Faith Gibson
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View article: The seen and be heard study: A national mixed methods study to identify the barriers and facilitators to ensuring equitable cancer care for children with and without learning disabilities and/or who are autistic – Protocol Paper
The seen and be heard study: A national mixed methods study to identify the barriers and facilitators to ensuring equitable cancer care for children with and without learning disabilities and/or who are autistic – Protocol Paper Open
Introduction A strong body of evidence exists relating to inequality in general healthcare experience and outcomes for children and young people with learning disabilities and/or who are autistic compared to those without. Healthcare pract…
View article: The approach and application of analysing inductive and deductive datasets: a worked example using reflexive thematic analysis
The approach and application of analysing inductive and deductive datasets: a worked example using reflexive thematic analysis Open
Braun and Clarke’s reflexive thematic analysis (reflexive TA) has gained wide attraction since its conception in 2006. Reflexive TA is methodologically flexible with researchers making decisions, which support their philosophical positioni…
View article: The spiritual needs and care of children and young people with life-threatening or life-shortening conditions, and parents (SPARK): a mixed-method investigation
The spiritual needs and care of children and young people with life-threatening or life-shortening conditions, and parents (SPARK): a mixed-method investigation Open
Background The human experience comprises four interconnected dimensions: physical, psychological, social and spiritual. Our spirituality is evidenced in the need to make sense of and find meaning, to feel our lives have purpose, to feel w…
View article: More Than ‘Keeping an Eye’: Ensuring Children With Intellectual Disabilities Are Safe and Feel Safe in Hospital
More Than ‘Keeping an Eye’: Ensuring Children With Intellectual Disabilities Are Safe and Feel Safe in Hospital Open
Background There is a lack of evidence to inform the provision of safe hospital care and treatment to children with intellectual disabilities. Methods Interviews were conducted with 52 parents/carers of 42 children with intellectual disabi…
View article: Altered vertebral biomechanical properties in prostate cancer patients following androgen deprivation therapy
Altered vertebral biomechanical properties in prostate cancer patients following androgen deprivation therapy Open
Androgen deprivation therapy (ADT) for localised and metastatic prostate cancer (PCa) is known to improve survival in patients but has been associated with negative long-term impacts on the skeleton, including decreased bone mineral densit…
View article: The Child’s Voice in Adult-Led Healthcare Research: One Child Doesn’t Fit All!
The Child’s Voice in Adult-Led Healthcare Research: One Child Doesn’t Fit All! Open
The involvement of children and young people themselves, rather than that of their caregivers, in healthcare research that affects them, has increasingly been recognized as essential. However, the significance of children and young people …
View article: Exploring Experiences and Designing Guidance for Involving and Engaging Children and Young People in James Lind Alliance Priority Setting Partnerships
Exploring Experiences and Designing Guidance for Involving and Engaging Children and Young People in James Lind Alliance Priority Setting Partnerships Open
Introduction Setting research priorities together with children and young people (CYP) in James Lind Alliance (JLA) Priority Setting Partnerships (PSPs) is an example of involving CYP from the beginning of the research process. In these PS…
View article: The Forgotten Voices: Enabling Children and Young People With Intellectual Disability to Express Their Views on Their Inpatient Hospital Experience
The Forgotten Voices: Enabling Children and Young People With Intellectual Disability to Express Their Views on Their Inpatient Hospital Experience Open
Background The importance of enabling patients to provide feedback on their experience of healthcare is widely accepted but there are few appropriate measures to enable children and young people to directly provide feedback, particularly t…
View article: Bringing Young People, Health and Social Care Professionals, Transition Champions and Policymakers Together Through Hybrid Methods of Participation: Creating a Space for Shared Understanding of What Is Required to Improve Young People's Healthcare Transition
Bringing Young People, Health and Social Care Professionals, Transition Champions and Policymakers Together Through Hybrid Methods of Participation: Creating a Space for Shared Understanding of What Is Required to Improve Young People's Healthcare Transition Open
Introduction A multi‐stakeholder conference was held in 2023, celebrating the achievements of the Burdett National Transition Nursing Network (BNTNN). The BNTNN had been implemented across England in 2020 to map the current state of young …
View article: Admission to acute medical wards for mental health concerns among children and young people in England from 2012 to 2022: a cohort study
Admission to acute medical wards for mental health concerns among children and young people in England from 2012 to 2022: a cohort study Open
National Institute for Health and Care Research.
