Joan K. Morris
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View article: Methodological and Procedural Considerations for Developing Decision Analytic Models to Assess the Health Economic Impacts of Newborn Bloodspot Screening: A Systematic Methodological Review
Methodological and Procedural Considerations for Developing Decision Analytic Models to Assess the Health Economic Impacts of Newborn Bloodspot Screening: A Systematic Methodological Review Open
This methodological review identifies challenges in the development of health economic evaluations of newborn bloodspot screening (NBS) interventions and their consideration in NBS policy making. A systematic review of health economics met…
View article: Identification of gestational diabetes mellitus in European electronic healthcare databases: insights from the ConcePTION project
Identification of gestational diabetes mellitus in European electronic healthcare databases: insights from the ConcePTION project Open
Objective To develop and compare algorithms for identifying gestational diabetes mellitus (GDM) across European electronic healthcare databases and evaluate their impact on the estimated prevalence. Design Multi-national cohort study using…
View article: Support Needs of Parents of Children With Congenital Anomalies Across Europe: A EUROlinkCAT Survey
Support Needs of Parents of Children With Congenital Anomalies Across Europe: A EUROlinkCAT Survey Open
Background Parents and carers of children with congenital anomalies can experience stress when managing their child's healthcare needs. It is important that they are well supported. This study explored the support needs of parents/carers o…
View article: The Effect of Different Algorithms on Prevalence of Attention Deficit Hyperactivity Disorder and Autism Spectrum Disorder in Secondary Healthcare Data in Five European Countries: A Contribution from the ConcePTION Project
The Effect of Different Algorithms on Prevalence of Attention Deficit Hyperactivity Disorder and Autism Spectrum Disorder in Secondary Healthcare Data in Five European Countries: A Contribution from the ConcePTION Project Open
To assess the effect on prevalence estimates of using different algorithms to identify children with attention deficit hyperactivity disorder (ADHD) and autism spectrum disorder (ASD) in healthcare data. Three algorithms were developed and…
View article: Risk factors for hospital admission and length of stay for children with and without congenital anomalies: a EUROlinkCAT cohort study
Risk factors for hospital admission and length of stay for children with and without congenital anomalies: a EUROlinkCAT cohort study Open
Objective To evaluate risk factors for hospital admission and length of stay (LOS) among children with and without congenital anomalies (CAs). Design A population-based linkage cohort study including 50 353 children with major CAs and 1 25…
View article: Water Resources in the Gulf Cooperation Council Countries
Water Resources in the Gulf Cooperation Council Countries Open
This rapid bibliography summarises key literature on the sustainability of the GCC’s water resources. The paper covers four themes: the overall sustainability of existing water resources; issues of inequality of access to water; transbound…
View article: Methods of estimating prevalence of multiple sclerosis in six European healthcare data sources: a contribution from the ConcePTION project
Methods of estimating prevalence of multiple sclerosis in six European healthcare data sources: a contribution from the ConcePTION project Open
Multiple sclerosis (MS) is a chronic autoimmune condition primarily affecting women and often diagnosed during childbearing years. This study assessed the impact of the lookback period and calculation method on MS prevalence in three healt…
View article: The EUROmediCAT network and databases: a resource for pharmacovigilance in pregnancy Short running title: The EUROmediCAT network and databases
The EUROmediCAT network and databases: a resource for pharmacovigilance in pregnancy Short running title: The EUROmediCAT network and databases Open
View article: Identifying multiple sclerosis in women of childbearing age in six European countries: a contribution from the ConcePTION project
Identifying multiple sclerosis in women of childbearing age in six European countries: a contribution from the ConcePTION project Open
View article: Educational attainment of children with major congenital anomalies during primary school in England: a population cohort study using linked administrative data from ECHILD
Educational attainment of children with major congenital anomalies during primary school in England: a population cohort study using linked administrative data from ECHILD Open
