Jaime Raymond
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View article: Amyotrophic Lateral Sclerosis as a Multistep Process in the United States: A Population‐Based Study
Amyotrophic Lateral Sclerosis as a Multistep Process in the United States: A Population‐Based Study Open
Background Amyotrophic lateral sclerosis (ALS) is a fatal, progressive neurodegenerative disease that typically results in death within 3–5 years from symptom onset. However, little is known about the environmental exposures, clinical aspe…
View article: Incidence of ALS in all 50 states in the United States, data from the National ALS Registry, 2012–2019
Incidence of ALS in all 50 states in the United States, data from the National ALS Registry, 2012–2019 Open
These findings summarize the incidence of ALS for all 50 states from 2012 to 2019. This is a continuing effort to identify ALS cases nationally. The establishment of the Registry allows for epidemiological analyses of ALS data and the asse…
View article: Head Injury and Amyotrophic Lateral Sclerosis: Population-Based Study from the National ALS Registry
Head Injury and Amyotrophic Lateral Sclerosis: Population-Based Study from the National ALS Registry Open
Background/Objectives: To examine if head injury (HI) is associated with age at ALS diagnosis in the United States. Methods: In this cross-sectional populationf-based analysis, we identified patients with ALS who were registered from 2015 …
View article: Amyotrophic lateral sclerosis estimated prevalence cases from 2022 to 2030, data from the national ALS Registry
Amyotrophic lateral sclerosis estimated prevalence cases from 2022 to 2030, data from the national ALS Registry Open
Objective: To estimate the projected number of ALS cases in the United States from 2022 to 2030. Amyotrophic lateral sclerosis (ALS) is a progressive and fatal neuromuscular disease with no known cure. Because ALS is not a notifiabl…
View article: Effects of COVID-19 on motor neuron disease mortality in the United States: a population-based cross-sectional study
Effects of COVID-19 on motor neuron disease mortality in the United States: a population-based cross-sectional study Open
The total number of MND deaths was greater during COVID than in the preceding years. The analysis suggests there might have been a consequence of circumstances surrounding the global pandemic and the associated restrictions.
View article: Environmental Exposures Continue to be a Possible Etiological Factor in the Development Amyotrophic Lateral Sclerosis (ALS)
Environmental Exposures Continue to be a Possible Etiological Factor in the Development Amyotrophic Lateral Sclerosis (ALS) Open
View article: Incidence and Prevalence of ALS in all 50 States in the United States, Data from the National ALS Registry, 2010-2018
Incidence and Prevalence of ALS in all 50 States in the United States, Data from the National ALS Registry, 2010-2018 Open
View article: Racial differences in clinical characteristics of US patients enrolled in the National Amyotrophic Lateral Sclerosis (ALS) Registry
Racial differences in clinical characteristics of US patients enrolled in the National Amyotrophic Lateral Sclerosis (ALS) Registry Open
View article: Correction to: Comparison of Demographics: National Amyotrophic Lateral Sclerosis Registry and Clinical Trials Data
Correction to: Comparison of Demographics: National Amyotrophic Lateral Sclerosis Registry and Clinical Trials Data Open
View article: Racial Disparities in the Diagnosis and Prognosis of ALS Patients in the United States
Racial Disparities in the Diagnosis and Prognosis of ALS Patients in the United States Open
View article: Comparison of Demographics: National Amyotrophic Lateral Sclerosis Registry and Clinical Trials Data
Comparison of Demographics: National Amyotrophic Lateral Sclerosis Registry and Clinical Trials Data Open
View article: Prevalence of ALS in all 50 states in the United States, data from the National ALS Registry, 2011–2018
Prevalence of ALS in all 50 states in the United States, data from the National ALS Registry, 2011–2018 Open
Objective: To summarize the prevalence of ALS in all 50 states and Washington, DC in the United States from 2011 to 2018 using data collected and analyzed by the National ALS Registry. In October 2010, the federal Agency for Toxic S…
View article: What do you think caused your ALS? An analysis of the CDC national amyotrophic lateral sclerosis patient registry qualitative risk factor data using artificial intelligence and qualitative methodology
What do you think caused your ALS? An analysis of the CDC national amyotrophic lateral sclerosis patient registry qualitative risk factor data using artificial intelligence and qualitative methodology Open
This analysis highlights the diverse range of factors that individuals with ALS consider as perceived causes for their disease. Understanding these perceptions can help clinicians to better support people living with ALS (PLWALS). The anal…
View article: A brief report on juvenile amyotrophic lateral sclerosis cases in the United States National ALS Registry: 2010–2018
A brief report on juvenile amyotrophic lateral sclerosis cases in the United States National ALS Registry: 2010–2018 Open
Juvenile ALS (jALS) is a rare form of ALS, defined as symptom onset before age 25. This report describes the demographic characteristics of confirmed and likely jALS cases in a large cohort of ALS patients ascertained in the National ALS R…
View article: Prevalence of amyotrophic lateral sclerosis in the United States, 2018
Prevalence of amyotrophic lateral sclerosis in the United States, 2018 Open
Consistent with previous estimates that used CRC, ALS prevalence in the United States is about 29,824 cases per year.
