Explanipedia

Surgical Reintervention for Complex, Multivalvular Rheumatic Heart Disease Open

Kathleen Khan, Christopher R. Burke, Jill M. Steiner · 2025

Multidisciplinary planning for reintervention in multivalve disease can be complex without a single best solution. Shared decision making can help patients understand risks and make decisions aligned with their values.

A Randomized Trial of a Resilience-Building Intervention in Adult Outpatients With Congenital Heart Disease Open

Jill M. Steiner, Arisa R. Marshall, Lyndia Brumback, Y.C. Zhang, Thomas M. Glenn , et al. · 2025

Palliative Care Education in Pediatric Cardiology Fellowships: A Survey of Program Directors Open

Lesje DeRose, Sarah Godfrey, Shabnam Peyvandi, Nicole Cresalia, Jill M. Steiner , et al. · 2025

With advances in treatment options for severe congenital heart disease, there is a growing population of children and adults living with advanced heart disease, many of whom experience significant long-term comorbidities and uncertain dise…

Exercise-Induced Hypertension Is Associated With Gestational Hypertension Occurrence in Patients With Repaired Aortic Coarctation Open

Christos Zografos, Elena Wadden, Catherine M. Albright, Jill M. Steiner, Jonathan Buber · 2025

Impact of Sudden Cardiac Arrest and Implantable Cardiac Defibrillator Shocks on Mental Health Open

Estelle Torbey, Carlos Mena‐Hurtado, Jamie L. Jackson, Zainab Samaan, Samuel F. Sears , et al. · 2025

Primary‐ Versus Secondary‐Control Coping as Described by Adults With Congenital Heart Disease Open

Jill M. Steiner, Kaitlyn Fladeboe, Joyce P. Yi‐Frazier, Adrienne H. Kovacs, Jamie L. Jackson , et al. · 2024

Application of the PRISM Resilience Intervention in Adult Congenital Heart Disease (RP213) Open

Jill M. Steiner, Arisa R. Marshall, Joyce P. Yi‐Frazier, Abby R. Rosenberg · 2024

Key Psychosocial Health Outcomes and Association With Resilience Among Patients With Adult Congenital Heart Disease Open

Jill M. Steiner, Katherine Nassans, Lyndia Brumback, Karen Stout, Chris T. Longenecker , et al. · 2024

Impact of Social Determinants of Health on Self-Perceived Resilience: An Exploratory Study of Two Cohorts of Adults with Congenital Heart Disease Open

Albert Osom, Krysta S. Barton, Katie Sexton, Lyndia Brumback, Joyce P. Yi‐Frazier , et al. · 2024

Social determinants of health (SDOH) affect quality of life.We investigated SDOH impacts on self-perceived resilience among people with adult congenital heart disease (ACHD).Secondary analysis of data from two complementary studies: a surv…

Definitions of resilience and resilience resource use as described by adults with congenital heart disease Open

Jill M. Steiner, Erin Abu‐Rish Blakeney, Andrea Corage Baden, Vea Freeman, Joyce P. Yi‐Frazier , et al. · 2023

Main operating room deliveries for patients with high-risk cardiovascular disease Open

Catherine M. Albright, Jill M. Steiner, Laura Sienas, Carlos Manterola, Jonathan Buber · 2023

Background High-risk cardiovascular disease (CVD) prevalence in pregnant patients is increasing. Management of this complex population is not well studied, and little guidance is available regarding labour and delivery planning for optimal…

Palliative Care Across the Life Span for Children With Heart Disease: A Scientific Statement From the American Heart Association Open

Elizabeth D. Blume, Roxanne Kirsch, Melissa K. Cousino, Jennifer K. Walter, Jill M. Steiner , et al. · 2023

Aim: This summary from the American Heart Association provides guidance for the provision of primary and subspecialty palliative care in pediatric congenital and acquired heart disease. Methods: A comprehensive literature search was conduc…

Adults with CHD balancing motivations and concerns in pregnancy decision-making Open

Kathleen M. West, Elizabeth Bayley, J Pechán, Ruth A. Engelberg, Catherine M. Albright , et al. · 2023

Background: While the incidence of pregnancy has increased among individuals with adult CHD, little has been described about considerations and experiences of patients with adult CHD regarding pregnancy. Objective: We aimed to explore pati…

A World of Maximalist Medicine: Physician Perspectives on Palliative Care and End-of-life for Patients With Pulmonary Arterial Hypertension Open

Crystal Brown, Jill M. Steiner, Peter J. Leary, J. Randall Curtis, Ruth A. Engelberg · 2022

Palliative Care Perspectives of Patients with Pulmonary Arterial Hypertension Open

Crystal Brown, Jill M. Steiner, Matthew Modes, Ylinne Lynch, Peter J. Leary , et al. · 2022