Background Major congenital anomalies (CAs) occur in 2.3% of livebirths and are associated with lower educational attainment in affected children. Understanding how attainment changes throughout primary school would inform parents, schools…
View article: Identifying Maternal Conditions Leading to Gabapentinoid Prescriptions in Pregnancy Using Electronic Health Records from Six European Countries: A Contribution from the IMI ConcePTION Project
Identifying Maternal Conditions Leading to Gabapentinoid Prescriptions in Pregnancy Using Electronic Health Records from Six European Countries: A Contribution from the IMI ConcePTION Project Open
Our study provides valuable insights into gabapentinoid use during pregnancy, with anxiety being the most common condition among pregnant women with gabapentinoid prescriptions in Finland, Italy, Spain, and Wales, whereas neuropathic pain …
View article: Morbidity in children with major kidney anomalies: a European population-based study
Morbidity in children with major kidney anomalies: a European population-based study Open
View article: Health outcomes of children with Prader-Willi or Angelman syndromes: a European population-based multicentre study
Health outcomes of children with Prader-Willi or Angelman syndromes: a European population-based multicentre study Open
Background/aim Prader-Willi syndrome (PWS) and Angelman syndrome (AS) are rare imprinting disorders caused by the aberrant expression of 15q11.2-q13 imprinted genes. Due to their rarity, data on health outcomes during infancy are limited. …
View article: Influenza vaccination during early pregnancy and risk of major birth defects, US Birth Defects Study To Evaluate Pregnancy exposureS, 2014–2019
Influenza vaccination during early pregnancy and risk of major birth defects, US Birth Defects Study To Evaluate Pregnancy exposureS, 2014–2019 Open
View article: Health outcomes and drug utilisation in children with Noonan syndrome: a European cohort study
Health outcomes and drug utilisation in children with Noonan syndrome: a European cohort study Open
Background Noonan Syndrome (NS) is a rare multisystemic disorder with heterogeneous phenotypic manifestations. The aim of this study was to analyse rates of survival, hospitalisation, surgeries and prescriptions in children born with NS in…
View article: Blood folate level needed for fully effective fortification in the prevention of neural tube defects
Blood folate level needed for fully effective fortification in the prevention of neural tube defects Open
Objective Neural tube defects (NTDs) are a preventable folate deficiency disorder; increasing folic acid intake through food fortification increases serum and red blood cell folate and reduces the risk of an NTD pregnancy. There is controv…
View article: Use of signal detection methods to identify associations between prenatal medication exposure and subsequent childhood cancers: a Nordic hypothesis-generating registry-based study
Use of signal detection methods to identify associations between prenatal medication exposure and subsequent childhood cancers: a Nordic hypothesis-generating registry-based study Open
The IC may be the most appropriate method for identifying signals within this type of data. Reported signals should not be considered sufficient evidence of causal association and must be followed-up by tailored investigations that conside…
View article: The Healthcare Needs of Children With Down Syndrome in the First Year of Life: An Analysis of the <scp>EUROlinkCAT</scp> Data Linkage Study
The Healthcare Needs of Children With Down Syndrome in the First Year of Life: An Analysis of the <span>EUROlinkCAT</span> Data Linkage Study Open
Background Globally, Down syndrome is the most common chromosomal anomaly, often co‐occurring with cardiac or gastrointestinal anomalies. There is a lack of robust data on specific healthcare needs of children with Down syndrome compared t…
View article: Recommendations for Improving Surveillance of Congenital Anomalies in Europe Using Healthcare Databases
Recommendations for Improving Surveillance of Congenital Anomalies in Europe Using Healthcare Databases Open
Background Although accessing administrative data in healthcare databases may be a more time‐efficient and cost‐effective method of conducting surveillance, there is evidence suggesting that administrative data alone are not sufficient for…
View article: The effect of haemoglobin and blood transfusion on preterm infant gut perfusion and injury
The effect of haemoglobin and blood transfusion on preterm infant gut perfusion and injury Open
Introduction There is significant uncertainty regarding the role that anaemia or red blood cell transfusion (RBCT) plays in the development of gut injury in preterm infants. This study evaluated Near Infrared Spectroscopy (NIRS) together w…
