Janet E. Rennick
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View article: Using experience-based co-design to explore care experiences and identify practice change priorities for children with medical complexity in the paediatric intensive care unit
Using experience-based co-design to explore care experiences and identify practice change priorities for children with medical complexity in the paediatric intensive care unit Open
Objectives Children with medical complexity (CMC) frequently experience acute deterioration requiring paediatric intensive care unit (PICU) hospitalisation. Collaboration between families and healthcare professionals (HCPs) is vital yet of…
View article: The Caring Intensively Study: Three-Year Follow-Up Findings From a Mixed Methods Study of Children’s Psychological and Behavioral Responses After PICU Hospitalization
The Caring Intensively Study: Three-Year Follow-Up Findings From a Mixed Methods Study of Children’s Psychological and Behavioral Responses After PICU Hospitalization Open
OBJECTIVES: To report the 3-year follow-up results of the “Caring Intensively” study, which examined children’s psychological and behavioral responses after PICU hospitalization. DESIGN: Prospective mixed methods, concurrent triangulation …
View article: Perspectives on Conducting Behavioral Intervention With Adolescents Using a Virtual Platform—A Thematic Analysis From the Viewpoint of Study Coordinators
Perspectives on Conducting Behavioral Intervention With Adolescents Using a Virtual Platform—A Thematic Analysis From the Viewpoint of Study Coordinators Open
Background The COVID‐19 pandemic led to widespread adoption of virtual communication platforms. Virtual study visits were implemented in the pilot cluster randomized trial (CRT) stage of Teen Adherence in KidnEy transplant Improving Tracki…
View article: Editorial: Family-centered care in pediatric and neonatal critical care settings
Editorial: Family-centered care in pediatric and neonatal critical care settings Open
Editorial on the Research Topic Family-centered care in pediatric and neonatal critical care settings.
View article: Design and rationale of the Post-Intensive Care Syndrome – paediatrics (PICS-p) Longitudinal Cohort Study
Design and rationale of the Post-Intensive Care Syndrome – paediatrics (PICS-p) Longitudinal Cohort Study Open
Introduction As paediatric intensive care unit (PICU) mortality declines, there is growing recognition of the morbidity experienced by children surviving critical illness and their families. A comprehensive understanding of the adverse phy…
View article: Navigating the healthcare system with my child with CHD: parental perspectives on developmental follow-up practices
Navigating the healthcare system with my child with CHD: parental perspectives on developmental follow-up practices Open
Background: Parents of children with CHD face several barriers when trying to access the services needed to support their child’s development. In fact, current developmental follow-up practices may not identify developmental challenges in …
View article: TOwards enhancing Paediatric Intensive Care for Children with Medical Complexity (ToPIC CMC): a mixed-methods study protocol using Experience-based Co-design
TOwards enhancing Paediatric Intensive Care for Children with Medical Complexity (ToPIC CMC): a mixed-methods study protocol using Experience-based Co-design Open
Introduction Advances in medical technology and postoperative care have led to increased survival of children with medical complexity (CMC). Parents of CMC develop substantial caregiver expertise and familiarity with paediatric intensive c…
View article: Canadian Developmental Follow-up Practices in Children With Congenital Heart Defects: A National Environmental Scan
Canadian Developmental Follow-up Practices in Children With Congenital Heart Defects: A National Environmental Scan Open
View article: Family Members' Perceptions of Their Psychological Responses One Year Following Pediatric Intensive Care Unit (PICU) Hospitalization: Qualitative Findings From the Caring Intensively Study
Family Members' Perceptions of Their Psychological Responses One Year Following Pediatric Intensive Care Unit (PICU) Hospitalization: Qualitative Findings From the Caring Intensively Study Open
Introduction: PICU hospitalization can have a profound impact on child survivors and their families. There is limited research on children's long-term recovery within the context of the family following critical illness. This study aimed t…
View article: Promoting medication adherence from the perspective of adolescent and young adult kidney transplant recipients, parents, and health care professionals: A TAKE‐IT TOO study
Promoting medication adherence from the perspective of adolescent and young adult kidney transplant recipients, parents, and health care professionals: A TAKE‐IT TOO study Open
Medication non‐adherence is an important factor limiting allograft survival after kidney transplantation in AYA. Some interventions, including the TAKE‐IT, showed some success in promoting adherence but the potential for scalability and us…
View article: Study protocol for a multicentre longitudinal mixed methods study to explore the Outcomes of ChildrEn and fAmilies in the first year after paediatric Intensive Care: the OCEANIC study
Study protocol for a multicentre longitudinal mixed methods study to explore the Outcomes of ChildrEn and fAmilies in the first year after paediatric Intensive Care: the OCEANIC study Open
Introduction Annually in the UK, 20 000 children become very ill or injured and need specialist care within a paediatric intensive care unit (PICU). Most children survive. However, some children and their families may experience problems a…
View article: Exploring the experiences of parent caregivers of children with chronic medical complexity during pediatric intensive care unit hospitalization: an interpretive descriptive study
Exploring the experiences of parent caregivers of children with chronic medical complexity during pediatric intensive care unit hospitalization: an interpretive descriptive study Open
View article: “Tell it as it is”: How Sisom prompts children and parents to discuss their cancer experience
“Tell it as it is”: How Sisom prompts children and parents to discuss their cancer experience Open
Background Sisom is an interactive computerized tool shown to improve communication between children with cancer and their clinicians in Norway. Concerns that Sisom may prompt disclosure of potentially distressful symptoms during a busy cl…
View article: Conceptualizing Post Intensive Care Syndrome in Children—The PICS-p Framework*
Conceptualizing Post Intensive Care Syndrome in Children—The PICS-p Framework* Open
Context: Over the past several decades, advances in pediatric critical care have saved many lives. As such, contemporary care has broadened its focus to also include minimizing morbidity. Post Intensive Care Syndrome, also known as “PICS,”…
View article: Parental perceptions of transition from intensive care following a child's cardiac surgery
Parental perceptions of transition from intensive care following a child's cardiac surgery Open
Background Children with congenital heart disease ( CHD ) who undergo cardiac surgery are hospitalized in a paediatric intensive care unit ( PICU ) prior to being transferred to a surgical ward. This is a challenging transition for parents…