Jane Noyes
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View article: Interpretative Phenomenological Study Exploring Why People With Kidney Failure Say ‘No’ to a Kidney Transplant
Interpretative Phenomenological Study Exploring Why People With Kidney Failure Say ‘No’ to a Kidney Transplant Open
Aim To develop an in‐depth understanding of peoples' perceptions and experiences of decision‐making and reasons why they declined the opportunity of a kidney transplant. Design The Theory of Planned Behaviour informed the qualitative inter…
View article: Aspergillus otitis externa with persistent tympanic membrane perforation in a young immunocompetent patient
Aspergillus otitis externa with persistent tympanic membrane perforation in a young immunocompetent patient Open
Herein a case of left ear Aspergillus otitis externa with associated persistent tympanic membrane perforation requiring tympanoplasty in an immunocompetent 28-year-old woman is described. Aspergillus otitis externa is uncommon in young imm…
View article: What happens to qualitative studies initially presented as conference abstracts: A survey among study authors
What happens to qualitative studies initially presented as conference abstracts: A survey among study authors Open
Qualitative research addresses important healthcare questions, including patients’ experiences with interventions. Qualitative evidence syntheses combine findings from individual studies and are increasingly used to inform health guideline…
View article: A Realist Evaluation of the Implementation and Use of Patient‐Reported Outcomes in Four Value‐Based Healthcare Programmes
A Realist Evaluation of the Implementation and Use of Patient‐Reported Outcomes in Four Value‐Based Healthcare Programmes Open
Aim To investigate what works when using Patient‐Reported Outcome Measures (PROMs), for whom, in what contexts, and why in four Value‐Based Healthcare (VBHC) programmes. Design Realist evaluation. Methods Evaluation of Heart Failure, Parki…
View article: Parents’ experiences of paediatric end-of-life care in the UK: a multisite qualitative study
Parents’ experiences of paediatric end-of-life care in the UK: a multisite qualitative study Open
Objectives Despite the marked improvement in child mortality over the last two decades, more than 7 million infants, children and young people still die worldwide every year. In the UK, four National Health Service settings care for more t…
View article: Aspergillus otitis externa with persistent tympanic membrane perforation in a young immunocompetent patient
Aspergillus otitis externa with persistent tympanic membrane perforation in a young immunocompetent patient Open
Herein a case of left ear Aspergillus otitis externa with associated persistent tympanic membrane perforation requiring tympanoplasty in an immunocompetent 28-year-old woman is described. Aspergillus otitis externa is uncommon in young imm…
View article: Economic costs of health and social care for a child with a life-limiting condition in their last year of life: a systematic review
Economic costs of health and social care for a child with a life-limiting condition in their last year of life: a systematic review Open
Aim To systematically review and descriptively synthesise the costs associated with any health and/or social care services provided to children with a life-limiting condition, in their last year of life. Methods Systematic review using MED…
View article: What is the effectiveness and cost-effectiveness of at-home time-limited reablement service for improving an individual’s independence and health outcomes and reducing the need for long term care: a rapid review
What is the effectiveness and cost-effectiveness of at-home time-limited reablement service for improving an individual’s independence and health outcomes and reducing the need for long term care: a rapid review Open
Local authorities and health services in Wales are tasked with reablement, to help individuals who are at risk of frailty maintain and improve independence. However, social care resource constraints, mean that the balance of funds and work…
View article: Understanding Why Parents Say Yes or No to Organ Donation When Their Child Dies: Mixed‐Methods Study
Understanding Why Parents Say Yes or No to Organ Donation When Their Child Dies: Mixed‐Methods Study Open
Aim To explore why parents consent to or decline organ donation after their child's death and identify the factors that influence their decision‐making. Design Mixed‐methods analysis of routinely collected quantitative and qualitative data…
View article: Parents’ experiences of the financial and employment impacts of their child receiving end-of-life care: a national qualitative study
Parents’ experiences of the financial and employment impacts of their child receiving end-of-life care: a national qualitative study Open
Background Bereaved parents are at higher risk of poor mental and physical health outcomes than people bereaved under other circumstances. These challenges are exacerbated by the continued effects on parents’ working lives and the financia…
View article: How might we improve the mental health and well-being of care-experienced children and young people? Review and map of intervention theories
How might we improve the mental health and well-being of care-experienced children and young people? Review and map of intervention theories Open
