John MacArtney
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View article: Time, distress and the social good of palliative medicine research participation
Time, distress and the social good of palliative medicine research participation Open
Research involving patients is often subject to demanding ethical review processes to protect research participants and prevent harm or fraud. While having a robust ethical approval process is necessary, in practice, within palliative care…
View article: Further development of a patient-reported outcome measure to assess the impact of oral secretion problems in people living with MND
Further development of a patient-reported outcome measure to assess the impact of oral secretion problems in people living with MND Open
Objective: Oral secretion problems are common yet poorly managed in people living with MND (plwMND). A validated patient-reported outcome for measuring saliva symptoms in this patient group would facilitate better monitoring of individuals…
View article: Experiences of hospice staff beyond the frontlines during COVID-19: A qualitative secondary analysis study
Experiences of hospice staff beyond the frontlines during COVID-19: A qualitative secondary analysis study Open
Background: The COVID-19 pandemic presented different challenges and work pressures for hospice staff. Staff who continued to work during the emergency public health period had to redefine not only their norms at work, but also the norms o…
View article: An interpretative qualitative case study of a Compassionate Cities initiative in the United Kingdom: Lessons for implementation in other settings
An interpretative qualitative case study of a Compassionate Cities initiative in the United Kingdom: Lessons for implementation in other settings Open
Objectives Compassionate Cities are a novel approach to health-promotive palliative care that uses a population-based approach to promote health and encourage its citizens to act with confidence to help others during death, dying, or berea…
View article: Videoconferencing support groups for people affected by dementia: a systematic narrative review
Videoconferencing support groups for people affected by dementia: a systematic narrative review Open
Videoconferencing support groups can be beneficial for caregivers of people living with dementia, especially when groups meet frequently and provide some manner of IT support. More research is needed to understand the potential benefits of…
View article: Setting Regional Priorities for Palliative and End-of-Life Care Research Using a Delphi Technique Approach
Setting Regional Priorities for Palliative and End-of-Life Care Research Using a Delphi Technique Approach Open
Objective Identifying research priorities is very important for palliative and end-of-life care to ensure research is focused on evidence gaps. This project aimed to identify and prioritise palliative and end-of-life care research areas wi…
View article: Improving patients’, carers’ and primary care healthcare professionals’ experiences of discharge communication from specialist palliative care to community settings: a protocol for a qualitative interview study
Improving patients’, carers’ and primary care healthcare professionals’ experiences of discharge communication from specialist palliative care to community settings: a protocol for a qualitative interview study Open
Background Patients who have benefited from specialist intervention during periods of acute/complex palliative care needs often transition from specialist-to-primary care once such needs have been controlled. Effective communication betwee…
View article: What socio-cultural, emotional and relational factors shape older people's experiences of death and dying in residential aged care? A scoping review
What socio-cultural, emotional and relational factors shape older people's experiences of death and dying in residential aged care? A scoping review Open
Research internationally has revealed a range of medical and health-related issues that shape care at the end of life for people living in residential aged care facilities (RACFs), their families and the staff who care for them. Yet, less …
View article: A mixed-methods systematic review investigating the use of digital health interventions to provide palliative and end-of-life care for patients in low- and middle-income countries
A mixed-methods systematic review investigating the use of digital health interventions to provide palliative and end-of-life care for patients in low- and middle-income countries Open
Background: The need for palliative care is rising globally with 76% of those who are in need living in low- and middle-income countries (LMICs). Digital health interventions (DHIs) have been identified as a means of making palliative care…
View article: “Backlash!”? A qualitative exploration of hospice palliative care staff’s ongoing experiences of “living with covid”
“Backlash!”? A qualitative exploration of hospice palliative care staff’s ongoing experiences of “living with covid” Open
Background: “Living with covid” has meant that the SARS-CoV-2 virus has become a background concern for many in the United Kingdom. However, people with terminal conditions remain some of those at higher risk of Covid-19 affecting the qual…
View article: Grieving academic grant rejections: Examining funding failure and experiences of loss
Grieving academic grant rejections: Examining funding failure and experiences of loss Open
Bidding for research funding has increasingly become a main feature of academic work from the doctoral level and beyond. Individually and collectively, the process of grant writing – from idea conceptualisation to administration – involves…
View article: P-58 The role of the men’s shed in a hospice day service context: identifying features of a successful group and developing recommendations to expand the service
P-58 The role of the men’s shed in a hospice day service context: identifying features of a successful group and developing recommendations to expand the service Open
Background Historically hospices have often struggled to reach men who have a life-limiting illness, or who care or cared for ill partners. Gender specific peer support has been identified as one way to promote men's health and well-being …
View article: “Palliative care is so much more than that”: a qualitative study exploring experiences of hospice staff and bereaved carers during the COVID-19 pandemic
“Palliative care is so much more than that”: a qualitative study exploring experiences of hospice staff and bereaved carers during the COVID-19 pandemic Open
