Jonas Moll
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Explainable deep learning based techniques for ECG-Based heart disease classification: A systematic literature review and future direction Open
A considerable amount of XAI-based DL architectures were identified for the classification of ECG-based HD. The techniques frequently selected by these studies have potential limitations such as data standardization, inconsistent explainab…
View article: Adult Proxy Online Record Access – Differences Across Four Countries
Adult Proxy Online Record Access – Differences Across Four Countries Open
Patients’ online record access (ORA) enables patients to involve their informal caregivers in care management by sharing health information, either through proxy access functionality or informally. The European Health Data Space mandates t…
View article: Evolving Perspectives on Patient-Accessible Electronic Health Records: A Comparative Study of National Patient Surveys in Sweden (Preprint)
Evolving Perspectives on Patient-Accessible Electronic Health Records: A Comparative Study of National Patient Surveys in Sweden (Preprint) Open
BACKGROUND Patient accessible electronic health records (PAEHRs) aim to enhance patient engagement by providing access to clinical information, thus strengthening patient-clinician relationships. In Sweden, implementation of a national PA…
View article: Impact of healthcare education on preferences for electronic health records: Results from national survey of patient users in Sweden
Impact of healthcare education on preferences for electronic health records: Results from national survey of patient users in Sweden Open
Electronic health records (EHR) are continuously evolving to better meet user needs, but the process is complicated by healthcare professionals and patients often disagreeing on priority areas of development. While this may be due to diffe…
View article: A Nordic Perspective on Patient Online Record Access and the European Health Data Space
A Nordic Perspective on Patient Online Record Access and the European Health Data Space Open
The Nordic countries are, together with the United States, forerunners in online record access (ORA), which has now become widespread. The importance of accessible and structured health data has also been highlighted by policy makers inter…
Sociotechnical Cross-Country Analysis of Contextual Factors That Impact Patients’ Access to Electronic Health Records in 4 European Countries: Framework Evaluation Study Open
Background The NORDeHEALTH project studies patient-accessible electronic health records (PAEHRs) in Estonia, Finland, Norway, and Sweden. Such country comparisons require an analysis of the sociotechnical context of these services. Althoug…
View article: Adolescents’ reasons for accessing their health records online, perceived usefulness and experienced provider encouragement: a national survey in Sweden
Adolescents’ reasons for accessing their health records online, perceived usefulness and experienced provider encouragement: a national survey in Sweden Open
Background Having online access to electronic health records (EHRs) may help patients become engaged in their care at an early age. However, little is known about adolescents using patient portals. A national survey conducted within the No…
Security and Privacy of Online Record Access: A Survey of Adolescents' Views and Experiences in Sweden Open
In this national survey, adolescents generally reported few concerns about patient portals. Findings emphasize the need for security and privacy protection and to empower adolescents with greater control over access to their health informa…
View article: Adolescents’ and Young Adults’ Experiences of Offense from Reading Their Health Records Online
Adolescents’ and Young Adults’ Experiences of Offense from Reading Their Health Records Online Open
Patients feeling offended by reading records online is a concern among healthcare professionals, however previously published work has focused on adult patients. Here, a survey was used to explore and compare experiences of offense among a…
View article: Affordance trajectories and the usefulness of online records access among older adults in Sweden
Affordance trajectories and the usefulness of online records access among older adults in Sweden Open
Objective The current understanding of the breadth of individual differences in how eHealth technologies are perceived as useful for different purposes is incomprehensive. The aim/purpose of the study is to improve the understanding of div…
Sociotechnical Cross-Country Analysis of Contextual Factors That Impact Patients’ Access to Electronic Health Records in 4 European Countries: Framework Evaluation Study (Preprint) Open
BACKGROUND The NORDeHEALTH project studies patient-accessible electronic health records (PAEHRs) in Estonia, Finland, Norway, and Sweden. Such country comparisons require an analysis of the sociotechnical context of these services. Althou…
Experiences of Patients With Mental Health Issues Having Web-Based Access to Their Records: National Patient Survey Open
Background Sharing mental health notes through patient accessible electronic health records (PAEHRs) is controversial. Many psychiatric organizations and regions in Sweden have resisted the implementation, as clinicians worry about possibl…
View article: The NORDeHEALTH 2022 Patient Survey: Cross-Sectional Study of National Patient Portal Users in Norway, Sweden, Finland, and Estonia
The NORDeHEALTH 2022 Patient Survey: Cross-Sectional Study of National Patient Portal Users in Norway, Sweden, Finland, and Estonia Open
Background Although many surveys have been conducted on patients accessing their own health records in recent years, there is a limited amount of nationwide cross-country data available on patients’ views and preferences. To address this g…
