Jamison Seabury
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View article: Patient- and Caregiver-Reported Impact of Symptoms in Alzheimer Disease, Mild Cognitive Impairment, and Dementia
Patient- and Caregiver-Reported Impact of Symptoms in Alzheimer Disease, Mild Cognitive Impairment, and Dementia Open
[This corrects the article DOI: 10.1212/CPJ.0000000000200418.].
View article: The Cognitive Impairment Caregiver Reported-Health Index: Development and Validation of a Caregiver-Reported Outcome Measure
The Cognitive Impairment Caregiver Reported-Health Index: Development and Validation of a Caregiver-Reported Outcome Measure Open
Backgroundhere is a need for valid, disease-specific, caregiver-reported outcome measures that reliably assesses the symptomatic health of individuals across the Alzheimer’s disease continuum from mild cognitive impairment to dementia. Aim…
View article: Patient-Reported Impact of Symptoms in Myasthenia Gravis (PRISM-MG)
Patient-Reported Impact of Symptoms in Myasthenia Gravis (PRISM-MG) Open
View article: Patient- and Caregiver-Reported Impact of Symptoms in Alzheimer Disease, Mild Cognitive Impairment, and Dementia
Patient- and Caregiver-Reported Impact of Symptoms in Alzheimer Disease, Mild Cognitive Impairment, and Dementia Open
Individuals with AD, MCI, and dementia experience a variety of symptoms that significantly affect their daily lives. These symptoms, many underrecognized, are of variable importance to individuals with these diseases and may inform potenti…
View article: The development and validation of the Alzheimer’s Disease Caregiver Reported‐Health Index (ADCR‐HI): a disease‐specific caregiver‐reported outcome measure for use in clinical trials
The development and validation of the Alzheimer’s Disease Caregiver Reported‐Health Index (ADCR‐HI): a disease‐specific caregiver‐reported outcome measure for use in clinical trials Open
Background In preparation for therapeutic trails involving patients with Alzheimer’s disease (AD) and mild cognitive impairment (MCI), there is a need for valid, disease‐specific caregiver‐reported outcome (CRO) measures capable of trackin…
View article: Patient-Reported Impact of Symptoms in Fibromyalgia (PRISM-FM)
Patient-Reported Impact of Symptoms in Fibromyalgia (PRISM-FM) Open
J Rheumatol 2024; doi: 10.3899/jrheum.2023-0698 Lynne Kennedy Matallana, MS, was missing from the author byline and footnotes. Her affiliation is National Fibromyalgia Association, Newport Beach, California, USA. She declares no conflicts …
View article: Friedreich Ataxia Caregiver-Reported Health Index
Friedreich Ataxia Caregiver-Reported Health Index Open
Initial evaluation of the FACR-HI supports its content validity, test-retest reliability, and construct validity as a caregiver-reported outcome measure for assessing how pediatric individuals with FRDA feel and function. The FACR-HI provi…
View article: Patient-reported impact of symptoms in adrenoleukodystrophy (PRISM-ALD)
Patient-reported impact of symptoms in adrenoleukodystrophy (PRISM-ALD) Open
Background Adrenoleukodystrophy (ALD) is a multifaceted, X-linked, neurodegenerative disorder that comprises several clinical phenotypes. ALD affects patients through a variety of physical, emotional, social, and other disease-specific fac…
View article: The Crohn’s Disease–Health Index
The Crohn’s Disease–Health Index Open
Objective: We sought to develop and validate the Crohn’s Disease–Health Index (CD-HI), a disease-specific, patient-reported outcome measure that serially measures Crohn’s disease (CD) symptomatic burden in adults with CD. Background: As th…
View article: Development of a patient‐reported outcome measure for Alzheimer’s disease: the Alzheimer’s Disease‐Health Index (AD‐HI), a fully validated tool to bolster clinical trial and research infrastructure
Development of a patient‐reported outcome measure for Alzheimer’s disease: the Alzheimer’s Disease‐Health Index (AD‐HI), a fully validated tool to bolster clinical trial and research infrastructure Open
Background As therapeutic advancements are made in Alzheimer’s Disease (AD) and Mild Cognitive Impairment (MCI), it is important to have a fully validated, sensitive, and reliable disease‐specific patient‐reported outcome measure (PRO) to …
View article: Development and validation of a caregiver‐reported outcome measure for Alzheimer’s disease: the Alzheimer’s Disease Caregiver Reported‐Health Index (ADCR‐HI), a fully validated tool to bolster clinical trial and research infrastructure
Development and validation of a caregiver‐reported outcome measure for Alzheimer’s disease: the Alzheimer’s Disease Caregiver Reported‐Health Index (ADCR‐HI), a fully validated tool to bolster clinical trial and research infrastructure Open
Background As therapeutic advancements are made in the field of Alzheimer’s Disease (AD) and Mild Cognitive Impairment (MCI), it is important to have a fully validated, sensitive, and reliable, disease‐specific outcome measures that can ac…
View article: Friedreich's Ataxia-Health Index
Friedreich's Ataxia-Health Index Open
Initial evaluation of the FA-HI supports its validity and reliability as a PRO for assessing how individuals with FA feel and function.
