Joost F. Swart
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Author Swipe
View article: Effect of time to start of biologic therapy on treatment response in childhood arthritis: Results from the UCAN CAN‐DU study
Effect of time to start of biologic therapy on treatment response in childhood arthritis: Results from the UCAN CAN‐DU study Open
Objective To estimate the effect of time from symptom onset to start of biologic treatment on achieving inactive arthritis within six months in a cohort of juvenile idiopathic arthritis (JIA) patients. Methods The international UCAN CAN‐DU…
View article: Safety, immunogenicity and efficacy of the Shingrix vaccine in immunocompromised varicella zoster virus naïve pediatric patients
Safety, immunogenicity and efficacy of the Shingrix vaccine in immunocompromised varicella zoster virus naïve pediatric patients Open
To our knowledge, this is the first report on the use of Shingrix in VZV-naïve, immunocompromised pediatric patients. Shingrix demonstrated an acceptable safety profile in immunocompromised pediatric patients and elicited a humoral immune …
View article: Juvenile Idiopathic Arthritis and Out-of-Pocket Costs for Medical and Other Health Professional Visits: The UCAN CAN-DU and CURE International Prospective Study
Juvenile Idiopathic Arthritis and Out-of-Pocket Costs for Medical and Other Health Professional Visits: The UCAN CAN-DU and CURE International Prospective Study Open
Objectives To measure out-of-pocket costs related to medical and other health professional visits due to juvenile idiopathic arthritis (JIA). Methods The Canada-Netherlands Personalized Medicine Network in Childhood Arthritis and Rheumatic…
View article: Economic Evaluation of Including Biomarker Testing in the Biologic Therapy Withdrawal Decision-Making Process in Non-Systemic Juvenile Idiopathic Arthritis: The International UCAN CAN-DU and CURE Study
Economic Evaluation of Including Biomarker Testing in the Biologic Therapy Withdrawal Decision-Making Process in Non-Systemic Juvenile Idiopathic Arthritis: The International UCAN CAN-DU and CURE Study Open
Objectives To assess the cost-effectiveness of including biomarker testing in the decision-making process of withdrawing biologic therapy for patients with non-systemic JIA compared to usual care. Methods A health economic model was develo…
View article: How Does Juvenile Idiopathic Arthritis Affect the Employment and Usual Activities of Adolescents? The UCAN CAN-DU and CURE International Prospective Study
How Does Juvenile Idiopathic Arthritis Affect the Employment and Usual Activities of Adolescents? The UCAN CAN-DU and CURE International Prospective Study Open
Objectives To measure changes in work productivity and daily activities of patients with Juvenile idiopathic arthritis (JIA), and explore factors affecting these impacts. Methods The Canada-Netherlands Personalized Medicine Network in Chil…
View article: Development and Qualitative Evaluation of a Decision Support Tool for Withdrawal of Biologic Therapy in Nonsystemic Juvenile Idiopathic Arthritis
Development and Qualitative Evaluation of a Decision Support Tool for Withdrawal of Biologic Therapy in Nonsystemic Juvenile Idiopathic Arthritis Open
Introduction. Limited evidence guides pediatric rheumatologists on when to withdraw biologic therapy in children with juvenile idiopathic arthritis, resulting in wide variation in clinical practice. This study aimed to develop and evaluate…
View article: What Is the Impact of Caregiving on Quality of Life for Parents of Children with Juvenile Idiopathic Arthritis: The UCAN CAN-DU and CURE International Prospective Study
What Is the Impact of Caregiving on Quality of Life for Parents of Children with Juvenile Idiopathic Arthritis: The UCAN CAN-DU and CURE International Prospective Study Open
Objectives To describe the care-related quality of life of caregivers of children with juvenile idiopathic arthritis (JIA). Methods The Canada-Netherlands Personalized Medicine Network in Childhood Arthritis and Rheumatic Diseases (UCAN CA…
View article: How Does Juvenile Idiopathic Arthritis Affect the Work and Usual Activities of Parent Caregivers? The UCAN CAN-DU and CURE International Prospective Study
How Does Juvenile Idiopathic Arthritis Affect the Work and Usual Activities of Parent Caregivers? The UCAN CAN-DU and CURE International Prospective Study Open
Objectives To measure the impact of Juvenile idiopathic arthritis (JIA), on the work productivity and daily activities of caregivers over time, and investigate factors affecting these impacts. Methods The Canada-Netherlands Personalized Me…
View article: When to address fatigue in juvenile idiopathic arthritis during clinical visits based on the JAMAR
When to address fatigue in juvenile idiopathic arthritis during clinical visits based on the JAMAR Open
Objectives Fatigue is a prevalent but overlooked issue among patients with Juvenile Idiopathic Arthritis (JIA) in clinical practice. The internationally widely used Juvenile Arthritis Multidimensional Assessment Report (JAMAR) does not inc…
View article: Impact of Interleukin‐1 Blockade on the Development of Macrophage Activation Syndrome in Still Disease: Incidence and Diagnostic Validity of the <scp>EULAR</scp>/<scp>ACR</scp>/<scp>PRINTO</scp> 2016 <scp>MAS</scp> Classification Criteria
Impact of Interleukin‐1 Blockade on the Development of Macrophage Activation Syndrome in Still Disease: Incidence and Diagnostic Validity of the <span>EULAR</span>/<span>ACR</span>/<span>PRINTO</span> 2016 <span>MAS</span> Classification Criteria Open