Errors, Omissions, and Offenses in the Health Record of Mental Health Care Patients: Results from a Nationwide Survey in Sweden Open
Background Previous research reports that patients with mental health conditions experience benefits, for example, increased empowerment and validation, from reading their patient-accessible electronic health records (PAEHRs). In mental he…
A point with pointsification? clarifying and separating pointsification from gamification in education Open
Gamification gained popularity in the 2010s, with educational professionals quickly adopting it as a way to transfer the motivational effects of games to a learning situation. However, the rapid implementation of gamification without prope…
View article: A Nordic Perspective on Patient Online Record Access and the European Health Data Space (Preprint)
A Nordic Perspective on Patient Online Record Access and the European Health Data Space (Preprint) Open
UNSTRUCTURED The Nordic countries are, together with the United States, forerunners in online record access (ORA), which has now become widespread. The importance of accessible and structured health data has also been highlighted by polic…
Experiences of Patients With Mental Health Issues Having Web-Based Access to Their Records: National Patient Survey (Preprint) Open
BACKGROUND Sharing mental health notes through patient accessible electronic health records (PAEHRs) is controversial. Many psychiatric organizations and regions in Sweden have resisted the implementation, as clinicians worry about possib…
Errors, Omissions, and Offenses in the Health Record of Mental Health Care Patients: Results from a Nationwide Survey in Sweden (Preprint) Open
BACKGROUND Previous research reports that patients with mental health conditions experience benefits, for example, increased empowerment and validation, from reading their patient-accessible electronic health records (PAEHRs). In mental h…
View article: The NORDeHEALTH 2022 Patient Survey: Cross-Sectional Study of National Patient Portal Users in Norway, Sweden, Finland, and Estonia (Preprint)
The NORDeHEALTH 2022 Patient Survey: Cross-Sectional Study of National Patient Portal Users in Norway, Sweden, Finland, and Estonia (Preprint) Open
BACKGROUND Although many surveys have been conducted on patients accessing their own health records in recent years, there is a limited amount of nationwide cross-country data available on patients’ views and preferences. To address this …
View article: Adolescents’ Experiences and Opinions of Web-Based Access to Electronic Health Records: A National Patient Survey in Sweden (Preprint)
Adolescents’ Experiences and Opinions of Web-Based Access to Electronic Health Records: A National Patient Survey in Sweden (Preprint) Open
BACKGROUND If, how, and when to provide adolescents with access to their electronic health records (EHRs) online is a debated question. However, few studies have investigated adolescents’ experiences of using patient portals, and the lack…
Patients’ Access to Their Psychiatric Records – A Comparison of Four Countries Open
Several Nordic and Baltic countries are forerunners in the digitalization of patient ehealth services and have since long implemented psychiatric records as parts of the ehealth services. There are country-specific differences in what clin…
Minor and Parental Access to Electronic Health Records: Differences Across Four Countries Open
An increasing number of countries are implementing patient access to electronic health records (EHR). However, EHR access for parents, children and adolescents presents ethical challenges of data integrity, and regulations vary across prov…
Do you want to receive bad news through your patient accessible electronic health record? A national survey on receiving bad news in an era of digital health Open
Despite the fact that patient accessible electronic health records (PAEHRs) have been around for many years in several countries, there is a lack of research investigating patient’s preferences for receiving bad news, including through PAE…
Technological and informational frames: explaining age-related variation in the use of patient accessible electronic health records as technology and information Open
Purpose Data from a national patient survey ( N = 1,155) of the Swedish PAEHR “Journalen” users were analysed, and an extended version of the theory of technological frames was developed to explain the variation in the technological and in…
Online electronic healthcare records: Comparing the views of cancer patients and others Open
This study investigates differences in attitudes towards, and experiences with, online electronic health records between cancer patients and patients with other conditions, highlighting what is characteristic to cancer patients. A national…
‘I do not share it with others. No, it’s for me, it’s my care’: On sharing of patient accessible electronic health records Open
This study explores patients’ perspectives on sharing their personal health data, which is traditionally shared through discussions with peers and relatives. However, other possibilities for sharing have emerged through the introduction of…
The Effect of Patient Accessible Electronic Health Records on Communication and Involvement in Care – A National Patient Survey in Sweden Open
During recent years, patient accessible electronic health records (PAEHRs) have been implemented nationally in Sweden, as well as internationally, as a means of supporting patient engagement and shared decision making. Few studies have, ho…
On Patient Accessible Electronic Health Records and the Experienced Effect on the Work Environment of Nurses Open
The work environment for nurses is challenging, and even though new technology has major advantages, it has often also caused new stressors and problems for nurses. When Patient Accessible Electronic Health Records (PAEHR) was introduced i…