View article: Comparing Amyotrophic lateral sclerosis (ALS) patient characteristics from the National ALS Registry and the Massachusetts ALS Registry, data through 2015
Comparing Amyotrophic lateral sclerosis (ALS) patient characteristics from the National ALS Registry and the Massachusetts ALS Registry, data through 2015 Open
These findings show that ALS's non-notifiable condition status at the national level continues to pose a challenge in identifying all ALS patients. This analysis also showed missing cases at the state level even with a reporting statute. A…
View article: Impact of the National Amyotrophic Lateral Sclerosis Registry: Analysis of Registry‐funded Research
Impact of the National Amyotrophic Lateral Sclerosis Registry: Analysis of Registry‐funded Research Open
Objective This research aims to examine the impact of the National Amyotrophic Lateral Sclerosis (ALS) Registry‐funded research activities. Methods Registry‐funded research and related publications were identified through the National ALS …
View article: A revision to the United States national ALS registry’s algorithm to improve Case-Ascertainment
A revision to the United States national ALS registry’s algorithm to improve Case-Ascertainment Open
The Registry's existing algorithm likely results in the under-ascertainment of ALS cases. However, updating the algorithm with the inclusion of patients having been prescribed ALS-specific drugs, even with a single prescription, leads to i…
View article: Environmental Exposures Associated with Amyotrophic Lateral Sclerosis (ALS)
Environmental Exposures Associated with Amyotrophic Lateral Sclerosis (ALS) Open
Background and Aim: ALS is a devastating neuromuscular disease with no cure, and most patients only survive 2– 5 years post-diagnosis. Since the etiology of ALS is largely unknown, it has been hypothesized that environmental exposures may …
View article: Study of “ALS reversals”: LifeTime environmental exposures (StARLiTE)
Study of “ALS reversals”: LifeTime environmental exposures (StARLiTE) Open
We previously reported on a series of patients diagnosed with ALS whom had an extraordinary course defined by substantial and sustained improvement in weakness and function. For this study, twenty-five of these "ALS Reversals" completed ex…
View article: Prevalence of amyotrophic lateral sclerosis in the United States using established and novel methodologies, 2017
Prevalence of amyotrophic lateral sclerosis in the United States using established and novel methodologies, 2017 Open
Objective:To estimate the prevalence of amyotrophic lateral sclerosis (ALS) in the United States for 2017 using data from the National ALS Registry (Registry) as well as capture-recapture methodology to account for under-ascertainme…
View article: Evaluation of the Completeness of ALS Case Ascertainment in the US National ALS Registry: Application of the Capture-Recapture Method
Evaluation of the Completeness of ALS Case Ascertainment in the US National ALS Registry: Application of the Capture-Recapture Method Open
Introduction: The Centers for Disease Control and Prevention (CDC) National Amyotrophic Lateral Sclerosis (ALS) Registry is the first national registry for a chronic neurologic disease in the USA and uses a combination of cas…
View article: Recruitment of Patients With Amyotrophic Lateral Sclerosis for Clinical Trials and Epidemiological Studies: Descriptive Study of the National ALS Registry’s Research Notification Mechanism
Recruitment of Patients With Amyotrophic Lateral Sclerosis for Clinical Trials and Epidemiological Studies: Descriptive Study of the National ALS Registry’s Research Notification Mechanism Open
Background Researchers face challenges in patient recruitment, especially for rare, fatal diseases such as amyotrophic lateral sclerosis (ALS). These challenges include obtaining sufficient statistical power as well as meeting eligibility …
