholder PanCareFollowUp project: novel, person-centred survivorship care to improve care quality, effectiveness, cost-effectiveness and accessibility for cancer survivors and caregivers Open
View article: Clinical characteristics of subsequent histologically confirmed meningiomas in long-term childhood cancer survivors: A Dutch LATER study
Clinical characteristics of subsequent histologically confirmed meningiomas in long-term childhood cancer survivors: A Dutch LATER study Open
View article: Fertility preservation for male patients with childhood, adolescent, and young adult cancer: recommendations from the PanCareLIFE Consortium and the International Late Effects of Childhood Cancer Guideline Harmonization Group
Fertility preservation for male patients with childhood, adolescent, and young adult cancer: recommendations from the PanCareLIFE Consortium and the International Late Effects of Childhood Cancer Guideline Harmonization Group Open
View article: Guidance regarding COVID‐19 for survivors of childhood, adolescent, and young adult cancer: A statement from the International Late Effects of Childhood Cancer Guideline Harmonization Group
Guidance regarding COVID‐19 for survivors of childhood, adolescent, and young adult cancer: A statement from the International Late Effects of Childhood Cancer Guideline Harmonization Group Open
Childhood, adolescent, and young adult (CAYA) cancer survivors may be at risk for a severe course of COVID‐19. Little is known about the clinical course of COVID‐19 in CAYA cancer survivors, or if additional preventive measures are warrant…
View article: The ‘Survivorship Passport’ for childhood cancer survivors
The ‘Survivorship Passport’ for childhood cancer survivors Open
The SurPass is potentially an essential tool for improved and more harmonised follow-up of CCS. It also has the potential to be a useful tool for empowering CCSs to be responsible for their own well-being and preventing adverse events when…
View article: Long-term survivors of childhood cancer: cure and care—the Erice Statement (2006) revised after 10 years (2016)
Long-term survivors of childhood cancer: cure and care—the Erice Statement (2006) revised after 10 years (2016) Open
Purpose: The number of persons who have successfully completed treatment for a cancer diagnosed during childhood and whohave entered adulthood is increasing over time, and former patients will become aging citizens.
View article: Cancer Survivorship Care: Person Centered Care in a Multidisciplinary Shared Care Model
Cancer Survivorship Care: Person Centered Care in a Multidisciplinary Shared Care Model Open
Survivors of childhood and adult-onset cancer are at lifelong risk for the development of late effects of treatment that can lead to serious morbidity and premature mortality. Regular long-term follow-up aiming for prevention, early detect…