Emma McDougall
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View article: Defining the Symptoms of Personality and Behaviour Changes in Brain Tumour Patients and Their Impact on Caregivers
Defining the Symptoms of Personality and Behaviour Changes in Brain Tumour Patients and Their Impact on Caregivers Open
Purpose This study aimed to: i) identify how carers and healthcare professionals define and describe brain tumour related personality and behaviour changes in adults; and, ii) explore the impact of these changes on carers. Methods We condu…
View article: Unveiling the Unspoken: Exploring Taboo Thoughts and Difficult Experiences Among Carers of People With Brain Cancer
Unveiling the Unspoken: Exploring Taboo Thoughts and Difficult Experiences Among Carers of People With Brain Cancer Open
Objective The primary objective of this research was to explore the rarely discussed, often unspoken, taboo thoughts and difficult emotions experienced by carers who support individuals with brain tumour related personality and behaviour c…
View article: Nurse-identified needs, recommendations, and referrals during consultations with family carers of patients diagnosed with high-grade glioma
Nurse-identified needs, recommendations, and referrals during consultations with family carers of patients diagnosed with high-grade glioma Open
Background The aim of this manuscript was to describe the frequency and types of nurse-identified needs, recommendations, and referrals delivered to intervention-arm carers of patients with high-grade glioma (HGG) during monthly nurse-led …
View article: Healthcare professionals’ perspectives on barriers and facilitators to managing brain tumor-related personality and behavior changes
Healthcare professionals’ perspectives on barriers and facilitators to managing brain tumor-related personality and behavior changes Open
Background This study aimed to identify healthcare professionals’ perceptions of the facilitators and barriers impacting the management of brain tumor-related personality and behavior changes in adults. Methods We conducted semi-structured…
Development of a brief screening measure of unmet supportive care needs (SCNS-P&C-6) in caregivers of people with high-grade glioma Open
Purpose Informal caregivers of people with high grade glioma (HGG) often have high levels of unmet support needs. Routine screening for unmet needs can facilitate appropriate and timely access to supportive care. We aimed to develop a brie…
View article: Unmet needs in people with high-grade glioma: defining criteria for stepped care intervention
Unmet needs in people with high-grade glioma: defining criteria for stepped care intervention Open
Background We aimed to define levels of unmet supportive care needs in people with primary brain tumor and to reach expert consensus on feasibility of addressing patients’ needs in clinical practice. Methods We conducted secondary analysis…
View article: A nurse-led intervention for carers of people with high-grade glioma: A case series of carers reporting high distress
A nurse-led intervention for carers of people with high-grade glioma: A case series of carers reporting high distress Open
Background Carers play an important role in supporting patients diagnosed with high-grade glioma (HGG). However, this experience is frequently distressing and many carers require support. Objectives To describe unmet needs of highly distre…
75 Vitamin D replacement in the treatment of hypercalcaemia of malignancy Open
Background Hypercalcaemia of malignancy affects up to 30% of patients with cancer.1 Treatment involves medications that inhibit bone resorption of calcium, such as bisphosphonates. Low vitamin D can cause refractory hypocalcaemia following…
View article: What do carers of people with high-grade glioma perceive could improve their preparedness to care, and what additional support do they require?
What do carers of people with high-grade glioma perceive could improve their preparedness to care, and what additional support do they require? Open
Background Concerning levels of stress, strain, and poorer mental health are observed in family carers of patients diagnosed with high-grade glioma (HGG). Understanding the reported unmet needs of these carers will enable future interventi…
View article: Psychopathology and psychosocial functioning among young people with first-episode psychosis and/or first-presentation borderline personality disorder
Psychopathology and psychosocial functioning among young people with first-episode psychosis and/or first-presentation borderline personality disorder Open
Young people with co-occurring FEP and BPD experience more severe difficulties than young people with either diagnosis alone. This combination of psychosis and severe personality pathology has been longitudinally associated with poorer out…
Psychosocial interventions for personality and behavior changes in adults with a brain tumor: A scoping review Open
Background The objective of this scoping review was to describe the intervention characteristics and effectiveness of psychosocial interventions aimed at managing personality and behavior changes in people with brain tumors. A secondary ob…
Carer preparedness improved by providing a supportive educational intervention for carers of patients with high-grade glioma: RCT results Open
Background High-grade glioma (HGG) is a rapidly progressing and debilitating disease. Family carers take on multiple responsibilities and experience high levels of distress. We aimed to deliver a nurse-led intervention (Care-IS) to carers …
P-109 Optimising steroid prescription on discharge in palliative care Open
Background Steroids are a commonly used drug in palliative care with the potential for serious side effects or adrenal crisis. Dexamethasone is often used at high doses, requiring extended weaning schedules and making prescribing accuracy …
127 Improving the identification and management of constipation on the palliative care unit, Wansbeck general hospital Open
Background In 2020 the palliative care team at the inpatient palliative care unit at Wansbeck General Hospital identified the notable burden of constipation on patients, and the barrier to symptom improvement it caused. Our team designed a…
81 Use of steroids in palliative care Open
Background Steroids are frequently prescribed in palliative care for several indications, often concurrently. Identifying the original indication and thus a safe withdrawal regimen is, however, not straightforward as patients transition ac…
124 One hospital team, three sites Open
Background Northumbria Healthcare NHS FT specialist palliative care hospital liaison service (HLT) is a unified team working across three acute hospital sites with one Specialist Emergency Care Hospital (NSECH). Patients are admitted to sp…
2 Development of an integrated palliative care pharmacist role across healthcare boundaries Open
Introduction The aim of this 3 year project is to develop and evaluate the role of an integrated palliative care prescribing pharmacist, working across different settings to support patients. Methods The pharmacist works within all areas o…
Sexuality and sexual health among female youth with borderline personality disorder pathology Open
Aim Borderline personality disorder (BPD) is a severe mental disorder that is characterized by unstable relationships, impulsive behaviours and identity disturbance. BPD usually has its onset between puberty and young adulthood and present…