Objective To evaluate the applicability of the 2016 European Alliance of Associations for Rheumatology (EULAR)/American College of Rheumatology (ACR)/Paediatric Rheumatology International Trials Organisation (PRINTO) macrophage activation …
View article: Health recommender systems to facilitate collaborative decision-making in chronic disease management: A scoping review
Health recommender systems to facilitate collaborative decision-making in chronic disease management: A scoping review Open
Objective Health recommender systems (HRSs) are increasingly used to complement existing clinical decision-making processes, but their use for chronic diseases remains underexplored. Recognizing the importance of collaborative decision mak…
View article: Safety, Immunogenicity and Efficacy of the Shingrix Vaccine in Immunocompromised Varicella Zoster Virus Naïve Pediatric Patients
Safety, Immunogenicity and Efficacy of the Shingrix Vaccine in Immunocompromised Varicella Zoster Virus Naïve Pediatric Patients Open
View article: Comparison of capillary finger stick and venous blood sampling for 34 routine chemistry analytes: potential for in hospital and remote blood sampling
Comparison of capillary finger stick and venous blood sampling for 34 routine chemistry analytes: potential for in hospital and remote blood sampling Open
Objectives This study examined the comparability of venous and capillary blood samples with regard to routine chemistry analytes. Methods Venous and capillary blood samples were collected from adult patients to assess comparability of alan…
View article: Validation of the EQ-5D-Y-5L parent-proxy version among children with juvenile idiopathic arthritis
Validation of the EQ-5D-Y-5L parent-proxy version among children with juvenile idiopathic arthritis Open
View article: Uncovering the hidden socioeconomic impact of juvenile idiopathic arthritis and paving the way for other rare childhood diseases: an international, cross-disciplinary, patient-centered approach (PAVE Consortium)
Uncovering the hidden socioeconomic impact of juvenile idiopathic arthritis and paving the way for other rare childhood diseases: an international, cross-disciplinary, patient-centered approach (PAVE Consortium) Open
View article: Current treatment in macrophage activation syndrome worldwide: a systematic literature review to inform the METAPHOR project
Current treatment in macrophage activation syndrome worldwide: a systematic literature review to inform the METAPHOR project Open
Objective To assess current treatment in macrophage activation syndrome (MAS) worldwide and to highlight any areas of major heterogeneity of practice. Methods A systematic literature search was performed in both EMBASE and PubMed databases…
View article: Lower hair cortisol concentration in adolescent and young adult patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Q-Fever Fatigue Syndrome compared to controls
Lower hair cortisol concentration in adolescent and young adult patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Q-Fever Fatigue Syndrome compared to controls Open
Lower cortisol concentration can also be observed in the long-term. Lower HCC is not limited to ME/CFS, as it was also observed in QFS. The role of cortisol may differ between these diagnoses and appears to be unrelated to fatigue levels.
View article: Adherence to low-dose methotrexate in children with juvenile idiopathic arthritis using a sensitive methotrexate assay
Adherence to low-dose methotrexate in children with juvenile idiopathic arthritis using a sensitive methotrexate assay Open
Background Low-dose weekly methotrexate (MTX) is the mainstay of treatment in juvenile idiopathic arthritis. Unfortunately, a substantial part of patients has insufficient efficacy of MTX. A potential cause of this inadequate response is s…
View article: Enhanced aortic stiffness in adolescents with chronic disease is associated with decreased left ventricular global longitudinal strain
Enhanced aortic stiffness in adolescents with chronic disease is associated with decreased left ventricular global longitudinal strain Open
View article: Individual outcomes after tailored versus generic self‐management strategies for persistent fatigue in youth with a fatigue syndrome or rheumatic condition: A multiple single‐case study
Individual outcomes after tailored versus generic self‐management strategies for persistent fatigue in youth with a fatigue syndrome or rheumatic condition: A multiple single‐case study Open
Objective To examine individual outcomes after tailored lifestyle (PROfeel) or generic dietary advice as self‐management intervention for persistent fatigue in adolescents and young adults with a chronic condition, to compare participants …
View article: Adherence to low-dose methotrexate in children with juvenile idiopathic arthritis using a sensitive methotrexate assay
Adherence to low-dose methotrexate in children with juvenile idiopathic arthritis using a sensitive methotrexate assay Open
Background: Low-dose weekly methotrexate is the mainstay of treatment in juvenile idiopathic arthritis. Unfortunately, a substantial part of patients has insufficient efficacy of methotrexate. A potential cause of this inadequate response …
View article: Humoral and cellular immunogenicity, effectiveness and safety of COVID-19 mRNA vaccination in patients with pediatric rheumatic diseases: A prospective cohort study
Humoral and cellular immunogenicity, effectiveness and safety of COVID-19 mRNA vaccination in patients with pediatric rheumatic diseases: A prospective cohort study Open
COVID-19 mRNA vaccines were immunogenic (both cellular and humoral), effective and safe in a large cohort of pedAIIRD patients despite their use of immunosuppressive medication.