View article: Symptom appraisal and help- seeking before a cancer diagnosis during pregnancy: a qualitative study
Symptom appraisal and help- seeking before a cancer diagnosis during pregnancy: a qualitative study Open
Background The estimated incidence of a cancer diagnosis during or shortly after pregnancy is 1 in 1000 pregnancies in England. Pregnancy can have an impact on symptom appraisal and help-seeking for symptoms subsequently diagnosed as cance…
View article: ‘That’s kind of under my work blanket’—redeployment experiences of children’s hospital staff during the covid-19 pandemic: a qualitative interview study
‘That’s kind of under my work blanket’—redeployment experiences of children’s hospital staff during the covid-19 pandemic: a qualitative interview study Open
Background During COVID-19 pandemic, a rapid readjustment to continued delivery of healthcare was required. Redeployment is an intentional process to mobilise human resources by reassigning a healthcare worker to a new role or new work loc…
View article: Exploring parent treatment decision-making in relapsed and refractory neuroblastoma: A qualitative study
Exploring parent treatment decision-making in relapsed and refractory neuroblastoma: A qualitative study Open
Parents often become involved in making treatment decisions for their child with cancer when there is no standard treatment protocol, typically seen in poor-prognosis cancers. Advances in scientific medicine has led to more treatment optio…
View article: Survey of international pediatric nutritional supportive care practices: a report from the Pediatric Study Group of the Multinational Association of Supportive Care in Cancer (MASCC)
Survey of international pediatric nutritional supportive care practices: a report from the Pediatric Study Group of the Multinational Association of Supportive Care in Cancer (MASCC) Open
Purpose Malnutrition is common in children with cancer. While multiple validated malnutrition screens exist, there is no universal, standardized approach to screen or diagnose malnutrition. The Multinational Association of Supportive Care …
View article: Designing, Developing, and Testing a Chatbot for Parents and Caregivers of Children and Young People With Rheumatological Conditions (the IMPACT Study): Protocol for a Co-Designed Proof-of-Concept Study
Designing, Developing, and Testing a Chatbot for Parents and Caregivers of Children and Young People With Rheumatological Conditions (the IMPACT Study): Protocol for a Co-Designed Proof-of-Concept Study Open
Background Pediatric rheumatology is a term that encompasses over 80 conditions affecting different organs and systems. Children and young people with rheumatological chronic conditions are known to have high levels of mental health proble…
View article: Admissions to paediatric medical wards with a primary mental health diagnosis: a systematic review of the literature
Admissions to paediatric medical wards with a primary mental health diagnosis: a systematic review of the literature Open
Objective To systematically review the literature describing children and young people (CYP) admissions to paediatric general wards because of primary mental health (MH) reasons, particularly in MH crisis. Design PubMed, Embase, PsycINFO, …
View article: Designing, Developing, and Testing a Chatbot for Parents and Caregivers of Children and Young People With Rheumatological Conditions (the IMPACT Study): Protocol for a Co-Designed Proof-of-Concept Study (Preprint)
Designing, Developing, and Testing a Chatbot for Parents and Caregivers of Children and Young People With Rheumatological Conditions (the IMPACT Study): Protocol for a Co-Designed Proof-of-Concept Study (Preprint) Open
BACKGROUND Pediatric rheumatology is a term that encompasses over 80 conditions affecting different organs and systems. Children and young people with rheumatological chronic conditions are known to have high levels of mental health probl…
View article: One Tube Does Not Fit All: Parent Experiences and Decision-Making for Choosing a Nasogastric Tube or Gastrostomy for Their Child During Allogeneic Bone Marrow Transplant
One Tube Does Not Fit All: Parent Experiences and Decision-Making for Choosing a Nasogastric Tube or Gastrostomy for Their Child During Allogeneic Bone Marrow Transplant Open
Background: Children undergoing bone marrow transplant (BMT) are at risk of developing malnutrition. A feeding tube becomes a requirement for most children to meet their nutritional and medication requirements. Two tubes are typically used…
View article: Transition of young people from children’s into adults’ services: what works for whom and in what circumstances – protocol for a realist synthesis
Transition of young people from children’s into adults’ services: what works for whom and in what circumstances – protocol for a realist synthesis Open
Introduction The process of transitioning young people from children’s or adolescents’ health services into adults’ services is a crucial time in the lives and health of young people and has been reported to be disjointed rather than a pro…
View article: Mental Health Admissions to Paediatric Wards Study (MAPS): a protocol for the analysis of Hospital Episode Statistics (HES) data
Mental Health Admissions to Paediatric Wards Study (MAPS): a protocol for the analysis of Hospital Episode Statistics (HES) data Open
Introduction Children and young people (CYP) presenting with a mental health (MH) crisis are frequently admitted to general acute paediatric wards as a place of safety. Prior to the pandemic, a survey in England showed that CYP occupied 6%…
View article: Mental Health Admissions to Paediatric Wards Study (MAPS): protocol of a prospective study of mental health admissions to paediatric wards in England using surveillance and qualitative methods
Mental Health Admissions to Paediatric Wards Study (MAPS): protocol of a prospective study of mental health admissions to paediatric wards in England using surveillance and qualitative methods Open
Introduction Children and young people (CYP) presenting with a mental health (MH) crisis are frequently admitted to general acute paediatric wards as a place of safety. Prior to the pandemic, a survey in England showed that CYP occupied 6%…
View article: A systematic review of early phase studies for children and young people with relapsed and refractory rhabdomyosarcoma: The <scp>REFoRMS‐SR</scp> project
A systematic review of early phase studies for children and young people with relapsed and refractory rhabdomyosarcoma: The <span>REFoRMS‐SR</span> project Open
Rhabdomyosarcoma is the commonest soft tissue sarcoma in children. Around one‐third of children with rhabdomyosarcoma experience relapse or have refractory disease, which is associated with a poor prognosis. This systematic review of early…
View article: Experiences and Unmet Needs of Adolescent and Young Adult Survivors of a Brain Tumor (Aged 15–39 Years)
Experiences and Unmet Needs of Adolescent and Young Adult Survivors of a Brain Tumor (Aged 15–39 Years) Open
Background Brain tumors account for 15% of all adolescent and young adult cancers, and survivors are at risk of ongoing late effects that can severely impact their ability to reach independence. Despite follow-up initiatives advocating a p…