View article: Children with <scp>Hirschsprung's</scp> disease have high morbidity in the first 5 years of life
Children with <span>Hirschsprung's</span> disease have high morbidity in the first 5 years of life Open
Background Hirschsprung's disease is a rare congenital anomaly of the colon with absence of the ganglionic nerve cells. The treatment of the anomaly is surgical. Methods This population‐based data‐linkage cohort study was part of the EUROl…
View article: A multidisciplinary and structured investigation of three suspected clusters of transverse upper limb reduction defects in France
A multidisciplinary and structured investigation of three suspected clusters of transverse upper limb reduction defects in France Open
View article: Facilitators and barriers to vaccination uptake in pregnancy: A qualitative systematic review
Facilitators and barriers to vaccination uptake in pregnancy: A qualitative systematic review Open
Introduction Vaccination during pregnancy protects both the mother and the foetus from vaccine-preventable diseases. However, uptake of the recommended vaccines (influenza, pertussis, COVID-19) by pregnant women remains low in Europe and t…
View article: Comparing screening based on the NHS Health Check and Polypill Prevention Programmes in the primary prevention of heart attacks and strokes
Comparing screening based on the NHS Health Check and Polypill Prevention Programmes in the primary prevention of heart attacks and strokes Open
Objective To compare the NHS Health Check Programme with the Polypill Prevention Programme in the primary prevention of heart attacks and strokes. Design Use of published data and methodology to produce flow charts of the two programmes to…
View article: The polypill in the primary prevention of heart attacks and strokes: Overcoming barriers to implementation
The polypill in the primary prevention of heart attacks and strokes: Overcoming barriers to implementation Open
This commentary, linked to our paper in the same issue of the Journal of Medical Screening, discusses the reluctance to consider and adopt the polypill in the primary prevention of heart attacks and strokes, access to the polypill as a pub…
View article: The Association of Prenatal Diagnoses with Mortality and Long-Term Morbidity in Children with Specific Isolated Congenital Anomalies: A European Register-Based Cohort Study
The Association of Prenatal Diagnoses with Mortality and Long-Term Morbidity in Children with Specific Isolated Congenital Anomalies: A European Register-Based Cohort Study Open
View article: Hospital care in the first 10 years of life of children with congenital anomalies in six European countries: data from the EUROlinkCAT cohort linkage study
Hospital care in the first 10 years of life of children with congenital anomalies in six European countries: data from the EUROlinkCAT cohort linkage study Open
Objective To quantify the hospital care for children born with a major congenital anomaly up to 10 years of age compared with children without a congenital anomaly. Design, setting and patients 79 591 children with congenital anomalies and…
View article: Higher risk of cerebral palsy, seizures/epilepsy, visual‐ and hearing impairments, cancer, injury and child abuse in children with congenital anomalies: Data from the EUROlinkCAT study
Higher risk of cerebral palsy, seizures/epilepsy, visual‐ and hearing impairments, cancer, injury and child abuse in children with congenital anomalies: Data from the EUROlinkCAT study Open
Aim The aim is to examine the risk of cerebral palsy, seizures/epilepsy, visual‐ and hearing impairments, cancer, injury/poisoning and child abuse in children with and without a congenital anomaly up to age 5 and 10 years. Methods This is …
View article: Academic achievement at ages 11 and 16 in children born with congenital anomalies in England: A multi‐registry linked cohort study
Academic achievement at ages 11 and 16 in children born with congenital anomalies in England: A multi‐registry linked cohort study Open
Background Children born with major congenital anomalies (CAs) have lower academic achievement compared with their peers, but the existing evidence is restricted to a number of specific CAs. Objectives To investigate academic outcomes at a…
View article: Updated <scp>EUROCAT</scp> guidelines for classification of cases with congenital anomalies
Updated <span>EUROCAT</span> guidelines for classification of cases with congenital anomalies Open
Background Precise and correct classification of congenital anomalies is important in epidemiological studies, not only to classify according to etiology but also to group similar congenital anomalies together, to create homogeneous subgro…