Julia G. Harris
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View article: A Canadian Advanced Physiotherapist Practitioner Shared-Care Model in Pediatric Rheumatology Offers Safe and Quality Care in the Management of Juvenile Idiopathic Arthritis—Comparing Key Performance Indicators with the PR-COIN Registry
A Canadian Advanced Physiotherapist Practitioner Shared-Care Model in Pediatric Rheumatology Offers Safe and Quality Care in the Management of Juvenile Idiopathic Arthritis—Comparing Key Performance Indicators with the PR-COIN Registry Open
Background/Objectives: Canadian Advanced Physiotherapist Practitioner (APP) roles have existed for over 25 years in pediatric rheumatology. The APP can manage many common pediatric rheumatic conditions most often in Shared-Care Models (SCM…
View article: American College of Rheumatology Guidance Statements for Addressing Mental Health Concerns in Youth With Pediatric Rheumatologic Diseases
American College of Rheumatology Guidance Statements for Addressing Mental Health Concerns in Youth With Pediatric Rheumatologic Diseases Open
Objective Pediatric rheumatologic diseases (PRDs) are characterized by high rates of anxiety and depression known to impact health‐related outcomes. We present guidance statements to assess and manage mental health concerns for youth with …
View article: Achieving reliable patient reported outcomes collection to measure health care improvement in a learning health network: lessons from pediatric rheumatology care and outcomes improvement network
Achieving reliable patient reported outcomes collection to measure health care improvement in a learning health network: lessons from pediatric rheumatology care and outcomes improvement network Open
Introduction Data from the Pediatric Rheumatology Care and Outcomes Improvement Network (PR-COIN) registry suggests that reliable collection of patient-reported outcomes (PROs) varies across sites. The objective of this study was to better…
View article: Key data elements for a successful pediatric rheumatology virtual visit: a survey within the PR-COIN network
Key data elements for a successful pediatric rheumatology virtual visit: a survey within the PR-COIN network Open
Introduction Juvenile idiopathic arthritis (JIA) is the most common childhood rheumatic disease which is commonly monitored by a combination of history, physical examination, bloodwork, and imaging. The COVID-19 pandemic prompted a rapid s…
View article: Using a collaborative learning health system approach to improve disease activity outcomes in children with juvenile idiopathic arthritis in the Pediatric Rheumatology Care and Outcomes Improvement Network
Using a collaborative learning health system approach to improve disease activity outcomes in children with juvenile idiopathic arthritis in the Pediatric Rheumatology Care and Outcomes Improvement Network Open
Introduction The Pediatric Rheumatology Care and Outcomes Improvement Network (PR-COIN) is a North American learning health network focused on improving outcomes of children with juvenile idiopathic arthritis (JIA). JIA is a chronic autoim…
View article: Assessing disparities through missing race and ethnicity data: results from a juvenile arthritis registry
Assessing disparities through missing race and ethnicity data: results from a juvenile arthritis registry Open
Introduction Ensuring high-quality race and ethnicity data within the electronic health record (EHR) and across linked systems, such as patient registries, is necessary to achieving the goal of inclusion of racial and ethnic minorities in …
View article: Improving Pneumococcal Vaccination Rates in Immunosuppressed Pediatric Patients with Rheumatic Disease
Improving Pneumococcal Vaccination Rates in Immunosuppressed Pediatric Patients with Rheumatic Disease Open
Background: Patients with rheumatic diseases are at a high risk of invasive pneumococcal disease due to immunosuppression. We conducted a quality improvement project, and the first aim was to increase the percentage of patients with system…
View article: 1305 Implementing a treat to target strategy for lupus in the pediatric rheumatology clinic: baseline implementation assessment
1305 Implementing a treat to target strategy for lupus in the pediatric rheumatology clinic: baseline implementation assessment Open
Background/Purpose Achievement of a lupus low disease activity state (LLDAS) has been associated with less organ damage, fewer disease flares, and improved health-related quality of life in children with systemic lupus erythematosus (cSLE)…
View article: First-line options for systemic juvenile idiopathic arthritis treatment: an observational study of Childhood Arthritis and Rheumatology Research Alliance Consensus Treatment Plans
First-line options for systemic juvenile idiopathic arthritis treatment: an observational study of Childhood Arthritis and Rheumatology Research Alliance Consensus Treatment Plans Open
