Karen Spilsbury
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View article: English general practice in a period of change
English general practice in a period of change Open
Background The covid-19 pandemic prompted widespread use of remote (telephone and online) communication in general practice in England which exacerbated long-term pressures from staffing shortages. The public perceived problems with access…
View article: Piloting a minimum data set (MDS) in english care homes: a qualitative study of professional perspectives on implementation and data use
Piloting a minimum data set (MDS) in english care homes: a qualitative study of professional perspectives on implementation and data use Open
Background Digitalisation within English care homes offers potential to make more effective use of substantial data collected by staff during care planning and recording. A pilot minimum data set was co-designed with stakeholders based on …
View article: Strategies to support safe wandering in care homes for older adults – what works, for whom, and in which circumstances?: A realist synthesis
Strategies to support safe wandering in care homes for older adults – what works, for whom, and in which circumstances?: A realist synthesis Open
Objectives Wandering is a common behaviour among people with dementia living in care homes, driven by various factors such as enjoyment, a sense of purpose, lifelong habits, and social interaction. These elements can bring both physical an…
View article: Experiences of care home staff in the delivery of heart failure care: a grounded theory
Experiences of care home staff in the delivery of heart failure care: a grounded theory Open
Background Heart failure is a complex syndrome affecting 64 million people globally, with an average patient age of 76 years. Management challenges include medication titration difficulties and patient self-management issues. Care homes, h…
View article: Technology-enabled CONTACT tracing in care homes in the COVID-19 pandemic: the CONTACT non-randomised mixed-methods feasibility study
Technology-enabled CONTACT tracing in care homes in the COVID-19 pandemic: the CONTACT non-randomised mixed-methods feasibility study Open
Background Coronavirus disease 2019 devastated lives in care homes for older people, where residents faced higher mortality risks than the general population. Infection prevention and control decisions were critical to protect these vulner…
View article: Routine data collection in home care: a national survey of home care providers in England
Routine data collection in home care: a national survey of home care providers in England Open
Purpose Mandatory digital social care records and a standardised schedule for collecting information on home care clients are proposed for regulated adult social care providers in England. This could facilitate the introduction of a minimu…
View article: Construct validity of measures of care home resident quality of life: cross-sectional analysis using data from a pilot minimum data set in England
Construct validity of measures of care home resident quality of life: cross-sectional analysis using data from a pilot minimum data set in England Open
Background To maintain good standards of care, evaluations of policy interventions or potential improvements to care are required. A number of quality of life (QoL) measures could be used but there is little evidence for England as to whic…
View article: Organising general practice for care homes: a multi-method study
Organising general practice for care homes: a multi-method study Open
Background General practice provides first-line National Health Service care for around 400,000 care home residents. Good primary care can enhance residents’ health and well-being and optimise use of hospital services. Objectives This stud…
View article: CONTACT: a non-randomised feasibility study of bluetooth-enabled wearables for contact tracing in UK care homes during the COVID-19 pandemic
CONTACT: a non-randomised feasibility study of bluetooth-enabled wearables for contact tracing in UK care homes during the COVID-19 pandemic Open
This article consists of a citation of a published article describing research funded by the Health Technology Assessment programme under project number NIHR132197, and is provided as as part of the complete record of research outputs for …
View article: “There is always a reason why someone is doing something”: The importance of life history and personhood when supporting people with dementia to “wander” in care homes
“There is always a reason why someone is doing something”: The importance of life history and personhood when supporting people with dementia to “wander” in care homes Open
Up to 60% of people living with dementia who reside in care homes will ‘wander’ at some point. A person-centred approach should be taken to support each person’s individual needs through tailored interventions when wandering. This study ai…
View article: Public Involvement to Enhance Care Home Research; Collaboration on a Minimum Data Set for Care Homes
Public Involvement to Enhance Care Home Research; Collaboration on a Minimum Data Set for Care Homes Open
Introduction Information on care home residents in England is captured in numerous data sets (care home records, General Practitioner records, community nursing, etc.) but little of this information is currently analysed in a way that is u…
View article: Piloting a minimum data set for older people living in care homes in England: a developmental study
Piloting a minimum data set for older people living in care homes in England: a developmental study Open
Background We developed a prototype minimum data set (MDS) for English care homes, assessing feasibility of extracting data directly from digital care records (DCRs) with linkage to health and social care data. Methods Through stakeholder …
View article: Assessing the feasibility of measuring residents’ quality of life in English care homes and the construct validity and internal consistency of measures completed by staff proxy: a cross-sectional study
Assessing the feasibility of measuring residents’ quality of life in English care homes and the construct validity and internal consistency of measures completed by staff proxy: a cross-sectional study Open
Objectives To assess the feasibility of capturing older care home residents’ quality of life (QoL) in digital social care records and the construct validity (hypothesis testing) and internal consistency (Cronbach’s alpha) of four QoL measu…
View article: DESCRIBING HOW ADAPTIVE LEADERSHIP IN LONG-TERM CARE CAN MOTIVATE AND PREPARE CARE WORKERS TO PROMOTE QUALITY
DESCRIBING HOW ADAPTIVE LEADERSHIP IN LONG-TERM CARE CAN MOTIVATE AND PREPARE CARE WORKERS TO PROMOTE QUALITY Open
Adaptive leadership is one approach to enhance the experience of people living and working in long-term care (LTC) residential environments. Adaptive leadership is comprised of a set of strategies aimed at enabling care teams to work toget…
View article: THE OPPORTUNITIES AND CHALLENGES OF CONDUCTING OBSERVATIONAL RESEARCH IN LONG-TERM RESIDENTIAL CARE ENVIRONMENTS
THE OPPORTUNITIES AND CHALLENGES OF CONDUCTING OBSERVATIONAL RESEARCH IN LONG-TERM RESIDENTIAL CARE ENVIRONMENTS Open
Observational research has potential to offer new insights when addressing questions that matter for older people living in long term residential care settings (or care homes); moving beyond what people “say they do” to offer data of what …
View article: RESHAPING LONG-TERM CARE SYSTEM INTO A SUSTAINABLE AND HIGH-QUALITY HEALTHCARE FIELD GLOBALLY: IT IS POSSIBLE!
