Julia Haberstroh
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View article: Project DECIDE II: evaluating the efficacy of supported advance care decision making within routine care in dementia: a randomized controlled trial
Project DECIDE II: evaluating the efficacy of supported advance care decision making within routine care in dementia: a randomized controlled trial Open
Background Dementia is a terminal illness and places significant burden on individuals and their caregivers, especially regarding end-of-life decisions for people with dementia (PwD) who lose their decision-making capacity. Current advance…
View article: Development and validation of the CAT-AD: a competence assessment tool for advance directives
Development and validation of the CAT-AD: a competence assessment tool for advance directives Open
Background This study aimed to validate the Competence Assessment Tool for Advance Directives (CAT-AD), designed to support the assessment and clinical judgment of an individual’s competence to complete an advance directive, particularly i…
View article: Advance directives in German memory clinics
Advance directives in German memory clinics Open
People have the right to accept or refuse medical treatment provided they give voluntary, prior and informed consent. When capacity to consent is impaired, autonomy can be preserved through a clear, legally valid advance directive. Cogniti…
View article: Standardization of criteria in MacCAT‐T and MacCAT‐CR for monoclonal anti–beta‐amyloid antibodies: A Delphi study
Standardization of criteria in MacCAT‐T and MacCAT‐CR for monoclonal anti–beta‐amyloid antibodies: A Delphi study Open
Introduction Assessing capacity to consent to treatment and participation in clinical research with monoclonal anti–beta‐amyloid antibodies is critical, especially given the frequent uncertainty in the eligible population. Capacity tends t…
View article: Acceptability, Appropriateness and Feasibility of a Psychoeducation Tool About Dementia Grief
Acceptability, Appropriateness and Feasibility of a Psychoeducation Tool About Dementia Grief Open
Background: Caregivers of people with dementia experience grief not only after, but also before the death of the care recipient. This is called dementia grief and can be defined as caregivers’ emotional responses to non-death losses during…
View article: Facing the new diagnostic and treatment options of Alzheimer's disease: The necessity of informed consent
Facing the new diagnostic and treatment options of Alzheimer's disease: The necessity of informed consent Open
With advances in biomarker‐based detection of Alzheimer's disease (AD) and new treatment options with disease‐modifying treatments (DMTs), we are heading toward a new conceptualization of diagnostics and therapy in the early stages of AD. …
View article: ADAPTING THE MEANING OF HOME QUESTIONNAIRE FOR PEOPLE WITH DEMENTIA
ADAPTING THE MEANING OF HOME QUESTIONNAIRE FOR PEOPLE WITH DEMENTIA Open
Most people with dementia prefer to remain in their homes for as long as possible, despite facing various challenges in daily life due to cognitive decline. They generally decide against relocating to a nursing home, underscoring the signi…
View article: Do Mental Health Professionals Recognize Dementia Grief?
Do Mental Health Professionals Recognize Dementia Grief? Open
Dementia grief can be challenging to detect because it is often disenfranchised. This study examined whether mental health professionals detect or overlook dementia grief. An online survey presented health professionals with a case vignett…
View article: The psychological effects of research participation on people with dementia: findings from a German exploratory interview study
The psychological effects of research participation on people with dementia: findings from a German exploratory interview study Open
The German National Dementia Strategy aims to engage people with dementia in research projects. However, the effects of such research participation on experience and behavior have been insufficiently explored. This study aimed to investiga…
View article: Adapting Dementia Care Management to a Regional German Context: Assessment of Changes in Acceptability, Appropriateness, and Feasibility
Adapting Dementia Care Management to a Regional German Context: Assessment of Changes in Acceptability, Appropriateness, and Feasibility Open
Dementia care management, an evidence-based care concept in Germany, optimizes care for people with dementia and their caregivers. Implemented by qualified professionals, it comprises intervention modules addressing treatment and care, med…
View article: Implementing Dementia Care Management into routine care: protocol for a cohort study in Siegen-Wittgenstein, Germany (RoutineDeCM)
Implementing Dementia Care Management into routine care: protocol for a cohort study in Siegen-Wittgenstein, Germany (RoutineDeCM) Open
Introduction Dementia Care Management is an evidence-based model of care. It has proven its efficacy and cost-effectiveness and has been applied to different settings and different target groups. However, it is not available in routine car…
View article: P113: Psychosocial interventions for dementia grief- a systematic review
P113: Psychosocial interventions for dementia grief- a systematic review Open
Objective: Dementia grief can be described as a caregiver’s anticipatory grief experience due to losses occurring before the care recipient’s physical death. Among other things, these losses can include loss of memory, intimacy, communicat…
View article: The German S2k guideline: Informed consent of people with dementia to medical treatment