View article: Prevalence of amyotrophic lateral sclerosis (ALS), United States, 2016
Prevalence of amyotrophic lateral sclerosis (ALS), United States, 2016 Open
Objective: To estimate the prevalence of amyotrophic lateral sclerosis (ALS) in the United States for 2016 using data from the National ALS Registry (Registry). Established in 2009, the Registry collects data on ALS patients in the …
View article: History of vigorous leisure-time physical activity and early onset amyotrophic lateral sclerosis (ALS), data from the national ALS registry: 2010–2018
History of vigorous leisure-time physical activity and early onset amyotrophic lateral sclerosis (ALS), data from the national ALS registry: 2010–2018 Open
Background: Previous research has suggested that vigorous physical activity (VPA) during adolescence and early adulthood is associated with ALS. The National ALS Registry (Registry) collects physical activity data from persons with …
View article: Recruitment of Patients With Amyotrophic Lateral Sclerosis for Clinical Trials and Epidemiological Studies: Descriptive Study of the National ALS Registry’s Research Notification Mechanism (Preprint)
Recruitment of Patients With Amyotrophic Lateral Sclerosis for Clinical Trials and Epidemiological Studies: Descriptive Study of the National ALS Registry’s Research Notification Mechanism (Preprint) Open
BACKGROUND Researchers face challenges in patient recruitment, especially for rare, fatal diseases such as amyotrophic lateral sclerosis (ALS). These challenges include obtaining sufficient statistical power as well as meeting eligibility…
View article: Reproductive History and Age of Onset for Women Diagnosed with Amyotrophic Lateral Sclerosis: Data from the National ALS Registry: 2010–2018
Reproductive History and Age of Onset for Women Diagnosed with Amyotrophic Lateral Sclerosis: Data from the National ALS Registry: 2010–2018 Open
Background: Amyotrophic lateral sclerosis (ALS) is a neurological disease of largely unknown etiology with no cure. The National ALS Registry is a voluntary online system that collects demographic and reproductive history (fe…
View article: History of vigorous leisure-time physical activity and early onset amyotrophic lateral sclerosis (ALS), data from the national ALS registry: 2010–2018
History of vigorous leisure-time physical activity and early onset amyotrophic lateral sclerosis (ALS), data from the national ALS registry: 2010–2018 Open
Background: Previous research has suggested that vigorous physical activity (VPA) during adolescence and early adulthood is associated with ALS. The National ALS Registry (Registry) collects physical activity data from persons with …
View article: Clinical characteristics of a large cohort of US participants enrolled in the National Amyotrophic Lateral Sclerosis (ALS) Registry, 2010–2015
Clinical characteristics of a large cohort of US participants enrolled in the National Amyotrophic Lateral Sclerosis (ALS) Registry, 2010–2015 Open
Background: Amyotrophic lateral sclerosis (ALS) is a progressive fatal disease with a varying range of clinical characteristics. Objective: To describe the clinical characteristics in a large cohort of ALS participants enroll…
View article: Clinical characteristics of a large cohort of US participants enrolled in the National Amyotrophic Lateral Sclerosis (ALS) Registry, 2010–2015
Clinical characteristics of a large cohort of US participants enrolled in the National Amyotrophic Lateral Sclerosis (ALS) Registry, 2010–2015 Open
Background: Amyotrophic lateral sclerosis (ALS) is a progressive fatal disease with a varying range of clinical characteristics. Objective: To describe the clinical characteristics in a large cohort of ALS participants enroll…