"Palliative Care Perspectives of Patients with Pulmonary Arterial Hypertension." Annals of the American Thoracic Society, 20(2), pp. 331–334

Sudden cardiac death as a consequence of Cor triatriatum sinistrum in an adult Open

Tomio Tran, Peter Ch’en, Bicong Wu, Jill M. Steiner, Gary Huang · 2022

Peri‐procedural code status for transcatheter aortic valve replacement: Absence of program policies and standard practices Open

Gwen M. Bernacki, Helene Starks, Ashok Krishnaswami, Jill M. Steiner, Matthew B. Allen , et al. · 2022

Background Little is known about policies and practices for patients undergoing Transcatheter Aortic Valve Replacement (TAVR) who have a documented preference for Do Not Resuscitate (DNR) status at time of referral. We investigated how pra…

COVID-19 impact on adults with congenital heart disease self-perceived vulnerability and coping Open

Jill M. Steiner, Andrea Corage Baden, Erin Abu‐Rish Blakeney, Vea Freeman, Karen Stout , et al. · 2022

The COVID-19 pandemic poses risk for worsened quality of life in patients with adult congenital heart disease. In a qualitative thematic analysis of semi-structured interviews conducted July 2020 to August 2021, we examined the pandemic’s …

Patient perspectives on clinician-patient partnerships to achieve comprehensive pregnancy care in adult congenital heart disease Open

Jill M. Steiner, Kathleen M. West, Elizabeth Bayley, J Pechán, Ruth A. Engelberg , et al. · 2021

Cardiac and Pregnancy Outcomes of Pregnant Patients With Congenital Heart Disease According to Risk Classification System Open

Jill M. Steiner, Erica M. Lokken, Elizabeth Bayley, J Pechán, Anna Curtin , et al. · 2021

Advance care planning in adult congenital heart disease: Unique approaches for a unique population Open

Adam J. Small, Daniel Karlin, Chandra Prabha Jain, Jill M. Steiner, Leigh Reardon · 2021

Recommendations for advance care planning in adults with congenital heart disease were recently published, reinforcing the role of advance care planning as an essential component of patient-centered care. In significant ways, the adult con…

It's part of who I am: The impact of congenital heart disease on adult identity and life experience Open

Jill M. Steiner, Alysha Dhami, Crystal Brown, Karen Stout, J. Randall Curtis , et al. · 2021

From Theory to Patient Care: A Model for the Development, Adaptation, and Testing of Psychosocial Interventions for Patients With Serious Illness Open

Abby R. Rosenberg, Jill M. Steiner, Nancy Lau, Kaitlyn Fladeboe, Demet Toprak , et al. · 2021

Barriers and Facilitators of Palliative Care and Advance Care Planning in Adults With Congenital Heart Disease Open

Jill M. Steiner, Alysha Dhami, Crystal Brown, Karen Stout, J. Randall Curtis , et al. · 2020

Sensitivity and Specificity of a Machine Learning Algorithm to Identify Goals-of-care Documentation for Adults With Congenital Heart Disease at the End of Life Open

Jill M. Steiner, Christina Morse, Robert Y. Lee, J. Randall Curtis, Ruth A. Engelberg · 2020

Advance care planning and palliative care in ACHD: the healthcare providers’ perspective Open

Jill M. Steiner, Erwin Oechslin, Gruschen Veldtman, Craig S. Broberg, Karen Stout , et al. · 2020

Background: Advance care planning and palliative care are gaining recognition as critical care components for adults with CHD, yet these often do not occur. Study objectives were to evaluate ACHD providers’ 1) comfort managing patients’ ph…

Palliative Care Opportunities Among Adults With Congenital Heart Disease—A Systematic Review Open

Jonathan Ludmir, Jill M. Steiner, Hong-Nei Wong, Amy Kloosterboer, Jason Leong , et al. · 2019

Durable mechanical circulatory support in teenagers and adults with congenital heart disease: A systematic review Open

Jill M. Steiner, Eric V. Krieger, Karen Stout, April Stempien‐Otero, Claudius Mahr , et al. · 2017

Palliative care in end-stage valvular heart disease Open

Jill M. Steiner, Stephanie Cooper, James N. Kirkpatrick · 2017

Valvular heart disease (VHD), particularly aortic valve disease, is prevalent with increasing incidence. When surgery is not possible, or when risks outweigh benefits, percutaneous treatment options may offer effective alternatives. Howeve…

LVAD Weaning Protocol Utilizing Comprehensive Cardiopulmonary Exercise Testing to Define Cardiac Reserve Capacity Open

Jill M. Steiner, S. Wiafe, Janice Camuso, K. Milley, Damiano D’Alessandro , et al. · 2016

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