Summary This article presents a review and map of program theories used in mental health and well-being interventions tested with care-experienced children and young people (foster care, kinship care, residential care). Program theories ar…
View article: Mapping the Evidence on Outcomes of Childhood Out-of-Home Care: A Scoping Review of Reviews
Mapping the Evidence on Outcomes of Childhood Out-of-Home Care: A Scoping Review of Reviews Open
Background Children placed in out-of-home care in high-income countries face complex challenges due to exposure to adverse childhood experiences and systemic disadvantages. While research on their outcomes has grown, the evidence base rema…
View article: Weight-neutral interventions for people with obesity and the perspective of patients, carers and healthcare professionals: a mixed methods review
Weight-neutral interventions for people with obesity and the perspective of patients, carers and healthcare professionals: a mixed methods review Open
This is a protocol for a Cochrane Review (prototype). The objectives are as follows: To assess the effects of weight-neutral interventions for managing obesity in children and adults (quantitative data). To explore the views, perspectives …
View article: Assessing the reporting quality of published qualitative evidence syntheses in the cochrane library
Assessing the reporting quality of published qualitative evidence syntheses in the cochrane library Open
Background Over ten years since the first qualitative evidence synthesis (QES) was published in the Cochrane Library, QES and mixed‐methods reviews (MMR) with a qualitative component have become increasingly common and influential in healt…
View article: A bespoke rapid evidence review process engaging stakeholders for supporting evolving and time-sensitive policy and clinical decision-making: reflection and lessons learned from the Wales COVID-19 Evidence Centre 2021–2023
A bespoke rapid evidence review process engaging stakeholders for supporting evolving and time-sensitive policy and clinical decision-making: reflection and lessons learned from the Wales COVID-19 Evidence Centre 2021–2023 Open
Background The COVID-19 pandemic presented policymakers with time-sensitive decision problems and a rapidly increasing volume of research, not all of which was robust, or relevant to local contexts. A bespoke evidence review process suppor…
View article: Healthcare professionals’ perspectives of providing end-of-life care for infants, children and young people in acute settings: A multi-site qualitative study
Healthcare professionals’ perspectives of providing end-of-life care for infants, children and young people in acute settings: A multi-site qualitative study Open
Background: Paediatric end-of-life care is an important part of palliative care, and provides care and support for children in the last days, weeks, months or year of life. However, there is currently a picture of inconsistent and disjoint…
View article: Using visual methods to further enhance qualitative evidence synthesis
Using visual methods to further enhance qualitative evidence synthesis Open
Background The use of visual methods in qualitative evidence synthesis (QES) adds a valuable dimension to the synthesis process by enhancing understanding and knowledge generation. Visual methods are currently underused and underreported i…
View article: Interventions to improve mental health and well-being in care-experienced children and young people aged less than 25: the CHIMES systematic review
Interventions to improve mental health and well-being in care-experienced children and young people aged less than 25: the CHIMES systematic review Open
Background Children and young people with experience of being in care (e.g. foster care, kinship care, residential care or at home with a supervision requirement order) are at higher risk of adverse mental health and well-being outcomes co…
View article: End of life care in paediatric settings: UK national survey
End of life care in paediatric settings: UK national survey Open
Objectives To describe end of life care in settings where, in the UK, most children die; to explore commonalities and differences within and between settings; and to test whether there are distinct, alternative models of end of life care. …
View article: Subgroup differences in public attitudes, preferences and self-reported behaviour related to deceased organ donation before and after the introduction of the ‘soft’ opt-out consent system in England: mixed-methods study
Subgroup differences in public attitudes, preferences and self-reported behaviour related to deceased organ donation before and after the introduction of the ‘soft’ opt-out consent system in England: mixed-methods study Open
Background In the UK, over 7,000 people are on the waiting list for an organ transplant and there are inequalities in need, access and waiting time for organs, with notable differences between minority ethnic groups. In May 2020, England c…
View article: The cost-effectiveness of life after stroke services and the impact of these services on health and social care resource use: a rapid review
The cost-effectiveness of life after stroke services and the impact of these services on health and social care resource use: a rapid review Open
The UK is expected to see a 60% increase in first-time strokes over the next 20 years. This translates to about 2.1 million stroke survivors living in the UK by 2035. Life after stroke services aim to support peoples physical and emotional…