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View article: Understanding and using experiences of social care to guide service improvements: translating a co-design approach from health to social care
Understanding and using experiences of social care to guide service improvements: translating a co-design approach from health to social care Open
Sara Ryan, Jane Maddison, Kate Baxter, Mark Wilberforce, Yvonne Birks , et al. · 2024
Background Local authorities need to find new ways of collecting and using data on social care users’ experiences to improve service design and quality. Here we draw on and adapt an approach used in the healthcare improvement field, accele…
View article: How do quantitative studies involving people with dementia report experiences of standardised data collection? A narrative synthesis of NIHR published studies
How do quantitative studies involving people with dementia report experiences of standardised data collection? A narrative synthesis of NIHR published studies Open
Kate Gridley, Kate Baxter, Yvonne Birks · 2024
Background People with dementia are routinely included as research participants in trials and other quantitative studies in which they are invited to respond to standardised measures. This paper reviews the reporting of standardised data c…
View article: Long-term impact of the COVID-19 pandemic on the quality of life of people with dementia and their family carers
Long-term impact of the COVID-19 pandemic on the quality of life of people with dementia and their family carers Open
Sanna Read, Ben Hicks, Emily Budden, Jacob Douglass, Amanda Grahamslaw , et al. · 2024
Introduction Few studies have longitudinally mapped quality of life (QoL) trajectories of newly diagnosed people with dementia and their carers, particularly during coronavirus disease-2019 (COVID-19). Methods In a UK cohort study, 261 new…
View article: A Discrete Choice Experiment of Older Self-Funders’ Preferences When Navigating Community Social Care
A Discrete Choice Experiment of Older Self-Funders’ Preferences When Navigating Community Social Care Open
Rowan Jasper, Stuart Wright, Stephen Rogers, Sarah Tonks, Richard Morfitt , et al. · 2023
Most long-term care systems (social care) for older people rely on some means testing, copayment system, private insurance, or other non-governmental funding to supplement state provision. In England, an estimated quarter of homecare deliv…
View article: The role of uncertainty in planning for self-funded social care for older people with a diagnosis of dementia
The role of uncertainty in planning for self-funded social care for older people with a diagnosis of dementia Open
Kate Baxter, Kate Gridley, Yvonne Birks · 2023
This paper considers how a diagnosis of dementia affects people's planning for future social care needs and associated costs. It addresses the gap in knowledge about how people recently diagnosed with dementia, and their family carers, eng…
View article: Standardised data collection from people with dementia over the telephone: A qualitative study of the experience of DETERMIND programme researchers in a pandemic
Standardised data collection from people with dementia over the telephone: A qualitative study of the experience of DETERMIND programme researchers in a pandemic Open
Kate Gridley, Josie Dixon, Ben Hicks, Yvonne Birks, Kate Baxter , et al. · 2023
There is a notable lack of evidence on what constitutes good practice in remote quantitative data collection from research participants with dementia. During the COVID-19 pandemic face-to-face research became problematic, especially where …
View article: Using digital technologies to facilitate social inclusion during the COVID‐19 pandemic: Experiences of co‐resident and non‐co‐resident family carers of people with dementia from DETERMIND‐C19
Using digital technologies to facilitate social inclusion during the COVID‐19 pandemic: Experiences of co‐resident and non‐co‐resident family carers of people with dementia from DETERMIND‐C19 Open
Ben Hicks, Kate Gridley, Josie Dixon, Kate Baxter, Yvonne Birks , et al. · 2023
Background The COVID‐19 pandemic triggered rapid and unprecedented changes in the use of digital technologies to support people's social inclusion. We examined whether and how co‐resident and non‐co‐resident family carers of people with de…
View article: ‘Pushing back’: People newly diagnosed with dementia and their experiences of the Covid‐19 pandemic restrictions in England
‘Pushing back’: People newly diagnosed with dementia and their experiences of the Covid‐19 pandemic restrictions in England Open
Josie Dixon, Ben Hicks, Kate Gridley, Rotem Perach, Kate Baxter , et al. · 2022
Background and Objectives Research into people with dementia's experiences of the Covid‐19 pandemic has tended to focus on vulnerabilities and negative outcomes, with the risk of reproducing a discourse in which people with dementia are po…
View article: Social care causes of delayed transfer of care (<scp>DTOC</scp>) from hospital for older people: Unpicking the nuances of ‘provider capacity’ and ‘patient choice’
Social care causes of delayed transfer of care (<span>DTOC</span>) from hospital for older people: Unpicking the nuances of ‘provider capacity’ and ‘patient choice’ Open