RESHAPING LONG-TERM CARE SYSTEM INTO A SUSTAINABLE AND HIGH-QUALITY HEALTHCARE FIELD GLOBALLY: IT IS POSSIBLE! Open
Years of investigation have revealed that despite compelling evidence, long-term care (LTC) home policies and procedures remain resistant to change. Globally, LTC homes grapple with subpar labor conditions stemming from structural and inst…
View article: ACADEMIC–PRACTICE PARTNERSHIPS IN NURSING HOMES: INTERNATIONAL EXPERIENCES, PROCESSES, AND OUTCOMES
ACADEMIC–PRACTICE PARTNERSHIPS IN NURSING HOMES: INTERNATIONAL EXPERIENCES, PROCESSES, AND OUTCOMES Open
The Academic-Practice Partnership model is increasingly gaining attention as a feasible approach to grow the geriatric workforce, generate meaningful research, and integrate evidence-based, person centered care into nursing home operations…
View article: OPTIMIZING STAFF RECRUITMENT AND RETENTION IN CARE HOMES: WHAT WORKS? THE REACH REALIST REVIEW
OPTIMIZING STAFF RECRUITMENT AND RETENTION IN CARE HOMES: WHAT WORKS? THE REACH REALIST REVIEW Open
Solutions for sustaining the social care workforce need to a) consider the different factors which influence staff experiences, b) recognize the nuances between different care settings, and c) differentiate between staff groups (e.g. age, …
View article: National stakeholder consultation on how to measure care home residents’ quality of life
National stakeholder consultation on how to measure care home residents’ quality of life Open
Background The Developing research resources And minimum data set for Care Homes’ Adoption and use or DACHA study aims to create a prototype minimum data set combining residents’ information recorded by care homes with their data held in h…
View article: Determining the Key Education Priorities Related to Heart Failure Care in Nursing Homes: A Modified Delphi Approach
Determining the Key Education Priorities Related to Heart Failure Care in Nursing Homes: A Modified Delphi Approach Open
There is currently a limited understanding of what nurses in nursing homes view as the key education priorities to support their ability to provide the appropriate care for residents with heart failure (HF). A modified Delphi technique was…
View article: Using Palliative Care Needs Rounds in the UK for care home staff and residents: an implementation science study
Using Palliative Care Needs Rounds in the UK for care home staff and residents: an implementation science study Open
Background Care home residents often lack access to end-of-life care from specialist palliative care providers. Palliative Care Needs Rounds, developed and tested in Australia, is a novel approach to addressing this. Objective To co-design…
View article: Application and content of minimum data sets for care homes: A mapping review
Application and content of minimum data sets for care homes: A mapping review Open
Background Care home residents have complex needs, and minimum data sets (MDSs) provide a unique source of information on their health and wellbeing. Although MDSs were first developed to monitor quality and costs of care, they can make an…
View article: Piloting a Minimum Data Set (MDS) in English care homes: a qualitative study of professional perspectives on implementation and data use
Piloting a Minimum Data Set (MDS) in English care homes: a qualitative study of professional perspectives on implementation and data use Open
Background digitalisation within English care homes offers potential to make more effective use of substantial data collected by staff during care planning and recording. A pilot minimum data set (MDS) was co-designed with stakeholders bas…
View article: Public involvement to enhance care home research; collaboration on a minimum data set for care homes
Public involvement to enhance care home research; collaboration on a minimum data set for care homes Open
Introduction Information on care home residents is captured in lots of datasets (care home records, GP records, community nursing etc) but little of this information is currently analysed in a way that is useful for care providers, current…
View article: Routine data collection in home care: A national survey of home care providers in England
Routine data collection in home care: A national survey of home care providers in England Open
Purpose Mandatory digital social care records and a standardised schedule for collecting information on home care clients are proposed for regulated adult social care providers in England. This is akin to a minimum dataset (MDS). This stud…
View article: Piloting a minimum data set for older people living in care homes in England: a developmental study
Piloting a minimum data set for older people living in care homes in England: a developmental study Open
Background We developed a prototype minimum data set (MDS) for English care homes, assessing feasibility of extracting data directly from digital care records (DCRs) with linkage to health and social care data. Methods Through stakeholder …
View article: Factors associated with care home resident quality of life: Demonstrating the value of a pilot Minimum Data Set using cross-sectional analysis from the DACHA study
Factors associated with care home resident quality of life: Demonstrating the value of a pilot Minimum Data Set using cross-sectional analysis from the DACHA study Open
Background To maintain good standards of care, evaluations of policy interventions or potential improvements to care are required. A number of quality of life (QoL) measures could be used but there is little evidence for England as to whic…