Jade C. Newton
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View article: Mapping Longitudinal Breast Cancer Care Trajectories: Treatment and Service Utilisation Experiences of Non‐Metastatic, Recurrent, and Metastatic Disease
Mapping Longitudinal Breast Cancer Care Trajectories: Treatment and Service Utilisation Experiences of Non‐Metastatic, Recurrent, and Metastatic Disease Open
Background Women across the breast cancer continuum navigate diverse care pathways, yet there is limited understanding of longitudinal care trajectories, particularly for recurrent and metastatic disease. Pathway research has predominantly…
View article: “Hurtled down a track and then thrown off”: Experiences of longitudinal breast cancer care trajectories of women living with and beyond breast cancer
“Hurtled down a track and then thrown off”: Experiences of longitudinal breast cancer care trajectories of women living with and beyond breast cancer Open
Background Despite established guidelines, women with breast cancer often experience complex care pathways. This study explored the lived experiences of treatment and service utilisation pathways for women living with and beyond breast can…
View article: Out-of-pocket costs for patients diagnosed with high-grade glioma and their carers
Out-of-pocket costs for patients diagnosed with high-grade glioma and their carers Open
Background This study aimed to describe the out-of-pocket costs incurred by patients diagnosed with high-grade glioma (HGG) and their carers in the standard care arm of the Care-IS trial in the 6 to 8 months following their diagnosis. Meth…
View article: Collecting routine and timely cancer stage at diagnosis by implementing a cancer staging tiered framework: The Western Australian Cancer Registry experience
Collecting routine and timely cancer stage at diagnosis by implementing a cancer staging tiered framework: The Western Australian Cancer Registry experience Open
Background Current processes collecting cancer stage data in population-based cancer registries (PBCRs) lack standardisation, resulting in difficulty utilising diverse data sources and incomplete, low-quality data. Implementing a cancer st…
View article: “Who can I ring? Where can I go?” Living with advanced cancer whilst navigating the health system: a qualitative study
“Who can I ring? Where can I go?” Living with advanced cancer whilst navigating the health system: a qualitative study Open
Background People with advanced cancer often experience greater physical and psychosocial morbidity compared to those with early disease. Limited research has focused on their experiences within the Australian health system. The aim of thi…
View article: Marked variation in out‐of‐pocket costs for cancer care in Western Australia
Marked variation in out‐of‐pocket costs for cancer care in Western Australia Open
Out-of-pocket expenses for cancer care are of growing concern for patients, clinicians, service providers, non-governmental organisations, private insurers, and politicians. Contrary to popular belief, there is no direct link between the c…
View article: ‘…If I don’t have that sort of money again, what happens?’: adapting a qualitative model to conceptualise the consequences of out-of-pocket expenses for cancer patients in mixed health systems
‘…If I don’t have that sort of money again, what happens?’: adapting a qualitative model to conceptualise the consequences of out-of-pocket expenses for cancer patients in mixed health systems Open
Objective The aim of this study was to explore Western Australian cancer patients’ experiences of out-of-pocket expenses (OOPE) during diagnosis and cancer treatment using a phenomenological approach. Methods Semi-structured interviews wer…
View article: Indigenous compared with non-Indigenous Australian patients at entry to specialist palliative care: Cross-sectional findings from a multi-jurisdictional dataset
Indigenous compared with non-Indigenous Australian patients at entry to specialist palliative care: Cross-sectional findings from a multi-jurisdictional dataset Open
Indigenous patients (especially those residing outside major cities) are substantially under-represented in care by services participating in the nationwide specialist palliative care Collaboration, likely reflecting widespread access barr…