Kate Gridley, Kate Baxter, Yvonne Birks, Louise Newbould, Stephen Allan , et al. · 2022
Unnecessarily prolonged stays in hospitals can have negative impacts on patients and present avoidable costs to health and social care systems. This paper presents the qualitative findings of a multi-methods study of the social care causes…
View article: Care chronicles: needing, seeking and getting self-funded social care as biographical disruptions among older people and their families
Care chronicles: needing, seeking and getting self-funded social care as biographical disruptions among older people and their families Open
Emily Heavey, Kate Baxter, Yvonne Birks · 2022
Social care to assist with the activities of daily living is a necessity for many older people; while informal care provided by family members can be a first step to meeting care needs, formal care provided by professionals is often needed…
View article: How local partnerships to improve urgent and emergency care have impacted delayed transfers of care from hospitals in England: an analysis based on a synthetic control estimation method
How local partnerships to improve urgent and emergency care have impacted delayed transfers of care from hospitals in England: an analysis based on a synthetic control estimation method Open
Gintarė Mališauskaitė, Karen Jones, Stephen Allan, Daniel Roland, Yvonne Birks , et al. · 2022
Objectives Patients should be discharged from hospital when they are medically fit. However, discharges are often delayed for non-medical reasons including access to social care. One aim of local health and social care partnerships to impr…
View article: A cohort study of the impact of COVID‐19 on the quality of life of people newly diagnosed with dementia and their family carers
A cohort study of the impact of COVID‐19 on the quality of life of people newly diagnosed with dementia and their family carers Open
Ben Hicks, Sanna Read, Bo Hu, Raphael Wittenberg, Amanda Grahamslaw , et al. · 2022
Introduction COVID‐19 has impacted people with dementia and their family carers, yet little is known about effects on overall quality of life. Methods In a UK cohort study, pre‐ and post‐pandemic data were collected from 114 carers and 93 …
View article: The influence of home care supply on delayed discharges from hospital in England
The influence of home care supply on delayed discharges from hospital in England Open
Stephen Allan, Daniel Roland, Gintarė Mališauskaitė, Karen Jones, Kate Baxter , et al. · 2021
View article: A Scoping Review of Evidence on the Use and Effectiveness of Decision Aids in Adult Social Care
A Scoping Review of Evidence on the Use and Effectiveness of Decision Aids in Adult Social Care Open
Kate Baxter, Rachel Mann, Yvonne Birks, Louise Overton · 2021
Context: Social care-related decisions can be complex but despite their widespread use in health care to help patients make similarly complex decisions, the use of decision aids in social care is not well examined.
View article: Impact of Urgent and Emergency Care Vanguards on Delayed Transfers of Care in England
Impact of Urgent and Emergency Care Vanguards on Delayed Transfers of Care in England Open
Gintarė Mališauskaitė, Karen Jones, Stephen Allan, Daniel Roland, Yvonne Birks , et al. · 2020
Objectives: To assess the relationship between Urgent and Emergency Care (UEC) Vanguards, which include as an aim the integration of healthcare and social care sectors, and Delayed Transfers of Care (DTOC) at Local Authority level in Engla…
View article: Addressing Freshmen Retention Through Focused Advisement And Seminar Programs
Addressing Freshmen Retention Through Focused Advisement And Seminar Programs Open
Kate Baxter, Louise G. Yates · 2020
NOTE: The first page of text has been automatically extracted and included below in lieu of an abstract Addressing Freshmen Retention through Focused Advisement and Seminar Programs Kate Baxter, Louise Yates University of Southern Californ…
View article: Impact of Urgent and Emergency Care Vanguards on Delayed Transfers of Care in England
Impact of Urgent and Emergency Care Vanguards on Delayed Transfers of Care in England Open
Gintarė Mališauskaitė, Karen Jones, Stephen Allan, Daniel Roland, Yvonne Birks , et al. · 2020
Objectives: To assess the relationship between Urgent and Emergency Care (UEC) Vanguards, which include as an aim the integration of healthcare and social care sectors, and Delayed Transfers of Care (DTOC) at Local Authority level in Engla…
View article: Evaluation of the Integrated Personal Commissioning (IPC) Programme : Final evaluation report
Evaluation of the Integrated Personal Commissioning (IPC) Programme : Final evaluation report Open
Graham Thom, Maya Agur, Sarah Brown, Kate Davies, Sara Bakri , et al. · 2020
View article: DETERMinants of quality of life, care and costs, and consequences of INequalities in people with Dementia and their carers (DETERMIND): A protocol paper
DETERMinants of quality of life, care and costs, and consequences of INequalities in people with Dementia and their carers (DETERMIND): A protocol paper Open
Nicolas Farina, Ben Hicks, Kate Baxter, Yvonne Birks, Carol Brayne , et al. · 2019
Objectives DETERMIND (DETERMinants of quality of life, care and costs, and consequences of INequalities in people with Dementia and their carers) is designed to address fundamental, and, as yet unanswered questions about inequalities, outc…