Background The way in which end-of-life care was provided changed significantly during the first 2 years of the COVID-19 pandemic. The national lockdown restrictions reduced formal care support services and increased the burden on many car…
View article: Healthcare professionals’ perspectives of the management of people with palliative care needs in the Emergency Department of a UK hospital
Healthcare professionals’ perspectives of the management of people with palliative care needs in the Emergency Department of a UK hospital Open
Background: The Emergency Department (ED) is not always the optimal place for people with palliative care needs but is the most common route for treatment when urgent care is sought. The aim of this study,’'REasons for PalLIative Care Admi…
View article: The perceived value of bereavement support and the impact of inequalities on availability and access: Accessing bereavement support
The perceived value of bereavement support and the impact of inequalities on availability and access: Accessing bereavement support Open
Significant social and healthcare inequalities exist in the provision and access to bereavement services. An aging population and the deaths related to the Covid-19 pandemic mean that more people are experiencing bereavement. This has acce…
View article: The emotional effects on professional interpreters of interpreting palliative care conversations for adult patients: A rapid review
The emotional effects on professional interpreters of interpreting palliative care conversations for adult patients: A rapid review Open
Background: Professional interpreters working in palliative contexts improve patient care. Whilst literature identifies psychological distress in other healthcare professionals, research into emotional effects on professional interpreters …
View article: 86 The emotional impact on professional healthcare interpreters of interpreting palliative care conversations for adult patients: a rapid review
86 The emotional impact on professional healthcare interpreters of interpreting palliative care conversations for adult patients: a rapid review Open
Background Professional healthcare interpreters improve patient outcomes for patients with Limited English Proficiency, both in and outside of palliative care. Healthcare professionals working within palliative care are at risk of psycholo…
View article: Challenges experienced by GPs when providing palliative care in the UK: a systematic qualitative literature review
Challenges experienced by GPs when providing palliative care in the UK: a systematic qualitative literature review Open
Background GPs in the UK will face increased palliative care demands in the coming years. Understanding what makes providing palliative care difficult for GPs is an important step to planning future services, but currently there is an abse…
View article: Online support groups for carers of people living with dementia: An investigation of videoconferencing support groups in lockdown
Online support groups for carers of people living with dementia: An investigation of videoconferencing support groups in lockdown Open
Background This study aimed to explore the experiences of carers of people living with dementia who participated in videoconferencing support groups during the COVID-19 pandemic to investigate their preferences and experiences with online,…
View article: The impact of Covid-19 pandemic on hospices: A systematic integrated review and synthesis of recommendations for policy and practice
The impact of Covid-19 pandemic on hospices: A systematic integrated review and synthesis of recommendations for policy and practice Open
Background: The Covid-19 pandemic resulted in the development of numerous recommendations for practice and policy for specialist palliative care provided by hospices in United Kingdom (UK), as hospices were significantly affected by the pa…
View article: 18 Accessing bereavement support: a secondary analysis of UK commission on bereavement (UKCB) evidence
18 Accessing bereavement support: a secondary analysis of UK commission on bereavement (UKCB) evidence Open
Introduction There are significant social and healthcare inequalities in the provision and access to bereavement services. With the increase in deaths and experiences of bereavement, the Covid-19 pandemic accelerated the need to address th…
View article: Pandemic delay: social implications and challenges for palliative care
Pandemic delay: social implications and challenges for palliative care Open
The COVID-19 pandemic has profoundly affected the provision of palliative care, as it has health services and systems more broadly. Aside from the morbidity and mortality caused by the severe acute respiratory syndrome coronavirus 2 (SARS-…
View article: 38 Access to palliative care by people from South Asian communities in the UK: a qualitative study using Narrative Inquiry
38 Access to palliative care by people from South Asian communities in the UK: a qualitative study using Narrative Inquiry Open
Introduction Access to palliative care improves patient outcomes and reduces inappropriate hospital admissions. People from diverse and minoritised ethnic groups may have less access to specialist palliative care services. There is limited…
View article: P-126 The role of the Men’s Shed in a hospice day service context: Identifying features of a successful group and developing recommendations to expand the service
P-126 The role of the Men’s Shed in a hospice day service context: Identifying features of a successful group and developing recommendations to expand the service Open
Background Hospices are an important hub for communities and can provide places for peer support. However, historically hospices have often struggled to reach men who have a life-limiting illness, or who care or cared for ill partners. Gen…
View article: The impact of Covid-19 pandemic on hospices: A systematic integrated review and synthesis of recommendations for policy and practice
The impact of Covid-19 pandemic on hospices: A systematic integrated review and synthesis of recommendations for policy and practice Open
Background: The Covid-19 pandemic resulted in the development of numerous recommendations for practice and policy for specialist palliative care provided by hospices in United Kingdom (UK), as hospices were significantly affected by the pa…
View article: The Experiences of Informal Carers during the COVID-19 Pandemic: A Qualitative Systematic Review
The Experiences of Informal Carers during the COVID-19 Pandemic: A Qualitative Systematic Review Open
Objectives: To identify, critically appraise and synthesise the qualitative literature on the experiences of informal carers of people with long-term conditions during the COVID-19 pandemic. Design: A qualitative systematic literature revi…