View article: Quantifying hospital-associated costs, and accompanying travel costs and productivity losses, before and after withdrawing TNF-α inhibitors in juvenile idiopathic arthritis
Quantifying hospital-associated costs, and accompanying travel costs and productivity losses, before and after withdrawing TNF-α inhibitors in juvenile idiopathic arthritis Open
Objective To quantify differences in hospital-associated costs, and accompanying travel costs and productivity losses, before and after withdrawing TNF-α inhibitors (TNFi) in JIA patients. Methods This was a retrospective analysis of prosp…
View article: Targeting persistent fatigue with tailored versus generic self‐management strategies in adolescents and young adults with a fatigue syndrome or rheumatic condition: A randomized crossover trial
Targeting persistent fatigue with tailored versus generic self‐management strategies in adolescents and young adults with a fatigue syndrome or rheumatic condition: A randomized crossover trial Open
Objectives To evaluate the use of two self‐management intervention strategies for persistent fatigue in adolescents and young adults with a fatigue syndrome or rheumatic condition. Design A randomized crossover trial administering tailored…
View article: The impact of the COVID-19 pandemic on pediatric rheumatology practice: an international, cross-sectional survey study
The impact of the COVID-19 pandemic on pediatric rheumatology practice: an international, cross-sectional survey study Open
View article: Managing juvenile idiopathic arthritis within the context of their life: What we learnt from children and youth living with juvenile idiopathic arthritis and their parents
Managing juvenile idiopathic arthritis within the context of their life: What we learnt from children and youth living with juvenile idiopathic arthritis and their parents Open
Introduction Juvenile idiopathic arthritis (JIA) is the most common rheumatic disease in children and causes short‐ and long‐term disability. Optimal management requires pharmacologic and non‐pharmacologic interventions. Few studies have e…
View article: Long-term immunoprotection after live attenuated measles-mumps-rubella booster vaccination in children with juvenile idiopathic arthritis
Long-term immunoprotection after live attenuated measles-mumps-rubella booster vaccination in children with juvenile idiopathic arthritis Open
The MMR booster vaccine demonstrated long-term immunogenicity in the majority of children with JIA from a large cohort, although lower percentages of protective measles antibody levels were observed in bDMARD users. Hence, it might be indi…
View article: Recombinant Interleukin‐1 Receptor Antagonist Is an Effective <scp>First‐Line</scp> Treatment Strategy in <scp>New‐Onset</scp> Systemic Juvenile Idiopathic Arthritis, Irrespective of <scp>HLA‐DRB1</scp> Background and <scp><i>IL1RN</i></scp> Variants
Recombinant Interleukin‐1 Receptor Antagonist Is an Effective <span>First‐Line</span> Treatment Strategy in <span>New‐Onset</span> Systemic Juvenile Idiopathic Arthritis, Irrespective of <span>HLA‐DRB1</span> Background and <span><i>IL1RN</i></span> Variants Open
Objective Human leukocyte antigen (HLA)‐DRB1*15:01 has been recently associated with interstitial lung disease (LD), eosinophilia, and drug reactions in systemic juvenile idiopathic arthritis (sJIA). Additionally, genetic variants in IL1RN…
View article: Withdrawing biologics in non-systemic JIA: what matters to pediatric rheumatologists?
Withdrawing biologics in non-systemic JIA: what matters to pediatric rheumatologists? Open
Objective Approximately one third of children with JIA receive biologic therapy, but evidence on biologic therapy withdrawal is lacking. This study aims to increase our understanding of whether and when pediatric rheumatologists postpone a…
View article: OP0165 LONG-TERM SAFETY OF BIOLOGICS VS CONVENTIONAL SYNTHETIC TREATMENTS IN SYSTEMIC JUVENILE IDIOPATHIC ARTHRITIS PATIENTS
OP0165 LONG-TERM SAFETY OF BIOLOGICS VS CONVENTIONAL SYNTHETIC TREATMENTS IN SYSTEMIC JUVENILE IDIOPATHIC ARTHRITIS PATIENTS Open