View article: Choice and control in social care: Experiences of older self‐funders in England
Choice and control in social care: Experiences of older self‐funders in England Open
Kate Baxter, Emily Heavey, Yvonne Birks · 2019
This paper considers the experiences of older self‐funders in England in the context of policies promoting choice and control. Self‐funders are people who are not state‐funded; they pay for social care from their own resources. Choice and …
View article: Safeguarding and personal budgets: the experiences of adults at risk
Safeguarding and personal budgets: the experiences of adults at risk Open
Fiona Aspinal, Martin Stevens, Jill Manthorpe, John Woolham, Kritika Samsi , et al. · 2019
Purpose The purpose of this paper is to present findings from one element of a study exploring the relationship between personalisation, in the form of personal budgets (PBs) for publicly funded social care and safeguarding. Design/methodo…
View article: Financial advice for funding later life care: A scoping review of evidence from England
Financial advice for funding later life care: A scoping review of evidence from England Open
Emily Heavey, Kate Baxter, Yvonne Birks · 2019
Context: Ageing populations across the world make the provision of long-term care a global challenge. A growing number of people in England are faced with paying for later life social care costs, but do little to plan for …
View article: High Town Bag Research Report
High Town Bag Research Report Open
Barbara Czarnecka, Kate Baxter · 2018
This report provides a deeper understanding of the issues raised by residents in the local High Town community in Luton, Bedfordshire. Opinions of these issues build awareness and as a whole will assist in promotion of future improvement i…
View article: Do Personal Budgets Increase the Risk of Abuse? Evidence from English National Data
Do Personal Budgets Increase the Risk of Abuse? Evidence from English National Data Open
Mohamed Yusoff Ismail, Shereen Hussein, Martin Stevens, John Woolham, Jill Manthorpe , et al. · 2016
With the continued implementation of the personalisation policy, Personal Budgets (PBs) have moved to the mainstream in adult social care in England. The relationship between the policy goals of personalisation and safeguarding is contenti…
View article: Improving care for people with dementia: development and initial feasibility study for evaluation of life story work in dementia care
Improving care for people with dementia: development and initial feasibility study for evaluation of life story work in dementia care Open
Kate Gridley, Jenni Brooks, Yvonne Birks, Kate Baxter, Gillian Parker · 2016
Background Improving dementia care quality is an urgent priority nationally and internationally. Life story work (LSW) is an intervention that aims to improve individual outcomes and care for people with dementia and their carers. LSW gath…
View article: Implementing safeguarding and personalisation in social work: Findings from practice
Implementing safeguarding and personalisation in social work: Findings from practice Open
Martin Stevens, John Woolham, Jill Manthorpe, Fiona Aspinall, Shereen Hussein , et al. · 2016
Summary This paper reports on part of a research study carried out in three local authority adult social care departments in England, which explored links between adult safeguarding and personalisation. The study included statistical analy…
View article: Life Story Work in Dementia Care : Summary of findings
Life Story Work in Dementia Care : Summary of findings Open
Kate Gridley, Kate Baxter, Jenni Brooks, Yvonne Birks, Linda Cusworth , et al. · 2016
In 2012 the Social Policy Research Unit at the University of York launched the first study of its kind to investigate life story work from first principles. We asked:  What is life story work?  What is considered to be good practice in l…
View article: Vision rehabilitation services : what is the evidence? Final report.
Vision rehabilitation services : what is the evidence? Final report. Open
Parvaneh Rabiee, Gillian Mary Parker, Sylvia Bernard, Kate Baxter · 2015
Sight loss affects all aspects of well-being including daily functioning and mental health. Demographic trends suggest that the number of people with visual impairment is set to rise significantly, with many people experiencing an addition…
View article: Estimating the unit costs of vision rehabilitation services
Estimating the unit costs of vision rehabilitation services Open
Kate Baxter, Parvaneh Rabiee · 2015
Sight loss is a major health issue that impacts on all aspects of wellbeing including daily functioning and mental health. Vision rehabilitation services aim to help people learn how to live as independently as possible, to build confidenc…
View article: People who fund their own social care
People who fund their own social care Open
Kate Baxter, Caroline Glendinning · 2015
Very little is known about the many adults in England who purchase social care services and support using their own, private resources. However, rising eligibility thresholds for local authority-funded care combined with population ageing …




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