Background The Childhood Arthritis and Rheumatology Research Alliance (CARRA) developed consensus treatment plans (CTPs) to compare treatment initiation strategies for systemic juvenile idiopathic arthritis (sJIA). First-line options for s…
View article: Improving Pneumococcal Vaccination Rates in High-risk Children in Specialty Clinics
Improving Pneumococcal Vaccination Rates in High-risk Children in Specialty Clinics Open
BACKGROUND AND OBJECTIVES Pediatric patients with immunocompromising or certain chronic medical conditions have an increased risk of acquiring invasive pneumococcal disease (IPD). The 23-valent pneumococcal polysaccharide vaccine (PPSV23) …
View article: Multicenter Study of Utility and Acceptability of Depression and Anxiety Screening in Adolescents and Young Adults With <scp>Childhood‐Onset</scp> Systemic Lupus
Multicenter Study of Utility and Acceptability of Depression and Anxiety Screening in Adolescents and Young Adults With <span>Childhood‐Onset</span> Systemic Lupus Open
Objective To determine the utility and acceptability for depression and anxiety screening of adolescents and young adults (AYA) with childhood‐onset systemic lupus erythematosus (cSLE) in the pediatric rheumatology setting. Methods AYA wit…
View article: Improving Pneumococcal Vaccination Rates in Rheumatology Clinics
Improving Pneumococcal Vaccination Rates in Rheumatology Clinics Open
Rheumatology patients on immunosuppression are at increased risk of invasive pneumococcal disease. There is a multitude of literature highlighting the risk of pneumococcal infection, hospitalization, and even death in patients with systemi…
View article: Exploring Pediatric Tele-Rheumatology Practices During COVID-19: A Survey of the PRCOIN Network
Exploring Pediatric Tele-Rheumatology Practices During COVID-19: A Survey of the PRCOIN Network Open
Healthcare providers were rapidly forced to modify the way they practiced medicine during the coronavirus disease 2019 (COVID-19) pandemic. Many providers transitioned from seeing their patients in person to virtually using telemedicine pl…
View article: Scurvy presenting with limp and weakness: a case report
Scurvy presenting with limp and weakness: a case report Open
Despite being developmentally appropriate, our patient's refusal to eat fruits or vegetables had limited her diet, emphasizing the importance of obtaining a diet history in a child presenting with an unknown diagnosis. In addition, our pat…
View article: 92 Engaging patients and parents to improve mental health for youth with systemic lupus erythematosus
92 Engaging patients and parents to improve mental health for youth with systemic lupus erythematosus Open
Background Mental health conditions are common in youth with systemic lupus erythematosus (SLE), yet intervention strategies are understudied. We used a patient-engaged approach to investigate the mental health needs of youth with SLE. Met…
View article: Establishing an Updated Core Domain Set for Studies in Juvenile Idiopathic Arthritis: A Report from the OMERACT 2018 JIA Workshop
Establishing an Updated Core Domain Set for Studies in Juvenile Idiopathic Arthritis: A Report from the OMERACT 2018 JIA Workshop Open
Objective. The current Juvenile Idiopathic Arthritis (JIA) Core Set used in randomized controlled trials (RCT) and longitudinal observational studies (LOS) was developed without the input of patients/parents. At the Outcome Measures in Rhe…
View article: Barriers to Adherence in Juvenile Idiopathic Arthritis: A Multicenter Collaborative Experience and Preliminary Results
Barriers to Adherence in Juvenile Idiopathic Arthritis: A Multicenter Collaborative Experience and Preliminary Results Open
Objective. Nonadherence is currently an underrecognized and potentially modifiable obstacle to care in juvenile idiopathic arthritis (JIA). The purpose of our study was to design and implement a standardized approach to identifying adheren…
View article: Evidence for Updating the Core Domain Set of Outcome Measures for Juvenile Idiopathic Arthritis: Report from a Special Interest Group at OMERACT 2016
Evidence for Updating the Core Domain Set of Outcome Measures for Juvenile Idiopathic Arthritis: Report from a Special Interest Group at OMERACT 2016 Open
Objective. The current Juvenile Idiopathic Arthritis (JIA) Core Set was developed in 1997 to identify the outcome measures to be used in JIA clinical trials using statistical and consensus-based techniques, but without patient involvement.…
View article: Improving care delivery and outcomes in pediatric rheumatic diseases
Improving care delivery and outcomes in pediatric rheumatic diseases Open
http://links.lww.com/COR/A28.
View article: Initial Benchmarking of the Quality of Medical Care in Childhood‐Onset Systemic Lupus Erythematosus
Initial Benchmarking of the Quality of Medical Care in Childhood‐Onset Systemic Lupus Erythematosus Open
Objective To assess the quality of medical care in childhood‐onset systemic lupus erythematosus (SLE) at tertiary pediatric rheumatology centers as measured by observance of SLE quality indicators (SLE‐QIs). Methods International consensus…