View article: The Facioscapulohumeral Muscular <scp>Dystrophy‐Health</scp> Index: Development and evaluation of a <scp>disease‐specific</scp> outcome measure
The Facioscapulohumeral Muscular <span>Dystrophy‐Health</span> Index: Development and evaluation of a <span>disease‐specific</span> outcome measure Open
Introduction/Aims As promising therapeutic interventions are tested among patients with facioscapulohumeral muscular dystrophy (FSHD), there is a clear need for valid and reliable outcome tools to track disease progression and therapeutic …
View article: Patient-reported impact of symptoms in lung cancer (PRISM-LC)
Patient-reported impact of symptoms in lung cancer (PRISM-LC) Open
Individuals with LC face diverse and disease-specific symptoms that affect their daily lives. Patient insight on the prevalence and relative importance of these symptoms is invaluable to advance meaningful therapeutic interventions.
View article: Patient-Reported Impact of Symptoms in Adrenoleukodystrophy (PRISM-ALD)
Patient-Reported Impact of Symptoms in Adrenoleukodystrophy (PRISM-ALD) Open
Background Adrenoleukodystrophy (ALD) is a multifaceted, x-linked, neurodegenerative disorder that affect patients through a variety of physical, emotional, social, and other disease-specific factors that collectively contribute to disease…
View article: DEVELOPMENT AND VALIDATION OF A PATIENT-REPORTED OUTCOME MEASURE FOR CROHN’S DISEASE: THE CROHN’S DISEASE-HEALTH INDEX (CD-HI), A FULLY VALIDATED TOOL TO BOLSTER CLINICAL TRIAL AND RESEARCH INFRASTRUCTURE
DEVELOPMENT AND VALIDATION OF A PATIENT-REPORTED OUTCOME MEASURE FOR CROHN’S DISEASE: THE CROHN’S DISEASE-HEALTH INDEX (CD-HI), A FULLY VALIDATED TOOL TO BOLSTER CLINICAL TRIAL AND RESEARCH INFRASTRUCTURE Open
STUDY AIM To bolster Crohn’s disease (CD) clinical trial and research infrastructure through the development and validation of a sensitive, multifactorial, disease-specific, patient-reported outcome measure (PRO) for patient monitoring in …
View article: Patient reported impact of symptoms in amyotrophic lateral sclerosis (PRISM-ALS): a national, cross-sectional study
Patient reported impact of symptoms in amyotrophic lateral sclerosis (PRISM-ALS): a national, cross-sectional study Open
View article: The Alzheimer’s Disease‐Health Indices (AD‐HI): Development of Two Novel Outcome Measures for Use in Clinical Trials
The Alzheimer’s Disease‐Health Indices (AD‐HI): Development of Two Novel Outcome Measures for Use in Clinical Trials Open
Background In preparation for upcoming clinical trials, there is a clear need for improved clinical trial infrastructure to facilitate therapeutic assessment in Alzheimer’s disease, (AD), mild cognitive impairment (MCI), and related dement…
View article: Patient-Reported Impact of Symptoms in Friedreich Ataxia
Patient-Reported Impact of Symptoms in Friedreich Ataxia Open
There are a wide variety of symptoms that affect the lives of individuals with FA. These symptoms, many underrecognized, have different levels of importance and occur at different rates in the FA population. The most common and life alteri…
View article: Patient-Reported Impact of Symptoms in Crohn's Disease
Patient-Reported Impact of Symptoms in Crohn's Disease Open
INTRODUCTION: Patients with Crohn's disease (CD) experience a variety of symptoms that significantly affect their lives. In this study, we (i) ascertain the most prevalent and impactful symptoms in CD and (ii) identify modifying factors th…
View article: Patient-Reported Impact of Symptoms in Lung Cancer (PRISM-LC)
Patient-Reported Impact of Symptoms in Lung Cancer (PRISM-LC) Open
View article: Patient-Reported Impact of Symptoms in Lung Cancer (PRISM-LC)
Patient-Reported Impact of Symptoms in Lung Cancer (PRISM-LC) Open