The German S2k guideline: Informed consent of people with dementia to medical treatment Open
Due to demographic change, the medical care system will be confronted with a growing number of people with dementia (PwD). PwD are usually multimorbid, frequently suffer from other diseases in addition to dementia and are therefore regular…
View article: Implementation of dementia care management in routine care (RoutineDeCM): a study protocol for process evaluation
Implementation of dementia care management in routine care (RoutineDeCM): a study protocol for process evaluation Open
Introduction Dementia care management is a complex intervention intended to support persons with dementia and their (caring) relatives in home-based care arrangements. Dementia care management was developed in the federal state of Mecklenb…
View article: Project DECIDE, part II: decision-making places for people with dementia in Alzheimer’s disease: supporting advance decision-making by improving person-environment fit
Project DECIDE, part II: decision-making places for people with dementia in Alzheimer’s disease: supporting advance decision-making by improving person-environment fit Open
Background The UN Convention on the Rights of Persons with Disabilities, and the reformed guardianship law in Germany, require that persons with a disability, including people with dementia in Alzheimer’s disease (PwAD), are supported in m…
View article: The Role of Different Aspects of Communication Behavior in the Assessment of Capacity to Consent
The Role of Different Aspects of Communication Behavior in the Assessment of Capacity to Consent Open
Any medical treatment that interferes with physical integrity requires the informed consent of a patient capable of such consent. For people with dementia, the capacity to consent is questioned even in the early course of the disease. Part…
View article: Reducing Dementia Grief Through Psychosocial Interventions
Reducing Dementia Grief Through Psychosocial Interventions Open
This review assessed the existing dementia grief interventions for caregivers of persons with dementia (PwD) prior to physical death from September 2016 to September 2021. Electronic databases Web of Science (SSCI), PsycArticles, Psycholog…
View article: Adapting a Dementia Care Management Intervention for Regional Implementation: A Theory-Based Participatory Barrier Analysis
Adapting a Dementia Care Management Intervention for Regional Implementation: A Theory-Based Participatory Barrier Analysis Open
Dementia is a leading cause of disability and dependency in older people worldwide. As the number of people affected increases, so does the need for innovative care models. Dementia care management (DCM) is an empirically validated approac…
View article: Supported Decision-Making in Persons With Dementia: Development of an Enhanced Consent Procedure for Lumbar Puncture
Supported Decision-Making in Persons With Dementia: Development of an Enhanced Consent Procedure for Lumbar Puncture Open
The right to make autonomous decisions is enshrined in law. However, the question how persons with cognitive deficits can be enabled to make autonomous decisions has not been satisfactorily addressed. In particular, the concept of supporte…
View article: Person-environment fit of environmental support provided during medical consultations with older patients
Person-environment fit of environmental support provided during medical consultations with older patients Open
As some cognitive functions decline in old age, the ability to decide about important life events such as medical treatment is endangered. Environmental support to improve the comprehension of health-related information is therefore necess…
View article: How do dementia researchers view support tools for informed consent procedures of persons with dementia?
How do dementia researchers view support tools for informed consent procedures of persons with dementia? Open
The study aimed to assess how dementia researchers view eight support tools that have been defined to enhance informed consent (IC) procedures for people with dementia (PwD). In an online survey, 19 dementia researchers from Germany and Po…
View article: ENSURE PROJECT: SUPPORTED DECISION-MAKING AND CAPACITY ASSESSMENT IN CLINICAL DEMENTIA RESEARCH
ENSURE PROJECT: SUPPORTED DECISION-MAKING AND CAPACITY ASSESSMENT IN CLINICAL DEMENTIA RESEARCH Open
This talk opens the symposium “Enhancing the Informed Consent Process in Clinical Dementia Research” and gives an overview of the project “Enhancing the Informed Consent Process: Supported decision-making and capacity assessment in clinica…
View article: ENHANCING THE INFORMED CONSENT PROCESS IN CLINICAL DEMENTIA RESEARCH
ENHANCING THE INFORMED CONSENT PROCESS IN CLINICAL DEMENTIA RESEARCH Open
The high number of people suffering from dementia will significantly increase in European countries and elsewhere in the coming decades. No treatments are currently available that can reverse or even halt the neurodegenerative process, and…
View article: Assessing capacity to consent to treatment with cholinesterase inhibitors in dementia using a specific and standardized version of the MacArthur Competence Assessment Tool (MacCAT-T)
Assessing capacity to consent to treatment with cholinesterase inhibitors in dementia using a specific and standardized version of the MacArthur Competence Assessment Tool (MacCAT-T) Open
The standardized real informed consent paradigm enabled us to detect dementia-specific characteristics of patients' capacity to consent to treatment with cholinesterase inhibitors. In order to determine suitable enhanced consent procedures…